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Rachel--24

Omg...i Might Be On To Something

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Paula,

I believe that you are overflowing again. The new mold discovery certainly hasn't helped. Hope you can get away for even a short time.

Kassandra,

So glad to hear you can eat without getting sick. Hoping what the others have suggested will help.

Carla,

Great news! So glad this has helped.

Rachel,

Can't wait to hear about the appointment today! :D

Donna,

I'll call you and read what Rachel posted......won't be quite as long as if she talked to you though. :P

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I'll call you and read what Rachel posted......won't be quite as long as if she talked to you though. :P

Yeah, I may need the shortened version, lol!

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Rachel - I am SOOO excited for you!

Thanks April and everyone else. :)

I'm pretty much over the moon today. :D

I dont know if its good for me to be getting this excited but I just feel really good about everything right now. I wanted to get to the root of the problem and I just feel that this would have to be the root...I dont know that it can get any deeper than that (in terms of layers). The methylation cycle is kind of like the body's "engine".....so if any part of it is blocked or if the cycle is impaired....then it can cause so much damage. The gut problems I have would be directly linked to that.

I'm still scared that I will be disappointed next Wednesday when I see Dr. P....but for now I seem to be feeling more excited than anything else. :)

What was the test that he ordered to test your methylation cycle? I might look into doing that. Especially since BCBS might be covering more Great Plains labs. Wasn't that where your ordered from?

April there's not really a test to directly test the methylation cycle.....at least I dont think that there is.

I did the OAT from Great Plains....just because I felt that it was a very useful test. It tests for about 65 different metabolites....including fungal and bacterial. Even though I felt like I had a problem with detoxification pathways...I didnt think that any of that could be be determined with the OAT. I ordered the test on my own because it provides alot of info. and I was mostly wondering about yeast, bacteria, oxalates and things of that nature.

A couple of the metabolites that were out of range is what gave Dr. P. a clue that something might be wrong in the methylation cycle.

Other tests that he ordered to help him figure things out were urine amino acids, SAM/SAH and genomic testing of specific SNP's (or genetic variations) that are involved in methylation.

I think most doctors could look at these results and not really understand that there could be a block in the methylation cycle...or where it could be...or even what it means.

I dont think any of my previous doctors really have that kind of understanding as far as the methylation cycle goes. I could be wrong but I felt like I had to go to someone who really KNOWS this stuff...because it is very complicated.

So if you get the tests.....it would be most important to have someone who is very familiar with the methylation cycle (such as a doctor who is using this knowledge to open up the cycle in autistic children). That would be the key.

They are looking more at how functional things are.....by interpreting the levels of all of these metabolites and other things. You can get your minerals and vitamin levels checked and they can appear totally normal....but as far as how "functional" they are....those tests dont tell you that. Having normal levels in blood doesnt mean that things are being transported and utilized as they should be.

I still dont know how far the info. is gonna take me...or how significant it is. I do know for sure that it has to be the most important thing to show up in 6 years. A starting point at least.

In my opinion all of these different conditions autism, lyme, CFS, Fibro, MCS, etc...are mostly different variations of problems with biochemistry. If they truelly understand how exactly autism is triggered and how to resolve it....I think it can be prevented. I think the same treatments would also be successful in treating all of these other conditions.

We have a whole "spectrum" of ASD's.....I think its just variations of the same thing. Some people are more affected than others. A person with very mild symptoms will never develop full blown autism (past the developmental stage) but its not to say that they wont later on end up with one of these other conditions because of impaired detoxification.

On the inside (biochemistry) I dont think my condition is all that different from that of a child with autism...but the symptoms are much different because I'm an adult and my brain, immune system, etc. has already developed normally.

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I was thinking of another thing: Healing with light is not new. They used to heal thousands or millions of patients from tuberculosis with guess what: sunlight. Probably wasnot just vitamin D alone.

nora

Yes, my father was one of them. He contracted bovine TB from raw milk. There was no treatment. He lay in the sun through the summer and finally recovered instead of dying.

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Just got back from the appt. with Dr. T.

I figured that Lyme and all the rest is gonna show up because of the work I've already done with Anna....the testing is very similar.

So yeah....the results were also similar. I could probably go back to my post from my first screening with Anna.....and much of it would be the same as tonight's experience with Dr. T. The only difference is that I cried after my first visit with Anna....and I was very confused and overwhelmed. This time everything was pretty straight forward...I understood every bit of it....but none of it is good news. :(

Yes, my methylation is blocked...its majorly blocked....I am stuck in a BIG way.

Massive Lyme infections showed up.......it was the same as when Anna tested me. Back then I had alot of the Lyme bugs showing up....and tonight it was no different. I have alot of co-infections. Some of them are pretty minor...whereas Babesia is huge...its the worst one. Lyme isnt that much of a problem but the babesia is not gonna be easy to deal with.

Mycoplasma and others have kind of latched on....but they arent huge like Babesia.

Metals are huge.....especially mercury. She said I have massive amounts of methyl mercury.

Everything comes back having numbers next to it. This would be the level which indicates severity. 1x or 2x....would be less of an issue.....whereas anything above 5 would be more of a problem.

Methyl mercury was 12 x :o

Phenyl mercury 6x

Ethyl mercury 4x

Mercury 3x

Sodium ethyl mercury 3x

Lead 5x

Aluminum 3x

Cadmium 2x

Arsenic 3x

There were a few more but I'm not gonna type everything out....yeah...can you beleive it?! I'm saving space. ;):lol:

Latent Babesia is 10x

She was kind of expressing herself the same way Anna did the first time she tested me.....so I knew things werent looking too good.

She said that I am so incredibly blocked right now. The infections had to have been hanging out in my body even though I wasnt sick. She said they were just there...I would have never ended up in this predicament had it not been for the exposure from the metals.

She said when the fillings got drilled out and all that metal came in at once....those bugs totally went for it. She said they went "OMG....We have armour!!" They held onto the metals and have been holding on ever since. They love the metals and now they have a strong bond with mercury and the rest.

She said that when she's looking at all of these infections and she turns "filters" on to see what is there with them....its the metals. She said that she can tell that they are together "as one".

She had a sponge on her desk (for wetting fingers or whatever)....and she said to say that the metals are not "with" the infections would be like saying that the water is not "with" the sponge....even though you can obviously see that they are "together".

So she said that this IS the block. The methylation cycle is blocked BECAUSE of the metals and infections. She said that I will show no evidence of a major issue with metals in any test....because they are so locked up. No chelator is going to do anything with the infections holding on and the methylation cycle blocked the way that it is right now.

Treating the infections is not going to do any good either because of the methylation cycle being blocked. I can move these things around but there is no way out. Also, going after the bugs is like hitting a metal wall....literally. I'm not going to get very far.

She tested every possibilty for opening up the methylation cycle and I dont tolerate ANY of it. I'm so blocked that whatever I need....is also going to cause me major problems if I try to take any of it.

Everything that my body can use to help itself....I react very badly to.

I also test badly for all treatments including EVERY antibiotic. I definately wasnt crying over not being able to take the abx. :P

She said it can be done without abx....she said she suspects that my body has everything it needs (on a nutritional level) but it cannot do what it needs to do. She said that we just really need to find a way "in". It could be just one small thing that lets us in....but once we can get the door open we can really move forward.

She said that my body is gonna do alot of what it needs to do on its own....if we can open up the block....even just a little. We cant do anything about metals/infections as long as the door is closed. We cant open the door and keep it open without doing something to move metals out and treat the infections...because they are causing the block to begin with.

She said it will have to be a little of everything. Something to open up the pathway a bit, something to help the metals come out and something to target the infections...all at the same time.

She was typing most of this out on her computer....for Dr. P. She answered all his questions and sent that back to him.

He wanted to know if she had any ideas. Her only ideas right now is that I can tolerate some herbs....but the only way I can use them is to rotate them. On top of that...I can only take 1 drop of anything I use. Two of the ones she said I can probably tolerate at 1 drop is GSE and Pau D'arco.....I can also use my Cowden herbs.

As far as dealing with metals and opening the pathway she wants me to try iodine. She said I might be deficient and its something very cheap that I can apply to my skin (since I dont really have skin reactions) and it may even provide us with a tiny window.

She said if I'm needing the iodine it will help my endocrine system and it will give my body a little extra strength...it could make things function a little better....including the methylation cycle. It can help to excrete some of the metals.

So its gonna have to start like that....no big treatment for anything is gonna go over very well. She doesnt know what Dr. P. found in the test results but it could also be something which will provide us with a way "in". She said the genetic testing can tell us a whole lot and sometimes something they find can be very significant and could also provide us with a way to really open things up.

Opening up the pathway is definately critical....but like Dr. P. told me before..."I can open up the pathway but if Lyme or virus is a factor...and we dont know that.....no metals are coming out regardless....they will still be locked in."

So now we know for sure that Lyme & Co. are connected to the metals. So yeah...even if we open the pathway the mercury isnt gonna just come out without also treating the infections.

Virus is not a major issue...so I think we can truelly rule that out now since every alternative and conventional test havent come up with anything as far as viruses go. There were a few that showed up....along with fungi and yeast stuff...but none were significant and she said all these other ones just hitched on for the ride.

I asked if I'm the most blocked she's seen....and she said that there are others who are just as blocked....but I might be the only one who's this blocked and still functioning pretty well. She said that somehow my body found a way to cope.... a way around everything in order to keep me functioning.

It was most likely because I took so many things that were burdening it away....and now its able to deal with everything a little bit easier.....but I'm still very burdened by whats going on.....and thats probably about all my body can handle right now. Nothing on top of that...including STRESS! :angry:

I already have the herbs that I can take...so I just need to get a small bottle of iodine. She said that each day I have to try something else. If I use iodine one day...I cant use it again for 4 days. I cant repeat the same item without having 4 days off....and I cant take more than one drop of anything.

She said that we cant give my immune system time to start reacting to something....we have to do this in a way that my body can handle.

She said that glutamine is a BIG no-no for me. She said my body is just not wanting it anywhere near me.

Glutamine = 24x :blink:

She asked me if I ever tried it. I told her I did....about 4 years ago when I was trying to heal leaky gut. I told her it didnt go over very well at all. She said "I bet it didn't."

Nope...I think I stopped after 2 days...and I was pretty messed up from it.

Its the same with alot of the important things my body needs...glutathione, B12, folic acid, COQ10, EPA, etc etc. Right now my body freaks out with everything. Every single thing that is used to improve methylation....is not tolerated AT ALL.

All of the questions that Dr. P. had for her were written at my last visit with him......so that was before he got the new test results in. I dont know if anything that came back will help with this situation.....given the fact that I dont tolerate anything. I just have to wait and see what he says.

I asked her if Dr. P. is having alot of success with people like me. She said that he is....he's very good at dealing with Lyme and she said he's kind of "brilliant".

I told her I really like (and appreciate) his enthusiasm. :)

I guess I'm back on that emotional roller coaster.......over the moon a few hours ago....and now.....not so much. :rolleyes:

Will have to wait and see what Dr. P.'s plan is.

I dont get the impression that the infections are very active....just that they were already there ...then when the metals came in they just grabbed on....and this has caused some major problems.

I figure thats why the Lyme and Babs were only found in my head.....and showing up very weak (and then not at all). They are there because this is where the metals are. She said they would have went straight toward the metals as soon as I had the exposure. I'm thinking Babesia is the one that won the fight for "Who gets the most armour". :rolleyes:

I do feel like if things start to open up its going to make a huge difference. Right now I'm just worried that we wont be able to find a way in. She said there is always a way to get in...I dont have to remain "stuck" this way....we just need to figure out what will work.....and the answer could be in Dr. P.'s lab results. We dont know yet but I'm not holding my breath.

We'll see what happens next week.

When I left her office I got really sad.....the major thing I'm feeling is that there will never be an end to the beef and peas diet. Physically I dont have a ton of stuff to complain about (maybe just the head symptoms).....but the food restrictions are pretty bad.

I guess I need to go buy some iodine now. She said that if its gone in 24 hours I will know that my body needs it. I'm pretty sure that it'll be gone because I think that at times my thyroid is still overactive.

Ok...so none of this is really new or shocking but at least I know that I'm not getting anywhere without dealing with all 3 of these major issues. Chelation didnt even touch the metals, lyme treatment would have been disastrous (metals spilling everywhere --> no way out--> major redistribution, etc). The methylation problem has to be improved or nothing will get better.

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Rachel,

Wow! :o Wow! :huh: Did I say Wow?! :o

Sounds like you did get some new answers from this gal anyway. I'm hoping that Dr P will have gotten some answers too and you can start slowing chipping away at the methylation cycle and keep an opening long enough to start moving things out.

Sounds like Dr P is a great Dr to been in with and that he's helped other people out.......keep your chin up..........they'll get you through this one baby step and a time.

I'll be waiting for the iodine post.......I'm in the same suspicion as you.....it will be gone before the day is up.

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Wow, Rachel. That was a lot--and some good confirmation and explanation. Sounds like lyme is a bigger player than you thought?? The "putting on the metal armor" analagy was very graphic. It helps to see how all of this stuff works together.

I will really be looking forward to what Dr. P. says. I hope soon there is a regimen that starts to move the block.

Sherry

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Rachel, I hope the other doc can help you figure out how to start detoxing better.

Its really exciting that you are improving, Carla. Do you understand any more what the photons are doing to the cells? You mentioned to help them recognize the lyme. How does that work I wonder?

Sherry

The Lyme bacteria has frequencies so your body picks up on that even though the Lyme inside the body may be in hiding as mentioned by Rachel.

The photons give the cells energy .... that's a simplistic explanation .... but it has a complicated process the photons do to help the cells on a cellular level. If you go to LN and the Bionic 880 thread, GiGi has posted there about how it works (p. 14 or 15). I can't do a better explanation than hers.

I can say, this treatment is extremely powerful. I think it would help even those with disturbed detoxification because it helps your own cells and your own cells do the killing. They don't do the work any faster than your body can handle (from my experience). That is why there is not really a herx. You do feel the healing, but it's not herxy ... not like you've killed off more than you can eliminate. This treatment is giving energy back to the body so the body can care for itself .... totally different methodology than drugs or even herbs.

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Rachel,

All that info made my head spin. I know the new dr. will find an way to get IN.

What is the iodine thing? Is it something anyone can do to see if u are iodine deficient.

Everyone,

Have any of you dont an pesto of garlic, parsley and olive oil to move out metals. My moms besft friend is heavy metal toxic and she said I need to mix those ingredients together and start off with only one teaspoon an day and slowly move up to 4 teaspons by then end of the 14 day.

paula

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Okay Rachel, I'm so excited about your new team!!! I'm definitely going to see Drs. T and P when I get through this surgery!!!

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Everyone,

Have any of you dont an pesto of garlic, parsley and olive oil to move out metals. My moms besft friend is heavy metal toxic and she said I need to mix those ingredients together and start off with only one teaspoon an day and slowly move up to 4 teaspons by then end of the 14 day.

paula

I wouldn't do it.

Hey Rach, sounds like a good visit. Yeah iodine is real good. Dr M. gave me a bottle of it and I still have half.

It helped me I believe to start my regulars again.

That amour that the bacteria is so right on. I talked with Dr. M. C. of Waiora and he said that he believed that lyme and co infections have a protective shield of some sort. Maybe he didn't realize it was heavy metals that were the amour though. So how can you get rid of the co infections if they are covered with metals and stuff like that?

It's like our pipes are clogged up and we need drano.

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As far as dealing with metals and opening the pathway she wants me to try iodine. She said I might be deficient and its something very cheap that I can apply to my skin (since I dont really have skin reactions) and it may even provide us with a tiny window.

She said if I'm needing the iodine it will help my endocrine system and it will give my body a little extra strength...it could make things function a little better....including the methylation cycle. It can help to excrete some of the metals.

Rachel, I think its good that you saw her before going to the doc even though he thought he had it figured out. Now, there won't be any wondering....

About the iodine...I totally believe in iodine usage and it can be very powerful in that it does detox and kill bugs, yeast, and cancer cells. I take it 3-4 times per week. I have lots of info on it - i'll post more later :)

The last one I ordered was Nascent Iodine. They sell it on the LL Magnetic Clay website. It's less concentrated than Lugol's and okay for children. That might be right up your alley - since its gentle.

Rachel,

All that info made my head spin. I know the new dr. will find an way to get IN.

What is the iodine thing? Is it something anyone can do to see if u are iodine deficient.

Everyone,

Have any of you dont an pesto of garlic, parsley and olive oil to move out metals. My moms besft friend is heavy metal toxic and she said I need to mix those ingredients together and start off with only one teaspoon an day and slowly move up to 4 teaspons by then end of the 14 day.

paula

Paula, most people are iodine deficient because our diets lack the nutrient. Plus its just not found in the soil like it used to be. Iodine deficiency is starting to be a common factor found in a lot of breast cancer patients. OUr breast hold a lot of iodine in the tissues as well as other parts of the body - including the thyroid.

I think Iodine would be good for you, Paula, to keep some things under control - small, small doses!!!

I wouldn't try that parsley, garlic thing! Until you get the mold exposure under control, you will probably not excrete what you dig up. The sulphur in the garlic will detox, but what will help it excrete?

Parsley is a good blood cleanser. Maybe just try eating a little and see how you feel.

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Hi Everyone!

I've been lurking for quite some time now, but it's definitely time for me to post! Rachel, your new team is actually MY team! lol! I've been working with those doctors for two years now, and I am SO happy that you've found them because I think that they are the most brilliant people that I've ever met in my life. I know they can help you!

Dr. T has been a lifesaver for me, and I believe that Dr. P is the only person that will be able to "fix" me. I have a ton of issues, and Dr. T and Dr. P have worked as a team now to peel away the layers. I'm like an onion :) Unfortunately though, I think I'm one of the toughest onions they've dealt with in a while. That's not exactly something I'm proud of. I feel terrible for them, because they really keep hitting these walls with me. I do believe though, 100%, that they will help me to regain my health.

I was so excited to see your results from your appointment with Dr. T, and even more excited to see you talk about the methylation cycle. After two years of work with these doctors, I FINALLY started to methylate a little last week. Dr. P couldn't figure out why the heck he couldn't push my pathways open...but we finally think we might have hit an answer. He started me on a couple of different antivirals, along with my other 30 supplements (lol!) and things started to change a bit. He thinks once I get back on antibiotics I'll do even better because the lyme could have it locked as well.

I'm not on antibiotics though right now because I became so ill when he put me on them that we had to stop and have an emergency appointment with Dr. T. Dr. P was shocked when she found:

Mycoplasma 600x

B12 1,000x

Among many other fun things and high numbers. The secretary in the office hadn't even heard of such high numbers before. That really scared me. 600?!?!?! The highest I had ever gotten before was a 12!!! I honestly thought I was going to die. I was so ill.

He got my mycoplasma number down to a 9 by the next time I saw her though! He really is brilliant :)

Okay, I could honestly talk about this ALL day...I'm just so excited to see someone else talking about it. So I hope to continue conversation here, if that's okay with you guys :) I think a lot of my family and friends think I'm crazy, with my 1058395835 supplements and 201483895983 food sensitivities, and all of this energetic testing. But it's really, really exciting for me to see that there are people out there that I can completely relate to, and really get it!

I hope that these two doctors are the answer for you....I believe that they can really help you!!! I wish you nothing but the best :)

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welcome littlelymie,

That is so cool, you see the same drs as rachel.

Who wants an houseguest for a couple of wseks, i want to see these drs lol

April,

YOu are right i need to figure out the mold, before i start anything with the metals. I am just so tired of being sick, i want to jump in and get rid of all the toxins in my body.

I looked up the iodine skin test, and some say after 4 hours, some say after 12 hours, some say after 24 hours if its still there then you are fine. When do i really have to worry lol

paula

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Welcome Littlelymie! Your doctors are soon to be my doctors, lol. I see all of RAchel's "old" doctors. :P

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Rachel,

Wow! :o Wow! :huh: Did I say Wow?! :o

Sounds like you did get some new answers from this gal anyway. I'm hoping that Dr P will have gotten some answers too and you can start slowing chipping away at the methylation cycle and keep an opening long enough to start moving things out.

Andrea...did you say WOW? :o:lol:

Yes...it is good to have everything coming together. I doubt I'll need any furthur testing as far as getting to the root of the problem.....now its all about how to get IN??

I stayed home from work today so that I can sort of "process" everything. "M" just gave be a big "pep talk"......I was feeling pretty bummed out about not tolerating ANYTHING. I just really want to start moving things along because I do feel that my body will let go of it...if it is given the opportunity.

She said that I already knew ALL of this...and that I should be very excited to have found Dr. P. She is REALLY liking Dr. P. :) ...she said in the past 6 years nobody is making progress with me and after only two visits he is finding answers and he is ready to do something about it. She likes him alot.

She said I'm doing so well.....I've come so far and finding the right doctor is the hardest part. She feels that he IS the right doctor for me and that he WILL find a way in. She is very positive and optimistic about my next appt. with him....and she still thinks he's gonna know how to proceed.

I feel alot better now because everything she said is true. I have answers, I am functioning better than most would expect, I found a doctor who has experience with every critical part of this...so I should really be thinking only positive things at this point.

Even though I *know* that I am extremely blocked (as far as detoxification) I think that sometimes BECAUSE I am functioning so well (and appear to be "normal") that I forget how much is really going on with me. So I guess I do the exact same thing that I get frusterated with other people for doing.....forgetting how "sick" I really am. :rolleyes:

It just hit me pretty hard when the doctor was shaking her head in frusteration because I'm so loaded up with toxicity and not tolerating anything. Its a big reality check. I got the same reality check from Anna, Amy...and especially Dr. S.(numerous times :rolleyes: ).

I just felt it all come flooding back yesterday. I definately want to know EVERYTHING....and I dont want to be in denial about any of it....so I welcome the information....but the feelings that come with it I also have to deal with. I think the better that I feel...the more it seems less "real".....and then hearing it and seeing my results makes it all VERY real.

I'm in agreement with everything that Dr. T. had to say. We were definately on the same page. My appt. went so quick.....we didnt even use the full hour and I was charged less than what I had expected. I just understood all of it....it all makes sense...it doesnt conflict with any previous information....she didnt have to really explain anything.....and I didnt have alot of questions.

I already know that the bugs and toxins live together.....I dont know how many times I've posted it and yet to hear her say that she is "seeing" them right on top of each other...being one with each other...and totally connected....for some reason it just had a big impact.

When she first started the testing she said "You are showing all kinds of bacteria...massive infections....were you AWARE of this??" :unsure:

My heart just dropped.

Ummm....yeah....those Lyme bugs have always showed up.....they just didnt show up in labwork and they barely showed up in ART...and I didnt think they were very active.

Well, apparantly they dont need to be very active to cause major problems when mercury comes into the picture. She said most likely they wouldnt show up in tests...they are covered by the mercury. Thats the same thing Amy had told me with regards to my negative western blots....and maybe why they show up so weakly in ART...they are hiding behind the metals.

The reality is that the metals are the biggest issue...but these infections played a big role in that. They cant be ignored since they are "combined".....they are connected to the metals and therefore not a seperate issue.

Its still possible that I would have had problems detoxing the mercury even without the bugs holding on...I dont know all of the genetic stuff yet.

I only got one portion of the genomic testing (which was $400).....Dr. T. said the full test is around $2000.....but she said that this is a good start. I will get all of it if necessary.

M.'s pep talk got me excited again. I let out some tears, talked about what I felt.....and now I'm moving forward cuz she said I'm a fighter...and I will get through it. :)

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Hi Everyone!

I've been lurking for quite some time now, but it's definitely time for me to post! Rachel, your new team is actually MY team! lol! I've been working with those doctors for two years now, and I am SO happy that you've found them because I think that they are the most brilliant people that I've ever met in my life. I know they can help you!

Wow...thanks for posting LittleLymie!! :)

I'm so excited that you are working with the same doctors!! I can definately talk about this all day too. :lol:

Your post was encouraging to me. I feel very comfortable with Dr. P.....and I know that I will stick with him. I know when I've found a good thing. ;) He and Dr. T. make a very good team. She was very hard to schedule with though!! It is always that difficult??

I've been in that office for over 2 years but I was seeing Dr. S...and working with Anna (similar to Dr. T) and just decided to switch because Dr. P. seems to be more involved, more pro-active and definately knowledgeable about the methylation cycle. I like how he and Dr. T. are truelly working on it together....beacuse there wasnt much "back and forth" between my previous doctors.

I spent alot of time in the IV room (chelation and minerals) but never got any better because noone was really looking at methylation.

Again, I'm really excited that you found this thread and that you decided to join us. :)

I'm happy that you have had such positive experiences with Dr. P & Dr. T......and I'm happy that I found them as well. I feel really good about continuing with them. I do think I will have positive changes in my health working with them....because its obvious that they do not mind a "challenge" and they really care and want for us to be well again. :)

Mycoplasma 600x :o

That would scare me too! Sounds like Dr. P. knew how to bring it down though. YAY!

201483895983 food sensitivities

We definately have this in common! :lol:

My supplement list is much shorter though.....I own alot of stuff.....just cant actually TAKE any of it.

I hope that these two doctors are the answer for you....I believe that they can really help you!!! I wish you nothing but the best

Thanks!

I wish you the best as well....sounds like you are on the road to recovery and I believe that you WILL get there. We both will. :)

I look forward to sharing experiences and other stuff here if you would like to stick around. We're all pretty much going through similar issues....and yes...its nice to find people who can relate and who understand all of what we're dealing with.

I can assure you that nothing you bring up here will be "foreign" to any of us. ;):D

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I can say, this treatment is extremely powerful. I think it would help even those with disturbed detoxification because it helps your own cells and your own cells do the killing. They don't do the work any faster than your body can handle (from my experience). That is why there is not really a herx. You do feel the healing, but it's not herxy ... not like you've killed off more than you can eliminate. This treatment is giving energy back to the body so the body can care for itself .... totally different methodology than drugs or even herbs.

Carla....woohoo!!! :D

I'm glad you are feeling better....its very exciting.

If my new doctor has a hard time opening things up maybe this will be my next step. :)

I'm curious about OSR (as far as giving the body energy so that it can do more on its own).....I know Scott's been taking it but you need a Dr. to get it. He saw Dr. P. at a conference last weekend and brought it up to him....but Dr. P. wasnt familiar with it (I dont know that many doctors are using it yet). He said he gave him some info. on it.....maybe it will help me since I dont tolerate glutathione supplemenation of any kind.

Anyway, S. is leaving for Germany tomorrow so you will meet him very soon. :)

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Welcome Littlelymie! Your doctors are soon to be my doctors, lol. I see all of RAchel's "old" doctors. :P

:lol:

Yeah....and I cant wait for you to start seeing the "new" ones. :P:D

Dont forget that surgery is on TUESDAY. ;)

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Dont forget that surgery is on TUESDAY. ;)

:lol: !!! Yeah, I'm remembering NOW, but will I then!

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Wow, Rachel. That was a lot--and some good confirmation and explanation. Sounds like lyme is a bigger player than you thought?? The "putting on the metal armor" analagy was very graphic. It helps to see how all of this stuff works together.

Yeah....its a bigger player than I thought because even though I knew that they were hanging out together (metals/lyme) I didnt know that lyme was holding onto it as much as it seems to be. So yes......Dr. K. has been saying it for years.....and it really rings true for me. They are not seperate issues by any means.

It puts things into perspective thats for sure.

What is the iodine thing? Is it something anyone can do to see if u are iodine deficient.

Paula,

Anyone can test themselves with iodine. Just put a small amount on your skin and check to see how long it remains there.

About the herbal metal detox....personally I would not do it. I dont think its a good idea to stir things up that way.....and you dont know how well you can excrete whatever you might mobilize.

I agree with the others who have said its probably not a good idea.

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Hey Rach, sounds like a good visit. Yeah iodine is real good. Dr M. gave me a bottle of it and I still have half.

It helped me I believe to start my regulars again.

What brand did you use? Maybe I can go to his office and get some.....I'm sure it would be better than the stuff I planned on getting at Walgreens. Or maybe its all the same?? :unsure:

Anyways, I do think my body needs iodine......so hopefully it will do me some good. ;)

That amour that the bacteria is so right on. I talked with Dr. M. C. of Waiora and he said that he believed that lyme and co infections have a protective shield of some sort. Maybe he didn't realize it was heavy metals that were the amour though. So how can you get rid of the co infections if they are covered with metals and stuff like that?

Dr. K. calls the parasites "knights in shining armour" because he believes that they coat themselves with the metals. Babesia is a parasite..its the one showing up as my biggest problem right now.

You cant treat the infections without treating the metals (if they are both an issue).....you have to treat both of them and you have to be able to excrete the metals.....or you end up with redistribution.

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About the iodine...I totally believe in iodine usage and it can be very powerful in that it does detox and kill bugs, yeast, and cancer cells. I take it 3-4 times per week. I have lots of info on it - i'll post more later :)

The last one I ordered was Nascent Iodine. They sell it on the LL Magnetic Clay website. It's less concentrated than Lugol's and okay for children. That might be right up your alley - since its gentle.

Thanks April ....I'll check it out. :)

and yes....iodine scientificness pleeeeese. :D:lol:

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rachel,

I wish we lived closer then we could sit and talk about so much lol

Everyone,

I just got my stool test results back and im freaking out here. Im so confused on them right now.

paula

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Don't get frustrated with the fact that nothing tested well for your system. I've been going through that for 2 years, and though it's very frustrating and down right scary sometimes, Dr. P and Dr. T tend to find loop holes here and there that will allow them to slowly chip away and unlock things.

This is definately encouraging! I know that there isnt an easy answer but just having doctors who are patient and will work hard to find the "loophole" is all that I can ask for.

I think that because I'm functional I sometimes feel that its not going to be very difficult to get things back on track. Reality hits whenever I get tested and I'm not testing well for anything. My previous doctors had a hard time finding things that would work for me and we havent gotten anywhere with anything I've done....and I believe its mostly because I've been so blocked all this time.

Dr. T. said there is ALWAYS a way in....so that is good news...at least I dont have to stay "stuck" like this forever!

My friend just reminded me that I've been like this for 6 years....and I'm not going to get better tomorrow....its going to be exactly like you said "slowly chipping and unlocking" until things start to really open up.

Dr. P has gotten a little frustrated with my system lately, because I'm not functional and I need something to be done right now to get me to a point where I can function, but he can't find a loop hole. Dr. T doesn't always agree with this, but he said that in this case, it's time to force our way in. It's going to be uncomfortable, but he thinks I'll be able to hang in there and pull through it.

Yeah....things are more urgent when you cant function. I think its good that Dr. P. isnt totally afraid to push forward when there is no other option. My previous doctor was very scared to do anything...and I agree that its important to go slow....but eventually you have to do something. I just wasnt making progress because we werent really doing anything.

I was also seeing Dr. Amy (from Washington) and I wish I could see her all the time. I think she's amazing...but she's not coming to the area anymore. When I found out I wouldnt be able to see her anymore (unless I travel)....that was when I made the decision to try to find someone who is just as dedicated and knowledgeable but who is right here in the area. I picked Dr. P. :)

I hope that whatever he does to get his way in....turns out to be exactly what you needed.

I trust Dr. P a lot. That's huge for me because I lost all my trust and faith in Doctors after years of trying to get somewhere in the Kaiser system.

We definately have this in common because I was also stuck in the Kaiser system for the first 3 years that I was sick. I was very angry and bitter but fortunately as soon as I left Kaiser I ended up moving in the right direction and all of the doctors I've been with have been wonderful. I was at the same point you were at with not really trusting any doctors and pretty much losing hope.....but things obviously turned around for both of us.

But between Dr. T's suggestions and Dr. P's tenacity, last week we finally pushed my body to a point where it opened up a bit. I'm still not doing well, but I've made improvement. I'm sure you can understand and appreciate how huge just a little bit of improvement is, with systems like ours! We seem like we're a lot alike :)

Yes...a "little bit" of improvement is definately something to celebrate around here! I understand completely and I'm sure it has been exciting for you to see that something is changing for the better! I hope it continues in that direction. :)

And YES...it's always VERY difficult to make an appointment with Dr. T. I think it's because she's so fabulous :)

:lol: Yes....she does seem fabulous and I'm glad I didnt give up and cancel the appt.! I think I've been spoiled because so far I hadnt really had to wait long for appt.'s with any of the people I've seen....except for Dr. Amy who was not in this area.

Well...I like her....and I trust her already so I guess I will have to learn to be more patient. :P

I've spent a good amount of time in the IV room too! Maybe we've seen each other and we don't even know it! I don't tolerate any of the IVs that they give me, since my organs have become so toxic, but maybe that will change now that I'm methylating a little bit! I am currently going in for a little bit of IV sanuvis though, which is Dr. P's homeopathic version of a cross between a steroid and a benadryl. I'm tolerating it really well and on some days it really does help all of the inflammation in my body.

Yeah...maybe we have seen each other!

Donna (dlp252) has seen me in the IV room. Unfortunately, I was passed out and wasnt aware she was there. I was drugged by two slices of pizza prior to my appt. :ph34r:

Sanuvis!! I LOVE that stuff....never knew how to spell it though. I would get an injection of sanuvis immediately after every IV DMPS treatment that I had. One time the nurse forgot the sanuvis and I had a reaction to the DMPS. After that I always made sure it was there ahead of time.

And yes!!! Dr. P was actually on the phone listening while Dr. T was testing me. It was an emergency appointment, after I had just ended up in the ER, and Dr. P wanted to know what the heck was going on. He had a verbal outburst when he heard Dr. T say "Mycoplasma is a 600!!!!". The secretary in the office almost fell out of her chair. That did wonders for my anxiety. LOL!

LOL...that is so cool that he was there on the phone while you were getting tested! I still cant believe the mycoplasma 600x.....OMG!!

I actually came to the board originally because I've talked to six before (and kass!) and she mentioned you and said we had similarities in our sensitivities. I can't tolerate my supplements either, which is why I have to do bioSET three times a week to keep them clear. The bioSET doesn't help with my food sensitivities though. I have to eat the same thing in mass quantities everyday :( But I know I'm preaching to the choir here because you do too!!

LOL...yes...I certainly know about eating the same foods everyday...and in LARGE amounts! BioSET didnt help me with the food sensitivities either....I'm not sure if it helped with supplements because at the time I really wasnt taking much.

Ohhh.....I remember kassandra said she had met someone in Nor. Cal who was dealing with lyme. Maybe it was you? We do have alot of similarities and now we are even seeing the same doctors! I hope we both make alot of progress soon. Kassandra seems to have made alot of improvement recently and I'm really excited for her! Carla is making progress as we "speak".....I think really good things are happening around here. :)

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