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Rachel--24

Omg...i Might Be On To Something

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My daughter had an ultrasound in March when they were trying to figure out what was wrong with her. It was done at the hospital and we got the results back that night I think, maybe the next morning. I think they were looking for appendix problems. We didn't have it done until 5:30 pm I think. It turns out she had something called Henoch-Schonlein Purpura.

Andrea,

What is Henoch-Scholein Purpura? Is your daughter ok now?

I just got back from my ultrasound. It went ok. The radiologist said I definately had a full bladder....she said some people dont take it seriously and drink all the water. I think I drank more than what was necessary. I was a little unhappy about having to get in stirups for the second day in a row....wasn't expecting that. :angry:

Well....I'm pretty sure they saw something because after she was done she got all serious and was asking me when my last period was. I had already told her before we even started. She wanted me to be sure and show her on the calander. After that she told me to get dressed and just sit in the chair and wait. Another woman came in and told me to wait in the lobby. I think she was looking at the results but not really sure. Then after about 10 minutes the lady who did the ultrasound came out and told me I could go but that they would be seeing me again. I said "I have to come back?" and she said "yeah...maybe" but she was nodding her head yes.

So now I'm nervous...they didnt tell me anything so I have no clue whats going on. I just have to wait till my doctor calls. I'm thinking there must have been something there or they wouldnt be telling me that they'll be seeing me again. :unsure:

After I drank all the water and also ate food the pain got a little worse. It feels kind of like there is alot of pressure down there. Like an elephant is sitting on my ovary. I'm wondering if when I eat... my full stomach (I never eat lightly) could be putting pressure on my ovary or the cyst and causing pain or pushing toxins out. I always get reactions after I eat. I'm just speculating cuz I have no idea about the anatomy down there...I had thought it was my intestines hurting all this time. Didnt even know where my ovaries were located until yesterday. :ph34r:

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Andrea,

What is Henoch-Scholein Purpura? Is your daughter ok now?

I just got back from my ultrasound. It went ok. The radiologist said I definately had a full bladder....she said some people dont take it seriously and drink all the water. I think I drank more than what was necessary. I was a little unhappy about having to get in stirups for the second day in a row....wasn't expecting that. :angry:

Well....I'm pretty sure they saw something because after she was done she got all serious and was asking me when my last period was. I had already told her before we even started. She wanted me to be sure and show her on the calander. After that she told me to get dressed and just sit in the chair and wait. Another woman came in and told me to wait in the lobby. I think she was looking at the results but not really sure. Then after about 10 minutes the lady who did the ultrasound came out and told me I could go but that they would be seeing me again. I said "I have to come back?" and she said "yeah...maybe" but she was nodding her head yes.

So now I'm nervous...they didnt tell me anything so I have no clue whats going on. I just have to wait till my doctor calls. I'm thinking there must have been something there or they wouldnt be telling me that they'll be seeing me again. :unsure:

After I drank all the water and also ate food the pain got a little worse. It feels kind of like there is alot of pressure down there. Like an elephant is sitting on my ovary. I'm wondering if when I eat... my full stomach (I never eat lightly) could be putting pressure on my ovary or the cyst and causing pain or pushing toxins out. I always get reactions after I eat. I'm just speculating cuz I have no idea about the anatomy down there...I had thought it was my intestines hurting all this time. Didnt even know where my ovaries were located until yesterday. :ph34r:

Is it a case of the doctor having to call you and give you the results? I think that doctors are the only ones that can deliver the information, I might be wrong though. So it might be a matter of procedure/protocol and not that something is wrong.

I hope all is well, and I will keep positive thoughts flowing for you.

I know what you mean about getting up in the stirrups. I was up there as well this week, not a fun thing at all :(

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Is it a case of the doctor having to call you and give you the results? I think that doctors are the only ones that can deliver the information, I might be wrong though. So it might be a matter of procedure/protocol and not that something is wrong.

Oh...I know the radiologist cant tell me anything. They never tell me anything...its always the doctor that gives the results. I was only concerned cuz the radiologist said they'd be seeing me again and I'm not sure what they saw to make her say that.

It did say on the instruction sheet to not ask the radiologist for results. The doctor will give the results. I already know the drill cuz I've had a million tests done the past 3 years but never did a radiologist tell me I'd have to come back. :unsure:

I'm sure it's not as bad as you're imagining, maybe the cyst got bigger or something, but nothing they can't fix! Believe me, I was where you're at right now and it is scary but I know it'll be alright. One of the cysts they removed on me was "tumor like" but it wasn't cancer or anything, so try not to worry. I think that since you are getting better and your tummy has settled down you are noticing the ovary pain more, you've probably had that pain for a long time. Just have a nice sleep tonight, you know you are doing better and whatever they find, they will fix.

Thanks Floridian...that was comforting. :)

I am gonna go to bed early tonight....but first I gotta get a neck massage from my Mom. Its my favorite part of the night. :)

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Rachel,

It could be that the cyst has grown larger and they may need other ultrasounds if they didn't get a good measurment etc. Your uterus and ovaries are pretty low. Your intestines are in between the stomach and uterus. Did you find out about the alkaline urine and what that could mean?

My daughter is doing good now. She just got over HSP a couple weeks ago. She has to go back to the nephrologist the end of August. He doesn't think there will be any complications. HSP causes abdominal pain, arthritis and the blood vessels from the waist down (sometimes arms) break near the surface of the skin and turn the skin purple in blotches, bumps that are permeable? (I forget what the doctor called it) and hurt initially as well as itch. We had originally thought she had hives but the bumps didn't materialize like that and they were purple. It also affects the kidneys and that is where the potential problem lies. 50% of the kids that get this develop some kind of kidney problems and of those 1% develop renal failure. It is supposedly rare with 1 in 100 some kids getting it. They don't know what causes it but it has been linked to two immunizations of which she has had one. The nephrologist says he sees 1-2 cases a month, he's in the Portland Oregon area but comes up to Vancouver. She will probably get it again this fall after her first cold but it is supposed to be milder. She was in so much pain, I hated to see her go through it. Her knees and ankles swelled up because of the arthritis and if that wasn't bothering her her abdominal area was. At least they didn't usually hurt together.

And now we found out through enterolab the she has an active IgA for gluten as well as my oldest son and me. We all had number between 10 and 20 which doesn't seem bad but enterolab says that lower numbers don't mean you have less of the intolerance. I'm just glad that we found out about enterolab because who knows how bad we would have gotten if we hadn't. We aren't symptomatic, my infant son tipped us off because of his allergies. We all have at least one gene that tends to celiac disease.

Keep us posted on how things are going with you, I know you will though.

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Rachel,

It could be that the cyst has grown larger and they may need other ultrasounds if they didn't get a good measurment etc. Your uterus and ovaries are pretty low. Your intestines are in between the stomach and uterus. Did you find out about the alkaline urine and what that could mean?

Oh...ok. Thanks. I've always described my pain as being way down low so I guess its probably been my ovaries all along....not my intestines. :ph34r:

I only breifly googled the alkaline urine but couldnt find anything to say it was something to worry about. I'll have to look more into it. My other doctor might know something about that...I go see him tomorrow. He's more of a Naturopath.

I'm glad you're daughter is doing better. It sounds like it was pretty scary....I had never heard of that condition before. My Enterolab results were probably similar to yours. My IgA was 16 I think and the Ttg was about the same...15 or 16. I had a really high malabsorption score though...it was 912. I seem to be doing much better with that now and I've gained back almost 20 lbs. since then but I dont think it was just gluten causing the malabsorption. I actually didnt really start gaining and maintaining it until around the time that I started this thread and got careful about corn and then msg.

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Oh...ok. Thanks. I've always described my pain as being way down low so I guess its probably been my ovaries all along....not my intestines. :ph34r:

I only breifly googled the alkaline urine but couldnt find anything to say it was something to worry about. I'll have to look more into it. My other doctor might know something about that...I go see him tomorrow. He's more of a Naturopath.

I'm glad you're daughter is doing better. It sounds like it was pretty scary....I had never heard of that condition before. My Enterolab results were probably similar to yours. My IgA was 16 I think and the Ttg was about the same...15 or 16. I had a really high malabsorption score though...it was 912. I seem to be doing much better with that now and I've gained back almost 20 lbs. since then but I dont think it was just gluten causing the malabsorption. I actually didnt really start gaining and maintaining it until around the time that I started this thread and got careful about corn and then msg.

The ph of your urine being alkaline means your system is on the alkaline side vs. acidic. Ph above 7.0 is alkaline. To normalize this eat more acid forming foods and reduce alkaline forming foods.

Examples of acid forming foods:

asparagus, beans, legumes, meat, cranberries, eggs, fish, plums, olives

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Oh...ok. Thanks. I've always described my pain as being way down low so I guess its probably been my ovaries all along....not my intestines. :ph34r:

Rachel,

Hi

Thanks for the info on glutamines and MSG, avoiding it has really helped me I think!!!!!

About your cyst,

I myself was dx with polysystic ovary symdrome, it was found at the gynos office because of my complaints of pain, and it became flared up when I was 21 after I got pregnant, and I lost my baby.

I had not chemical sensitivites then tho, and no puffiness, etc. or any pain. Not until, you know what,,, the posion stuff I took when I was 23... but any way.

I had a lot of pain on my right side lower abdomen, and sometimes if would alternate. I coluld push on it and it would be tender, and it would hurt and ache on its own.

My gyno suspected I had polyscytic ovary syndrome, or PCOS, and ordered a sonogram of my ovaries and some blood work.

Mainly an androgen profile, because with cycsts the testosterone and DHEAs are usually elevated in women with cytsts.

After I got an ultrasound done and several blood tests, they found several small cysts on my right ovary, and one on the left. They had not poped so they were still hanging onto my ovary secreting hormones.

So anyway, the blood work showed that I had moderately elevated free testosterone levels, but that my DHEA's where normal. They didnt test estrogen, tho, I wanted her to but she said it fluctuates so much they only do that when somone is trying to concieve, and they are doing fertility treatments, besides the horomne blood test for just the testosterone alone were over 800$ really expensive. The DHEAs cause a lot of the man stuff like excess body hair and acne, hair loss, agression, depression etc. so I was lucky not to have them elevated.

My gyno said to start taking birthcontol pills, and that the cyst would go away, specifically ortho tricyclen, because of its estrogen dominant qualities. so I did and I felt worse.

I dont like B control pills. I tied all of them, and they all made me feel bad, so I went off of them.

As for the anatomy, your intestines and bowels and ovarys can all affect one another. if your bowels are blocked with food, and your are constipated it can put pressure on the oavry, exastrabating the pain of an alreay tender cystic ovary.

But Heres the anatomy lesson,,,A woman is born with about 4 million eggs. In a normal woman, each month one egg ripens and pops off the ovary to travel into the uterus. Women whose eggs ripen, but do not pop off the ovaries, have polycystic ovary syndrome. The cyst or cytsts that form on the ovary that do not pop, can twist and get squeezed and cause pain, the cysts also contain hormones, espically masculinizing homones like testosterone and DHEA that can leak our into the body and affect mood, cause body hair, "hirtsuitism" acne, irregular periods, infertility (in extreme cases) and such. For me the pain was way worse when, like during sex, or if I got gas, or constipated, it caused pressure and pain in that area, also when doing stomach crunches, or even exercizing or twisting the wrong way.

Im not sure if thats what your friend meant about "toxins" being realsed by the ovarys, but more accurately its hormones.

They ask if you have irrigular periods to see if your ovulating, if you are ovulating every month then you should have regular periods. Some women have really irregular periods when its real bad, and no eggs are poping.

Eventually for most people, including myself the cysts resolve on their own, mine were small and they would pop, and when they poped it would hurt, I could feel it... You can feel a cysts pop and its like ouch ,,, stabbing pain followed by a dull ache. but new ones form, everybody is different. But its not normal or fun to have a big painful cyst on you ovary, that hurts. SOiunds like it may have been there for a while.

My doctor said that the cysts have a lot to do with insulin secretion,,, and that modifying my diet would help. She suggested cutting out bread and crakers and refined carbs, flour, sugar etc. To my amazement I found that my cysts could be controled by what I eat, and I didnt have to take the BC pill or have surgery,,, to this day,,,if I eat a lot of starchy things like crackers, white rice, bakery products, sugary foods, like jellys and jams, it raises my insulin levels and Ill get cycts and flares, but if I get onto a lower carb diet the cytst dont give me a problem.

i have no idea what your eating, but You said you were eating jam by the jarfull and rice crackers and a lot of hommade things containing flour and refined starch products, that might aggrivate the situation,,,, not trying to dX... but just a thought?

Ive read a lot about it and dealt a lot with it for years now. And im fine with the cysts,,, I will go back and get my hormones checked again tho,,,,, because I want to know what they are.

Maybe you should ask them for a hormone test to test testosterone, progestorone, DHEAS and estrogen,,,and have them check your insulin levels, or Hemeglobin A1C levels. the levels might be off , and that could be causeing your food "sensitivites"to be worse. They might be asking you to come back to draw blood to check your hormone levels, and they should.

Like you said its all pretty much hormone realted, its the endocrine system, thyroid, ovaries, they part of the same family,,,,

Also right before my period, when progesterone is at its highest, I feel the worst, and more reactive.

Its usually right after my peroid when I feel better, and up to a coupple weeks before.

Do you have regular periods? are they heavy or short, painful?

Mine are painful as hell, and really heavy for the first 3 days then lighten up and last about 5 days.

I never had body hair or irregular periods, but then again I had a mild case.

I do get acne from time to time, and I have a tendancy to store body fat in in my breasts and belly rather than my hips and thighs. Im not a pear, but I look good cause im 5 7 and 133 lbs, so Ive always had bigger boobs and thin legs. Im kinda big boned and I wear a size 9 shoe, my finders are long, I guess I have big hands. Ive been doing lunges at the gym to try to get a bigger rounder more shaply butt, and its working!!!, if I could only get my stomach to be flat!. At least I dont have cellulite on my ass! Or tree trunk ankles! lol

Good luck.

Keep letting me know about foods and how your doing,,,

I hope you could get somthing out of this post.

Christina

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Thanks for the info.

Yeah...I've had the pain a long time. When all this first started I was losing alot of hair too. Thats pretty much resolved itself to where I'm not losing tons but it still thins out in the front and then grows back. It goes back and forth this whole time but since its not noticeable I just ignore it. Also I do get more body hair from time to time....especially back when I was really sick. I was getting worried but then that too resolved itself. All of a sudden the hair disappeared. :huh:

Now it comes back sometimes and then goes away again and I just dont worry about it since it seems to fall out on its own. My body is just constantly changing and my sensitivities as well. This diet is helping the most....I've had the best 2 weeks I've had since going back to work in Sept. I've been really happy too.

I had mentioned all this stuff to my docs numerous times since none of it was happening this bad before I got sick. They just told me its all normal stuff that occurs and our bodies change as we age. :huh:

I also was getting alot of acne on my back when I first got sick but that was a few years ago and I havent had any problems with it since then.

The pressure is still there today. Its like it gets so "full" in that area that the pain kind of radiates all the way around my pelvic area. It goes into my hips and my lower back. Luckily the pain is dull so its not like its preventing me from doing anything. Its just "there"...once in a while it will give off a stronger pain but it goes away quickly.

This stuff may have been developing over time because I did have some of these symptoms a few years beforeI got sick but nothing so severe. Just symptoms of hormonal changes that I figured was thyroid related only.

Hopefully I'll hear something from the doctor today before we go into the weekend.

Oh yeah. My periods have not been totally on schedule since I got sick. They used to be very normal. Once I got sick they were lasting only 1 -2 days, very light, and coming back about every 2-3 weeks instead of 28 days. Once I changed my diet this all got better but my last period was 2 weeks late....I've never been late before so this was a first but again everyone just said its normal to "fluctuate". Well none of this stuff is "normal" for me...it only became the norm once I got sick.

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I was diagnosed with polycystic ovary syndrome as well, when I was about 21. I've always had difficult menstrual cycles and hormone imbalances ever since my very first period. They have gotten better as far as being regular, but I still have intense pain. I noticed that my diet always makes a huge difference with what kind of symptoms I will have from ovulation to the start of flow (breast tenderness, sweating, etc).

I am forever trying to find a solution to get my hormones more in balance, but this is how it was for my mom and her mom (my grandma) and her mom (my great grandma), so maybe it is just the luck of the draw for me and my genetics.

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Oh girls, it's been so busy at work the last few days I haven't had time to keep up with the posting.

Rachel - hope you hear something today! I know what THAT's like. I was waiting to hear from Dr. R about the pre-cancer thing and he didn't call and didn't call. I didn't want to go through the weekend not knowing either.

About going back for another ultrasound...they might just want you to come back for a different type of ultrasound--maybe the equipment they used just didn't give a clear enough picture. Did you have internal this time? You might actually need an internal one. When I had my fibroids they did a "regular" ultrasound on the tummy, but I had to go back for an internal one so they could get a better picture of them.

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About going back for another ultrasound...they might just want you to come back for a different type of ultrasound--maybe the equipment they used just didn't give a clear enough picture. Did you have internal this time? You might actually need an internal one. When I had my fibroids they did a "regular" ultrasound on the tummy, but I had to go back for an internal one so they could get a better picture of them.

Donna,

I'm pretty sure they saw what they needed to see...I was thinking that might be why they had me waiting around....to make sure the pics were good enough. I had an internal yesterday...she did both...first on my tummy and then internal. I havent heard anything yet.

OMG...the thing (whatever it is) is hurting me even more today. :(

I was thinking maybe I'm imagining the pain being worse since I'm more aware of it now but I know its not usually this bad. I wonder if things could be getting worse since my period was 2 weeks late and now that I'm ovulating the pain is worse then ever and its on both sides but worse on the right. I have to bend over alot at work and thats when its really hurting me or even just sitting down hurts. I find I'm leaning all the way to the left when I'm sitting...I guess to take pressure off it. I cant even believe its hurting so bad today. :(

I was diagnosed with polycystic ovary syndrome as well, when I was about 21. I've always had difficult menstrual cycles and hormone imbalances ever since my very first period. They have gotten better as far as being regular, but I still have intense pain. I noticed that my diet always makes a huge difference with what kind of symptoms I will have from ovulation to the start of flow (breast tenderness, sweating, etc).

Julie,

I never had problems with my cycle before I got sick...I never got cramps or anything. I was always right on time with no symptoms whatsoever. My mom never had problems either. I dont know what happened but something messed me up good.

I have more fluid retention today. I've had fluid retention nonstop for over 3 years now. Its never gone back to normal...not even for a day. I'm wondering if my ovaries could have something to do with that??

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Donna,

I'm pretty sure they saw what they needed to see...I was thinking that might be why they had me waiting around....to make sure the pics were good enough. I had an internal yesterday...she did both...first on my tummy and then internal. I havent heard anything yet.

OMG...the thing (whatever it is) is hurting me even more today. :(

I was thinking maybe I'm imagining the pain being worse since I'm more aware of it now but I know its not usually this bad. I wonder if things could be getting worse since my period was 2 weeks late and now that I'm ovulating the pain is worse then ever and its on both sides but worse on the right. I have to bend over alot at work and thats when its really hurting me or even just sitting down hurts. I find I'm leaning all the way to the left when I'm sitting...I guess to take pressure off it. I cant even believe its hurting so bad today. :(

Julie,

I never had problems with my cycle before I got sick...I never got cramps or anything. I was always right on time with no symptoms whatsoever. My mom never had problems either. I dont know what happened but something messed me up good.

Rachel, are you by chance impacted as well? For me the pain would be worse in the ovaries if I was impacted. Just a thought.

I was thinking maybe the stuff you did for graves, and possibly the thyroid medication, is responsible for your shifts in hormones and etc.

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Rachel, are you by chance impacted as well? For me the pain would be worse in the ovaries if I was impacted. Just a thought.

I was thinking maybe the stuff you did for graves, and possibly the thyroid medication, is responsible for your shifts in hormones and etc.

I dont think I'm impacted cuz I've been pretty regular lately...even more than once a day. Even when I was impacted a couple months back I wasnt having pain like what I'm experiencing right now.

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I'm pretty sure they saw what they needed to see...I was thinking that might be why they had me waiting around....to make sure the pics were good enough. I had an internal yesterday...she did both...first on my tummy and then internal. I havent heard anything yet.

Well drat...I was hoping it was something simple like that...it still could be that they need different equipment though...still hoping you here something today. Sorry you are in so much pain. I had awful pain with my fibroids, but that was mostly because they were so many and were pressing all my organs.

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Julie,

I never had problems with my cycle before I got sick...I never got cramps or anything. I was always right on time with no symptoms whatsoever. My mom never had problems either. I dont know what happened but something messed me up good.

I have more fluid retention today. I've had fluid retention nonstop for over 3 years now. Its never gone back to normal...not even for a day. I'm wondering if my ovaries could have something to do with that??

Hormone imbalances can cause fluid retention as well, as far as I understand from my research.

I am in the same boat as you today, I literally have 20 lbs of fluid retention that I have gained over the last week. This is just not normal and has been a huge problem for me for 14 years. Nobody I go to first of all believes me, one doctor even told me I just was "pudgy" and needed to go to a gym, and if I found someone who did believe me and understood they didn't know what to do for it. It's very depressing.

I did find something at one of the MSG sites today about the connection bewtween MSG and inflamation:

"MSG is a nerve cell trigger. It is an excitatory neurotransmitter, which acts as a chemical messenger to carry a signal from one nerve cell to the next. Recent research from Johns Hopkins links nervous system overstimulation to the immune response. Immune response includes the release of histamine and white blood cells. The immune response allows the blood vessels to become "leaky" so that the white blood cells can get to the site of the injury. This flood of fluid leaving the blood vessels and entering the tissue is what we recognize as swelling. "

I know you have been staying away from MSG, so maybe something is going on with your hormone picture that is causing your recent swelling? Hopefully you will get some answers today at your appt.

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I know you have been staying away from MSG, so maybe something is going on with your hormone picture that is causing your recent swelling? Hopefully you will get some answers today at your appt.

I read the same info about the MSG and leaking blood vessels. Sometimes I have tissue swelling along with the fluid retention but other times just fluid. Thats how it is today...just fluid. I didnt do anything different with my diet since what I've been doing has been working for me. It was after I drank a ton of water for the ultrasound that I started feeling "not right" again. My head doesnt feel as clear today. :(

Rachel,

Do you feel warm? (not feverish) just warm, sweaty?

No...no sweating. I felt colder than normal today.

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It was after I drank a ton of water for the ultrasound that I started feeling "not right" again. My head doesnt feel as clear today. :(

No...no sweating. I felt colder than normal today.

Rachel,

You have probably posted this miles back...but do you drink tap water? Some bottled water isn't any better than tap water, don't know if you are aware of that. We just got a water filter for our kitchen called Kitchen Defender that get all the garbage out of the water including flouride. If you are interested in checking it out go to www.cleanairpurewater.com. The guy that sells these is very nice and will answer a slew of questions. You would need to get a water report so he could best evaluate what you would need. He won't sell you something you don't need. We love our new system, since we are renting we didn't opt for the whole house system but that would be best if you own your own home. He also sells shower head filters so you don't have to take a chlorine fume shower if you are on city water.

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The picture is of me and my new grandbaby, little Ana Marie :D This little one is what keeps me struggling to keep my health.

I want to get that water cleaner system, I've heard it's wonderful.

Floridian, I would have never guessed you were a grandma!! How sweet you look with your granddaughter, such a precious picture!

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Floridian, I would have never guessed you were a grandma!! How sweet you look with your granddaughter, such a precious picture!

I agree, what a wonderful picture!

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I read the same info about the MSG and leaking blood vessels. Sometimes I have tissue swelling along with the fluid retention but other times just fluid. Thats how it is today...just fluid. I didnt do anything different with my diet since what I've been doing has been working for me. It was after I drank a ton of water for the ultrasound that I started feeling "not right" again. My head doesnt feel as clear today. :(

No...no sweating. I felt colder than normal today.

I think you pinpointed it with the excessive water.

When I drink a lot of water I get fluid retention and increased pressure too. I try not to over do it on the water. a coupple glasses a day is about all I can drink.

Ever notice that when you are dehydrated that the swelling goes down? I have noticed that in myself, my face and hands feel better. And I feel more attractive and less puffy.

If I havent eaten for a while or if I dont drink a lot of water, my swelling subsides, but thats not good I cant starve and not drink water.

The water is attracted to our face!!!!

So annoying.

Ovary pain does hurt a lot, and can put you in a pretty foul mood, let alone going to the gynocologists, I dont how everone feels here but I dont really look foreward to those exams.

Rach, where you at in your cycle? are you pre menstrual?

should keep track of your periods, you said you were spotty or late.

Anything else bothering you?

I agree that, So far dietary manipulation has been the best thing for all of these problems.

Its not 100% yet tho.

Christina

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I think you pinpointed it with the excessive water.

When I drink a lot of water I get fluid retention and increased pressure too. I try not to over do it on the water. a coupple glasses a day is about all I can drink.

Ever notice that when you are dehydrated that the swelling goes down? I have noticed that in myself, my face and hands feel better. And I feel more attractive and less puffy.

I dont normally have a problem w/ water. I drink water all day...just not in massive amounts all at once like I had to yesterday. I also ate alot while I was drinking the water because I was starving and didnt have alot of time between work and the ultrasound. On top of that I couldn't empty my bladder for over an hour so it was alot of pressure....the technician even made a comment about how full I was while she was doing the ultrasound.

If I dont drink anything it doesnt help with the fluid or swelling though...water doesnt make me puffy.

OK...Floridian and Andrea...you both have ADORABLE avatars! I love the new pics. :)

Rachel,

You have probably posted this miles back...but do you drink tap water? Some bottled water isn't any better than tap water, don't know if you are aware of that.

I never drink tap water. I do drink bottled though. I sometimes buy the kind in glass bottles rather than plastic and sometimes I drink distilled. Someday I may invest in a purifier but I think they are pretty expensive. It would be a good investment though when I can afford it.

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Oh okay, sounds like an allergic reaction to something, like when we get glutened, but like I was saying when I had my cysts I was allergic to EVERYTHING. The side my cysts were on also hurt all the way through my hip, I actually thought I had bone cancer starting in my hip (I'm a positive thinker aren't I :P ) but everything turned out okay. Thank goodness you went in when you did, and Rach, if it was an emergency situation they would contact you immediately so I'm sure it'll be okay.

Well the doctor just called me back right now and she said I have a cyst on each side and a fibroid but they didnt see any fluid leaking out. Personally, I think that theres fluid leaking out or something weird happening. She said the one cyst used to be 4 something and now its 2 something so probably on its way out is what she said. She told me to wait 6 weeks and they'll check again.

I told her I'm having alot of pain there especially when I sit or bend over. She said its probably intestinal...I dont think it is because when I point to the exact spot of the pain everyone tells me that its where my ovaries are located. I told her this so she said shes referring me to OBGYN.

I'm really confused and frusterated right now. :angry:

My pain is exactly like you describe Floridian....it goes into my hips. It was hurting to walk today after lunch. My most symptomatic part of the day is always after lunch...which is actually my first meal since my lunch is at 9:30. When I go back to work I'm always more sensitive to smells and I always have pressure in my head...it starts about 5 minutes after I eat and lasts about 2 hours....then I feel good again. Today it was the same thing and the ovary pain or whatever it is was really bad for a couple hours...so bad that I thought I might have to go home but then it got way better and I forgot about it.

I dont know what to think now. :(

Oh...I told her that when I sit or bend over it feels like something's getting pinched and that I'm having noticeable pain there. She said cysts dont really cause pain so its probably not the cysts but she didnt sound too sure of herself so thats why she referred me to obgyn. I really dont think its my intestines cuz its in the exact same spot and it doesnt change. It doesnt feel anything like an upset stomach or cramp either.

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The thing that sets my ovarian pain apart from anything intestinal is that when it's really bad, it hurts to press the skin in the area. It's like the whole lower left side is inflamed. When I told my GYN this at my appt to discuss the ultrasound, she kind of laughed it off, saying--well, of course you have pain with an 8 cm fibroid! I said--but the pain is on the left side, not in the middle at all. And she didn't really add anything. I don't think they even know. :angry: She is fixated on the stupid fibroid--I suppose if the cysts were such a big deal, she wouldn't just laugh it off--but I have that pinching, too and it goes from being almost undetectable to horribly painful--luckily, it's only the most painful when I get a period (which is not every month now anyway) usually, I'm only slightly aware of it.

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Thank you Patti, do you have one of yourself? I wish we all lived close to each other, it would be nice to have friends to go out with that understand each other!

I know--we're all so far apart! No matter how nice and understanding our friends and families are, there's nothing like talking things out with another person who really understands--because they've been there. I did have a picture of myself (and my cat) that was up for a little while. I tend to post so much, I was tired of seeing my face pop up all the time! :D Recently, a bunch of us were taliking about what we'd do if we won the lottery. I said that after the family was taken care of and all that, I would have a big, long weekend somewhere nice and fly all of my Celiac.com friends in so we could all meet under one roof! Of course, I'm as unlucky as they come, so it'll never happen--but wouldn't that be fun! :D

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