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Rachel--24

Omg...i Might Be On To Something

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Hi everyone! I'm not even going to TRY to catch up, lol.

My surgery went well and all is benign! They removed the section of my upper intestine which had the tumor and then rerouted my bile and pancreatic ducts. They also removed my appendix, but thankfully did not have to do the Whipple so still have my gallbladder.

I've been doing VERY well...had a bad day yesterday...couldn't eat or drink anything, but it's better today.

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Welcome back Donna!!! :D

Glad to hear that your bout yesterday with not being able to eat didn't last.

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Christine,

I do not know anything about it. What did they say in the ER? Are they the ones that brought up sjorgens.

paula

They didn't mention it in the ER. It's something I thought of based on my symptoms.

I do know someone online who has it, but no I don't know anything about it. Sorry Christine. It is on the list of things that CAN be helped along with metals though. I'll find that part of the quote if you'd like.....it was from this thread I think.

Thanks for responding, it's the support and knowing that people care that make me happy.

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Christine sorry to hear this. Any ideas of what is contributing to the racing heart? Just wondering about mineral imbalance, lyme, or other possibilities. Hope others will post as well.

Donna!! Yay!!! so glad to "see" you and that the recovery is going well. Also I hope this is the last of surgeries for you for awhile and that you can concentrate on other things very soon. The "benign" news is also wonderful.

Sherry

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Welcome back Donna!!!

I was happy to read that you are doing VERY well. :)

Thats good news......and definately good to hear that all is benign. YAY!

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I'm a little behind with reading. I dont know if I'll catch up.

My friend is here from Germany....YAY!! :D

I was busy all weekend with some fun projects and probably the same this weekend. I did catch a cold a couple days ago....so far its not too bad and my body is fighting it so as long as I dont push myself I think it wont linger too long.

Last time I caught a cold it was after I had a bad reaction to food. I got over the cold pretty quickly but then I ate some cake at work and within an hour the cold came back full force :o ....and it was worse than the first time around!! I also had difficulty getting rid of the cough until I got strict on my diet and then it cleared up almost immediately. Everytime I ate I would end up in coughing fits....so without a doubt the food intolerances can challenge my immune system when its trying to fight off a cold.

Same thing happened this time....I had a bad food reaction (still trying to work out what I can eat now that my brownies are gone :( ) and I got a cold during that reaction. I only ate one thing that provoked a cough...so I havent eaten that since and so far the cough hasnt come back.

My genetic testing will arrive today so I'll probably do that test and ship it off tomorrow. :)

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Christine,

I had a racing heart kind of thing when I had leaky gut and a major candida overgrowth.

Of course, like Sherry said, there could be so many other causes.

I hope you figure it out!

April

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I had to go back to see what the racing heart was all about...

Hey guys...

Question, does anyone know anything about sjogren's syndrome?

I have had very dry eyes, and dry mouth and pain in my parotid glands (the ones in front of the ears and behind the jaw)

and it feels like I have run out of saliva.

Im going to see the eye doctor and a rheumatologist next week.

Ive also been having heart palpitations nausea and panic attacks this week, not being able to sleep and waking up with a racing heart. Not to mention headache.

I went to the emergency room on monday. Im really freaked out and I need some support right now.

:(

I suspected Sjogrens for myself at one time....but for me the symptoms cleared up with diet changes.

I also have swelling/pain in front of my ears, behind my ears, under my ears, jaw area...between my eyes....and basically all over my head. :rolleyes:

I spent alot of time with the eye doctor (when I first got sick) because my eyes were so dry and painful. I had some testing done which indicated severe dry eyes...which she said I would just have to learn to live with :rolleyes: ...and that I would need eye drops forever.

The eye drops made things worse for me and obviously she didnt know what she was talking about because my eyes are no longer dry and havent been for years now.

In my case all of the symptoms (including racing heart) are controlled by minimizing exposure to toxins...and for me this includes alot of foods.

I cant link all of my symptoms to specific foods.....but some of them I can.

Sulfites = heart racing, gland swelling, headache, etc.

Rice = heart racing, fluid retention, etc

Milk = dry mouth, coated tongue, etc.

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Persimmon cookies= diarrhea, nausea, bloating, tingling tongue, etc. etc. etc..........

I can't believe I ate about 15 of them.. :o

Donna I am glad everything is okay with you. ^_^ You are a tough cookie.

Rachel hope you have fun this week with your friend.

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I suspected Sjogrens for myself at one time....but for me the symptoms cleared up with diet changes.

In my case all of the symptoms (including racing heart) are controlled by minimizing exposure to toxins...and for me this includes alot of foods.

I cant link all of my symptoms to specific foods.....but some of them I can.

Sulfites = heart racing, gland swelling, headache, etc.

Rice = heart racing, fluid retention, etc

Milk = dry mouth, coated tongue, etc.

I like to hear that with the diet changes it clears up. That is so true. It does help so much. Eating the right types of foods, and sipping on plain water all day helps me handle it too.

I just have this weird feeling recently that the pain in my jaw is actually my parotid glands, and the swelling and pain in my neck and head are from glandular dryness.

I just feel so aware of those parts of my body the last coupple days, nose is dry, eyes, dry burning, brain fog, head pressure, dry cough... I usually wake up in the morning with a mild panicy feeling. I think its my autonomic nervous system (sympathetic) kicking in.

I don't know yet, but I want to know, because that is what is so frusterating, not knowing what is wrong.

I might make up my own name, Christina syndrome...lol B)

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Thanks everyone!!!

Very exciting to hear that Rachel's friend is here!! ;) Figured something was going on, lol!

I saw the doctor again yesterday just to make sure Tuesday wasn't anything serious. He's running some labs to check blood/etc levels and make sure there is no infection. I'm almost positive it was a reaction to the Advil I took that morning though. Anyway, he told me to call him any time I have anything like that happen again...even if it's after hours...he said to have them page him.

I drove myself to the bank yesterday to deposit a check and get some cash...got the okay from doc as long as I'm not on narcotic pain killers and feel like I could respond in an emergency situation, so since I'm only taking the prescription stuff at bedtime I thought I'd try. I felt good, but DO think a long trip would be out of the question.

My big excitement for today...possibly a trip to the store to get eggs. :lol: !!!

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Hi everyone! I'm not even going to TRY to catch up, lol.

My surgery went well and all is benign! They removed the section of my upper intestine which had the tumor and then rerouted my bile and pancreatic ducts. They also removed my appendix, but thankfully did not have to do the Whipple so still have my gallbladder.

I've been doing VERY well...had a bad day yesterday...couldn't eat or drink anything, but it's better today.

(Crashing in here), ..but wanted to say how glad I am that you're doing ok!!! :D:D:D

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I just have this weird feeling recently that the pain in my jaw is actually my parotid glands, and the swelling and pain in my neck and head are from glandular dryness.

I just feel so aware of those parts of my body the last coupple days, nose is dry, eyes, dry burning, brain fog, head pressure, dry cough... I usually wake up in the morning with a mild panicy feeling. I think its my autonomic nervous system (sympathetic) kicking in.

I get this way when I am around mold. My grandma's house has mold and now that she is putting the wall heater on because it's cold here in the morning I am reacting again. But instead of the dry mouth I salivate more. :huh: It smells musty too. I hate that. :angry: But my grandma's house is old. Yeah I get those symptoms first thing in the morning.

I took an epsom salt bath yesterday and my whole body aches today but I don't feel toxic. I almost vomited and passed out in the bath though. I think I stayed a little too long in the bath because when I got up I felt dizzy and my heart and throat were pounding 2,000 times a minute.

I will never do that again. :rolleyes: I think my heart is still affecting me today. I am going to get some zeolite and agarigold today, yay.

Oh and I got a job starting Feb 2, 2009 at the IRS. I will be a tax examiner, so nobody from California better cheat on thier taxes! ;)

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I took an epsom salt bath yesterday and my whole body aches today but I don't feel toxic. I almost vomited and passed out in the bath though. I think I stayed a little too long in the bath because when I got up I felt dizzy and my heart and throat were pounding 2,000 times a minute.

I remember reading that if you have problems with dizziness, etc. after a hot bath or shower it may help to drink water before you get in the bath. I dont know how vaild this is....but I do it (when I think of it)....just in case. :)

Oh and I got a job starting Feb 2, 2009 at the IRS. I will be a tax examiner, so nobody from California better cheat on thier taxes! ;)

Congrats on the new job Lisa!!!

Nope....you wont catch me cheatin on my taxes. ;):D

This reminds me though...I was supossed to send something back to the IRS (months ago)...and I totally forgot about it. :huh: I promise I'll send it ASAP...OK Lisa! :lol:

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Congrats on the new job Lisa!!!

Nope....you wont catch me cheatin on my taxes. ;):D

This reminds me though...I was supossed to send something back to the IRS (months ago)...and I totally forgot about it. :huh: I promise I'll send it ASAP...OK Lisa! :lol:

Okay Rachel, but I need to give you a 33% WARNING! :)

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Well....I'm actually really starting to understand the genes involved in the methylation cycle. So far I only have partial status on COMT. I will find out more about how well this enzyme functions when I get the nutrigenomic results back.

I'm getting excited now that things are starting to make more sense to me....and I cant wait to get my results on all of these genes.

When I got my test kit yesterday it came with Yasko's Genetic Bypass book....as well as 2 DVD's and one smaller book that explains the nutrigenimic testing and includes info. on each of the genes being tested. I've already learned alot from what I was able to watch/read last night.

I wasnt expecting the book and DVD's....so that was a cool surprise....especially since I really wanted the book and almost ordered it from Amazon last week. Glad I waited. :)

My goal is to really understand how the methylation cycle functions (what is the role of each gene) so that by the time my results are in I can totally be involved in the treatment discussions with Dr. P. at my next visit. It gets less and less complicated the more familiar it becomes. Last night when I was watching the video my mom said "Are you understanding that? :huh: It sounds like Greek to me". :lol:

I do understand alot of it...but I think I will have to watch it several times until it totally sinks in. :P

In the video theres a box with a revolving door in the front. The box represents the body and the revolving door is the methylation cycle. As long as the revolving door keeps on revolving....toxins come in...and toxins come out. There is also a side door which represents chelation. Having a "side door" is helpful to keep the toxins from accumulating....and especially if the revolving door (methylation cycle) is not functioning well enough.

If there is a problem with the revolving door....the side door CANNOT ever make up for this. If the box (body) has accumulated toxins....having a side door is not good enough. The methylation cycle *has* to be functioning properly in order to bring that body burden down....the side door can help....but it cant make up for not having a functioning revolving door.

Also, when looking at genetic test results....just having these genetic mutations does not mean that the enzyme is not functioning at its full capacity. The mutations indicate susceptibilty....the enzyme may function normally until environmental toxins (i.e. mercury) cause that enzyme system to become dysfunctional.

Some enzymes can become significantly impaired by mercury in particular. If you already have an enzyme which may be genetically "weaker" (+- or ++).....it can then become significantly impaired when mercury comes into the picture.

One "glitch" in the methylation cycle can impair the whole cycle....and this can lead to a cascade of events which results in chronic illness. The more mutations (susceptibilites) in the pathway....the more dysfunctional the cycle may be....even without having a huge exposure to mercury or other environmental toxins. For some it only takes the everyday exposures to eventually cause these enzymes to become dysfunctional.

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Congrats on the job Lisa. :)

Rachel,

That makes sense to me the way you explained it. I like when you break things down to understandable pieces. :D It was all greek to me too and I didn't even see the video. :lol:

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Congrats on the job Lisa. :)

Rachel,

That makes sense to me the way you explained it. I like when you break things down to understandable pieces. :D It was all greek to me too and I didn't even see the video. :lol:

Ditto for me on both!

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so exciting, Rachel that you get closer to a way to a solution re. toxic metals and methylation.

I read some posts about how kidere helped that way, and the posting I read was that the kid was started on one thing (and had reactions etc) which started the methylation again and then was cured or was there one more thing to it....something like that.

I checked out some of the links from lymenet, and here is the website of the bionic2000 apparatus, but in German they have the cells communicating with each other with photons!!! just go through the german pages on the link here, the blue button called Interessierter Terrapeut at http://www.regumed.com/

Also, here is the speec of Dr. Margatet Chan of the WHO on a webpage here at NAFKAM (government funded institution to do reseach on alternative medicine, situated in Tromso) http://nifab.no/artikler/adress_at_the_who...tional_medicine

but I have not found the corresponding page at WHO yet.

There has been a recent resolution that asked member countires to accomodate to bring alternative medicine into regular medicine.

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Well, I was sick again yesterday. All day. It was worse than Tuesday and lasted a lot longer. I couldn't eat or drink anything after breakfast. Every time I tried to drink water it would hit my stomach like a brick and then I'd get that feeling like something rancid in there needed to come out. It wasn't nausea, but definitely wanted to come out and I did actually throw up 4 times (don't know how that is possible since I didn't eat anything).

I finally called the doctor's office and left a message. He called me about 6:40 last night, so I explained what was happening. He said my blood work looked pretty normal, but my pancreatic enzymes were a little high which might indicate that the pancreas is inflammed. I asked if something like organic cocoa powder could cause these symptoms because it wasn't the Advil since I hadn't taken any since Tuesday. He said that if the pancreas is inflammed, anything "rich" could cause my symptoms. By the time he called everything had calmed down and I was able to suck on ice cubes.

Ideally eating or drinking nothing would allow the pancreas to "rest", but then I would need to be admitted to the hospital for IV fluids. He asked if I wanted to go last night, but I wanted to wait to see if I could keep fluids down today. He's really worried about dehydration.

So far so good, but if at any time I can't keep them down this weekend he wants me to page him and he'll admit me. If I do well the whole weekend he wants to see me on Monday, so I'll have to call first thing on Monday to get squeezed in. :rolleyes:

So, it's just me and my clear liquids again! :P

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Donna so sorry to hear this. The pancreas inflammation is not a good thing at all. Please take care and do call him if there is any further trouble.

My good friend recently had a sudden attack, enzymes went up sky high. He was traveling, ended up in the hospital for a week in Florida. They never did find the cause. He's had to make long term dietary adjustments.

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