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Rachel--24

Omg...i Might Be On To Something

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Your dad sems like hes happy you're coming for Thanksgiving too. :)

I'll look forward to it. :)

Actually...I will call...my weekend calls are free. :D

Yep. We'll miss the dinner but that's ok. We'll see him Friday-Monday. Mitch will probably be quite tired going to work on Tuesday morning. We get into the airport at 2 am. Seth's schedule will be totally out of wack, but it'll be worth it to see my dad. We should all be over our colds by then too.

Ok....I'll let you call me.


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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Andrea, I am really glad to hear you are making arrangements to go be with your Dad. I know it will mean a lot to him having you there, and it will be good for you too. Years from now you will look back and treasure the visit :)

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Andrea, I'm glad you're going to see your dad.

Rachel, too bad it didn't work out with your ex ... friendship is nice to build a relationship on. It's good you have him as a friend.

I play flute at Church. When I first started playing I was constantly reminding myself not to sing during the parts of Mass that are sung, but when I don't play, because I'm standing in front of a microphone!! I need to remember this for the prayers, too. I "lip sinc" everything, prayers, etc. During most of the music though, I'm playing.


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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Andrea, I'm glad you will get to see your Dad.

Rachel, I was always organized in regards to bill paying but at some point it became a source of anxiety for me and I began to avoid it. Like you, even though the money was there I would let it drag on, finally I asked my sweetie to take on the bill paying and he has. :(

I find I really have to work at getting small tasks done, chores are like mountains and I have to work myself up to climbing them, somedays even the smallest task seems like it will take too much energy and I let it slide.

The singing sounds wonderful. I never made the school choir :( they wouldn't even let me lip sync. :lol:


A family with Celiac disease, two brothers and two sisters.

Lyme Disease, Diagnosis October 19, 2006

May 2006 - December 2008 Gluten and Dairy Free

December 2008, while seeing improvement on the gluten free diet, I did not recover and so in December of 2008 began the SCD and now have hope for recovery.

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they wouldn't even let me lip sync. :lol:

:lol:

I used to sing in the school choirs and also in an ensemble my senior year of school.

Can't sing much anymore. :( My voice is way out of practice.


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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:When I was healthy I was on top of everything. I paid my biils as soon as I got them....if something needed to be done I did it. I was soooo responsible and organized with everything. Ever since I got sick everything changed....I procrastinate on everything. I will let my bills just sit because its too hard to *think* or to balance my checkbook. I am unorganized and scattered and simple tasks are daunting to me.

Um.....hi, you could be describing MY WHOLE LIFE here :huh: .....well, not the whole of it but big chunks and esp. in the last 10 years. RACHEL - - you MUST set up online bill pay! Takes a bit of time to sep up, an hour or two, but is the EASIEST thing in teh world. No checks/stamps/envelopes.....just click and pay. My bills are paid every month in about 30 seconds.....I happen to have perfect credit and this may be part of it. :)

I find I really have to work at getting small tasks done, chores are like mountains and I have to work myself up to climbing them, somedays even the smallest task seems like it will take too much energy and I let it slide.

OMG Rinne.....some chores are like the last leg of Everest, the Hillary Step without supplemental oxygen....I know exactly what you mean.

Andrea....glad you've scheduled the trip to see your dad. :)

Everyone....I am so tired.....a short day at work, it was slow and they sent me home, I think I'm too hungry. Heading out to the garage to work on furniture. ;)

edit - ps - - WHAT is herxing and......does it hurt? :huh::lol:


SUSIE

Diagnosed January 2006

"I like nonsense. It wakes up the brain cells." ~Dr. Seuss

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Hi Debbie. :)

Susan, herxing is the die off of the bacteria and the reaction you have to it flooding your system with toxins and generally making you feel ill, it is complicated by the fact that Lyme binds with mercury and pesticides so that when they are killed off the mercury and pesticides flush into your system as well. I don't think herxing has to be as severe as Rachel experienced but because nothing had been done to help her detox and given all the mercury from the bad dentist naturally she got really sick. Does that sound correct to you Rachel?


A family with Celiac disease, two brothers and two sisters.

Lyme Disease, Diagnosis October 19, 2006

May 2006 - December 2008 Gluten and Dairy Free

December 2008, while seeing improvement on the gluten free diet, I did not recover and so in December of 2008 began the SCD and now have hope for recovery.

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Hi Debbie :)

Yup....she was referring to you....we have no other Debbie's here. ;)

Where do we go from here? This is what we've been trying to figure out here for the past 7 months...how do we find and get on the right path to regain our health??

Rinne and I have just been diagnosed with Lyme this past month...now we are on the correct path. :)

Hopefully others will soon get their answers and join us on the "Wellness Path".

Welcome to our "not so little" thread....we're a joyful and super supportive clan...we've had many good times here while we continue searching for answers until we all get better. :)

Yup...we WILL all get better. :D


Rachel

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hI,

hAVE COME IN THREE QUARTERS WAY THROUGH THIS THREAD. DONT HAVE ACLUE IF YOU MEAN ME BUT MY NAME´S DEBBIE. SO WHeRE DO WE GO FROM HERE??

Yes, the hi was for you.

Just jump in. Do you have a question you'd like to ask?

Yup...we WILL all get better. :D

:D Yes, we will.


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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Hi Debbie 65, yes that hello was for you. :) It is always nice to see new faces in Rachelville.


A family with Celiac disease, two brothers and two sisters.

Lyme Disease, Diagnosis October 19, 2006

May 2006 - December 2008 Gluten and Dairy Free

December 2008, while seeing improvement on the gluten free diet, I did not recover and so in December of 2008 began the SCD and now have hope for recovery.

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RACHEL - - you MUST set up online bill pay! Takes a bit of time to sep up, an hour or two, but is the EASIEST thing in teh world. No checks/stamps/envelopes.....just click and pay. My bills are paid every month in about 30 seconds.....I happen to have perfect credit and this may be part of it. :)

Susan...you are SO right...its only been suggested to me about 100 times but I shrug it off because it seems too complicated to set it up. :ph34r:

I am going to make this my mission for the week...to get my mom to help me so that I dont get overwhelmed by the whole "set-up" process. I think this will be REALLY helpful if I can just get it all set up......once I'm past that it should be a breeze. Thanks for reminding me. :D

When you have online banking do they still send you bills? One HUGE problem I have (which also deters me from bill-paying) is the fact that freakin Macy's sprays the heck out of the bill with PERFUME! :angry:

I asked them NOT to do this and suppossedely I am on the "perfume-free" list but they ALWAYS manage to screw it up. I HATE them right now and am seriously considering not shopping there after their obvious disregard for the health and concerns of their customers.

Two months ago they removed a $50 late charge in apology for their negligence. Then the next month they send my bill with perfume AGAIN. :angry:

Its not only the Macy's bill that is affected but ALL of my mail....because it contaminates all the mail its been sitting with. When this happens I get a big reaction...end up in tears....cant pay the bills....get frusterated....throw all the bills in the air....cry into a pillow and yell about how I hate Macy's. Its total drama. :ph34r:

And I wonder why my mom is stressed out with me in the house. :lol:

So....if I do online bill paying....will they stop mailing the bills and contaminating all my mail with their chemicals?? This would make me very happy. :D


Rachel

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Hi Debbie. :)

Susan, herxing is the die off of the bacteria and the reaction you have to it flooding your system with toxins and generally making you feel ill, it is complicated by the fact that Lyme binds with mercury and pesticides so that when they are killed off the mercury and pesticides flush into your system as well. I don't think herxing has to be as severe as Rachel experienced but because nothing had been done to help her detox and given all the mercury from the bad dentist naturally she got really sick. Does that sound correct to you Rachel?

Yeah....it sounds right. I herxed and it was not fun. :(

Susan....yeah it can hurt. Its like every symptom you ever had hitting you at once or a milder herx reaction could just feel like the flu or you could just experiene headache or fatigue.

I think I got a big herx reaction.


Rachel

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Rachel, you are SAVED by online bill-pay! Yes, you can request e-bills from each company you wish, no more paper bills , they just come via email. But, make sure your bank has free bill-pay (or very cheap - Bank of America is free) and request no paper bills......it will take 2 - 3 months and then...no more! This will save your life in so many ways! Listen, if *I* with my very flawed brain can do it, I know you can. ;)

Off to bed. Just got home from the pub where my niece works. I flirted - heavily - for the first time since the breakup. wow. It was so much fun....the nicest and kindest and most funny geologist.....but he is 10 years younger. Hah, he doesn't care but *I* do......... :o But the point is, I felt so free and recovered from that heinous relationship, it felt like such a step of healing for me. did I mention he is a fly-fisherman and wants a cabin more than anything? :o:lol: We had a lot in common.

Don't get all excited everyone....I mean Bev. :lol::lol::lol: But it was a great sign of progress for me. :)

goodnight friends.


SUSIE

Diagnosed January 2006

"I like nonsense. It wakes up the brain cells." ~Dr. Seuss

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That's wonderful, flirting can be very good medicine. :ph34r::lol: I miss my German men friends, some of them were wonderful at flirting and flirting without any destination in mind.

My sweetie suggested this morning that I should have a Volkswagon Beetle, lime green naturally. :lol:


A family with Celiac disease, two brothers and two sisters.

Lyme Disease, Diagnosis October 19, 2006

May 2006 - December 2008 Gluten and Dairy Free

December 2008, while seeing improvement on the gluten free diet, I did not recover and so in December of 2008 began the SCD and now have hope for recovery.

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Hmmmm, I wonder about that. Although I was using sls free stuff (I think) last year. Seems my flareup is always in the fall.

Me too!!. Maybe it's the lack of sunlight (my eczema disappears in the summer) <_<

I have been busy booking flight/hotel/car for going down to see dad Thanksgiving weekend. We will all be going down....leaving the evening of the 23rd and coming back in the wee hours of the 28th. Talked to dad for a few minutes this morning and he agrees with us coming down over that weekend and Mitch will only have to take one extra day off w/o pay.

Glad you're gonna get to see your Dad - hope all goes well :)


It's not enough that we do our best; sometimes we have to do what's required - Sir Winston Churchill

Nikki

Son diagnosed with Coeliac Disease Oct 2006 by biopsy (at age 13yrs)

black_cat.gif

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Lime Green Beetle!! LOL

Susan, glad you had fun. I don't know if I could have a relationship with a guy 10 years younger either, but the flirting sounds fun.


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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SO HAPPY YOU GOT OUT AND HAD A GOOD TIME SUSIE "Q"

;) JUDY


Judy in Southern CA

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Nikki,

Maybe also, the beginnings of using the furnace or central heating more. Of course, I've been in a/c'd air for the summer, you would think that would be dry too.

I love your new pic btw. :)

Susan,

Glad you got out and had a good time. :)

Rinne,

I could see you in a lyme green beetle. :) I know they have a pretty green one......don't think it's lyme colored though. :ph34r:

Judy,

HI!!!!


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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Rachel, you are SAVED by online bill-pay!

WOOHOO....I'm gonna do it!

No more heinous nights of trying to pay bills and getting "perfumed". ;)

I felt so free and recovered from that heinous relationship, it felt like such a step of healing for me.

Yay Susan! It sounds like you had fun. I've never been much of a flirt...or maybe I just forgot how since I've been sick??? :unsure:

My sweetie suggested this morning that I should have a Volkswagon Beetle, lime green naturally. :lol:

:lol::lol:

You are so fuuny...they do have a lime green beetle...it would be perfect for you. :D

Susan, glad you had fun. I don't know if I could have a relationship with a guy 10 years younger either, but the flirting sounds fun.

My mom's hubby is 15 years younger....they are the perfect happiest couple ever...they do everything together. :)

I think my mom waited several years to agree to marry him though....wanting to make sure the age difference wouldnt be a problem.

Oh...did I mention The Dave is 13 years younger than me?? :o

Hehe....we are not in a relationship but yes....he is quite young....a baby actually. :unsure:

Just got back to VA....unpacking and such....wedding was beautiful!

Welcome back Laura!

Cant wait to hear about everything! :D


Rachel

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Hi Rachel, see your on...just passing through..

i ck on you every day but not really posting.

Laura can't wait to hear about your neat weekend.

hugs to all the other members of Rachel and OMG

judy


Judy in Southern CA

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Rinne,

How come all the people on that film site are so sick?? :unsure: It scares me. I never got to see the trailer but I read all the other stuff.....saw the sample characters, read the things that people write in and saw the "faces of Lyme". Everyone seemed real sick. Is this because of them using antibiotics??

It seems like they dont get better. :(

I have my Dr. appt. tomorrow....I wonder what he will say about treatment. Also, what about co-infections?? Dont we need testing for those now?? I think Igenix tests for co-infections. I'll have to ask the Dr. about it. I'm pretty sure there were co-infections in the bioset test but she never told me if I responded to any.

The BioSET lady is more positive about my recovery I think. My Dr. seems more grave and more serious about it. When I ask if I'll get better he just says "It will be HARD." :(

Is it even possible to get all the way better?? :unsure:


Rachel

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Can't wait to read your post when you get a chance Laura. :)


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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Rachel, I don't think that doctor understands that you wouldn't even be sitting there if you didn't have the strength of ten women and as for it being HARD, I think you can take hard any day. :)

So glad the Lime Green Beetle is appreciated, I am going to put it on my wish list. :lol:

Laura, glad you had a wonderful time, weddings are always a wonderful opportunity if you are already married to have that feeling of renewing your vows. I always cry. :)

Hello to everyone else.

And Susan, details?


A family with Celiac disease, two brothers and two sisters.

Lyme Disease, Diagnosis October 19, 2006

May 2006 - December 2008 Gluten and Dairy Free

December 2008, while seeing improvement on the gluten free diet, I did not recover and so in December of 2008 began the SCD and now have hope for recovery.

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