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Rachel--24

Omg...i Might Be On To Something

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Oh well...I partied like it was 1999!! :D

We used to give prizes for the first poster on significant page numbers....I think page 100 was a huge deal. I probably lost that time too. :P

Anyways....the prizes werent real....we just had BIG imaginations. ;)

:lol: Rachel, those BIG imagination days were fun :D

Nice....If its not one thing....its another. Is there really anything safe to eat anymore?? :unsure:

And on top of that...I cant eat produce. :rolleyes: No fruits or veggies for me (except the peas and the occassional peeled pear)....so yeah...I think I've had enough damage already...this new chemical cant touch me. :P

I know, it's discouraging, but the thing is if it has seeped into the ground water it's not just produce but grain crops, livestock is eating the grains and off the land.....it's everywhere.

Another thing that concerns me is the energy saving light bulbs. I'm all for conserving energy but the fact that they contain mercury is very alarming. They have to be disposed of properly and I know not everyone is going to do that, the will go to the land fills broken and emitting more and more mercury into our environment. And if they break at home by accident everyone is exposed.

Ok, sorry to be such a buzz kill :lol:

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My attempt at a balloon! :lol: :lol:

FABULOUS balloon Donna!!!!! :D:D

Carla, maybe your son will come around. One can always hope!

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Everyone,

What is the best way to detox an kidney. My aunt ended up having an huge kidney infection, that is what was making her organs shut down. She is willing to do anything i ask her to do. She is also diabetic, so i know i cant have her detox bathe or detox pads. But i was thinking lemon water and green juice. I also read stuff about cranberry pills to keep uti's away. Is there anything else anyone can think of.

paula

Paula,

Is she taking anything for this? Probably need to clear up the infection before beginning a detox program. If that infection gets worse it can get into the blood. I am pretty sure she might have to do abx for it.

But cranberry juice is great for cleansing. Lemon water, too. There are pills that are basically cranberry extract if she gets tired of drinking the juice.

Hi Sherry-

Being gluten free cut down on a lot of system wide inflammation/pain and dizziness and weakness. At least i am able to get out of bed on most days for a good part of the day. My tests from Entero said i had no malabsorption which I find amazing...

Regarding Lyme,

Were your tests positive from Igenex?

My Igenex tests were negative but because I am hitting a wall, I think I may either retest or I don't know what. But, more and more, it seems like I have it. Or the fatigue and pain can come from my thyroid being SO LOW because i can't take the appropriate amount of replacement thyroid without getting a severe reaction.

I am so afraid to try anti-biotics for the Lyme ... what if I am getting a false negative from Igenex..how would I know unless I tried abx and see if they helped. I am in constant pain though and I have been for years and years.

How are you? What is not improving for you now?

Nancy

Nancy,

Looking at your signature lines, it seems like something is definately messing with your immune system among other things. Have you been to a LLMD? They will diagnose on symptoms and not completely rely on testing. Sometimes when the immune system is so comprimised you won't show an immune reaction to the lyme bugs.

:lol: Rachel, those BIG imagination days were fun :D

Another thing that concerns me is the energy saving light bulbs. I'm all for conserving energy but the fact that they contain mercury is very alarming. They have to be disposed of properly and I know not everyone is going to do that, the will go to the land fills broken and emitting more and more mercury into our environment. And if they break at home by accident everyone is exposed.

Ok, sorry to be such a buzz kill :lol:

I didn't know this about these light bulbs! Are there any that don't contain mercury? And how should they be disposed of?

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My attempt at a balloon! :lol: :lol:

:lol: :lol: :lol:

Paula, I think pork is really just hard to digest and for those of us with other stuff going on it just can be too much.

I haven't really let on how many worms I have seen since starting Enula .... let's just put it this way .... if I would have seen them all together instead of one at a time, I would have vomited. :pukeygreenface: My digestion is SO different than it was before and the stomach pain is gone completely. The Humaworm got rid of the big tapeworm, but the Enula has gotten rid of two smaller ones and approx. 20 6"-8" roundworms! :o :o

I am guessing that many of us with compromised immune systems probably have parasite issues .... I'm just lucky <_< that mine were visible parasites! :lol:

Carla, maybe your son will come around. One can always hope!

I'm thinking that maybe a facebook message from Kassandra might help. He didn't take any this morning either. If he got some fear that he would be stuck at home disabled, maybe he might get motivation to take them. He obviously isn't worried about it. I guess he thinks he's stronger than I am .... HE wouldn't be stuck in bed like me. Grrr.

I told the dentist yesterday that I filled my script for Vicodin so that I would have it (he goes to my church and knows about my Lyme). He was shocked that I only took one when I got my teeth whitened and said I must have a very high threshold of pain as most people need several days of it. I found this funny after being told most of my life that I had a low threshold of pain. :lol::D

But my son is invincible ..... :huh:

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Another thing that concerns me is the energy saving light bulbs. I'm all for conserving energy but the fact that they contain mercury is very alarming. They have to be disposed of properly and I know not everyone is going to do that, the will go to the land fills broken and emitting more and more mercury into our environment. And if they break at home by accident everyone is exposed.

We use a spectrum bulb sold at the health food store. We had a few of the energy saving bulbs but once Mitch heard they had mercury in them we pulled them out of the lamps. They were in the cupboard with the other bulbs last I knew. I'll have to see if we still have them.

We pulled the flourescent bulbs out of T's room as well and put a lamp in there instead. Those are sitting, protected on both ends on top of a hutch. We didn't want to take any chances of those being broken, especially with a low ceiled room.

You have a very good point about disposal. I'm sure there are lots in the land fills. I didn't even know they had mercury til late last year and I'm sure I'm not the only one.

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My attempt at a balloon! :lol: :lol:

Happy 2000 pages everyone!

Paula, I think pork is really just hard to digest and for those of us with other stuff going on it just can be too much.

So what do i win in cyber land? lol

Maybe that is it donna. Oh maybe my body was just reminding me not to eat that stuff ever again lol

Paula,

Is she taking anything for this? Probably need to clear up the infection before beginning a detox program. If that infection gets worse it can get into the blood. I am pretty sure she might have to do abx for it.

But cranberry juice is great for cleansing. Lemon water, too. There are pills that are basically cranberry extract if she gets tired of drinking the juice.

April,

She just got out of the hospital and is and was on major antibotics. Teh infection did get into her blood stream and she turned septic. I just know the drs said if this infection isnt gone and in an month it is worse, she will die. I will call her tonight and find out what antibotics for sure. She also has thyroid cancer to.

:lol: :lol: :lol:

I haven't really let on how many worms I have seen since starting Enula .... let's just put it this way .... if I would have seen them all together instead of one at a time, I would have vomited. :pukeygreenface: My digestion is SO different than it was before and the stomach pain is gone completely. The Humaworm got rid of the big tapeworm, but the Enula has gotten rid of two smaller ones and approx. 20 6"-8" roundworms! :o :o

I am guessing that many of us with compromised immune systems probably have parasite issues .... I'm just lucky <_< that mine were visible parasites! :lol:

I know i should of taken those humaworm pills. I wonder if they are still any good lol. I really need a few days were i dont have to do anything, but my life is crazy with the kids and all the home projects we are doing. I dont have time to be sick passing little creatures lol

paula

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Paula, you might not feel bad at all .... it was my Lyme symptoms that would flare, most likely due to the abx properties of some of the herbs. :) Hubby felt a little bad for a couple days, then felt fine, nothing major.

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I'm thinking that maybe a facebook message from Kassandra might help. He didn't take any this morning either. If he got some fear that he would be stuck at home disabled, maybe he might get motivation to take them. He obviously isn't worried about it. I guess he thinks he's stronger than I am .... HE wouldn't be stuck in bed like me. Grrr.

But my son is invincible ..... :huh:

I'll send him a message in a little bit. Gotta go infuse first. I hope it will help. I know the feeling of being invincible. Also, he might be worried that he WILL herx... and he doesn't want you to be right. <_< It's better for you to be right, and for him to take the abx and get better before he moves on in life and then suddenly has to stop his life.

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Can you post your results? My doctor told me mine were negative, but they weren't. Plus, LLMD's have different standards for interpreting them than other doctors .... even the CDC says their standards are for tracking purposes only.

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Nancy, do you have the IgG part, too? That is only half the test.

That part is negative, but as you know, it's a clinical diagnosis based on symptoms .... but it sure is easier if you have a positive test!!!

My IgM half was negative .... My IgG part was positive.

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Nancy, my IgM was also negative, but my IgG was positive.

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Nancy, do you have the IgG part, too? That is only half the test.

That part is negative, but as you know, it's a clinical diagnosis based on symptoms .... but it sure is easier if you have a positive test!!!

My IgM half was negative .... My IgG part was positive.

Carla, Donna and Andrea-

Sorry - here are the results for page 2 for IgG Western Blot

IGenex IGG Result - Negative

CDC/NYS- Negative

I'll list only the bands that have something OTHER than negative:

31 kDa IND

41 kDa ++

both of those are the double starred bands.

Tell me what you all think. I read over the Lyme symptoms AGAIN. I do have many (about 21 of 37, but these are also symptoms of many other problems I have) but here are a few of the ones I have never had: swollen knees or joints, brain fog (I have ADD, but not the same), swollen glands, headaches on a chronic basis, of course I never saw the bullseye but that is true for many and i have never had skin rashes or problems.

If I do have Lyme, I have had it for over 33 years because that is when many of my problems started. Except that from an infant to about the age of 3, I did already have the "classic" Celiac symptoms: alternating diarrhea and constipation and much pain and problems.

Ho hum, what else could I have? It never ends does it?

Nancy

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Nancy,

Looking at your signature lines, it seems like something is definately messing with your immune system among other things. Have you been to a LLMD? They will diagnose on symptoms and not completely rely on testing. Sometimes when the immune system is so comprimised you won't show an immune reaction to the lyme bugs.

What is an LLMD...

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This is bits and pieces of an explanation of the western blots:

Posting this, written by Dr C of Missouri for the benefit of everyone. This was written around 1999 or 2000. There is an updated version below.

Please note that "equivocal" is the same thing as "IND" or "indeterminate."

-------------------------------------------------

Explaining Borreliosis (Lyme) Western Blot Tests

...

31: Outer surface protein A (osp A). 34: Outer surface protein B (osp B).

41: Flagella or tail. This is how Borrelia burgdorferi moves around, by moving the flagella. Many bacteria have flagella. This is the most common borreliosis antibody.

In my clinical experience, if a patient has symptoms suspicious for borreliosis, and has one or more of the following bands, there is a very high probability the patient has borreliosis.

These bands are 18, 22, 23-25, 28, 30, 31, 34, 37, 39, 41, 83, and 93.

This is true regardless of whether it is IgG or IgM.. But again, there is no universal agreement on the significance of these bands. Betina Wilska, M.D. from Germany is one of the world's experts on outer surface protein A (31 kDa).

At the international borreliosis conference in Vancouver, British Columbia, I asked her personally about the 30 kDa band. She told me it was the same as the 31 kDa band (osp A).

and this from an update:

The significant antibodies, in my opinion, are the 18, 23-25, 28, 30, 31, 34, 39, 58, 66 and 93.

This was taken from a thread on LN:

http://tinyurl.com/ffn3x

(sorry, edited my post to fix the link)

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What is an LLMD...

It's a lyme literate medical doctor. They are sort of "specialists" where lyme is concerned. A good LLMD will take all things into consideration when making a diagnosis...regardless of what the western blots say. They will test you for ALL KINDS of things, not just lyme, and if necessary make a differential diagnosis (ruling things out).

My IgG had enough bands to be considered positive by Igenix standards and my LLMD took that test together with the symptoms I was having, plus the results of a multitude of other testing he had done to arrive at a diagnosis. In my case I had around 45-47 of the 75 known lyme symptoms...not everyone has that many and not everyone has the same kind. The site that lists the 75 symptoms says that a if you have 20 of the 75 you should at least consider lyme as a possibility.

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Band 31 is very significant and specific to Lyme. Your is not positive, but it is not negative either. My LLMD treated my daughter on results like that because she had a few symptoms as well .... and not as many symptoms as you have. With her reaction to abx treatment, we had a confirmation of Lyme. She was treated with abx and herbs for 8 months .... she has been off the abx since Jan. but still takes herbs.

An LLMD is a Lyme Literate MD.

I never saw the bullseye, never had rashes until a few years ago, never had joint pain until a few years ago .... and I have had it for 35 years .... never knew what it was until I became much sicker a few years ago.

I wouldn't rule out Lyme just yet .... but of course, we can't diagnose you. ;)

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Here is the big list of symptoms:

Symptoms of Lyme Disease

The Tick Bite (fewer than 50% recall a tick bite or get/see the rash)

Rash at site of bite

Rashes on other parts of your body

Rash basically circular and spreading out (or generalized)

Raised rash, disappearing and recurring

Head, Face, Neck

Unexplained hair loss

Headache, mild or severe, Seizures

Pressure in Head, White Matter Lesions in Head (MRI)

Twitching of facial or other muscles

Facial paralysis (Bell's Palsy)

Tingling of nose, (tip of) tongue, cheek or facial flushing

Stiff or painful neck

Jaw pain or stiffness

Dental problems (unexplained)

Sore throat, clearing throat a lot, phlegm ( flem ), hoarseness, runny nose

Eyes/Vision

Double or blurry vision

Increased floating spots

Pain in eyes, or swelling around eyes

Oversensitivity to light

Flashing lights/Peripheral waves/phantom images in corner of eyes

Ears/Hearing

Decreased hearing in one or both ears, plugged ears

Buzzing in ears

Pain in ears, oversensitivity to sounds

Ringing in one or both ears

Digestive and Excretory Systems

Diarrhea

Constipation

Irritable bladder (trouble starting, stopping) or Interstitial cystitis

Upset stomach (nausea or pain) or GERD (gastroesophageal reflux disease)

Musculoskeletal System

Bone pain, joint pain or swelling, carpal tunnel syndrome

Stiffness of joints, back, neck, tennis elbow

Muscle pain or cramps, (Fibromyalgia)

Respiratory and Circulatory Systems

Shortness of breath, can't get full/satisfying breath, cough

Chest pain or rib soreness

Night sweats or unexplained chills

Heart palpitations or extra beats

Endocarditis, Heart blockage

Neurologic System

Tremors or unexplained shaking

Burning or stabbing sensations in the body

Fatigue, Chronic Fatigue Syndrome, Weakness, peripheral neuropathy or partial paralysis

Pressure in the head

Numbness in body, tingling, pinpricks

Poor balance, dizziness, difficulty walking

Increased motion sickness

Lightheadedness, wooziness

Psychological well-being

Mood swings, irritability, bi-polar disorder

Unusual depression

Disorientation (getting or feeling lost)

Feeling as if you are losing your mind

Over-emotional reactions, crying easily

Too much sleep, or insomnia

Difficulty falling or staying asleep

Narcolepsy, sleep apnea

Panic attacks, anxiety

Mental Capability

Memory loss (short or long term)

Confusion, difficulty in thinking

Difficulty with concentration or reading

Going to the wrong place

Speech difficulty (slurred or slow)

Stammering speech

Forgetting how to perform simple tasks

Reproduction and Sexuality

Loss of sex drive

Sexual dysfunction

Unexplained menstral pain, irregularity

Unexplained breast pain, discharge

Testicular or pelvic pain

General Well-being

Unexplained weight gain, loss

Extreme fatigue

Swollen glands/lymph nodes

Unexplained fevers (high or low grade)

Continual infections (sinus, kidney, eye, etc.)

Symptoms seem to change, come and go

Pain migrates (moves) to different body parts

Early on, experienced a "flu-like" illness, after which you have not since felt well.

Low body temperature

Allergies/Chemical sensitivities

Increased effect from alcohol and possible worse hangover

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My son told me he took the meds this morning and this afternoon. :)

YAY!!!! Miracles do happen! :P

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Yay on your son's meds, Carla!

Donna, I loved your balloon.

Nancy, I'm glad you are posting here; I agree with the others, it would be wise not to rule lyme out with those positive bands, and your symptoms. An good LLMD will also tailor the treatment to you and what you can handle.

If you have had lyme, when you do take antibiotics you may feel a lot worse. What is hard is figuring out--is this because I don't tolerate the med, or my body isn't strong enough, or because it is killing bugs and my body is detoxing?

Everyone, so far I am feeling positive about this increase in Vitamin D. Just in case today I am going to cut back on the natto to what I have been taking all along to make sure it is the D. I felt very strange yesterday--Kind of light, almost like a buzzing sensation through my body, almost like I was shaking internally, with some fatigue for awhile. Then it got better through the day and brain fog has also increasingly cleared. It feels good, like something right is happening.

Sherry

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I haven't really let on how many worms I have seen since starting Enula .... let's just put it this way .... if I would have seen them all together instead of one at a time, I would have vomited. :pukeygreenface: My digestion is SO different than it was before and the stomach pain is gone completely. The Humaworm got rid of the big tapeworm, but the Enula has gotten rid of two smaller ones and approx. 20 6"-8" roundworms! :o :o

I am guessing that many of us with compromised immune systems probably have parasite issues .... I'm just lucky <_< that mine were visible parasites! :lol:

Carla, can you mention again where the Enula is from? I am going to ask Dr. E to test that for me. I am suspicious that I have more too. I have already order humaworm.

[edited] Never mind I found it, it's Nutramedix.

Sherry

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Good news about your son Carla.

Nancy,

Definately sounds like finding a good LLMD would be in order.

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Hi Mia!!!!

I didn't know this about these light bulbs! Are there any that don't contain mercury? And how should they be disposed of?

April, I have been thinking about this since I learned they had mercury in them. Then I saw a You Tube Video of a Senator talking in front of Congress about the dangers so I was glad to see others questioning their use. There's lots of good info actally in the video about how you dispose of them and what to do when they do break.

It's political so probably isn't a good place to post it here but I can pm you the link if you are interested.

I haven't really let on how many worms I have seen since starting Enula .... let's just put it this way .... if I would have seen them all together instead of one at a time, I would have vomited. :pukeygreenface:

Carla!!!! OMG, you have kept this from us, you know how we like hearing about this stuff :rolleyes::lol:

What is enula again??

And when you get your teeth whitened you need Vicodin? Is it painful?

What you said about being told you had a low tolerance of pain really struck a chord with me too. I think the consensus might be that since we've been taken down by chronic illness that it is true, that we aren't strong. I think that couldn't be farther from the truth, we are all strong! We are still here, hanging in with all of this and we keep fighting every day. :D

I know i should of taken those humaworm pills. I wonder if they are still any good lol. I really need a few days were i dont have to do anything, but my life is crazy with the kids and all the home projects we are doing. I dont have time to be sick passing little creatures lol

Paula, I would call or email Humaworm and see if they will still be effective after all this time (what has it been a few months?)

I would think it's a good sign they released your aunt from the hospital, I hope this means she is on the mend??

I know the feeling of being invincible. Also, he might be worried that he WILL herx... and he doesn't want you to be right. <_< It's better for you to be right, and for him to take the abx and get better before he moves on in life and then suddenly has to stop his life.

Well said Kassandra :)

How are the infusions going?

My son told me he took the meds this morning and this afternoon. :)

YAY!! So some of that info must have sunk in :lol:

Everyone, so far I am feeling positive about this increase in Vitamin D. Just in case today I am going to cut back on the natto to what I have been taking all along to make sure it is the D. I felt very strange yesterday--Kind of light, almost like a buzzing sensation through my body, almost like I was shaking internally, with some fatigue for awhile. Then it got better through the day and brain fog has also increasingly cleared. It feels good, like something right is happening.

That's a good sign Sherry :D

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