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Rachel--24

Omg...i Might Be On To Something

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Doesn't pumpkin seeds kill parasites?

I know they are really good for you - I found this from googling. I was craving them just this morning.

Pumpkin seeds

Pumpkin seeds are one of nature's almost perfect foods. They are a natural source of beneficial constituents such as carbohydrates, amino acids and unsaturated fatty acids. They contain most of the B vitamins, along with C, D, E, and K. They also have the minerals calcium, potassium, niacin, and phosphorous. Pumpkin seeds have mainly been used to treat prostate and bladder problems, but they have also been known to help with depression and learning disabilities.

Nancy

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This might be a good day to bring my voice recorder. :P

Not that you'll see this......but take the voice recorder!

Hmmmm, maybe I should call you within the next few hours. ;)

Andrea,

I pm;ed you my addy for the donna update.

Got it, sent it.

Sherry had posted about the bromelain/pumpkin seed diet she did. Maybe she'll pipe in on this.

Nancy,

I had the round of flu shots one year when my daugher was the only child......I'll have to look and see how old she was. Seems like she got more difficult after her 2nd birthday sometime before 3. Her brother I figured to be part of the cause of her change, but she started on what I can the hypersensitive side after that. I do know that ASYRA came up with vaccine negative effects (or something like that). I know she'll very difficult.

Rachel again,

You need to email me the ways to approach her where she's not on the defensive, etc. I need to have this stuff to refer to because most times are challenging. <_<

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Do you have to avoid EMF's the majority of the time you're there...or just for a period of time following the treatment? Here at my mom's we unplugged the computer for 24 hours after my LED treatments....but it was only once a week for 24 hours that we had to do that. EMF's would also reverse the LED treatments.

He doesn't say we have to avoid the computer, just the wireless. The computer where we are is wired and we have our wireless turned off. We don't spend a lot of time on the computer .... but we all are checking our email, etc. a couple times per day.

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What I remember about pumpkin seeds is that they cause numbing or paralysis to tapeworms so they will let go of the wall of the gut. Then bromelain from pineapple can kill them. I don't recall specifics about other parasites.

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Babesia is my big issue of the moment as well. I'm on 4 capsules of artemisinin a day, plus enula and it's getting to be a bit tough. Do you have other babesia symptoms, like the shortness of breath and air hunger? The air hunger is what's really getting to me right now. There are moments when I think that I have to go to the ER, but I don't because I know they can't do anything for me there.

I'm supposed to start zithromax soon as part of my babesia treatment...have any of you used that for babesia before? We don't have it yet because it's incredibly expensive and we have to pay everything out of pocket, but once we do find a way to get it I'll be starting it at half of a pediatric dose.

I use zithromax and it really helps. The artemisinin and enula are not enough to keep the symptoms down. I tolerate it very well. I buy mine over the counter here (it is Pfizer too) and it is cheaper. I pay about $10 for 6 250 mg pills.

Sherry

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latest news: I surfed by Connie's blog Lyme bytes at blogspot and if you look at the comments on the last blog entry , someone from california posted that her doctor got a bionic 880. I have read rumors of that before but now it is more official.

Thanks, Nora. This is encouraging.

Sherry

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I'm home from my appt....

I dont know exactly how I feel right now because I havent really had enough time to process everything yet. I can tell you this much....6 years later I have THE answer. There is no more wondering about any of it.

Dr. P. truelly did have the answers in these last test results. I think I'm feeling extremely relieved.....but also a teeny bit in shock.

I had two tests run...one was the genetic testing (detoxification panel only) and the other was a blood test to measure the levels of SAMe and SAH (to see if there is a block in that part of the methylation cycle).

I was thinking that the second test might have showed a problem in that part of methylation which is why he wanted to see me and to start treatment. Dr. T. identified a block in that area when she tested me last week.

I was hoping maybe a genetic mutation would show up which might explain why all of this happened...but I wasnt really holding my breath on that one. Earlier today I was thinking that it was probably another $400 gone (the cost of the genetic test)...but with no real answers....and I decided that I was OK with that. It was something that I needed to do.

The results of my genetic testing kind of blew Dr. P. away. As it turns out...I have MULTIPLE genetic mutations in both phase I and phase II of detoxification. My body's ability to detoxify is significantly impaired by these mutations. He said that he would fully EXPECT someone with these mutations to have all of the problems that I have...particulary multiple chemical sensitivities.

There is absoltely no question as to why I'm sick.....these genetic mutations are the *root* of the problem. My ability to detox heavy metals is very impaired...so there is no doubt that my burden would be very high.

I'm not going to type out all of the scientificness of it in this post.....I'll do that later if anyone is interested in the particular genes involved, what the health implications are for each mutation, etc.

Phase I detoxification is the first line of defense against toxins.

I have 2 mutations in phase I (Cytochrome P-450)

Phase II is the second line of defense against toxins....conjugation and elimination of toxins.

I have two different gene mutations here....and I am also missing one gene entirely. :huh:

The "absent" gene is one of the genes responsible for glutathione conjugation (glutathione-S-transferase). Since I'm missing that gene I am at much higher risk for chemical sensitivities, certain cancers, etc.

The first two mutations in phase II affect the liver and the gut. The absent gene affects the liver and kidneys.

So....the verdict is that I have MAJOR problems with detoxification.

Dr. P. said that he had stopped doing genetic testing but after seeing my results he will probably be using them more frequently now. He said that in his autistic patients he will usually see one mutation...but I have them all lined up. Its amazing that I was not experiencing symptoms much sooner...especially since I smoked for 14 years. :ph34r:

He said that I must have been walking around at around 90% (meaning 90% as far as toxic burden) and then the mercury exposure pushed me way over.

I mentioned that it was a good thing I didnt recieve so many vaccines when I was young....and he said that if I had I would have been in very very bad shape. Lucky for me they didnt start start increasing the vaccines so much until the late 80's.

So yeah...I know I've always said I felt I would have been autistic if this had occured when I was a baby....but actually *seeing* all of these mutations was pretty shocking.

Dr. P. said that he would have to agree with any previous doctor who mentioned that I would have been autistic...he agrees with that 100%. I basically have the same genetic susceptibilities...and then some.

Right now he is not going to make any attempts to open up methylation. Besides the detoxification problems I also have very bad digestive issues/malabsorption (which is all related). The digestive/malabsorption stuff was mostly what showed up in my urine amino acid profile which we already went over in my last visit.

He wants to support the liver and intestines first...and then gradually open up methylation.

I have a list of 8 things we are starting with. Most of them I got tonight (one I picked up at Whole Foods before I came home). I still have to order enzymes that he uses for autistic kids...this one I have to call in and use the doctors code to order.

The last thing is glutathione....I'm deficient for obvious reasons (I'm missing the gene! :o ).

For the glutathione we are going to do an IV push with just pure glutathione (and then the homepathic sanuvis) to see how I respond. If it goes well he will have it compounded into pure transdermal form which I'll take daily.

Before I take anything I am going to meet with either Anna or his BioSET lady (he doesnt care which) to be desensitized to all of these things. I cant schedule that until I get the enzymes though.

So I have instructions of which order he wants me to start taking these things and with a couple days in between to see how I tolerate them.

I'm also back on the gluten-free/cf diet. :( He said it would help us alot if I stay on the diet for right now. BOO-HOO!!

So maybe its a GOOD thing they did something to the brownies and I cant eat them anyways. :P

We dont know how well I'm going to do but since I was healthy for many years he feels that if we can open things up I will be able to improve.

Since so many genetic issues came up in that one panel we will definately be doing the rest of the genetic testing. He said that the more information we have the easier it will be to support these areas in the proper order without overlooking anything significant.

The genetic testing doesnt cover *every* gene....but he said that its very unlikely that something important is left out of these tests. So next I will order Yasko's genomic testing (I think its around $650) and that should cover everything. That one I can do myself....I can order the kit online.

I mentioned to him how when I worked several years in the produce dept. I started having burning sensations on my back whenever I was washing/trimming the lettuce....and I also started having brown spots on my hands (which were bad enough that I actually went to the doctor about it). He said that was definately a warning sign....my body was telling me something. I knew *for sure* that the brown spots were directly linked to handling all of the produce and constantly having my hands in the water that was used to rinse everything. The spots and the burning sensations totally went away after I stopped working in the produce dept.

As far as Lyme goes....we are not focusing on that as a cause for any of this (for obvious reasons). Since the Lyme doesnt seem to be active thus far...we are just going to keep an eye on it. He thinks we might not need to treat it at all since I've had no "herxes" in the past and I dont have symptoms. We have to wait and see if the Lyme goes dormant/silent...or if it becomes active as I start to detox....so we will just work on the main things for now. He may put me on herbs just in case....but right now we're not doing anything for lyme.

So even though the lyme bugs are very much living with the mercury.....it was my body's inability to excrete toxins which allowed for that to happen.

So thats what happened...the toxins accumulated overtime until the bucket started overflowing. He said that when he opens up the methylation cycle in an autistic child (typically around 5-6 years old) they start dumping ENORMOUS amounts of mercury. This is what they've accumulated in the short amount of time they've been here. He said they are usually continuously excreting large amounts of metals for about 6 months to 1 year. In my case I have alot more years of accumulation...and I will be detoxing for quite some time (once we are able to open things up).

So now I can be fairly certain that I was affected by the 11 amalgams my mom had...I was never able to detox as well as most other people. Dr. P. said that most people dont have as many mutations as I have...but he also said that he hasnt been using the test as much as he probably should be. Now we will start looking at some of the other genes...such as MTHFR.

He told me that no matter what...this is all GOOD news. Its good because now we know WHY I have all of these issues. He said that here I am...with chemical sensitivities, cant eat anything....and nobody really knows why...and its frusterating. Now we know why so we can start doing everything we can to help my body start detoxing.

I told him that honestly, if these test results were totally normal...I would have been disappointed. Thats what usually happens...I end up disappointed because nothing significant ever shows up. He said that nothing would be showing up with most of the tests that I've done....it has to be the *right* tests. So yeah...it took 6 years to finally get the RIGHT tests.

He said that for him its always good to get answers...its always a good thing...and he would have also been disappointed if nothing showed up in these tests. He would still be wondering what is causing me to have these chemical sensitivities and not knowing where to start with me. Now there is just no question as to why.

So I guess I'm feeling like its a whole new beginning. It feels like today is day 1. :)

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Rachel,

Wow! So much to take in and you haven't even posted the scientificness yet. Don't forget I still need to call Donna with the condensed version. :lol:

I'm glad that you got some answers with the testing and am confident your doctor will be able to find a way out for you, baby step by baby step.

Sounds like you need to call and talk to me this weekend. ;) I think we'll be home aside from Sunday afternoon/evening.

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Rachel,

Wow! So much to take in and you haven't even posted the scientificness yet. Don't forget I still need to call Donna with the condensed version. :lol:

LOL....but Andrea....that WAS the condensed version! :lol:

I will definately try to call this weekend. Its weird but I finally feel really at peace...its a good feeling. I know I have alot of work ahead of me....its most likely going to be a long process...but I'm sooooo ready for it.

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Rachel, wow!!!! It is so great that you have the clear answers here! I like the sounds of the plan as well, and that it is apt to start soon. Hopefully tomorrow right away you can get your enzymes ordered and then your appointment with Anna. I sure hope the GSH works for you.

My guess is that I may have some genetic issues too, but I think what we are doing now is working around them, at least I am taking the taurine and GSH and do really well. I feel like the DMPS is working too, I notice improvement with the shot that last 2-3 days, then symptoms tend to pop out again before my next dose.

Sherry

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Rachel, wow!!!! It is so great that you have the clear answers here! I like the sounds of the plan as well, and that it is apt to start soon. Hopefully tomorrow right away you can get your enzymes ordered and then your appointment with Anna. I sure hope the GSH works for you.

I'm not sure about the GSH...it kind of scares me because I test poorly for it. Hopefully after desensitization it will improve. Dr. P said it could have been the form....I do react to oral glutathione but that's to be expected with pretty much anything I take because of leaky gut. I took it transdermally (TD-DMPS) and it seemed like I reacted but its hard to tell sometimes (that was when I had to deal with the rotten egg smell :ph34r: ). I also reacted to an IV containing glutathione but it contained other ingredients as well....so we'll see what happens with the pure GSH.

He said that my reactions could be from detox but I mentioned that the reactions are usually pretty immediate....happening within minutes....and he agreed that it would not likely be detox if its happening so quickly. I will probably need desensitization for most things until we can open things up a bit.

I remember Dr. S. telling me that he had a patient who came in once a week for IV glutathione....as long as she did this she had no symptoms....otherwise she had major chemical sensitivities. I'm thinking she must have some genetic variations that are causing her to not manufacture enough GSH.

My guess is that I may have some genetic issues too, but I think what we are doing now is working around them, at least I am taking the taurine and GSH and do really well. I feel like the DMPS is working too, I notice improvement with the shot that last 2-3 days, then symptoms tend to pop out again before my next dose.

Its not uncommon to have some genetic mutations making us more susceptible to toxicity.....I'm betting many of us would have genetics playing a role. Dr. P. said its not very common to have as many issues as I have.....and we are both assuming there will be more showing up in the rest of the genetic testing that we do.

I'm still kind of in shock about this! It almost doesnt seem real to me. :huh:

I had posted in the past about some symptoms I had when I was younger....like head banging. I banged my head repeatedly on my pillow before falling asleep at night. I dont think I was doing it every night but it was something that I did on a regular basis and it kind of slowed down as I got older. I think I was still doing it in my early teens though.

I also have done a "rocking" thing all my life. I still do this whenever I'm sitting down without anything to do. It bugs my mom sometimes that I do this.

Dr. Amy had said that head banging and rocking are probably the top two autistic signs that she sees in the kids she treats...and its related to mercury toxicity. It makes me wonder if thats why I was doing that.....to calm down my nervous system.

Now my mom feels bad that I could never really detox very well and she said I can rock myself back and forth all I want and she wont say anything. :P

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I am so happy that you finally have some answers.

So is that urine test you sent to france going to give anymore answers, or does the dr havemost of the answers that he wants.

paula

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I am so happy that you finally have some answers.

So is that urine test you sent to france going to give anymore answers, or does the dr havemost of the answers that he wants.

Thanks Paula. :)

I'm pretty sure he has all the answers he wants....aside from having more genetic testing to see if there are more blocks in the methylation cycle.

I dont think the urine test that I sent to France is of any great significance to him now. He was wanting to see if there was any indication of viral infections because it can cause a block in one particular area of the methylation cycle.

Both the labwork and Dr. T.'s energetic testing showed that there IS a block there.....which basically means that what's suppossed to be taking place there.....isnt happening.

I had abnormal RBC (red blood cell) results for both SAMe and SAH.

A couple of viruses showed up in Dr. T.'s testing but she said they werent significant. Dr. P. wants to start antivirals since he says that its often a virus that is causing that particular block in methylation.

One of the things I'll be taking is an antiviral.

I think it'll be awhile until the tests results come back from France but its not like we're really waiting on them for any reason. So...I guess it worked out that I didnt spend so much $$ on the overnight shipping! :)

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Oh...I forgot to mention that if we get "stuck" during treatment and if we arent getting anywhere he said he will have Dr. T. test me to help prioritize everything and to see what my body will accept.

This is where it can be really useful to know exactly where the "blocks" are and where my body needs support....then she can just focus on those areas to see what might work and what wont work at all. So that takes away alot of the guessing.

I'd be happy keeping the bugs at bay with the herbals and just mostly focusing on detoxification. Thats the key for me I think.

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Wow Rach, that's a lot to chew up and swallow. I'm glad were gettng somewhere in this though.

I know my gene makeup is probably mutations to. I was always a sick kid but it stayed dormant through my 20's and I got sick with this in my early 30's.

Hormones rage when you are in your teen so maybe I was always getting sick in my teen's. I had caught a teribble virus that Dr. M. says I am still carrying on to. He seemed concerned about this. I got the virus when I was 17. I went down to 90 pds. I couldn't eat anything or I wanted to vomit. I had spanish influenza type A.

I thought I was going to die then! Looks like a lot of work is cut out here for you. But I was wondering how can you change that mutation thing going on?

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Rachel, that's what I am taking. Pure GSH, I draw it right out of the vial for my IM injections.

Everyone, looking back I can now say I think with confidence that the SCD has been successful in terms of bringing some stability. I still have symptoms but can keep functioning through the day and haven't had any periods where I was down flat except the predictable herx. Also the cycles of azithromycin and Enula have made it clear that I have herxes on both and they are predictable. This week's was the easiest so far, only a few hours of fatigue.

Since the probable gluten exposure I have had more C problems but I just started adding in the big doses of magnesium and Vit C that I used when I first went gluten free. That is working and the bloating is some better too! So this adds more weight to my hypothesis that the cinnamon had flour in it not just starch and that gluten causes shut-down in the intestine.

Next week or so I'll report in to my LLMD; currently I'm trying the zith and enula together. I do sense that it stresses me a little, but I want to see if I can handle it. I hate how I feel off the zith.

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Wow Rachel, there's SO much that I wanted to post (I like to make long posts, like you do :) ) about your appointment, but my brain is SO foggy today that I can barely type it all out. I just wanted to say that I'm SO glad that you're really making some headway with Dr. P....and it's really quite eerie how alike we are and how similar our protocols and issues may be. I'll be tuning in to see how things go!!!

Okay, I'm off to go try to make myself my nightly dinner....pray that I don't burn the house down! Really, I shouldn't joke about these things....

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Rachel,

good thing on saving money on the shipping to france, when you have to pay for genetic testing that will give you so many more answers lol.

Im still lost on the genetic testing, but its cause im so breain dead, i will read everything uposted again in a few days.

Everyone,

I woke up so sick today, felt like i got ran over by a train. I wanted to take some vit. c and an detox bathe, but i cant do anything until I do the 2 more test about the blood in the stool and my adrenal and thyroid test. I really hope they come in the mail tommorow. I was so hoping to be able to take enzymes and go out to eat for halloween tommorow, since i got ok;ed to try cheese lol.

paula

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But I was wondering how can you change that mutation thing going on?

You cant change the genes but if you know where you're lacking you can do things to support that. For example, I'm missing one of the genes for glutathione conjugation....but Dr. P. said thats actually one of the easiest things to correct...because you just supplement the glutathione.

It would have been GREAT to know these things BEFORE I got sick.....but now things are more complicated due to the fact that my toxic load is very high and I'm reactive to everything (including the glutathione that I need veey badly). I do test low for glutathione....so I'm definately needing lots of it.

There's also certain foods that support detox. You know, all the healthy stuff that my body totally REJECTS...yeah...those are the things that could have helped me to NOT get sick...but I didnt know that I had this problem until it was too late.

With the test results there's also lists of things to do to minimize your risk...along with the foods and supplements its important to avoid the toxins as much as possible since detoxification is not up to par. They list things like smoking, second hand smoke, herbicides, fungicides, solvents, toxic metals, heterocyclic amines (I react to these big time!), xenobiotics, etc.

Each gene/enzyme has a different function so the recommendations are somewhat different for each mutation.

If I'm ever lucky enough to have kids I would have all of the genetic testing done prior to doing ANY vaccinations and I would hope to be able to keep them healthy by having this kind of information early on. It was something I talked to Anna about when I was seeing her....and I decided back then if these tests could tell us who is more susceptible to vaccines and other toxic insults....then it would be well worth the money to get it done.

Lisa, It seems like so many people had problems early on and were getting sick at a young age....dealing with viral infections like you did. I dont know why that never happened to me?? :huh: I was never sick and I never caught anything that brought me down for longer than a day or two. It was pretty rare for me to even catch a cold.

I havent really figured out why that is. Even now I dont seem to be severely affected by any of the bugs they find...so I dont really know what to think about that. I think it would be amazing if I could get myself to detox and then be ok without having any major issues with the infections. I'll be kind of holding my breath along the way because I do worry about it.

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Wow Rachel, there's SO much that I wanted to post (I like to make long posts, like you do :) )

HAHA...I have some competition for the monster posts now! :lol:

Did I mention how happy I am that you decided to join us??!! :D

I just wanted to say that I'm SO glad that you're really making some headway with Dr. P....and it's really quite eerie how alike we are and how similar our protocols and issues may be. I'll be tuning in to see how things go!!!

Thanks Little. I hope I do start to move forward now....even if its just baby steps. I've been stuck in the same place for a long time now. I gotta tell you though....I'm REALLY scared about taking the supplements!!

Dr. P. has definately been the one to come up with the most info. in a short amount of time.....but I also had most testing already out of the way and when I went to him it was with the hopes that he would be able to help me with methylation and genetics (if necessary). So to be fair to my previous doctors....Dr. P. wasnt really having to start from scratch with me.

I think it takes a long time to really get all of the answers......I think it would have still taken awhile even if I had started out with Dr. P. There are just so many things to investigate and to rule in or out....its a lengthy process for sure.

But YES.....I am definately where I want to be right now....working with a doctor that I have alot of confidance in! :)

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Hi guys! I'm packing to go home today. I went to Strasbourg France with the Better Health Guy and a friend of his who is also here for treatment. We had a blast! You can read about it at my blog. :)

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Carla, I feel so excited about yu getting better. I read and saw on scott's blog what they use for detox and there were homeopathics too. I read on lymenet that they use the homeopathic remedies which we call isopathics. The old-fashoined homeopaths would not touch those remedies with a ten-foot pole. The isopathics are way much stronger. The way you were treated, was by isopathic medicine. Just shows how much stronger it is than classic homeopathy.

I guess practitioners or doctors in the U.S, could aceive similar results if they are accustomed to isopathic momeopathy.

My practitioner here uses isopathic homeopathy , and chinesiology, and cranoisacral thereaphy, and more, and the scio machine. Now the last week I have felt how the treatment works on my spine and other things (re-tracing is what I can describe it with)

I think I will give her the brochure for the photon machine (I printed it out from the pdf from the link at lymenet)

nora

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Nora, do you mean the nosodes? The bacterial vials and Lyme nosodes were only taped to our solar plexus, we did not consume them.

We were using strong stuff to aid detox .... that is why I think people who are very sick really need to come here so that they receive the appropriate detox IV's. Three weeks to clear most of the Lyme has to cause a lot of toxins!

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Hi, I mean that in classic homeopathy, they use otherwise unrelated things to cure illnesses and conditions, but in new homeopathy, or isopathic homeopathy, they use the actual things that cause the illnesses.

I guess you call it nosodes.

The classic homeopaths would not use those things, my wholistic practitioner told me.

Do you have any name for it in English? Here I would say isopathic homeopathy.

I just checked on some forums, and new homeopathy uses anything that works, classic remedies plus isopathic remedies from Sanum etc. plus muscle testing plus in your case the infrared machine. (the isopathic remedies, the borrelia nosodes, could be take by mouth, but they work even stronger and better the way they were used on you, just being taped to the solar plexus while the lamp was used on the chakra points or whereever it was)

Classic homeopathy (I have some books and have read them) uses a long time with several remedies and one has to carefully search for which type you are, and even go back to the parents etc, and so on, and the remedies are usually not the actual things that made you sick. And if five people have the same illness, they still end up with five different treatments...

whereas isopathic homeopathy works faster, and they more often use the same remedies for the same illnesses, like you people in Germany experienced.

I checked some websites today, and they often use them on animals too (wholistic vets that use isopathic homeopathy together with classic homeopathy and any other things that work) and animals do not have placebo effects.

nora

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So, is ten the max number of treatments Dr. W uses, Carla? So like if you were there for 5 weeks you could complete all you need?

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