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Rachel--24

Omg...i Might Be On To Something

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Just wanted to share some good news with everyone. :P:) My Uncles have offered to pay for me to have a tutor 3 days a week to help me do work with online school. :D

There might be some days I can only meet with the tutor and then come home, and that's okay. :)

This is very good news Kassandra.

Baby steps is a really good approach too. You can start out slow, do what you can, and build upon that.

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Guest tamedandfoxed

THREE QUESTIONS

1) due to a pretty bad shoulder injury, I might have to have an MRI to see if i've torn something (yes, they will do an x-ray first, but it might be too deep to show up)--this may be naive, but i know that MRI machines are huge magnets... could it possibly effect the fillings on my teeth?? I don't want to unleash another problem while trying to solve one.

2) Related to the injury, I have been taking codeine lately so i can sleep, as the pain is large. Has anyone ever taken this drug while on the candida diet? yay or nay?

3) I have been told i have an Iron deficiency. I thought i saw somewhere that B-Complex feeds yeast and isn't good for us. Is this true? It is sort of impossible to find Iron without B-complex AND without sugars and starches... not to mention gluten-free!

Thanks all!

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Guest tamedandfoxed

THREE QUESTIONS

1) due to a pretty bad shoulder injury, I might have to have an MRI to see if i've torn something (yes, they will do an x-ray first, but it might be too deep to show up)--this may be naive, but i know that MRI machines are huge magnets... could it possibly effect the fillings on my teeth?? I don't want to unleash another problem while trying to solve one.

2) Related to the injury, I have been taking codeine lately so i can sleep, as the pain is large. Has anyone ever taken this drug while on the candida diet? yay or nay?

3) I have been told i have an Iron deficiency. I thought i saw somewhere that B-Complex feeds yeast and isn't good for us. Is this true? It is sort of impossible to find Iron without B-complex AND without sugars and starches... not to mention gluten-free! Also--does it matter if Vit C is in the complex?

Thanks all!

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But my digestion is really bad lately. I was wondering if you guys had any advice on things that are easier to digest. .. . i know people say raw foods

I couldn't eat raw foods at all! I needed my veggies overcooked for them to not upset my stomach.

I found whey protein with water and frozen fruit made into a smoothie to always go down easily.

Thought I was turning a corner, but had to cancel my massage appointment today cuz I just didn't feel like I could handle being on the table for an hour, and you all know how much I LOVE my massages. :( Stupid bugs!
Sorry Donna. :(

Carla,

It's med day. :)

Hope you've been having a fun weekend with Morgan. :D

OMGOSH! I totally forgot! LOL, thank you!

It was really fun with Morgan! I did FINE with the trip to Chicago, then the weekend with Morgan right afterward. We were busy morning till night, but I got 8-9 hours sleep per night on both trips, so I think that was key to staying healthy.

I feel fine .... like I've never been sick. It will be hard now to keep on top of the meds/herbs, but after my experience with the babesia coming back with cutting down on meds, I will work hard to stay on top of it .... yes, I say this after forgetting my Lariam, LOL.

Just wanted to share some good news with everyone. :P:) My Uncles have offered to pay for me to have a tutor 3 days a week to help me do work with online school. :D
I thought you already were in a program with a tutor several days per week, did that one fall through?

I'm glad you're uncles are coming through for you. :)

3) I have been told i have an Iron deficiency. I thought i saw somewhere that B-Complex feeds yeast and isn't good for us. Is this true? It is sort of impossible to find Iron without B-complex AND without sugars and starches... not to mention gluten-free!

Thanks all!

I use Blood Builder .... it's from whole foods, so is easy to digest. It also has folic acid, B12, and Vitamin C. If you Google Blood Builder (New Chapter brand), it will come up.

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3) I have been told i have an Iron deficiency. I thought i saw somewhere that B-Complex feeds yeast and isn't good for us. Is this true? It is sort of impossible to find Iron without B-complex AND without sugars and starches... not to mention gluten-free!

The best form of iron you can get is ferrous gluconate. It should be fine on a candida diet. You might not be able to just get it from a health food store. And, most brands are starch, gluten and sugar free. It is JUST iron...nothing else in it except maybe folic acid. (You need folic acid and vitamin C in order to absorb iron).

I thought you already were in a program with a tutor several days per week, did that one fall through?

I'm glad you're uncles are coming through for you. :)

\

It fell through. And, it was only going to be one day a week, for an hour. That's just simply not enough. :) I am VERY excited to be starting with this new schedule.

My uncle was joking he can get a school bell, so I know when to "go to my next class!" LOL! :lol: :lol: :P

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It fell through. And, it was only going to be one day a week, for an hour. That's just simply not enough. :) I am VERY excited to be starting with this new schedule.

No, that's not what I was thinking of .... you said something about another one who was several days per week, so you didn't see the once per week one .... something about a program you qualified for?

Well, I took my Lariam. :D Thank goodness you remembered Andrea! Next one is Friday.

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We'll hope you don't have a sever allergic reaction to anything anytime soon......or ever.... :wub:

Thanks, Andrea. :wub: :wub:

Birdy, I wish this for you too and I hope you don't have any more severe reactions.

I feel like if you could get your immune system to not be so over reactive to things, and calm it down, then maybe you could get to some of the other layers of your health issues.

Thank you. :wub: :wub: Yes, those are exactly my thoughts. I know lyme is a stressor... every time I flared (monthly) before I would become reactive to another food... but there's more. I'm hoping these things with the PST will answer a lot of questions, but I know metals are in there somewhere.

Oh, if only being sick were less complicated! :rolleyes::P

Anyway, just wanted to share my excitement with everyone! :)

That's wonderful Kassandra!!!! :D :D

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I agree...when I was really sick I didnt care about anything....nothing mattered at all. :(

I dont know if theres anything worse than just not caring but now I DO care....I care about the stuff I'm not able to do yet or anything I might be missing out on...or if my bills get paid...if I miss work..etc. Its all important to me and it feels good to care about it and to strive to improve my health so that I can do everything I want to do...and of course...eat whatever I want to eat! :D

When I saw Amy she had said that we're gonna find this missing piece and get me better...and I'll go on with my life. I felt a little bit sad...I think because this is such a huge part of my life now I dont really want to leave it ALL behind. Of course I wanna get better but I want to continue to learn and be involved somehow. :)

I am a little afraid because this is where I am, I don't care about anything right now. I know that isn't good for me at all to be thinking this way.

About you getting better and leaving it all behind Rachel, the obvious transition for you to still be involved in all of this is helping others with what you have learned, possibly training with some of your practitioners with Bioset, ART, ASYRA. Becoming the healer instead of the one needing to be healed. Just a possibility to think about.

THREE QUESTIONS

Katy, I personally can't speak about MRI's and possible dental ramifications, or iron issues. I have no idea. Hopefully other people will know.

I do know the dye with MRIs can be problematic, there is another thread about this.

Carla, sounds like you had a lot of fun on your trips and time with Morgan. I'm so glad you felt good too.

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No, that's not what I was thinking of .... you said something about another one who was several days per week, so you didn't see the once per week one .... something about a program you qualified for?

Oh. Yea, that was a hospital school, and I wouldn't be able to graduate with that. That was also through a public school. These tutors we are paying...it's private.

That's wonderful Kassandra!!!! :D :D

Thanks. :):wub:

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Quick note...I've been in transition so have been offline and am behind in reading...but have just arrived back safely in China and will catch up gradually. I am happy to have help with the cooking again. My housekeeper was at home when I arrived, with some lamb roasted and ready. It was delicious--its the same price as beef here. My ART testing said my body really wants more lamb, but I couldn't afford it in the USA.

I'll post later after I catch up with reading.

Sherry

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When I'm tested all phenols show up as being problematic for me. The above site has several homeopathics to address this problem. Its definately something I'm wanting to try and I know that homeopathics do work for people but I dont know of anyone taking them for this specific problem. Hopefully we can get testers for these products and then see which ones would help me. It would be interesting to see how I would test with them.

I'll have to wait and see on this because I cant order the products myself....they're only sold to practitioners.

Rachel, doesn't Amy do this? Dr. E tested me in January with ASYRA and the phenols came up, she gave me a homeopathic remedy for it; it must have held because they didn't come up in the March testing and I am no longer taking the homeopathic. I didn't ask her about it specifically though.

Sherry

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About the antibiotics. What the heck?? :huh:

Why would a dentist prescribe them in the first place?? :unsure:

Amy asked me why....all I could say was that I have no clue and at the time I didnt know half of what I know now...so I just did what they told me to do. :rolleyes:

I think there are a few procedures where this is standard practice, maybe there is more risk of infection involved. I vaguely remember something about that. My FIL has to have antibiotics for every dental work he has done because he is immune compromised due to being a post transplant patient.

Sherry

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But my digestion is really bad lately. I was wondering if you guys had any advice on things that are easier to digest. .. . i know people say raw foods and i believe this includes nuts but lately nuts have been coming out looking pretty much the same as when i ate them. Sorry for the visual.

Has anyone ever tried Papaya enzymes? I hear they are good for digestion. Have a suggested brand that's got no sugars, starches, sulfites or gluten?? (I'm also looking for Iron with these specifications and no B-complex if anyone knows!)

Thanks all! Hope you guys are enjoying the sunshine that we finally have in Michigan,

Katy

Hi Katy,

I am taking prescription digestive enzymes that are quite strong, the current ones are called pangestyme UL20. My doctor just added another set of enzymes called Carb Digest which is by Kirkman, because I needed more help with digesting carbs. These do help me quite a lot.

Sherry

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update with me...

My second appt with llmd is next week. I have low am cortisol, and very high DHEA. Lead and mercury showed up and this is what we'll be working on. I will also find out if anything showed up on my co-infection labs.

TS. glad for the update. I'll be surprised if you don't show some coinfections.

What would the high DHEA be from?

Sherry

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Donna, this illness is worrisome. Hope there isn't a relapse just when you are at the point of moving forward with some chelation.

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I am a little afraid because this is where I am, I don't care about anything right now. I know that isn't good for me at all to be thinking this way.

I'm sorry, Julie, I remember being that way .... not caring that my house was a mess was a big deal because I'm such a perfectionist .... Adam always would say he knew when I was feeling better because he needed to get out of my way in my cleaning frenzy.

We need to get you to feeling good!

Oh. Yea, that was a hospital school, and I wouldn't be able to graduate with that. That was also through a public school. These tutors we are paying...it's private.

Yes, that's what I was thinking of .... I didn't know you couldn't graduate .... I thought you just couldn't take AP. I'm glad your uncles are coming through for you (again).

Anyone talked to Nyxie?

Nyxie if you are out there, I hope you are doing ok.

She was on Lyme chat last night. I think she's doing okay .... she's through her first herx.

I am happy to have help with the cooking again. My housekeeper was at home when I arrived, with some lamb roasted and ready. It was delicious--its the same price as beef here. My ART testing said my body really wants more lamb, but I couldn't afford it in the USA.

This just sounds so good to me! I also love lamb. I cooked a leg of lamb on Easter .... it made great sandwiches because it's easier to eat than roast beef. I really need to make it more often.

Well, I can't wait for my ecoffee, sauna, and workout today. I'm feeling good health-wise, but slightly toxic. It's amazing how much that stuff really does. Plus, since I stopped the saunas while traveling, I've had an odor problem :ph34r: The saunas make it so I don't even need deodorant, but I've needed it the past few days. <_< Some days I've even showered twice and still felt that I smelled (though Morgan said I didn't, LOL).

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Hi Julie & Everyone,

Thanks for checking in on me :)

My daughter has been doing a bit better with her leg pain. She went to a hematologist/oncologist and had a bunch of bloodwork done. Her iron was back up in normal range after being on that high dose the pediatrician gave her. Her legs still hurt anyway. The hematologist could not find anything out of order in her blood work.

Frustrated, I then took her to my chiropractor who does kenieseology (msp) and works with muscles along with the bones. She said it is most likely that her bone is growing faster than her muscles. Then the muscles start pulling on the joints causing pain. So she showed me what massages to do and let me borrow a tens unit (for free!!). That seems to be working. We do this every night.

I have been feeling really good the past month until most recent. I started a Hot Yoga class. So I can get the sauna type sweating and some yoga in at the same time. After the first class I was so sore and some of my veins hurt - which was really wierd and scary. So I took lots of magnesium and epsom baths and felt better. I haven't had that reaction since. Oh, and I started Naitokkinase (msp). A small dose, to help break down fibrin in the blood. I seemed to really do good on this supplement. I started having way more energy than I have had in years!!!

But lately, I have been having wierd things again. I think its adrenal related.

It reminds me of what Rachel describes as an "overreaction" to the fight or flight response. I always thought this was adrenal related. Now that I am having trouble sleeping and feel sort of wired and tired all at the same time - I am thinking I have been OVER doing it with all this energy and now my adrenals are whacked!!! Back on the ginseng to see if it helps.

If its not one thing its another. I think I am still on the road to recovery, but everytime I take 2 steps forward, I have to take a step back. I never feel "normal" for very long. I know you guys can relate!

I have been reading along about the pst enzyme thing and quite don't understand the scientificness of this yet. But it does make a lot of sense. After I had an epidural with my second child and then IV antibiotics I have not been the same since. During the epidural I felt like it was causing a wierd reaction within my body. It definately didn't feel the same as it did with the first kid.

I have had the liver detoxification profile done through Genova. Is this related to what your talking about Rachel? I take specific nutrients to open up the Phase II pathways. This really made A HUGE difference by lessening food, vitamin, and herb reactions I was having.

April

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Yes, that's what I was thinking of .... I didn't know you couldn't graduate .... I thought you just couldn't take AP. I'm glad your uncles are coming through for you (again).

.....

This just sounds so good to me! I also love lamb. I cooked a leg of lamb on Easter .... it made great sandwiches because it's easier to eat than roast beef. I really need to make it more often.

Yes, they are amazing! :);):P:wub:

I used to love lamb, but it no longer likes me. It's too rich I guess. :rolleyes:<_<

April, I'm glad the hematologist said nothing was wrong. When I go to my hematologist it's just kinda for him to look blood work over. We never talk about my symptoms really...because I have been anemic so many times I know what it feels like. And, he is a VERY traditional western medicine dr.

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I am a little afraid because this is where I am, I don't care about anything right now. I know that isn't good for me at all to be thinking this way.

We're here to cheerlead you on, and prod you on. You will get through this! :wub:

Quick note...I've been in transition so have been offline and am behind in reading...but have just arrived back safely in China and will catch up gradually. I am happy to have help with the cooking again. My housekeeper was at home when I arrived, with some lamb roasted and ready. It was delicious--its the same price as beef here. My ART testing said my body really wants more lamb, but I couldn't afford it in the USA.

That sounds real good.......I only had lamb once and didn't like it, but it's nice to have everything ready for you, especially after a long day of travel.

Well, I can't wait for my ecoffee, sauna, and workout today. I'm feeling good health-wise, but slightly toxic. It's amazing how much that stuff really does. Plus, since I stopped the saunas while traveling, I've had an odor problem :ph34r: The saunas make it so I don't even need deodorant, but I've needed it the past few days. <_< Some days I've even showered twice and still felt that I smelled (though Morgan said I didn't, LOL).

Is body odor a sign of toxicity?

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I am in shock, people in this town know about e-coffee's lol. Well this lady my husband works with went up to him today after i was there and told him, dang your wife looks great for having 4 kids, it never seizes to amaze me how good she always looks, but now she is really looking good. Hubby was so happy to hear this. Well to make a long story short lol. She then ask him about the detox baths that i do, so he told her. Then she is like well you know this is going to be gross but im going to tell you anyway. She is like Dr W. says the best thing is coffee enemas, and hubby was like oh you mean e-coffee's. She was shocked hubby knew what she was talking about lol.

paula

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Is body odor a sign of toxicity?

Well, once I started doing saunas I never had any smell at all, even when I'd sweat a lot from exercising. I didn't need deodorant at all.

Four days off saunas and I think I smell, although those around me assume me I do not, LOL.

Paula, that's funny about the ecoffee conversation. :)

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Well, I took my Lariam. :D Thank goodness you remembered Andrea! Next one is Friday.

Not that this system doesn't work :), but Carla .. . :huh: .. .doesn't yer fancypants iPhone have a calendar feature w/ reminder capabilities?

I use it on my sidekick all the time.

And I've now joined the Humaworm club!! :ph34r:

<i do want to see something gross, don't i?> :ph34r:

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Not that this system doesn't work :), but Carla .. . :huh: .. .doesn't yer fancypants iPhone have a calendar feature w/ reminder capabilities?

Yeah, it does, LOL.

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I have had the liver detoxification profile done through Genova. Is this related to what your talking about Rachel? I take specific nutrients to open up the Phase II pathways. This really made A HUGE difference by lessening food, vitamin, and herb reactions I was having.

I was mostly talking about the sulfation pathway and some of the things which can cause that pathway to become blocked. For my own situation I'm trying to determine what is not functioning as it should...so that hopefully we can correct it.

I guess I'm trying to learn more about my own biochemistry and what issues need to be addressed to take the burden off of the PST enzymes and the sulfation pathway.

Its sort of new territory for the Dr.'s. Theres still alot to learn about this stuff and I'm sure down the road there will be better tests and a better understanding of how to correct these metabolic problems.

I believe that the heavy metals play a huge role in this so I do want to focus on getting them out and I think that in doing that alot of these "issues" or "glitches" will fix themselves.

For now I think my sulfur metabolism is severely "challenged". If thats the case the PST enzymes would be deficient and the sulfation pathway would be impaired. Alot of things wouldnt be functioning as they should. Its kind of a chain reaction type thing....everything is affected....including the gut.

Heres some info. about problems that can occur if there is an inability to metabolise sulfur/sulfites.

Sulfites can hurt you if your protective Sulfite Oxidase enzyme (a chemical that converts one chemical to another chemical) is low.

Sulfite Oxidase converts sulfites to sulfates, which are not harmful. If your Sulfite Oxidase enzyme is down, the sulfite will swim around your blood and inhibit important enzymes such as Tyrosinase, polyphenoloxidase, and ascorbate oxidase. This can result in the impairment of the synthesis of Dopamine and the conversion of Dopamine to Noradrenaline, which can lead to neurological fatigue.

Also, sulfites can inhibit 90% of lung ATP energy production (as noted in REFERENCE #18), can impair liver cell ATP energy production, and can deplete glutathione (chemical that helps the liver filter the blood and helps protect cell enzymes from damage). Anything that reduces your production of ATP energy can cause fatigue, since low levels of energy are synonymous with fatigue.

Things that can inhibit your protective Sulfite Oxidase enzyme:

Things that can impair the protective sulfite oxidase are as follows: heavy metal molecules such as lead and mercury, Sulfa-drugs (e.g. a class of drugs within the sulfa group that can impair pterin synthesis, such as asthmatic inhalants and many antibiotics), molybdenum deficiency, proto-IX-porphyria (enzyme that makes blood inhibited), inherited genetic damage encoding of the SO-enzyme, severe B12-vitamin deficiency, and arrays of So2/SO3-group containing drugs including DMPS (an Rx chelation drug).

How to live safely

In summary, if one wants to be safe, they should avoid things that inhibit the protective sulfite oxidase enzyme (e.g. Sulfa Drugs, heavy metals); and if this protective enzyme does go down, then avoid the Sulfites themselves.

Signs of a Sulfite problem

Below are several clues that one is sensitive to sulfites (which probably means the sulfite oxidase enzyme is down):

1) One becomes tired after ingesting one of the foods, listed above, that contains sulfites. One can look at the food label to see if the product contains sulfites.

2) One coughs after ingesting sulfites, due to the impairment of the lung ATP energy.

3) One has asthma.

4) One develops low blood glucose (sugar) after ingesting sulfites (since sulfites disrupt the regulation of blood sugar).

5) One gets a headache after ingesting sulfites.

6) One experiences itching and reddening of the skin after ingesting sulfites contained in foods, drinks or drugs.

What to do if you have Sulfite Sensitivity...

If you show signs of sulfite sensitivity, then it is recommended that you seek a Doc familiar with treating Sulfite Sensitivity. If your Doc is not, it is recommended that you start interviewing Docs on the phone. The cure involves avoiding sulfites, avoiding things that inhibit the protective sulfite oxidase enzyme, tracking down the cause of the sulfite oxidase inhibition and then treating that if possible. If you have sulfite sensitivity, you are at increased risk of asthma, and therefore addressing this issue early may save you from that experience.

In some cases, Molybdenum, B12-vitamin, P5P-vitamin, B1-vitamin, and tetrahydrofolate supplementation has helped to boost the protective sulfite oxidase a bit. Also, if mercury or lead molecules have induced Protoporphoria (enzyme that makes blood inhibited), detoxifying those heavy metals can help as well. In some cases, the Protoporphoria is inherited, and this is considered incurable at this time. In any case, if the protective sulfite oxidase is down, one can make a great difference by avoiding sulfite containing foods.

I'm interested in any tests that can check the function of specific enzyme systems....such as PST or sulfite oxidase.

What does the liver detoxification test check for? I feel like its pretty obvious that my liver is burdened and I'm mostly interested in finding out what has gone wrong to allow for that to happen. Does the Genova test give any insight as to what systems in the body might be down?

Right now I'm waiting for my Dr. to find out which tests will be the most helpful for my situation and I'm hoping some of it will give us more clues.

I think in most cases when the sulfur oxidase enzyme is down its a result of heavy metals in the body...especially mercury.

When sulfur isnt metabolised it causes all kinds of problems with detoxification. The main pathway becomes dysfunctional, glutathione is depleted, the immune system can also become reactive to sulfur because its reaching higher than normal levels in the blood, etc.

If possible I would like to find out which enzymes are inhibited and then try to work on those issues.

The main way that the mercury is able to poison us is by blocking enzyme systems...thats how we end up so toxic. If detoxification is severely impaired getting the metals out can be a challenge.

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