Jump to content
  • Sign Up

Archived

This topic is now archived and is closed to further replies.

Rachel--24

Omg...i Might Be On To Something

Recommended Posts

I think in general women are more affected by autoimmune disease than men.

I never compared Celiac to Autism. Some of the kids with Autism do have Celiac but the majority do not...so I dont know that there is a connection.

I suspect that MOST autistic people do have celiac. They are simply undiagnosed. And would also suspect that a good portion of them have a neurological presentation, rather than intestinal (or possibly in addition to it.

EVERY single mom of an autistic kid with only one exception that I met at my son's various therapies said that their kid had diarrhea from the moment they introduced either milk or milk-based formula--but their doctors all told them not to worry.

Sound familiar?

My son had severe diarrhea and an ear infection after his first taste of cow's milk (but he had NO reaction to wheat--but I only gave him stone-ground whole wheat--I wonder if that's lower gluten than the process stuff?). Funny--the doctor told me not to worry, either, but I did. I said, "Well, we're not giving him milk any more!" and gave him soy milk.

But every other mom I met at the rehab center (where all of my son's therapies were) kept on giving their diarrhea-spouting-toddlers milk. And I swear, I was the only one there who breastfed.

What has me scratching my head is that women are more prone to autoimmune disorders--but the rate of autism is 4X greater in males than females. ???????

And I bet I would have much more of the Lyme effects that you guys have, except that I was on those strong IV antibiotics and then oral antibiotics within a couple of days of the weird insect bite/rash/cellulitis that I had 19 years ago.

And one of my husband's coworkers, who is of Irish descent on both sides (which may or may not be pertinent) has had cellulitis for the last 7 months, and is in danger of losing her leg. For some strange reason, she did not want to be on IV antibiotics and has been going through many different oral antibiotics, which, as far as I can tell, is only making the cause of her infection stronger. Thing is, she's a nurse.

Share this post


Link to post
Share on other sites
Believe it or not I never even wore bras till I was in my 30's!

I hated them...I wasnt too concerned that I wasnt really "needing" to wear bras. I was happy to not deal with them.

Ha, I wouldn't be so worried about wearing one except that I'm so cold all the time. :lol: Ya'll know what I'm talking about there. :lol:

Next time I could just grab for the heavy duty GAS MASK as soon as she approaches me.

That's the spirit. :lol:

Me thinks bugs must like you alot.

Wish I weren't so likable. :lol:

Yup....I just pour the powder into water and drink it. Sometimes I have to keep putting more water in the glass because the stuff sticks to the glass or whatever.

I try to swish the water around to keep the powder from getting stuck to the glass.

It works well for me....it only gets kinda messy with the charcoal I'm taking. Sometimes I'm walking around with black lips.

This morning I happened to look in the mirror and I had charcoal all over one side of my face.

I'm not too sure how that happened.

:lol: Sounds like something I'd do...thanks for the info...I think I may try it later.

I am back!!

Yay!!! Hi Evie, glad things are looking up for you! I was so worried about you there for a while!

Hope the maltodextrin in those doesn't cause problems. Yay for the adrenal testing. Foods are coming up right?

Yes, I think foods have to be coming up in the next couple of weeks unless she sneaks in something else. I'm not sure we did the candida panel...we did some, but I don't know if we did the whole panel. Candida is the only one I don't have a date by...I've been writing in the dates next to each thing we test when we test it, and candida is the only one besides foods I don't have a date for now. She may have done that combined with the molds though...I'm not sure.

Does *anyone* else have these types of problems??

It has to be from the mercury. <_< All of these things are on the symptom list for mercury toxicity. For me its very very frusterating to not have control over some things that are happening in my body. Its more frusterating than the food and chemical issues...at least I have *some* type of control over those things.

Well, I have a really hard time dealing with stress now...that could be because of my adrenals...BUT SOMETHING is causing my adrenals to not work right and I think that's mercury/candida.

I've withdrawn from social things a lot in the last few years...I used to be pretty social, but I'd just as soon stay home as anything else these days, and I don't allow anyone to come to my house. :ph34r: (Mostly that's because I don't CLEAN my house though, lol.) :lol: I want to do stuff, but I have a hard time commiting to do things.

I also have outbursts...thankfully not as much in the last year...I think cutting out gluten helped with that a bit, but I still have outbursts once in a while driving.

My brain also doesn't function as well as it did, but it's selective. I'm very good at my job and figuring out ways to get things done, but don't ask me to make a decision, lol.

My heart does still race once in a while, but not so much as it used to...it will still happen if I get really upset though.

How did they find out you had some amalgam underneath your crowns? I'm hoping I don't have to have those redone. can swing the other 4, possibly 5 (the 5th is a tooth that can't be saved if the amalgam is removed). I'm hoping costs up here are a lot better than down there so I can get most of the work done I need. I'll get as much as possible done as anything is better than nothing.

Unfortunately the only way for my dentist to tell for sure was to remove the crown and look. All my crowns were gold though, so I'm not sure if porcelain would work quite the same way, although my dentist also told me that porcelain crowns have metal in them too...the point being that metal crowns won't allow Xrays to show what's underneath.

This week will be my last on antibiotics for now. I am kind of confused as to what the next steps are going to be in my health I am going to talk to my doc on tuesday and hope to get a clearer picture. I feel very confused right now.

I'm really glad you're coming close to the end of your first round. I'm sure your doctor has already formed a plan, but I really like what Rachel wrote if he doesn't!

Share this post


Link to post
Share on other sites

I have also become very interested in autism over the past year as the more I have learned about my situation and what's going on with my body, the more I have come across autism as a result.... from the Gluten-free Casein-free diet to candida to leaky gut and multiple food sensititivities, autism pops up everywhere...

when I was trying to order the 115 food intolerance test and get it covered through insurance, the lab down in Florida gave me the number of 3 doctors in my area... first doctor I called told me they pretty much just take kids with autism... and I think the second one who I ended up getting the foods test done with works in correspondence with the autism doctor... when I was recently looking for doctors doing mercury detox in my area, I once again came across the same doctor who I first called for the foods test... turns it out his office seems to be one of those at the forefront of the biomedical treatments for autism issue and his brother, who I talked to at the practice, is one of the posters I've been reading info from on an autism forum...

I think that awareness about biomedical treatments of autism will inevitably start coming to the forefront more as the diagnoses of autistic cases has already reached such a high incidence rate and keeps rising... there was a very good article in the Discover magazine that just came out... a couple of my co-workers were discussing it and I checked the article out, very surprised to see the extent the author delved into the biomedical issue... she mentioned quite a few controversial topics and doctors including the Gluten-free Casein-free diet, antifungals, chelation, DAN doctors, and even Amy Yasko... you can read it online here:

http://discovermagazine.com/2007/apr/autis...ust-in-the-head

I read this quote from the author regarding her article:

"I have my own reasons for being interested in this model, for there are many of us who are drawn to the biomedical model of autism because we have our own health problems that we struggle with and want to understand them or get better; in fact, I have received a very interesting email from an MD who sees this biomedical model applying much more broadly than autism."

probably a very similar sentiment to what many of us including myself are going through...

also, apparently the grandson of the president (or former president) of NBC also has autism and the grandparents formed an organization within the past few years (Autism Speaks) as a result... now that the grandson is showing signs of recovery through biomedical treatments, which his mother is very vocal about including the whole vaccine issue, it'll be interesting to see the stance the organization takes on biomedical treatments for autism:

http://www.huffingtonpost.com/david-kirby/...on_b_44414.html

of course, there will still be a negative light cast on giving any credence to biomedical treatments and vaccine dangers by a number of people including the Western medical community as a whole, govt organizations such as the CDC, FDA, etc... and awareness of potential causes and treatments is still way down in comparison of where it needs to be... I was talking to an ex-girlfriend a few weeks back who is helping her brother to raise his infant son... they don't let him watch TV due to a study tying autism to kids watching TV... however, she had never even heard of the vaccine/mercury concerns...

Share this post


Link to post
Share on other sites
I have not been posting much a quick update-

This week will be my last on antibiotics for now. I am kind of confused as to what the next steps are going to be in my health I am going to talk to my doc on tuesday and hope to get a clearer picture. I feel very confused right now.

Miamia

Miamia,

I'm very concerned you and about your doctor's knowledge to treat lyme and any co-infections you may have. I know you like him and that he has been very kind to you.

Would it be possible to check out another doctor? A LLMD? Maybe the one Carla is going to?

Hopefully you'll feel a little better after this course of antibiotics you've been on. :)

Share this post


Link to post
Share on other sites
EVERY single mom of an autistic kid with only one exception that I met at my son's various therapies said that their kid had diarrhea from the moment they introduced either milk or milk-based formula--but their doctors all told them not to worry.

My son had severe diarrhea and an ear infection after his first taste of cow's milk (but he had NO reaction to wheat--but I only gave him stone-ground whole wheat--I wonder if that's lower gluten than the process stuff?). Funny--the doctor told me not to worry, either, but I did. I said, "Well, we're not giving him milk any more!" and gave him soy milk.

Alison,

No doubt....every Autistic kid should be gluten-free and casein free in my opinion. Most show improvement while on this diet....also a diet free of chemicals such as food dyes.

The thing is...mercury inhibits enzymatic function. People with mercury toxicity will more than likely lose their ability to digest gluten and casein. This would not be Celiac Disease (unless the child had genes which were expressed)...although the symptoms may be identical.

Other research has noted that mercury disables DPPIV enzyme, which breaks down casein and gluten. The undigested casein (the protein in dairy) and gluten (protein in wheat, rye, barley) leaks into the bloodstream and the brain causing membrane problems such as "Leaky Gut" Syndrome.

When we are exposed to mercury what are we giving up in order for our bodies to deal with the mercury? In a study of metal and antibiotic resistant bacteria in ice and water from lakes in Antarctica, researchers found that bacteria can trade their ability to express or use multiple enzymes in exchange for developing resistance to heavy metals such as mercury.

Basically....you become mercury toxic and you lose enzyme function. You can no longer break down gluten and casein....and often other things such as sulfur or chemicals found in processed foods.

I do not think there is an Autistic child out there who would not benfit from eliminating things which cannot be digested properly.

I do believe mercury is probably the #1 trigger in Autism (in conjunction with other toxins) and I dont think any of these kids would have normal functioning enzymes due to the mercury overload.

Even if every kid was tested for Celiac....the majority would not be positive...and their villi would not be affected. Its the same story with me...severe symptoms....improvement with removal of gluten....and yet....my villi stand tall, I have negative bloodwork and no Celiac genes.

I do not have the disease but my ability to break down food and detox is severley impaired by heavy metal burden on my system. Hence....my very short list of foods that are "somewhat" tolerable.

Some of these kids....the ones who are treated appropriately and go through detox and/or antibiotic treatment regain their enzymatic function and can once again eat normally. NOT the kids who have triggered Celiac genes though.

Mercury is extremely neurotoxic and immunotoxic. Mercury and toxic metals also form strong bonds with the hydroxyl radical(SH) in the body's basic building blocks and cellular fuel, amino acids, and blocks cellular level enzymatic processes such as those that convert cysteine to sulfates, taurine, glutathione, etc.

This results in an inability to properly digest amino acids such milk casein, wheat gluten, and sulfur foods; and results in neurotoxic metabolites such as beta-casamorphine, hydrogen sulfide, and sulfites in the blood and system. The majority of children with these condition show significant improvements when avoiding these foods, and after proper tests and treatment for metals toxicity.

My opinion is that EVERY child with Autism should be tested for Celiac (genetic testing included) and then put on the gluten-free/cf diet regardless of results.

The kids who have no predisposition for Celiac or have not actively expressed the gene may regain the ability to digest gluten and casein if mercury is no longer inhibiting the enzyme.

This is what my Dr.'s say will be possible for me....once I am treated I should no longer have these issues with loss of enzyme function and inability to break down food. The intolerances come from the enzyme dysfunction as well as the livers inability to detox.

Personally...if my child were Autistic and had a predisposition for Celiac...I would keep him/her on the diet permanantly.

Share this post


Link to post
Share on other sites
What has me scratching my head is that women are more prone to autoimmune disorders--but the rate of autism is 4X greater in males than females. ???????

I could not even begin to guess why Austism is affecting boys at a much higher rate. (4x greater, 1 out of 94 births) :unsure:

There are so many theories....noone knows yet.

Here is one of many possibilities...

In 1964 Bernard Rimland pointed out that, overall, males tend to be more susceptible to organic damage than girls, whether through hereditary disease, acquired infection or other conditions. Since it is now almost universally accepted that there is an organic cause for autism, it should not be surprising that boys are more vulnerable to it than girls.

There must be something about boys that makes them more susceptible. Also if adults are exposed to the same triggers that cause Autism....they do not develop Autism. I think the sex, the triggers, the genetics, and the fact that it happens only in the developmental stage all has a part in this.

People can develop autoimmune disease at any age. You can trigger Celiac or develop Diabetes as an infant or in your elder years. This is not the case with Autism....it only affects children.

I think its got alot to do with too many toxic agents in one tiny "developing" body. Some of these kids are on their way....they are developing normally and then suddenly (after a vaccination or whatever) they regress and LOSE the ability to speak or even make eye contact.

They could have toxins already present (such as Lyme) but are still functioning normally. I had Lyme and was unaware and felt perfectly healthy. Once they are hit with other nuerotoxins (such as mercury) it can catapult them into Autism.

The fact that there is this whole "spectrum" indicates that the severity of the disease probably has alot to do with the childs "total load" of toxins....also how genetically susceptible he/she is to these toxins, the livers abitlty to detox, etc. So many factors to take into consideration.

I plan on spending more time learning about Autism once I start feeling alot better. All of my Dr.'s are involved in treating/researching Autism.

Also Scott (whom I've talked about alot) is getting involved and was planning on attending a conference about the Lyme/Autism connection.

I hope to learn alot more about Autism in the future. Even though its not something *directly* affecting my life at the moment doesnt mean that it never will....especially with those incredibly high statistics.

Share this post


Link to post
Share on other sites
I have also become very interested in autism over the past year as the more I have learned about my situation and what's going on with my body, the more I have come across autism as a result.... from the Gluten-free Casein-free diet to candida to leaky gut and multiple food sensititivities, autism pops up everywhere...

Charlie,

This is exactly how I became so interested in Autism. From the start it was a part of everything that I've researched....every symptom and every diagnosis that I've had.

I believe that I'm dealing with the same type of illness....but being an adult and fully developed I am not susceptible to that much brain impairment. Anna from BioSET (who treats kids with Autism) had said that if I had been hit with this at age 1....I would have been at high risk for Autism.

I think this is why as we seek out our own Dr.'s for treating these issues of heavy metal toxicity, Lyme, candida, etc....the Dr.'s who are most knowledgeable and experienced are those who are also treating Autism.

Its not a coincidence....the inciting factors are the same...the treatment is the same. The only thing different is how severely the brain is affected and obviously children are more affected because they lose their ability to learn the basics.

I think that awareness about biomedical treatments of autism will inevitably start coming to the forefront more as the diagnoses of autistic cases has already reached such a high incidence rate and keeps rising... there was a very good article in the Discover magazine that just came out... a couple of my co-workers were discussing it and I checked the article out, very surprised to see the extent the author delved into the biomedical issue... she mentioned quite a few controversial topics and doctors including the Gluten-free Casein-free diet, antifungals, chelation, DAN doctors, and even Amy Yasko... you can read it online here:

http://discovermagazine.com/2007/apr/autis...ust-in-the-head

Thanks for the link.

I looked up Amy Yasko awhile back.....I was not looking for stuff regarding Autism...but yet again...Autism is what I came up with.

I also agree that this type of "integrative", "alternative", "Biomedical" treatment is going to come to the forefront when it comes to treating Autism effectively.

of course, there will still be a negative light cast on giving any credence to biomedical treatments and vaccine dangers by a number of people including the Western medical community as a whole, govt organizations such as the CDC, FDA, etc... and awareness of potential causes and treatments is still way down in comparison of where it needs to be
...

Again...I am in agreement 100%.

This is what infuriates me....this is exactly why awareness is down and not even close to where it needs to be. If this disease were treatable by conventional methods (prescription drugs, etc) the awareness would be HIGH.

This disease is caused by environmental triggers....the things which our govt. declare as SAFE. The biggest gains in research and the most effective treatments are not going to come from the Western medical community....and yes...these efforts will be downplayed and given no credence by the mainstream.

The Govt. organizations have all of the power. If they want to say that television causes Autism rather than mercury in vaccinations, or Lyme, or the vast amount of chemicals in our food supply, etc....this is what will be HEARD above all else....the truth will be ignored and the Dr.'s who are getting somewhere in treating Autism will likely be treated in the same manner that LLMD's are treated.

These Dr.'s are under fire....for getting people WELL!! :blink:

I worry this will happen with Autism next...since we are talking about the same Dr.'s and the same treatments. :(

Share this post


Link to post
Share on other sites

If it is ever discovered that wheat/gluten have a causal effect on the development of Autism, I will not be surprised. The stuff renders me infertile by virtue of making me cease menstruating, so I know it's powerful stuff. When I'm eating wheat, I don't get my period. When I don't eat wheat, I get my period.

In my case it's a very obvious, very interesting connection between gluten and the amennorhea. The mystery is HOW the 2 are connected....even my doctor is unsure, although there are some theories.

Share this post


Link to post
Share on other sites
Cool!! When are you expecting to get the Lyme testing done?? Keep us posted. :)

I plan to get the lyme test done on Tuesday... I have the kit from Igenex and have an appt scheduled with a LLMD that was recommended to me from a couple people... I'm assuming I'll get the blood drawn that day and then get the results within 2-3 weeks...

I'm still up in the air on where I stand if I do test positive... I don't want to go on antibiotics right now as I have been feeling somewhat better physically (though still have a very long way to go naturally) and have been working slightly more hours, exercising and lifting, even played ball for the first time in nearly 2 years the other day... it's funny, I realized it was the first time I had played ball in 5 years or so that I wasn't on drugs (be it depakote, codeine, etc.)... might have been part of the reason my game was on point despite not playing in so long... had to mess around and get a triple double (don't know if anyone will get the cube reference)

but even as I recover to some extent physically on the candida and food sensitivity dieting, my neurological and cognitive ability is still heavily impaired... which has drawn me to lyme as it correlates with a lot of the research I've done... though lyme certainly wouldn't be the first disease with a symptom list that looked appealing to me :rolleyes:

and then there's the whole do I also have heavy metals toxicity/mercury angle... it's one thing to actually consider all these things a possibility... but it's another to actually find out that's the case and consequently be faced with treating them... if any of this is going on in my case, it will be good to know but at the same time, I know it's not an overnight fix and will be a new process I have to go through... I'm ready if that's the case and a part of me wants either lyme or mercury toxicity to be detected so I can get more pieces to the puzzle but it's still a little surreal to me if all of this is going on with my body and has been for years...

Share this post


Link to post
Share on other sites
Au contraire, mon ami! (Sorry, I like Hercule Poirot!)

check this out: http://www.vaccinationnews.com/Scandals/Fe...on_symptoms.htm

Dear Alison,

We love Poirot too! My parents and I watch it whenever it is on! :)

Dear Donna and Rachel,

If I lose weight, my boobs will be gone completely! :lol: I hate bras, too. The only ones I wear are sports bras. All of the others are uncomfortable. Lace is itchy. Whenever I lose weight, it is always in the wrong place! :( Being pear-shaped sucks!

Dear Donna,

OMG! :o That was definitely a cockroach horror story! That sounds like stuff that happens to me with insects! They like me too much, too! It is a hormone thing. My best friend told me a scary cockroach story.

Her friend told her about a party she went to. One night, everyone decided to sleep over at the frat house because they lived a little ways from the college it was at. So, people were sleeping on the floor, and there were beer bottles and pizza boxes everywhere. Well, this guy wakes up screaming "There's something in my ear, there's something in my ear!"

The girl told him he is drunk and was just dreaming. He said "No, there is something in my ear, it hurts!" So she went into the bathroom, and tried to find it. She could not see anything. They ended up at the campus infirmary. They try to get whatever it is out, but couldn't. Next, they end up at a local emergency room.

They realized it was a cockroach that kept burrowing deeper in his ear! Since they cannot back -up, they keep going. So, it kept going down into the guy's ear! :o They did get it out. There's one more good reason not to sleep over at a frat house!

Dear Rachel,

I have had similar symptoms like you were talking about. I get really emotional and cannot recover from an argument quickly. I might be angry for days after a fight. I also get muscular twitches, headaches, that weird feeling and heart palpitations. I am worried about this.

I too, am outraged at the ignorance on Autism. In my opinion, there are a number of primary causes. Mercury poisoning, Candida, and Lyme are my top three. All of these have been shown to result in the symptoms exibited by autistic children. As you know, it does not take much to confuse doctors. :P

As for your work buddy, I think it would be a good idea for you to be his coach. I do not see why they would refuse to allow it. I thought it was interesting you mentioned his getting flustered and upset with all the noise. It is common for Autistic individuals to have sensory overload.

For some, loud noises set it off. Then, they retreat into their own world. Others are affected by bright colors. Sometimes both upset them. If nuetral shades and gentler noises and sounds are around, their brains are not overstimulated.

I myself am very sensitive to sounds. I have super-sonic ears or something. The slightest noise startles me and makes me jump half the time. Then my heart pounds worse than it normally does. It often makes my whole body hurt!

Dear Charlie,

Good luck with your Lyme testing!

Dear Mia,

Hopefully things will be less confusing after your doctor's visit.

Dear Evie,

Keep us posted on everything!

Dear Laura,

You look so pretty in your pic! You guys make such a great couple! That sounded like an awesome gala! All of those fascinating people were there! Plus, you did not suffer for having fun! ;)

Sincerely,

NoGluGirl

Share this post


Link to post
Share on other sites
Au contraire, mon ami! (Sorry, I like Hercule Poirot!)

:lol::lol:

I get what you're saying and its true.....thats why I say I believe I'm suffering the same illness as what these kids are dealing with....although I would not refer to it as "Autism".

I've had nearly every symptom on that list....some are gone completely....some of them are improved since getting the metals out and getting on an appropriate diet...some I still struggle with...some come and go.

Even though the symptoms are there...I would not label myself as being on the "Spectrum"...I would not call it autoimmune disease....I would call it what it is...."Mercury Poisoning".

In my mind Autism is a "condition"....like Fibro, like IBS...like everything else that mainstream chooses to label as a disease rather then figure out why it exists.

The difference between me and a child with Autism....is enormous....even though the symptomology is the same. I have a huge advantage in overcoming this because I am an adult...who has developed normally and has no illness prior to this "event".

These kids dont have that advantage....they are very vulnerable to these toxins and their brains, organs, etc are not yet fully developed.

I have lived more than 30 years with healthy organs...NOW my Dr. says even though I will recover close to 100%....my liver will never be what it once was. The impact and damage from these toxins is too great.

Imagine that kind of damage to the developing organs of a child...they will never be allowed to develop normally once they are thrust into the darkened world of Autism. Some of the damage will inevitably stay with them for life.

I was in a "dark" world for 2 years. The Dr.'s were suggesting I be admitted...for "observation". It was scary stuff but I was able to pull myself out of it. My body and mind were strong enough to allow me recover a great deal of what I'd lost during those 2 years.

If a child is in the same situation....during the first two years of life...how can that child recover what he'd lost in those critical years???

To me this is where my illness (mercury poisoning) and Autism (also mercury poisoning) are worlds apart.

I can afford to lose 5 years of my life to this and still go on with life much as I did before this happened. These kids CANNOT afford to lose 5 years...they cant afford to lose *any* of their critical years to this type of poisoning.

So yeah..."technically" I believe the conditions are the same...but in children the effects are far more obvious, far more devasting in the long-term, and just tragic all the way around.

When I see the kids on the program last night and on the cover of magazines my heart breaks. This is a condition which is preventable and to me thats what is most heart breaking of all. :(

Share this post


Link to post
Share on other sites
I thought it was interesting you mentioned his getting flustered and upset with all the noise. It is common for Autistic individuals to have sensory overload.

Umm...actually that was me who got flustered and upset with the noise. :ph34r:

I dont have problems with loud noise unless its combined with something stressful....then yeah...the noise is upsetting to me and makes my body get all "wired" inside.

I dont know if the boy at my work has problems with noise. I've wondered about this but he's never shown any evidence of being disturbed by loud noise, bright lights or anything to that effect.

I also checked to see if he has trouble with eye contact...he doesnt seem to. He can make eye contact with me.

He has his own little "quirks". He doesnt like to use paper bags so when a customer requests paper he always says "No...we dont have paper."

I have to give him the paper bags and correct him everytime. He says bagging into paper hurts his arms and he'll get real upset and say he's very tired. He gets exhausted from bagging into paper. When I had two customers request paper back to back he walked away from me and refused to bag because of his arms hurting.

He gets upset when customers try to request certain things which are out of the ordinary. He'll tell them "NO".

Sometimes he lies. For example...we keep expensive baby formulas in the back room and if I send him to get me some I can count on him coming back and telling me we dont have any. He'll tell the customer the same thing everytime. "We dont have any until next Spring."

I dont know where he got that from and I've told him lots of times that we DO have baby formula. He knows where it is...he knows what it looks like....etc.

Then if someone else asks him "Who told you we wont have baby formula until Spring??" :huh:

then he'll say "Rachel...she told me...no formula until Spring." B)

I wouldnt say he has any MAJOR issues....just little things that are probably just a part of who he is. :)

Share this post


Link to post
Share on other sites
But, I DID get another supplement (adaptocrine (K-2)) to take. I have to take two pills every day between 2:00 and 4:00 since that's when my testing showed I was the lowest. I'll only have to take them for one month and then she'll retest the adrenals (actual lab test--saliva). These pills are just supposed to give me a boost. Actually now that I'm looking at the bottle, I'm a bit concerned cuz they have maltodextrin in them...not so worried about gluten, but more corn. :( She didn't test me for them either, so I guess she thought that I really needed them regardless. :P

Hi Donna,

I take the Adaptocrine also! I started it in January. I can never remember to take it in the middle of the day. I'm supposed to take 2 twice a day without food. I was tested for it, and it was fine. I think Dr. F will retest them this Friday.

I've been at my parents visiting for the last few days, so I haven't been reading here. I also had something else more interesting to read, my kid's book "Eragon". I ploughed through that in 4 days, so I'm back here reading again. I'll never catch up!

Claire

Share this post


Link to post
Share on other sites

I got some interesting scientificness on ART ....for anyone who might still be interested in what this is all about.

I was reading on LymeNET.

Scott and another member are posting from an Autism conference in Seattle. Some of these kids are getting ART tested and having excellent results with treatment. I read one kid had tested well for some supplement (I'd never heard of it) and once he started taking it...after 5 days he started speaking for the first time...lots of words!!

Its amazing. :)

Anyways...someone posted this question....

--------------------------------------------------------------------------------

Is there a difference between ART and muscle testing. I am used to muscle testing where they can test whether you have a disease or whether a supplement will work by using arm resistance.

The practitioner pushes on your arm as you try to resist with muscle testing also known as kinesiology.

Is this the same as ART?

Here is Scotts response to this question...

At a very 30,000 ft level, you are still using an arm to get an indicator of strong or weak. The mechanics of the test however are very different. For example, in most systems, weak is bad. In ART, weak is not always bad. For example, with a pol filter in place, weak is generally good and strong is generally an indication of "blocked regulation".

Without the pol filter, things essentially reverse.

I have been exposed to ART and numerous forms of muscle testing. I think both provide value if you have a good practitioner, but I do think ART provides a deeper insight into the issues at hand.

I have tested about 60-70 people now and it never ceases to amaze me. I use it regularly to help guide my path. It is like being lost at sea in a storm and having the lighthouse to guide you in.

Just curious Scott, is this a way of testing polarity? If not, what is "pol filter in place"?

Pol filter is a polarization filter that allows light to pass through in one angle. We as people emit biophotons or light energy which can be measured using the pol filter for coherence or lack of coherence (health vs. illness).

It also allows us to test for blocked regulation. The "pol" filter is not related to polarity as in north or south but to polarization as in light passing through it at a given angle.

Its still pretty "over my head"....but for anyone who's done regular muscle testing I think this sort of explains how different ART really is.

Here is another poster's explanation. This person was actually a patient of Dr. Klinghardt and is 100% recovered after using ART to guide her through treatment.

--------------------------------------------------------------------------------

http://www.justbewell.com/information/Auto...se_Testing.html

This is a fair explanation of ART. It is muscle testing. Please note that most people who are ill have what is referred to in ART as blocked regulation. That means that the system cannot be tested; it cannot disclose the information to change itself. Before the body can give the information needed, the practitioner has to "unblock" the regulation and that is an art in itself. Easy for an experienced practitioner.

ART is the only system that I am aware of that works on this basis. It is the task of the practitioner to open the system and that takes a variety of means. Then the body can tell and the practitioner can diagnose and select and test the medicines and remedies needed to help move the body into a healing mode and remain there.

and here is another posters take on things....

I have no idea what is going on.

LMAO!! :lol::lol:

That cracked me up.

ART is confusing for sure. :huh:

Share this post


Link to post
Share on other sites
:lol::lol:

I get what you're saying and its true.....thats why I say I believe I'm suffering the same illness as what these kids are dealing with....although I would not refer to it as "Autism".

I've had nearly every symptom on that list....some are gone completely....some of them are improved since getting the metals out and getting on an appropriate diet...some I still struggle with...some come and go.

Even though the symptoms are there...I would not label myself as being on the "Spectrum"...I would not call it autoimmune disease....I would call it what it is...."Mercury Poisoning".

In my mind Autism is a "condition"....like Fibro, like IBS...like everything else that mainstream chooses to label as a disease rather then figure out why it exists.

The difference between me and a child with Autism....is enormous....even though the symptomology is the same. I have a huge advantage in overcoming this because I am an adult...who has developed normally and has no illness prior to this "event".

These kids dont have that advantage....they are very vulnerable to these toxins and their brains, organs, etc are not yet fully developed.

I have lived more than 30 years with healthy organs...NOW my Dr. says even though I will recover close to 100%....my liver will never be what it once was. The impact and damage from these toxins is too great.

Imagine that kind of damage to the developing organs of a child...they will never be allowed to develop normally once they are thrust into the darkened world of Autism. Some of the damage will inevitably stay with them for life.

I was in a "dark" world for 2 years. The Dr.'s were suggesting I be admitted...for "observation". It was scary stuff but I was able to pull myself out of it. My body and mind were strong enough to allow me recover a great deal of what I'd lost during those 2 years.

If a child is in the same situation....during the first two years of life...how can that child recover what he'd lost in those critical years???

To me this is where my illness (mercury poisoning) and Autism (also mercury poisoning) are worlds apart.

I can afford to lose 5 years of my life to this and still go on with life much as I did before this happened. These kids CANNOT afford to lose 5 years...they cant afford to lose *any* of their critical years to this type of poisoning.

So yeah..."technically" I believe the conditions are the same...but in children the effects are far more obvious, far more devasting in the long-term, and just tragic all the way around.

When I see the kids on the program last night and on the cover of magazines my heart breaks. This is a condition which is preventable and to me thats what is most heart breaking of all. :(

I totally agree!

I remember reading somewhere (It was 4-5 years ago) that the highest concentration in America of those on the autistic spectrum (or suffereing from mercury poisoning, if that's more accurate!) is in Silicon Valley...

Share this post


Link to post
Share on other sites
Umm...actually that was me who got flustered and upset with the noise. :ph34r:

I dont have problems with loud noise unless its combined with something stressful....then yeah...the noise is upsetting to me and makes my body get all "wired" inside.

I dont know if the boy at my work has problems with noise. I've wondered about this but he's never shown any evidence of being disturbed by loud noise, bright lights or anything to that effect.

I also checked to see if he has trouble with eye contact...he doesnt seem to. He can make eye contact with me.

He has his own little "quirks". He doesnt like to use paper bags so when a customer requests paper he always says "No...we dont have paper."

I have to give him the paper bags and correct him everytime. He says bagging into paper hurts his arms and he'll get real upset and say he's very tired. He gets exhausted from bagging into paper. When I had two customers request paper back to back he walked away from me and refused to bag because of his arms hurting.

He gets upset when customers try to request certain things which are out of the ordinary. He'll tell them "NO".

Sometimes he lies. For example...we keep expensive baby formulas in the back room and if I send him to get me some I can count on him coming back and telling me we dont have any. He'll tell the customer the same thing everytime. "We dont have any until next Spring."

I dont know where he got that from and I've told him lots of times that we DO have baby formula. He knows where it is...he knows what it looks like....etc.

Then if someone else asks him "Who told you we wont have baby formula until Spring??" :huh:

then he'll say "Rachel...she told me...no formula until Spring." B)

I wouldnt say he has any MAJOR issues....just little things that are probably just a part of who he is. :)

Interesting. It is very unusual for someone on the autistic spectrum to lie, as usually they are hyper-aware of rules, and extremely rigid about breaking them. Sounds like he is making up his own rules. Maybe what you are describing here is more of an OCD thing?

Share this post


Link to post
Share on other sites
They realized it was a cockroach that kept burrowing deeper in his ear! Since they cannot back -up, they keep going. So, it kept going down into the guy's ear! :o They did get it out. There's one more good reason not to sleep over at a frat house!

Egads, lol!! That's horrid! My sister once had a spider in her ear...I slept with earplugs in for a long time after I heard that...may have to use them again (although I don't have roaches here, but spiders, yes). :lol:

I take the Adaptocrine also! I started it in January. I can never remember to take it in the middle of the day. I'm supposed to take 2 twice a day without food. I was tested for it, and it was fine. I think Dr. F will retest them this Friday.

I've been at my parents visiting for the last few days, so I haven't been reading here. I also had something else more interesting to read, my kid's book "Eragon". I ploughed through that in 4 days, so I'm back here reading again. I'll never catch up!

I've been wondering about Eragon...is it good? Sheesh, Anna made it sound like two pills was a LOT, lol...maybe for me I guess.

I got some interesting scientificness on ART ....for anyone who might still be interested in what this is all about.

Me, lol. I'm still interested...my appointment is Saturday at 10:30! Yay.

Share this post


Link to post
Share on other sites

Hi everyone! Just a drive by .... I skimmed, but mostly skipped. Donna, I saw your comment about the NT Factor ... I cant' wait to get mine, I hope it helps.

Charlie, I'm sure your LLMD will be able to direct you if your Lyme test comes out positive. Mine seems to adjust treatment based on symptoms and how sick you are. A friend of mine and I were both diagnosed with Lyme and babesia ... we see the same doctor yet are on different protocols.

Have a good day, everyone! I'll check in again sometime ... I'm at Panera Bread so I can get online.

Oh, I also remember reading about wanting to not have to worry about cc anymore. I bought some Glutenease because we're eating out so much. I also cooked toast in my dad's toaster :ph34r: , I have not had ANY problems. I know I've eaten things that are contaminated, but not gluten directly. Maybe I'm not as sensitive. But, Donna, if I had the gene for celiac, I would be more dilligent.

Share this post


Link to post
Share on other sites
Me, lol. I'm still interested...my appointment is Saturday at 10:30! Yay.

Can't wait!

Carla,

Thanks for checking in. It's good to hear that you've been handling cc issues well so far. Hope it continues. :) Hope the weather is beautiful......although it usually is down there. :)

Share this post


Link to post
Share on other sites

Wow Carla, Good news about the cross contamination! That's the stickler for me....

I've had muscle testing, but it was pretty simple. Strong vs. weak. I'm not completely sure about exactly everything--he was silent and didn't use vials or allergens or anything else. Just ran his finger down a page and made notations. :unsure:

Interesting about the ART, though. I'm kind of with the "confused" poster, though :huh::lol:

Hi Andrea :D Hope you and the family are well.

Donna--E-e-e-w :o A spider in her ear???? That would scare the bejeepers out of me! How are you doing these days?

Share this post


Link to post
Share on other sites
I remember reading somewhere (It was 4-5 years ago) that the highest concentration in America of those on the autistic spectrum (or suffereing from mercury poisoning, if that's more accurate!) is in Silicon Valley...

Hmmm...I've lived/worked in the Silicon Valley all my life. <_<

I've never seen anything about higher rates of Autism here....I've always seen that New Jersey has the highest rate of all states....1 in 94 births.

Here are some results of recent studies...

Autism: New Jersey Has Highest Rate ever Documented in U.S.

One in every 94 children in New Jersey has autism

Share this post


Link to post
Share on other sites
Donna--E-e-e-w :o A spider in her ear???? That would scare the bejeepers out of me! How are you doing these days?

I know, creepy, huh? I'm doing well...sort of bad D this week (since Saturday morning), so not sure what's up with that. Can't think of anything different (didn't take anything new in the last few days until Saturday afternoon) so it could be that all the supplements and such are just beginning to work at detoxing.

How are you? Is everything healing nicely?

Share this post


Link to post
Share on other sites
Interesting about the ART, though. I'm kind of with the "confused" poster, though :huh::lol:

:lol::lol:

Patti...me too. :wacko:

I sort of "get it".....but then again...not really. :unsure:

Its confusing. When you were muscle tested did they use your arm to test you?? Thats pretty much what I had expected but they didnt use my arm for anything. I just lay on my back the entire time.

Instead one person (last time it was my new Dr) is testing me.....by either touching various organs or areas of my body or by scanning my body with different bacteria, parasites, fungi, etc. Then the other person (last time it was Scott) is pushing on the Dr.'s arm as shes testing all these various areas/things.

The pathogens and heavy metals are on slides or other various objects which are passed over my body. I guess one reason they dont test my own arm is that they say when a person is ill their autonomic response system is weakened and therefore cant always give an accurate response through muscle testing. I could be wrong but that was my interpretation.

Then there is also the "polar watch-ama-call-its" :lol:

This is over my head....its some clear blocks which light passes through....or something like that. :unsure:

They have some other "gadget" located near my head when they test me. They never explained how it all works. Same with your experience....there was not much talking going on...except whatever little exchanges went on between the Dr. and Scott.

The meds and supplements get tested pretty much the same way. They can do foods or whatever else but I never got tested for foods with ART.

Last time I brought my water with me...just in case I got thirsty. It was in the bag with my supplements so she tested everything in the bag...including my water. Now at least I know my water is safe!! :P

Heck...it better be. I've been drinking Penta water....its $3 for one bottle!! :o

Its supoosed to be put through 11 hours of purification and its supossed to be free of all bad stuff. Its worked GREAT for me...except one time that my bottle got too hot sitting in my car. <_<

I started reacting right away. I guess chemicals got leeched from the plastic. :(

Share this post


Link to post
Share on other sites

This amuses me, after having lived in AL for two years:

"A few states have a lower rate such as Alabama (1 in 303)"

I'd be willing to bet it has much more to do with a lack of diagnosis, because of the lack of insurance, lack of medical attention, rampant poverty, (need I go on)?

I don't buy that statistic.

Share this post


Link to post
Share on other sites
Guest
This topic is now closed to further replies.

×
×
  • Create New...