Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Where Your Contribution Counts!
    eNewsletter
    Support Us!

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

CarlaB Enthusiast
That's pretty much what I am feeling a bit more lately. Yours gets worse when the treatment is working?

Sherry

Actually, mine were worse before treatment. I got bad sweats again on my flare up/herx cycle. Then they got steadily better.

Sherry, Adam and I were talking and wondered something (this is off the wall, LOL), in Chinese, they write so differently ..... are the numbers the same as ours, or do they write the numbers differently as well? If they're different, how do they do math?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
nora-n Rookie

Yes, I want to see a picture of a chinese computer keyboard, with an explanation of how they use it.

Added: Please. (we do not have any word for please in our language, only something analogous to be so kind that can be used. So we just forget to type please in English...)

Nora

Link to comment
Share on other sites
confusedks Enthusiast
Sherry, Adam and I were talking and wondered something (this is off the wall, LOL), in Chinese, they write so differently ..... are the numbers the same as ours, or do they write the numbers differently as well? If they're different, how do they do math?

They write numbers differently than ours. :) I think they use the same addition signs, etc. but just different numbers...is that right Sherry?

Link to comment
Share on other sites
confused Community Regular

Were is everyone? Are we feeling worse or are we all feeling better lol?

Everyone,.

I always knew i was stubborn, but im thinking im even more stubborn lately. How many times is it going to take me to figure out my body hates mold? How many times will i smoke, until i feel so sick to my stomach? How many times will i eat things i should not eat? Will this ever stick in my mind lol.

Hubby and I are thinking of getting the mercoal tanning bed since we have so many months of winter in this part of the world lol

paula

Link to comment
Share on other sites
CarlaB Enthusiast

Paula, why don't you just quit smoking, it's cheaper than the tanning bed? :lol: :lol: :lol: :lol: Or quit smoking so you have the $$$ for the tanning bed!

I'm feeling GREAT! I'm off meds, on Buhner herbs (and some Cowden), plus Malarone and Lariam for babs. Feeling the best I've felt in years.

Last time I was off meds, I still had morning fatigue, not this time. :) I wake up abut 7:30 since starting Lyrica (yes, Donna and Rachel, that is early for normal people :lol: ).

Link to comment
Share on other sites
confused Community Regular

carla,

I did quit smoking today. I hope to make it threw tommorow to lol.

I am glad u are feeling great. That make me happy and hopeful.

paula

Link to comment
Share on other sites
AndreaB Contributor

Carla,

WooHoo, Yay and everything else. :D :D :D Glad you are feeling so good.

Paula,

Hang in there. Quitting smoking is not easy but it is definately doable. One day at a time. I've heard it takes 3 months for the toxins to leave your body. The first month is the hardest. You need to find something to do when you get a craving to light up. Walking, excercise.....whatever. My parents stopped and started quite a few times before they stopped for good......that was due to my dad having a dark spot on his lung. He had been broadsided and had to spend a day in the hospital so that's the reason they knew.

Definately incentive to use the cig money to save for the tanning bed. :)

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShadowSwallow Newbie

Ok, everyone. I've been thinking over a plan of attack since I have my Sulfa LED coming up on Monday. Love to hear what y'all think of it. :D

1) Have Sulfa LED.

2) A week later have peptide shot.

3) Two weeks to a month after LED see if I need another one, if not then re-do DMPS IV push and urine collection. If necessary pursue chelation.

4) While waiting on chelation start balancing the immune system with Pine Cone Extract and Transfer Factor. Build up vitamin and mineral reserves in the body.

5) While balancing the immune system have peptide shots to help desensitize the body to allergens.

6) Once the immune system is fairly balanced start BioSet treatments to desensitize anything I'm still allergic to.

7) Go on to live normal life remaining vigilent about Lyme, parasites, continuing to detox, rest, and get adequite nutrition.

Kinda idealized. :P

Link to comment
Share on other sites
AndreaB Contributor
Kinda idealized. :P

Sounds good to me, but what do I know. :P

Link to comment
Share on other sites
mftnchn Explorer
Actually, mine were worse before treatment. I got bad sweats again on my flare up/herx cycle. Then they got steadily better.

Sherry, Adam and I were talking and wondered something (this is off the wall, LOL), in Chinese, they write so differently ..... are the numbers the same as ours, or do they write the numbers differently as well? If they're different, how do they do math?

Hmm. I better mention this to my LLMD on Monday. I now have an appointment due to the Vit D questions.

Chinese use both. I'll insert the Chinese numbers and see if they'll show up 一 二 三 四 五 六 , that's 1 to 6. For math they use arabic numbers usually.

Sherry

Link to comment
Share on other sites
mftnchn Explorer
Yes, I want to see a picture of a chinese computer keyboard, with an explanation of how they use it.

Added: Please. (we do not have any word for please in our language, only something analogous to be so kind that can be used. So we just forget to type please in English...)

Nora

Ha ha, their keyboards look just like ours! Well, the Taiwanese have keyboards with alphanumeric symbols plus some phonetic symbols that they use. But the mainland uses a romanized system to identify the pronounciation of characters. There are a number of input methods available for the computer; I use the easiest which just uses the same keyboard as I use for English. I just spell out the sound of the character, like "bei jing" for Beijing, and then choose the characters 北京。 I type Chinese to my students.

Now what was amazing was before PC's, if you wanted something typed you took it to a typing shop. They had these "typewriters" that had trays and trays of little blocks with characters. They directed the arm to pick up the appropriate character and go type it on the paper, then went back and picked up the next one, changing the big trays as they needed. Very slow.

Sherry

Link to comment
Share on other sites
mftnchn Explorer

Birdy, I don't know. I haven't had LED so don't have any sense.

Carla, that's super. I hope it holds.

Link to comment
Share on other sites
nora-n Rookie

About the chinese typewriters, a freind lived in Hong Kong in the 70's, and he told me about them afterwards. There was this big tray of characters.

But teh funny thing was that one could not see the typing, as one had to have two sheets of paper with a carbon paper in between and you could first see the typing on the second sheet.

I met a chinese girl in 2000 who I asked a little bit, and she told me children learn to write phonetic in our letters and they write the four different intonations above the word, as the words mean four different things acccording to if you raise your tone, keep the tone level, etc. I think other chinese languages even have eight different sounds. They can write to each other but not speak--if they use the symbols if they have different dialects or languages.

I always wanted to know what a japanese computer looks like. I have seen some pictures on the internet. they use three different kanji, and they use chinese signs. Learning japanese is supposed to be not so hard. Chinese is a hard to learn for the foreigners she met, the chinese girl said (she came from a place with lots of europeans working there).

Now this was off topic.

More on something chinese:

My daughter (DD2)told me about a chinese cleansing remedy that is very expensive and a new fad on the internet, a parasitic mold from china called something like something-sinensis. I told her to up the vitamin D first as it is needed to make glutathione which is needed for detoxification, and about chlorella and zeolite. She got teh vitamin D results and they are 42 nanomol per liter, which is low, it is about half the number in nanograms per ml, something like 25. This is aafter taking some vitamin D for a while, like 400 units. She said she is gonna double her intake , but I sent her a txt msg that she needs 50

Link to comment
Share on other sites
dlp252 Apprentice
Were is everyone? Are we feeling worse or are we all feeling better lol?

I'm actually feeling pretty good too. I've been sleeping better and don't seem to be reacting to stuff that a few months ago would have caused reactions. I'm beginning to wonder if my house is really the problem. If it weren't for my stupid lame foot, I'd be painting and doing stuff I haven't done in a long time.

What you wrote about why...I feel the same things. I've been trying to start an anti-candida diet for two years!

(yes, Donna and Rachel, that is early for normal people :lol: ).

You can't convince me! :lol: I'm at home, on leave for 5 weeks already, and I'm waking up at around 5:40. Course, I've never claimed to be normal. :lol:

Kinda idealized. :P

Hey, at least it's a plan!!! Better than not having one. I'm not familiar with LED either, so can't comment on that...I just think it's a good plan to have a plan, lol.

Link to comment
Share on other sites
CarlaB Enthusiast
carla,

I did quit smoking today. I hope to make it threw tommorow to lol.

I am glad u are feeling great. That make me happy and hopeful.

paula

YAY! I hope so, too. My step-father had a pin put in his ear (acupuncture) and it helped him quit. He never could quit before that.

Carla,

WooHoo, Yay and everything else. :D :D :D Glad you are feeling so good.

Thanks.

4) While waiting on chelation start balancing the immune system with Pine Cone Extract and Transfer Factor. Build up vitamin and mineral reserves in the body.

I couldn't handle Transfer Factor. If you try both of those, try them apart from each other. Transfer Factor is bad for those with autoimmune conditions because if you tend towards autoimmune you don't want to further stimulate the immune system.

Dr. H said Dr. C taught him LED. I said, GREAT, will you use it on me? He said he had only used it a few times, next time I come up I can have it done. :)

Hmm. I better mention this to my LLMD on Monday. I now have an appointment due to the Vit D questions.

Chinese use both. I'll insert the Chinese numbers and see if they'll show up 一 二 三 四 五 六 , that's 1 to 6. For math they use arabic numbers usually.

Sherry

Cool. Thanks. The 1, 2, 3 makes a lot of sense, LOL.

You can't convince me! :lol: I'm at home, on leave for 5 weeks already, and I'm waking up at around 5:40. Course, I've never claimed to be normal. :lol:

Yeah, I'm in that not normal category, too, but at least I don't think 5:40 is sleeping in!!! :lol:

Link to comment
Share on other sites
dlp252 Apprentice

Hey, there's still hope for me though...by the end of my next surgery recovery maybe sleeping in will be 6:00 or 7:00, lol. :lol:

Link to comment
Share on other sites
confused Community Regular

Omg 24 hours later with no nicotine and my head is pounding lol. But i know i can do this. I have done it many times before lol.

I think when i start smoking my bucket is a little from the top, but the more i smoke the more it flows over lol. I know its from the mold in the cigarettes that puchme over the edge. So im going to do this, i swear i am. If i do get cranky in here, just ignore me lol.

Carla,

Do you think u feel better cause the of the motorcycle ride, or from going off some of the stuff.

About sleeping in, i think 6 am is sleeping in. I love mornings before the kids get up. Now with school starting in a few days, I will be lucky to sleep in til 5 lol

paula

Link to comment
Share on other sites
CarlaB Enthusiast
Carla,

Do you think u feel better cause the of the motorcycle ride, or from going off some of the stuff.

Going off meds. :) I think the motorcycle ride helped with moving the lymph system though. :)

Link to comment
Share on other sites
mftnchn Explorer
I'm actually feeling pretty good too. I've been sleeping better and don't seem to be reacting to stuff that a few months ago would have caused reactions. I'm beginning to wonder if my house is really the problem. If it weren't for my stupid lame foot, I'd be painting and doing stuff I haven't done in a long time.

I'm curious if it has to do with Vitamin D from the summer sun, given that you previously were so deficient and haven't been supplementing.

I'd follow through on that and make sure you keep that level up, as it impacts the immune system. I think it helps regulate autoimmune too.

Sherry

Link to comment
Share on other sites
mftnchn Explorer
I couldn't handle Transfer Factor. If you try both of those, try them apart from each other. Transfer Factor is bad for those with autoimmune conditions because if you tend towards autoimmune you don't want to further stimulate the immune system.

Cool. Thanks. The 1, 2, 3 makes a lot of sense, LOL.

I took TF but what you say makes sense; I quit last winter when it didn't test well on ART.

Yep, Chinese is pictographal; so the numbers reflect the number of strokes in 1-5. The original writing was even more close to the object, but has been stylized over the years so you often now have to have it explained to understand the picture.

Then from there, abstract ideas are built different ways. It is quite fascinating actually.

Link to comment
Share on other sites
mftnchn Explorer
I met a chinese girl in 2000 who I asked a little bit, and she told me children learn to write phonetic in our letters and they write the four different intonations above the word, as the words mean four different things acccording to if you raise your tone, keep the tone level, etc.

Yes, although in Taiwan they use phonetic symbols rather than romanized like mainland China. They can write to each other but only using characters, not the phonetics. All the dialects can read the characters, but each dialect would have different phonetics. Mandarin has four tones plus a neutral, Taiwanese has 8, Cantonese has 10. Not sure about the other dialects, I forget. I speak Mandarin (and read/write).

Learning japanese is supposed to be not so hard.
I've heard that because the written language has more phonetics, just some Chinese characters. Same for Korean. Chinese is very difficult. For westerners, it is the tonal language, plus the characters that must be simply memorized. Both reading and writing is very hard. For other Asians, many already know some Chinese characters so that part is much easier for them, but pronounciation can be very challenging. I was in university in China with some Japanese and Korean students and could hardly understand any of their Mandarin.

I told her to up the vitamin D first as it is needed to make glutathione which is needed for detoxification, and about chlorella and zeolite. She got teh vitamin D results and they are 42 nanomol per liter, which is low, it is about half the number in nanograms per ml, something like 25. This is aafter taking some vitamin D for a while, like 400 units. She said she is gonna double her intake , but I sent her a txt msg that she needs 50
Link to comment
Share on other sites
tabasco32 Apprentice

Hey

Does anyone play mah jong the chinese board game with tiles? Thats my favorite game ever! I even have a set of tiles.

P.s.

I have a job interview on Monday. Wish me luck.

Link to comment
Share on other sites
confused Community Regular
Hey

Does anyone play mah jong the chinese board game with tiles? Thats my favorite game ever! I even have a set of tiles.

P.s.

I have a job interview on Monday. Wish me luck.

I play it in pogo lol

good luck, i hope you get it

Link to comment
Share on other sites
tabasco32 Apprentice

No not the pogo kind. The one you play with three other people. It kind of like Lame Advertisement.

Link to comment
Share on other sites
confusedks Enthusiast
I've heard that because the written language has more phonetics, just some Chinese characters. Same for Korean. Chinese is very difficult. For westerners, it is the tonal language, plus the characters that must be simply memorized. Both reading and writing is very hard. For other Asians, many already know some Chinese characters so that part is much easier for them, but pronounciation can be very challenging. I was in university in China with some Japanese and Korean students and could hardly understand any of their Mandarin.

Sherry

Mandarin was WAY easier than Spanish for me. I was able to memorize Mandarin characters faster than spanish anything, lol. :lol: I was fluent in Mandarin in only 6 months...could read, write and speak it. Now I don't remember almost any of it. Except I somehow remembered 1-10 today in bed, LOL! :)

Re-learning Mandarin is on my list of things to do...soon. I LOVED it! :D

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.



  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,503
    • Most Online (within 30 mins)
      7,748

    PBunny39
    Newest Member
    PBunny39
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • powerofpositivethinking
      I haven't been on this forum for a long time, but it was absolutely wonderful during the diagnostic process!  My path for celiac disease diagnosis was the following: -Had normal IgA level, and my only serology positive test was the DGP IgG -Deficiencies in both Vitamins D and K that did not increase at first despite massive supplementation -Diagnosis of fat malabsorption both total and neutral -Diagnosis of severe exocrine pancreatic insufficiency (EPI) -Testing was completed to rule out causes of EPI, and the only one not ruled out was celiac. -Both traditional endoscopy and pill capsule endoscopy yielded negative results for biopsy confirmation, but my GI doctor said that both procedures simply could have missed the damaged spots. -EPI and fat malabsorption resolved after taking Creon for 6 months since my EPI was caused by celiac -23 and Me said I don't have either of the two prominent genes for celiac disease   Remember that you might not have 'textbook' symptoms, but you still may have celiac disease.   Also, I am SO incredibly grateful for this site for all the learning it has allowed me to do. I have a senior dog, and these last few weeks with her were very scary! After two hospital stays, she finally received an IBD diagnosis after having gastroenteritis and pancreatitis. I know that celiac disease is not IBD, however, through reading this site, I learned more about it. I was relieved when I found out she had IBD and not cancer this past Wednesday. I know IBD can be managed thanks to what I've learned here!  So celiac.com, not only did you help me, but you helped my pup too! Thank you ❤️  
    • SuzanneL
      It was tTG IGG that was flagged high. I'm not sure about the other stuff. I'm still eating my normal stuff. 
    • cristiana
      Thank you for your post, @Nedast, and welcome to the forum. It is interesting to read of your experiences. Although I've not had TMJ, from time to time I have had a bit of mild pain in my jaw, sharp stabbing pains and tingling in my face which appears to have been caused by issues with my trigeminal nerve.  I read that sometimes a damaged trigeminal nerve in coeliacs can heal after adopting a gluten free diet.  I try to keep out of cold winds or wear a scarf over my face when it is cold and windy, those conditions tend to be my 'trigger' but I do think that staying clear of gluten has helped.  Also, sleeping with a rolled up towel under my neck is a tip I picked up online, again, that seems to bring benefits. Thank you again for your input - living with this sort of pain can be very hard, so it is good to be able to share advice.
    • Julie Riordan
      I am going to France in two weeks and then to Portugal in May   Thanks for your reply 
    • Nedast
      I made an account just to reply to this topic. My story resembles yours in so many ways that it is truly amazing. I also suddenly became lactose intolerant, went a little under 10 years attributing all my symtoms to different body parts, never thinking it was something systemic until much later. I had the same mental problems - anxiety, depression, fatigue, etc. In fact, the only real difference in our story is that I was never formally diagnosed. When I discovered that my myriad symtoms, that had been continuous and worsening for years, all rapidly subsided upon cessation of consuming gluten, I immediately took it upon myself to cut gluten out of my diet completely. I live in America, and had lost my health insurance within the year prior to my discovery, so I could not get tested, and I will never willingly or knowingly consume gluten again, which I would have to do in order to get tested now that I have insurance again. But that is not the point of this reply. I also had extreme TMJ pain that began within months of getting my wisdom teeth out at - you guessed it - 17 years old. I was in and out of doctors for my various symptoms for about 5 years before I gave up, but during that time I had also kept getting reffered to different kinds of doctors that had their own, different solutions to my TMJ issue, an issue which I only recently discovered was related to my other symptoms. I began with physical therapy, and the physical therapist eventually broke down at me after many months, raising her voice at me and saying that there was nothing she could do for me. After that saga, I saw a plastic surgeon at the request of my GP, who he knew personally. This palstic surgeon began using botox injections to stop my spasming jaw muscles, and he managed to get it covered by my insurace in 2011, which was harder to do back then. This helped the pain tremendously, but did not solve the underlying problem, and I had to get repeat injections every three months. After a couple of years, this began to lose effectiveness, and I needed treatments more often than my insurance would cover. The surgeon did a scan on the joint and saw slight damage to the tissues. He then got approved by insurance to do a small surgery on the massseter (jaw) muscle - making an incision, and then splicing tissue into the muscle to stop the spasming. It worked amazingly, but about three months later it had stopped working. I was on the verge of seeing the top oral surgeon in our city, but instead of operating on me, he referred me to a unique group of dentists who focus on the TMJ and its biomechanical relationship to teeth occlusion (i.e. how the teeth fit together). This is what your dentist did, and what he did to you was boderline if not outright malpractice. There is a dental field that specializes in doing this kind of dental work, and it takes many years of extra schooling (and a lot of money invested into education) to be able to modify teeth occusion in this manner. Just based on the way you describe your dentist doing this, I can tell he was not qualified to do this to you. Dentists who are qualified and engage in this practice take many measurments of your head, mouth, teeth, etc., they take laboratory molds of your teeth, and they then make a complete, life-size model of your skull and teeth to help them guide their work on you. They then have a lab construct, and give you what is called a "bite splint." It looks and feels like a retainer, but its function is entirely different. This is essentially a literal splint for the TMJ that situates on the teeth. The splint is progressively modified once or twice per week, over several months, in order to slowly move the joint to its correct position. The muscles spasm less, stress is taken off the joint, as the joint slowly moves back into its proper position. The pain reduces each month, each week, sometimes even each day you go in for a visit. The joint has to be moved in this manner with the splint BEFORE the modification to the teeth begins. They then add to your tooth structure with small bits of composite, to keep the joint in its proper place after it has been sucessfully repositioned. Subtracting from your teeth, by grinding down bits of your natural tooth structure, is done very conservatively, if they have to do it at all. This process worked for me - after six months, my face, jaw, neck all felt normal, and I had no more pain - a feeling I had not had in a long time. It also made my face look better. I had not realized the true extent that the spasming muscles and the joint derangement had effected the shape of my face. The pain began to return after a few months, but nowhere near where it had been before. This immense reduction in pain lasted for a little over two years. The treatment still ultimately failed, but it is not their fault, and it is still the treatment that has given me the most relief to this day. Later on, I even went about three years with very, very good pain reduction, before the joint severely destabilized again. This field of dentistry is the last line treatment for TMJ issues before oral surgery on the TMJ. There aren't as many denists around who practice this anymore, and the practice is currently shrinking due to dentists opting for less espensive, additional educations in things like professional whitening, which have a broader marketability. Getting this treatment is also very expensive if not covered by insurance (in America at least). My first time was covered by insurance, second time was not, though the dentist took pity on me due to the nature of my case and charged like a quarter of usual pricing. Most cases seen by these dentists are complete successes, and the patient never has to come back again. But occasionally they get a case that is not a success, and I was one of those cases. A little over a year ago, I began seeing the second dentist who keeps my TMJ stable in this manner. The first dentist retired, and then died sadly. A shame too, because he was a truly amazing, knowledgable guy who really wanted to help people. The new dentist began to get suspicious when my joint failed to stay stable after I was finished with the bite splint and his modifications, so he did another scan on me. This is ten years after the first scan (remember, I said the surgeon saw "slight" damage to the tissue on the first scan). This new scan revealed that I now no longer have cartilage in the joint, on both sides - complete degeneration of the soft tissues and some damage to the bone. The dentist sat me down and had a talk with me after these results came in, and said that when he sees damage like this in cases like mine, that the damage to the joint is most likely autoimmune, and that, in his experinece, it is usually autoimmune. He has sent patients with cases like mine to Mayo Clinic. He said he will continue to see me as long as the treatment continues to offer me relief, but also said that I will probably have to see a dentist for this type of treatment for the rest of my life. He is not currently recommending surgery due to my young age and the fact that the treatment he provides manages my symptoms pretty well. I still see this dentist today, and probably will see this kind of dental specialist for the rest of my life, since they have helped with this issue the most. I did not inform him that I am 100% sure that I have celiac disease (due to my complete symptom remission upon gluten cessation). I didn't inform him because I thought it would be inappropriate due to not having a formal diagnosis. I was disappointed, because I had believed I had caught it BEFORE it had done permanent damage to my body. I had never suspected that my TMJ issues may be related to my other symptoms, and that the damage would end up complete and permanent. Luckily, I caught it about 6 months after my other joints started hurting, and they stopped hurting right after I went gluten free, and haven't hurt since. I of course did the necessary research after the results of the second scan, and found out that the TMJ is the most commonly involved joint in autoimmune disease of the intestines, and if mutliple joints are effected, it is usually the first one effected. This makes complete sense, since the TMJ is the most closely related joint to the intestines, and literally controls the opening that allows food passage into your intestines. I am here to tell you, that if anyone says there is no potential relationship between TMJ issues and celiac disease, they are absolutely wrong. Just google TMJ and Celiac disease, and read the scientific articles you find. Research on issues regarding the TMJ is relatively sparse, but you will find the association you're looking for validated.
×
×
  • Create New...