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Rachel--24

Omg...i Might Be On To Something

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Rachel, I am so glad that you seem to have found a competent Doctor who really wants to understand your problems. I am amazed at the suggestion of Lyme although living as I do in Lyme world these days I am more amazed that I wasn't thinking of Lyme with you. <_< It is scary to think mercury poisoning is preferable.

Lyme is also called the Great Pretender or Imitator, can't remember which, it affects people very differently. My friend, with Lyme, and I have been talking for 5 months and it never occured to either of us that I might have Lyme until she accidentally sent me the salt/c protocol and I looked at Lyme and went OMG.

I also had some dental work that required an old filling coming out about three years ago, a dam was used but nothing more. There is a connection between mercury and Lyme but I don't understand it yet.

White ridges in the fingernails are also a symptom of Lyme, at least I am pretty sure I have seen it mentioned on the Lyme boards.

I think there is a great fiction being sold to us about Lyme disease and that fiction is that we are only at risk in certain parts of the country. In Canada within the past couple of years the government issued a report that there were only 20 cases in the whole country of 30 million people. LOL That is a bitter laugh. Read the boards, Lyme is everywhere and if you have been bitten once it changes your blood so that you become a beacon for ticks, sit in a room with 50 other people who don't have Lyme and that little tick will find you. We are told Lyme was "discovered" in 1972 in CT after a cluster of teenagers were diagnosed with RA, NO it was first identified in Europe in 1882.

At the risk of boring you with repeating what I have said before I think ticks and their bacteria have been with us forever, they didn't change, we did. I think the introduction of processed sugar into our diets and the use of it as a preservatives changed the balance in our body, sugar has turned us into super-hosts for all sorts of bacteria and parasites.

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And thank you all for your support, I phoned a new friend and we met for tea, actually she had hot chocolate with whip cream and I had spring water, and we sat outside in the sun. It was and still is one of those perfect early autumn days.

Great Rinne! I'm glad you got out and that it did you some good. :)

Wow Evie.

I'm glad you're ok and that hubby was there to help you. Glad you are back on the forum too. Hope you're feeling a little better now. Yeah....when it rains...it does pour....been noticing that myself. :(

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The book I'm reading, Tired of Being Tired by Jesse Lynn Hanley, M.D., has a section on metal toxicity and specifically addresses mercury fillings. This is a paragraph from the book.

"The herb cilantro is a natural mercury chelator. Cilantro can reach the deep mercury stores, including those in your brain, and leach it from your system. I encourage all of my patients who have silver fillings and any signs of mercury toxicity to eat one tablespoon of chopped cilantro every day."

I know if it's a problem for Rachel, she'll need something more significant than that, but it's not a bad idea for the rest of us.

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Guest Robbin

Evie, I am so sorry to hear about your heart problem. I was wondering where you have been and thought it was computer problems. Wow, I am thankful too that hubby was there. It sure does seem like these things happen all at once. I think celiac just wreaks havoc on every system in our body since nutrition is so compromised. I will be praying for you and your hubby.

rinne, I don't think you are the only one who mistakes kindness for competance. It is perfectly normal to want to be treated kindly and gravitate to kindness especially when feeling hurt and vulnerable. Many of us have been treated rudely and impersonally-- so much that we hunger for a compassionate person to help us out of the misery. I feel so bad sometimes that I break down and cry when someone gives me a kind word. (I then feel like a complete wimp) I hope so much that we all get well. I am getting teary about this now as I type. What a rotten disease (or diseases). Why can't people just get simple old diseases that make themselves known?!! We are the unlucky people to get these cowardly things that hide. :blink: It soooo sucks, doesn't it?

The book I'm reading, Tired of Being Tired by Jesse Lynn Hanley, M.D., has a section on metal toxicity and specifically addresses mercury fillings. This is a paragraph from the book.

"The herb cilantro is a natural mercury chelator. Cilantro can reach the deep mercury stores, including those in your brain, and leach it from your system. I encourage all of my patients who have silver fillings and any signs of mercury toxicity to eat one tablespoon of chopped cilantro every day."

I know if it's a problem for Rachel, she'll need something more significant than that, but it's not a bad idea for the rest of us.

CARLA!!!!! THANK YOU FOR THIS!!! I will do this definitely. This is just what I prefer, a natural non-invasive-non-doctor cure to try. Bless you!

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The book I'm reading, Tired of Being Tired by Jesse Lynn Hanley, M.D., has a section on metal toxicity and specifically addresses mercury fillings. This is a paragraph from the book.

"The herb cilantro is a natural mercury chelator. Cilantro can reach the deep mercury stores, including those in your brain, and leach it from your system. I encourage all of my patients who have silver fillings and any signs of mercury toxicity to eat one tablespoon of chopped cilantro every day."

I know if it's a problem for Rachel, she'll need something more significant than that, but it's not a bad idea for the rest of us.

Carla, I was eating cilantro last night before bed.

I was holding my head and telling my mom I could feel the cilantro pulling mercury out of my brain...hehe...I couldnt really....just being melodramatic. :P

I eat it sometimes for this reason but last night was the first time in awhile.

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I feel so bad sometimes that I break down and cry when someone gives me a kind word. (I then feel like a complete wimp) I hope so much that we all get well.

Me too! I'm so sensitive now. I'm also more compassionate.

There is a lady in her 90's that shops at my store....she's the sweetest lady ever. She always apologizes to me for moving slow. She always tells me "When you get to be my age you just dont move around quickly anymore." I always tell her I've got all the time in the world...not a problem.

Today she saw me working and came up and told me "You're always here working so hard every time I come in." She asked me where the Cream of Wheat was and I was taking her to it but shes very slow so I decided to just grab it for her and bring it back. I ended up getting the wrong one and went back to get the right one. I then got her some coffee she needed and she was sooo happy that I'd done this for her. She was thanking me for being kind to her and telling me I shouldnt have to walk all over the store just for her. I told her that YES, I should...thats why I'm here....to help the customers. She said "No....you dont have to do it." Again I told her I dont mind and that yes, I'm here to help her....thats what they pay me for.

She said "No...you could be like the other people and just walk away from me." :huh:

I couldnt believe that people would treat this sweet lady that way. I told her I could never be like that. She said "Cuz you werent born that way and you werent raised that way....God bless you."

It almost made me cry. It makes me mad that people treat elderly people so poorly. :angry:

I will always go out of my way to help her.

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The book I'm reading, Tired of Being Tired by Jesse Lynn Hanley, M.D., has a section on metal toxicity and specifically addresses mercury fillings. This is a paragraph from the book.

"The herb cilantro is a natural mercury chelator. Cilantro can reach the deep mercury stores, including those in your brain, and leach it from your system. I encourage all of my patients who have silver fillings and any signs of mercury toxicity to eat one tablespoon of chopped cilantro every day."

I know if it's a problem for Rachel, she'll need something more significant than that, but it's not a bad idea for the rest of us.

Carla, I ordered that book today at the library. Thanks for the info too on the cilantro. I will buy a plant-its cheaper than buying the herbs at the grocery even if you throw the plant out later. :)

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Wow Evie! A big HUG....you've been through a lot. I was wondering where you'd gotten too. I hope things clear up and you get better quickly.

Rachel,

That is so nice that you help the older customers out. I agree that a lot of people today don't treat the elderly very well. Some people don't treat anyone very well. :angry: I don't work, but if I did I would look forward to helping those that I could.

Mitch has his surgery tomorrow to remove his anal fissure. My mom will be down to watch the kids. Planning on her fixing dinner, although it will be here so should be much safer. :P

Don't know if I posted that my stepmom called Sunday night and told me my Dad was in the hospital. I knew something was up because she never calls. I called him at the hospital and found out he'd been there since Thursday and was thinking he'd be going home today or tomorrow but didn't know. He has kidney failure. He only has one kidney since he had the other removed 5 years ago due to cancer (which I think spread from the prostate). He sounds fine. Mitch offered to have me and Seth go down to see him but I don't think that's necessary at this point.

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Andrea will say prayers for hubby tomorrow and so sorry about your dad will keep him in my prayers too.

judy

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Andrea,

I'll pray for Mitch tomorrow....that all goes well for him. :)

Tell him good luck with his surgery for me.

I'm off to bed now....just got a long massage and now I'm really relaxed and ready for bed. :)

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Lee...you're right. They dismiss the complicated cases because they dont wanna appear incompetent. Its easier on their egos to tell us its all in our heads.

I'd be curious to hear about your friends ordeal if you can find out. I never saw a tick bite on me or anything. I do remember a weird bite with a small circle around it....I remember thinking it was strange....mainly cuz it stayed there about a week or so. My ex recalls me having the bite too but we cant remember when it was...or if it was even anywhere around the time I got sick. I remember reading that you can get bit...have some initial flu-like symptoms and then be fine for awhile.

I had an episode like that where I had a high fever and flu-like symptoms back in 2000. I think it was right after a vacation in Tahoe. My ex had to call advice nurse and even dress me to go to the dr.s because I was pretty lethargic. It only lasted a day I think. I didnt get sick until more than 2 years later though...I dont know if symptoms could take that long to appear. I got sick after the dental work though.

The Dr. I'm seeing (who says CHEW, CHEW CHEW your food) is an M.D. His bio says he is board certified in internal medicine for 25 years. Studied acute medicine and chronic disease....has had great success in

blending his knowledge of Eastern and Western Modalities.

Its really hard to remember to chew...I forgot for my first 2 meals and then remembered the last time I ate....it sure makes me eat slower. I think it will help keep me from eating too much at once because I have to go so slow. He told me to count as I'm chewing to get myself in a habit of doing it.

He pretty much knew without my telling him that supplements werent the best thing for me right now....that I probably wouldnt tolerate them. He said when patients cant take anything its important to get them to start detoxing, work on the diet, cut down on allergies...get the body a little stronger and start trying things later on. He said lots of people react to B vitamins especially....also one other thing (which I forgot :huh:)...I know for sure I react to B vitamins really bad. He wouldnt want me taking anything right now cuz he thinks I would react.

Rachel, a dear friend lived to be 101. He ate slow , didn't drink with the meal and rested after eating. He liked to just sit there and talk and relax. I'll check with Becky about her episode on the lyme disease. She was very ill and it took forever for her to figure it out. Yesterday was my bd so I was off eating, ( no side effects) and got a massage. Think that helped. Going to get a few more weekly to see if it helps. Today was catch up day so I'll hopefully get to get the scoop tomorrow. :)

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Wow Evie! A big HUG....you've been through a lot. I was wondering where you'd gotten too. I hope things clear up and you get better quickly.

Rachel,

That is so nice that you help the older customers out. I agree that a lot of people today don't treat the elderly very well. Some people don't treat anyone very well. :angry: I don't work, but if I did I would look forward to helping those that I could.

Mitch has his surgery tomorrow to remove his anal fissure. My mom will be down to watch the kids. Planning on her fixing dinner, although it will be here so should be much safer. :P

Don't know if I posted that my stepmom called Sunday night and told me my Dad was in the hospital. I knew something was up because she never calls. I called him at the hospital and found out he'd been there since Thursday and was thinking he'd be going home today or tomorrow but didn't know. He has kidney failure. He only has one kidney since he had the other removed 5 years ago due to cancer (which I think spread from the prostate). He sounds fine. Mitch offered to have me and Seth go down to see him but I don't think that's necessary at this point.

Hey, Andrea it sounds like a bit of that personal rain is falling near you too. sorry about your dad and his problems. will be adding my prayers for your hubby tomorrow. it is so good your Mom can come down to be with the kids and get your supper. I suppose this surgery is outpatient type, much of it is now, even so he is going to be uncomfy for awhile and need to slow down. speaking of slowing down i am supposed to do some of that too so will be getting off.

Rachel; I so agree with you and I know you are a very compassionate person. You really left a good impression with that lady, not that you helped her for that reason. I have always been lead to older people, maybe because I was oldest in family or that mom was the local nurse (untrained) but she was always called on. No wonder i enjoyed working in the homes of the elderly when they needed help for many years.

From reading a few pages back I took it you had to quit eating dairy products again..am sorry. another day I will try to catch up on back pages. Take care all!! :) evie

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Hi evie, so good to see you back posting, I'm so sorry to hear you have had a difficult couple of weeks. Please take good care of yourself :)

Andrea, I have Mitch in my thoughts for tomorrow's procedure. Keep us posted as to how it goes. Also am including your dad in my thoughts as well.

Goodnight everyone :)

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Actually when he was talking about chemical exposures he was referring to big exposures...like occupational exposures. People got sick after 9/11 due to chemical exposure, gulf war syndrome, people who work with toxic chemicals on a daily basis....stuff like that. Major exposures like that can lead to chemical sensitvity and immune dysfunction. He doesnt seem like the type of Dr. to do phone consults though. He's an M.D....specializes in internal medicine. He gave me an examination...it really was no different from all the appts I had with specialists in Kaiser...except for the fact that he's a whole lot smarter. :)

DMPS pulls metals out. Its a very powerful chelator....too powerful sometimes which is why it can cause more harm than good. People that have gone through chelation for mercury toxicity can actually feel the mercury being pulled out of their tissues....especially in the brain.....where mercury tends to store itself.

Actually, I had what they call accute chemical exposure, large amounts of different sulferated hydrocarbon based chemicals derived from coal and humic shale, containing arsenic, lead, uranium, antinomy, bromide, flouride, gold, mercury,,,, tons of toxic unessary things that i didnt even need ( one was expired over three years before the date I bought it on) over a short period of time, that i was swallowing by mouth and that has now lead to chemical sensitivitys and some immune dysfunction, problems with my thyroid.

Its hard to know unless you've been where ive been. its been hard, and hard to get support and easy to feel dismissed, im sure everyone can relate to that, and its an awful feeling. When you know somthing is true for you but others dont believe you.

I hope there is a way to reverse this, but things are looking kind of dismial when it comes to environmental and chemical poisoning, I try to stay positive.

Hope you find your answeres rachel, i will be reading. As I try to help me self, and Ill post things If i find something that works, if people are curious.

I just try to relax now and realize i dont have control, and searching for the "answers" is somtimes a distraction form accepting my disabilities, im starting to realize that maybe its not knowing the answers... but about what accepting what is...I think....

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Evie, I'm sorry to hear that you have been having such a difficult time. I am so glad your husband was there and able to catch you. :)

Rachel, how wonderful that you appreciate people of all ages cause I'm sure you must like children too, yes? I've noticed that if you take time with older people sometimes people will look at you like why are you bothering? Same thing with children, some people are just narrow in their appreciation of all the different ages we go through.

Andrea, I hope the surgery goes well, I'll keep you and your dh in my prayers.

I just try to relax now and realize i dont have control, and searching for the "answers" is somtimes a distraction form accepting my disabilities, im starting to realize that maybe its not knowing the answers... but about what accepting what is...I think....

Christine, I think there is wisdom in what you say, there must be acceptance of the ways we have been damaged by whatever we have been damaged by. I think that when we can make peace with our grief and rage we can move forward into a new appreciation of our lives and on good days I can actually feel that. :)

Thank you all for your kind words. I am feeling much better this morning and I'm excited because I have a yoga class to go to. :)

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Rachel, how wonderful that you appreciate people of all ages cause I'm sure you must like children too, yes? I've noticed that if you take time with older people sometimes people will look at you like why are you bothering? Same thing with children, some people are just narrow in their appreciation of all the different ages we go through.

Yup...I do love kids. Doesnt everyone?? Hard to imagine someone not loving children but I suppose there are some out there who dont. :huh:

I hope to have my own someday....if I'm lucky enough to be blessed with them. I'll definately have to get diagnosed and somewhat healthy first...I worry time will run out though.

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I hope there is a way to reverse this, but things are looking kind of dismial when it comes to environmental and chemical poisoning, I try to stay positive.

im starting to realize that maybe its not knowing the answers... but about what accepting what is...I think....

I look at it in a different light I guess. People have recovered from worse things. I believe none of us are beyond recovery. If the diagnosis is correct and the proper treatment is given....things can be reversed....the body is amazing at healing itself. Like my new Dr. said...its gonna be alot of hard work on my part....but why wouldnt I work hard? Its my health and I want it back. He did say some of his patients have recovered.

I do believe its about knowing the answers....thats the most important thing. Its like when your car breaks down. Its not gonna start running again until the problem is found and repaired. Even with cars the problem isnt always determined immediately but this doesnt mean we dont stop trying. There is always an answer.

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Rachel, the book that was recommended to me was "Healing Lyme" by Steven Buhner.

I don't know how much time you have but I hope that a child is part of your life if that is what you really want, the wonderful thing is that it is possible to have children in our lives without actually having them. The relationship is different but there is a lot to be said for being an "aunt".

My acupuncterist has talked about our taking our cars in for regular tune-ups and yet we don't take ourselves in for tune-ups when we are not feeling well, we ignore our own warning signals and then we get really ill. I don't know that there are answers for everything, for example I think that there may be related co-infections for Lyme that have not been identified yet and I have read that others also think that. So it might be possible to have it and have no positive test result. Even so, I think there are ways to live and things we can do that will help us. I liked that your doctor said to trust yourself and not the tests.

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Rachel,I've been following your trials-and I'm really pleased that you've found a doctor that is actually 'listening' to you and is thinking outside the box.

Although I know you don't actually want to have Lymes or Mercury Poisoning,it is important that you get to the root of your problems.

I never realised that Lyme Disease symptoms were so similar to celiac disease until I read some links posted on this board.

It reminded me that when Terry (hubby) was seeing a neurologist for 'gluten ataxia' he was actually thinking of testing him for Lymes (didn't even know you could get it in the Uk :blink: )

As his ataxia improved after a course of steroids the test was never done-but clearly the effects can be the same.

I don't blame you feeling a little emotional about the little old lady at work.Heck,I probably would have felt a bit tearful and would want to invite her home for a cup of tea!!

I feel the same as you about old people (or kids,or anyone really who is a bit vunerable)

It doesn't take alot of effort to show a bit of patience and compassion.

Hope you get the results soon!! :)

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Prayer said for everyone on this thread! :)

Evie - glad to "see" you again...what a scarey thing to go through!!

Andrea - keeping Mitch in prayer this morning.

Okay, seems like I was going to specifically respond to someone else, but now I've forgotten, lol.

I really need to work on chewing slowly...I have always been a fast eater...I do almost everything fast...walk, talk, eat, shop, lol. My mom and I were talking about this the other day...we both eat so fast, and frankly sometimes I barely chew my food! I think I've known for a long time that chewing longer would be sooooooo beneficial for me, but habits are so hard to break sometimes.

So, the cilantro thing...I still have lots of amalgam fillings so I'm guessing the help might be minimal at best from eating a little cilantro...but guess it couldn't hurt.

I have an appointment next week for my first crown appointment...I told the girl on the phone that I wanted porcelain and why I wanted it, and she actually agreed with me about having a mouth full of metal, lol.

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So, the cilantro thing...I still have lots of amalgam fillings so I'm guessing the help might be minimal at best from eating a little cilantro...but guess it couldn't hurt.

I believe she said that she recommends to all her patient that have the amalgams to eat the cilantro, then have them taken out when they feel like they can, healthwise.

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As his ataxia improved after a course of steroids the test was never done-but clearly the effects can be the same.

Nicki, I'm glad your husband saw improvement with the steroids but if his symptoms or other symptoms which seem unrelated appear you may want to pursue the Lyme test with Igenex. I've read that steroids can drive Lyme deeper but it will reappear.

Growing up in a family with so many children, there are seven of us, I ate fast, we all ate fast because if you wanted food you had to. I've been trying to chew my food at least 30 times as I had heard that was sufficient but now I will try the hundred. I did with my blueberries for breakfast but that was difficult, they kind of melted away at 15. LOL

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I've been trying to chew my food at least 30 times as I had heard that was sufficient but now I will try the hundred. I did with my blueberries for breakfast but that was difficult, they kind of melted away at 15. LOL

I think it only make sense that blueberries would need less chewing than steak!

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