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Rachel--24

Omg...i Might Be On To Something

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Maybe you were brought here for a different reason ... maybe you will need to know in the future what a bulls-eye rash looks like ... hopefully so you can help someone -- a complete stranger rather than a friend of family member :P -- get treatment right away in an attempt to avoid chronic lyme.

I'm here for support too and I've made some good friends. :)


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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That dosen't mean we all have to have the exact same illness. There's a lot more to us than that :D

Yeah, we're all hot babes with great hair, too!!! :rolleyes:


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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Yeah, we're all hot babes with great hair, too!!! :rolleyes:

Okay, well some of us have more of one thing in common than another...you should have seen my hair on Saturday...frightful, lol! :lol:

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Yeah, we're all hot babes with great hair, too!!! :rolleyes:

Darn right B)


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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:lol::lol:

Rinne....you know you wanna say it... :P

Two words..... Lyme Clan :ph34r:B)

I'm practicing restraint. :P:lol::lol::lol:

Carla, I have had deja vu experiences but not lately.


A family with Celiac disease, two brothers and two sisters.

Lyme Disease, Diagnosis October 19, 2006

May 2006 - December 2008 Gluten and Dairy Free

December 2008, while seeing improvement on the gluten free diet, I did not recover and so in December of 2008 began the SCD and now have hope for recovery.

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Okay, well some of us have more of one thing in common than another...you should have seen my hair on Saturday...frightful, lol! :lol:

Yeah, well, I look like Kramer in the morning.


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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Hi y'all- Drive by hello. I just haven't been able to keep up with the thread (tired- my mojo went wherever Richard's did- hope they're having fun!) But, I heard that you were wondering where I'd been (hope the dingos were not sent out) :ph34r:

So,...... I wanted to pop (or should I say poop in my case!) in and say hello and wish everyone peace love and wubs :wub::wub::wub:

I feel so grateful to have met such a group of amazing people and such an inspiration to fight. I hope you all have a great week. I am thankful to "know" all of you even if it is cyberically (is that a new word for the rachelville dictionary?) :P

happy Birthday to Seth and Andrea, special wishes to you. :wub:


***************************

Beverly

Gluten free since 2005

In the midst of winter, I found there was within me an invincible summer.

Albert Careb

36_35_6[1].gif

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Hi Bev, good to see you :) I was about to call for a Dingo rescue :lol: I haven't been able to keep up either, my brain has been all in a fog, nothing computes...

HAPPY BIRTHDAY SETH :wub:

Quick question, what test kit do I order from IGenX? Are there many to choose from? If someone has specifics regarding this I would so grateful for the info :)

...and I apologize in advance if this has been asked/covered already, I just don't want to go back and get lost :blink:

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Julie, I got the complete Lyme Panel.

Thanks so much Carla :) Always so helpful you are! And you deliver everything with a smile :lol:

Another quick question, does it absolutley positively 100% have to be IGenX???? Can other labs competently do the western blot testing?

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Question about Igeneix--if a miracle occurs, and my new doctor will test me for Lyme, can she order the test from them--or does she just send the blood sample to them :blink:


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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Hi y'all- Drive by hello. I just haven't been able to keep up with the thread (tired- my mojo went wherever Richard's did- hope they're having fun!) But, I heard that you were wondering where I'd been (hope the dingos were not sent out) :ph34r:

I knew that Richard was a mischievious influence. :lol: I hope your mojo comes home. :)

In answer to the question as to a girl or boy, they don't know and are looking forward to being surprised. I am thinking, of course, that this is going to be the cutest baby ever, he has red hair and she is Japanese. I keep wandering into baby shops and picking up sleepers and such and thinking a real baby is going to fit in these. :lol: I am so happy for them and for me too.


A family with Celiac disease, two brothers and two sisters.

Lyme Disease, Diagnosis October 19, 2006

May 2006 - December 2008 Gluten and Dairy Free

December 2008, while seeing improvement on the gluten free diet, I did not recover and so in December of 2008 began the SCD and now have hope for recovery.

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I knew that Richard was a mischievious influence. :lol: I hope your mojo comes home. :)

I would have blamed my mojo as well - that is until Ms. Beverly from Beverly posted this link on another thread. Now I'm REALLY CONCERNED about my mojo :o . If they've run off together I can only imagine...


Richard

"Not all who wander are lost" - J.R.R. Tolkien

Diagnosed 3/8/05

Sister also Celiac

Risus remedium optimum est

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Patti,

I think you have to have the paperwork from Igenix to send in.

GGGRRRR!!!

Just found out that we won't be all sitting together on our flights. One flight doesn't have any of us together. :angry:


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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Just found out that we won't be all sitting together on our flights. One flight doesn't have any of us together. :angry:

Sometimes it's more fun that way. Let somebody else watch the kids on the plane :P Maybe they can "help" the flight attendant :)


Richard

"Not all who wander are lost" - J.R.R. Tolkien

Diagnosed 3/8/05

Sister also Celiac

Risus remedium optimum est

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In answer to the question as to a girl or boy, they don't know and are looking forward to being surprised. I am thinking, of course, that this is going to be the cutest baby ever, he has red hair and she is Japanese. I keep wandering into baby shops and picking up sleepers and such and thinking a real baby is going to fit in these. :lol: I am so happy for them and for me too.

I love surprises of this kind!

We'd love to see a picture after he/she is born.


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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Rinne,

The baby news is exciting! :D I love shopping for baby things--and I agree, this is going to be one beautiful child. :rolleyes:

Andrea,

I was afraid of that--I'll take it one step at a time. Thanks :)

I had my kids back in the dark ages--we never knew if we were having a boy or girl--it was just a nice surprise. (But, I "knew" they were both boys--I could feel it)


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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Thanks so much Carla :) Always so helpful you are! And you deliver everything with a smile :lol:

Another quick question, does it absolutley positively 100% have to be IGenX???? Can other labs competently do the western blot testing?

Julie, I think Bowen is a lab that is also considered reliable but I would want to check on that. Stephen Buhner, in "Healing Lyme" talks about the various tests and their weakness, it looks like there are new tests coming that are more reliable than the Western Blot. There is one that Bowen labs does now I think. He talks about Igenex as being an excellent lab and the importance of the quality of the lab work done. It is a little beyond my capacity for scientificness at the moment but basically Igenex pays close attention to detail and many other labs don't.

Question about Igeneix--if a miracle occurs, and my new doctor will test me for Lyme, can she order the test from them--or does she just send the blood sample to them :blink:

I don't know. My doctor's office took care of it all but then they use Igenex on a regular basis. Have you checked the Igenex site, maybe it says on there?


A family with Celiac disease, two brothers and two sisters.

Lyme Disease, Diagnosis October 19, 2006

May 2006 - December 2008 Gluten and Dairy Free

December 2008, while seeing improvement on the gluten free diet, I did not recover and so in December of 2008 began the SCD and now have hope for recovery.

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I love surprises of this kind!

We'd love to see a picture after he/she is born.

rinne, congratulations on the grandbaby to be :) Very exciting!

Wanted to add that my thoughts and prayers are with Evie and her family.

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Sometimes it's more fun that way. Let somebody else watch the kids on the plane :P Maybe they can "help" the flight attendant :)

:lol: I figure someone would be willing to change seats so they won't have to kid sit. :)


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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I am thankful to "know" all of you even if it is cyberically (is that a new word for the rachelville dictionary?) :P

Ha, you said cyberically!! :lol:

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Ha, you said cyberically!! :lol:

I think it's like Siberiacally (like when you're really cold- you're Siberia cold!)

Rinne- Supercool about the baby! It's so cool it's Siberia cool.

Yes- Richard and i suspect our mojos have run away together (we think we were twins seperated at birth- I was adopted so it's possible). We suspect they have gone on a vacation somewhere tropical. Like this:

http://www.starwoodhotels.com/whotels/prop...propertyID=1585

I hope they're having fun! I got soyed and then glutened (by body lotion which I read the ingredients on and realized once it was way too late and i had already racheled a bag of gluten-free breadsticks :angry: ). Soy + gluten=pain and the blues.

Missing my mom this Thanksgiving too. Sorry I'm being a party pooper. I'll try to cheer up!


***************************

Beverly

Gluten free since 2005

In the midst of winter, I found there was within me an invincible summer.

Albert Careb

36_35_6[1].gif

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For Igenex, if it's a lab that your doc doesn't normally use, you call them and order the kit for no charge. You take it to your doctor, then he/she takes the blood and sends it in. I would order the kit just to be sure.

Bev, it's our job to cheer YOU up!!! Just take another look at Richard's turkey ... it's really good for a laugh! Wouldn't it be funny to put foil over your turkey so that it looks like that on Thanksgiving!!! :lol:


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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Missing my mom this Thanksgiving too. Sorry I'm being a party pooper. I'll try to cheer up!

I still miss my dad after 10 years! You're entitled to feel blue! I always think of him still on his birthday, father's day, Christmas etc.

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Donna and Bev--I'm so sorry that both of you are feeling blue :(


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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