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Rachel--24

Omg...i Might Be On To Something

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Hey....I just thought of something.

When Scott first did ART with me he was not the one touching my body. He had a friend helping him. His friend had no knowledge of how ART worked (he joked about how it was over his head too :lol: ).

Scott was the one placing objects over my body and testing various things but his friends arm was the one being used to muscle test and his friend was touching my leg throughout testing.

I expected that when I was retested by the Dr. that Scott would be in his friends place and the Dr. would be doing what Scott had been doing in my first session.

Instead...Scott was in the same position. The Dr. was the one who's arm was being tested and she was also the one testing me with various things. Scott was only pushing on the Dr.'s arm for the muscle testing part of it.

I'm thinking maybe because Scott is sick himself (he has Lyme) he cannot be the one who's arm is tested. :unsure: Maybe because his own autonomic system might not allow him to give accurate results??

That would make sense as to why he is not the one to use his arm for the muscle testing. I could be wrong but it would sort of make sense because if they were gonna use his arm....why not just use mine??

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I know, creepy, huh? I'm doing well...sort of bad D this week (since Saturday morning), so not sure what's up with that. Can't think of anything different (didn't take anything new in the last few days until Saturday afternoon) so it could be that all the supplements and such are just beginning to work at detoxing.

How are you? Is everything healing nicely?

Sorry about your mystery D. Hopefully it is detoxing, and everything is beginning to move on out.

I'm doing fine (except for a very nasty cold)--I'm doing everything I was doing before, and only have minor twinges here and there. Also getting hot flushes--but not too bad, and no HRT! :D

Its confusing. When you were muscle tested did they use your arm to test you?? Thats pretty much what I had expected but they didnt use my arm for anything. I just lay on my back the entire time.

Yes, he used my left arm. I layed on the table with him sitting on the left side. He covered my hand with his, and bent my arm at the elbow. As he read (or whatever he was doing), my arm would keep going up and down. I guess he could feel the resistance, I couldn't. He went very quickly, noting things all the time.

As far as water, he said no tap water at all. He suggested reverse-osmosis water filtering, or if I wanted to use bottled, use Poland Springs. That's what I use. It's not very expensive, and widely available here.

This amuses me, after having lived in AL for two years:

"A few states have a lower rate such as Alabama (1 in 303)"

I'd be willing to bet it has much more to do with a lack of diagnosis, because of the lack of insurance, lack of medical attention, rampant poverty, (need I go on)?

I don't buy that statistic.

I totally agree :)

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This amuses me, after having lived in AL for two years:

"A few states have a lower rate such as Alabama (1 in 303)"

I'd be willing to bet it has much more to do with a lack of diagnosis, because of the lack of insurance, lack of medical attention, rampant poverty, (need I go on)?

I don't buy that statistic.

Laura,

I didnt know you were in Alabama??

I'm not familiar with Alabama but most definately those things you listed would have an impact on the results in the study.

This is the arguement for why New Jersey has higher rates then other states....they have alot of awareness in NJ...alot of programs set up in the schools, alot of Dr.'s treating Autism, etc.

Noone knows if the higher awareness is because of higher incidence or vice versa...they dont know what exactly is causing NJ to have such an increase in Autism...compared to other states.

I would guess if Alabama has rampant poverty, bad medical care, etc...they would have way less diagnosis. They would probably most likely be in-line with the other states which seem to have an average of 1 in 150. This would be the National average. Those things you listed have to be taken into consideration when doing a study like this. <_<

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Back to the muscle testing... :P The chiropractor at HN does something like this...I know it's a completely different thing, but in some ways similar. While laying on my back he'll have me put my arm up, then while pressing on various spots in my neck and shoulders he'll try to push my arm down. There are a few spots that he hits where I can not keep my arm up.

So, instead of testing electronically, he's doing the low tech version. :lol:

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Rachel,

I attended Auburn for graduate school, right after I finished my undergrad. I was there for two years, during which my mono/Celiac saga began. My original plans were to complete my PhD (thats why I was there!) but during my health problems, I decided to only get my masters. In the long run, I'm happy it worked out that way. Love Auburn!

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You know, when I was having accupuncture, the doctor (he was also a chiropractor) would have me stand with my arms out to the side at right angles to my body. He would then "test" by trying to push my arm down.

He tested me for vitamin D that way--I had to chew an aspirin at the same time :blink: That sounds odd as I write it, but that's what he had me do.

He also confirmed that I had TMJ (previously Dx by an ENT) by pushing down on my arm while pressing on parts of my face and head.

He also used muscle testing directly in conjunction with the placing of the needles.

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You know, when I was having accupuncture, the doctor (he was also a chiropractor) would have me stand with my arms out to the side at right angles to my body. He would then "test" by trying to push my arm down.

He had me do it once while standing, but mostly he tests while I'm laying down. I've never had to chew an aspirin though. :P;)

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Interesting. It is very unusual for someone on the autistic spectrum to lie, as usually they are hyper-aware of rules, and extremely rigid about breaking them. Sounds like he is making up his own rules. Maybe what you are describing here is more of an OCD thing?

He's not OCD....we have a few other baggers who are more along the lines of OCD. They are also more high functioning then he is....they dont need job coaches and are really rigid about following the rules, etc.

This boy is the most impaired but his memory is beyond what is normal as far as TV, movies and things like that.

Its also possible that he's not really "lying"....is it possible he's just saying random things because he really doesnt know the answer to the question??

Sort of like when I ask him a question like "What time did you get here?" and he'll give me a totally wrong and random answer. He might say something like "Next week."

If I keep pushing him on something he gets that glossy look in his eyes...like hes getting "lost"....so I dont usually keep trying to get him to give a correct answer or anything like that.

So maybe when he says stuff that are "lies"....they are not really intentional?? Can that be the case?? Sometimes he'll just give the same answer that seems to be "stuck in his head". Like the one about us not having baby formula until Spring??? :huh:

Maybe he heard that once and now its just automatic for him to repeat this??

I'm pretty sure he has some sort of ASD....he flaps his arms and things like that. He often repeats things....like if he says "John Travolta is in the movie Grease". He'll then repeat it up to 10 times in a row....getting more and more excited.

Does this sound like Autism?? Nobody ever said what his disability was...I just made that assumption.

He also looks alot younger than what he is. The other day a customer said "How can you be working here...you look about 10??" He's actually 22 though.

We have another boy who flaps his arms as well but he's very high functioning. He drives, he has his own dept. in the store, has worked there for several years, etc. He mostly flaps his arms when he gets excited.....when he's talking about something. He did start out with a job coach but that was a long time ago.

Is this both cases of Autism??

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He had me do it once while standing, but mostly he tests while I'm laying down. I've never had to chew an aspirin though. :P;)

He explained the aspirin at the time, but for the life of me, I can't remember! :lol:

The Kinesiologist only tested me lying down. It was the Accupuncturist who had me stand.

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He had me do it once while standing, but mostly he tests while I'm laying down. I've never had to chew an aspirin though. :P;)

Yeah...one time they had me stand on one foot, with one arm streched out, while chewing on a Tums, and then they pushed on my arm while at the same time they had me hop up and down on my one leg...and then they said I was allergic to wheat. :lol::lol:

LOL....nah....just kidding. :P

Anyways....people ask me about this stuff and heck...I dont know how it all works.

People get all weird about it because I dont understand every detail of how it works. :rolleyes:

I tell them....when you go to the Dr.'s and they take your blood....what happens after that?? Where do they take the blood? How is it handled? What do they do with the blood to figure out what is going on?? What is the exact process behind this??? How do they KNOW that you are positive or negative???

People dont know how traditional tests work either....they just accept that they work.

Thats what I'm doing to. Do I really need to understand the whole mechanism behind it all....or do I just need the freakin results??? :rolleyes:

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Yeah...one time they had me stand on one foot, with one arm streched out, while chewing on a Tums, and then they pushed on my arm while at the same time they had me hop up and down on my one leg...and then they said I was allergic to wheat. :lol::lol:

LOL....nah....just kidding. :P

Anyways....people ask me about this stuff and heck...I dont know how it all works.

People get all weird about it because I dont understand every detail of how it works. :rolleyes:

I tell them....when you go to the Dr.'s and they take your blood....what happens after that?? Where do they take the blood? How is it handled? What do they do with the blood to figure out what is going on?? What is the exact process behind this??? How do they KNOW that you are positive or negative???

People dont know how traditional tests work either....they just accept that they work.

Thats what I'm doing to. Do I really need to understand the whole mechanism behind it all....or do I just need the freakin results??? :rolleyes:

:lol: Yeah, I don't care too much HOW it works, just THAT it works...even if it's only by power of suggestion. :lol:

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I think I might have had an OMG moment. :o

One of the weirdest things since I got sick is that sometimes my nails turn totally white and SUPER hard...like indestructable. :blink: A couple years ago my mom was telling me this was a good thing...that people want to have strong nails, etc.

I know for sure its not a good thing....it happens when things are going wrong and its an indicator that I'm getting worse and need to reevaluate things. It happens when my body is getting more toxic.

So I had that supplement which contained sulfur and then my nails got super hard again. <_<

I know I have problems with cysteine and have had problems with my sulfation pathway that shows up in BioSET.

It seems like my body isnt breaking down sulfur and as a result I build up quickly to toxic levels. It can happen with other things too such as histamine.

I looked up cysteine, sulfur and nails to see if there is any relationship and check out what I found... :o

Sulfur has a characteristic odor that can be smelled when hair or sheep's wool is burned. Keratin, present in the skin, hair, and nails, is particularly high in the amino acid cystine, which is found in sulfur. The sulfur-sulfur bond in keratin gives it greater strength.

Sulfur is present in four amino acids: methionine, an essential amino acid; the nonessential cystine and cysteine.

Sulfur is present in the human body at about 140g, mainly in the proteins but there is some in all cells, tissues and joints. Much Sulfur (maybe half) is found in skin, hair and nails. Sulfur is also found in four amino acids, methionine, cystine, cysteine and taurine.

My nails get unbelievably strong and then some type of "crystal-like" substance starts forming underneath the nails...I have to scrape it off. :huh:

It can come on quickly and then if i change my diet or whatever....it can go away as quickly as it came. :huh:

I'm more concerned about this than anything because if I am not breaking down and processing sulfur correctly...if I have excess cysteine or whatever....if I take any kind of chemical chelator I can get really poisoned. :(

This is one of the reasons people get a bad response to DMPS DMSA, etc. These chelators are essentially sulfur compounds. Sulfur is needed to chelate the heavy metals but some mercury toxic people cant break down sulfur....or the pathway is impaired.

I'm also worried because the modifilan I'm taking is from seaweed...which is high in sulfur. So I have to watch how I'm reacting to this supplement too.

I also get a weird "sweet" smell that comes off me when I get really toxic. I dont know if that could be from excess sulfur as well.

I'm thinking the weird and sudden changes to my nails must be from too much sulfur. <_<

I cant think of any other reason for it. I've always suspected it must be too much of "something" in my body....particularly something that strengthens nails. :unsure:

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Dear Rachel,

Yeah, those symptoms the guy you work with exhibit seem to go with Autism. My mother's best friend is a bus aid. She works for the EARC, where mentally handicapped children go to school. She said a number of the Autistic kids rock, retreat into their own world, do not talk, or when they do speak, they repeat the same thing over and over.

That kind of reminds me of Schizophrenia as well as Alzheimer's. My theory is they are all actually the same disease! :o I feel this way because the symptoms are so similar. They also have common links: mercury poisoning, Candida, aluminum poisoning, lead poisoning, and Lyme. I have been comparing this stuff for a while.

Alzheimer's and Schizophrenia are like adult onset Autism. Then, Autism is found in children due to their being exposed to these toxins during development. All it takes is a small amount for a baby. Once that occurs, it is too late! Celiac and Leaky Gut only add to the mix. This further impairs the system.

I believe Silicon Valley has had too many people exposed to these environmental toxins. Cadmium, lead, and mercury can all be found in numerous computer parts. That is why you should find a place that safely disposes of obsolete electronics when you get rid of them. It can leak into the ground, and poison the water. Of course, my parents could not care less about the Earth. :angry:

The better not have the nerve to get upset if they end up with Cancer later after dumping that stuff into the ground. Not to mention, they would not appreciate it if someone did that and caused them to have Cancer. But you know, they do not care because it is not about them. That irritates the crap out of me! :angry: Also, it is not like the government cares to research any of this. Like Kevin Trudeau said, it is all about the money.

The government does not plan to cure anyone. My mother had a co-worker that used to be in the Army. She said they have the cures for Aids and Cancer. They just will not release them. Now this is stupid in my opinion. Not just because it is a crime against humanity, but the fact remains that killing off your own people means less revenue.

The more people there are, the more there will be paying taxes. That means more coming in. At least, that is what I would do if I were in the government. Their mentality is all wrong! These people really are stupid!

Anyway, I am glad you posted about the ART. I was wanting to know more. I put that site in my favorites. This sounds a lot like kinesiology. It seems pretty cool. ;)

The sulfur could cause that, I suppose. It sounds like you have an overload. Those chrystals inside your fingernails cannot be normal. Do you know if it is normal for the white part of your fingernail tips to be translucent after a shower? I think that might indicate a calcium deficiency. What do you think?

Dear Donna,

Your poor sister! AAAKKKK! :o Having a spider in your ear is scary! Yesturday, I was outside talking to my best friend, her hubby to be, and some friends from around the neighborhood when those Kamakaze bees attacked. I warned them, and they acted like I was crazy. Their attitude quickly changed once they started dive-bombing them! :lol:

Sincerely,

NoGluGirl

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Yesturday, I was outside talking to my best friend, her hubby to be, and some friends from around the neighborhood when those Kamakaze bees attacked. I warned them, and they acted like I was crazy. Their attitude quickly changed once they started dive-bombing them! :lol:

I HATE mean bees. We have hornets or something on the hill behind us. They are like kamakaze bees. They won't give up until they've stung you. :angry:

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Hmmm...I got back on the NDF...only taking one tiny drop every OTHER day and holy cow...I'm back to getting up 10 x in the night to pee on the days I'm taking it. :blink:

This is what happened last time I was on it....frequent urination...even though I'm drinking the same amount of water. :huh:

WTH???

If you look on any list of mercury poisoning symptoms you see frequent urination (especially at night). I did have this problem in the first two years....when I was most sick and still having amalgams.

I have not had this problem at all the last two years though...if anything I've had infrequent urination and I dont get up at all in the night having to go pee.

Obviously the NDF is causing this but I dont know why?? Is it trying to flush stuff out of my system or what?? :unsure:

Is it because metals are getting mobilized?? Does frequent urination mean my body is trying to detox now that I'm taking this stuff or what??

Its totally mind boggling to me that one small drop can have this kind of affect....but it cant be caused by anything else.... it only happens when I take the NDF.

The NDF is only chlorella and cilantro.

I'm taking chlorella by itself (store bought) and it doesnt cause the frequent urination. It has to be the chelating effect that the NDF has.

I hope its a good sign but I'll have to ask at BioSET on Thursday. :unsure:

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Donna....I'm totally excited for Saturday. :D

I cant wait to hear everything!

Remember to not take anything as far as supplements or meds (unless they are necessary like thyroid) for 48 hours before the test. No antifungals or other supplements at all.

Scott should email you the info. and also paperwork to fill out. Just wanted to mention it in case he didnt tell you already. ;)

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Have a good day, everyone! I'll check in again sometime ... I'm at Panera Bread so I can get online.

Hi Carla!!

Glad you are doing well with the cc!! :)

I think I missed when you said you were coming back?? :ph34r:

Is Carla gone for the summer?? :huh:

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Is Carla gone for the summer?? :huh:

I believe it was just this week. :)

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Dear Andrea,

Watch out for those evil bees! You know the ones you are talking about sound like those Africanized bees. Those things are scary. They do not give up until they sting you! They just keep going after you, too. :o They are deadly. This one guy had to dump ammonia all over himself to get them off when a hose would not work. You could actually jump in a dark closet and they would follow you all the way in the closet, and still about 60 would be on you!

Sincerely,

NoGluGirl

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Dear Andrea,

Watch out for those evil bees! You know the ones you are talking about sound like those Africanized bees. Those things are scary. They do not give up until they sting you! They just keep going after you, too. :o They are deadly. This one guy had to dump ammonia all over himself to get them off when a hose would not work. You could actually jump in a dark closet and they would follow you all the way in the closet, and still about 60 would be on you!

I wasn't out with the things, thankfully. Hubby and my two oldest were out picking blackberries on the hill behind our house. My oldest boy got stung first and he came into the house, then hubby and daughter went out that direction and got stung. It wasn't a swarm or anything. Hubby did say that the sting hurt worse than a wasp sting though.

I'm afraid of bees and now my kids are too.

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Rachel and Andrea-

thank you both for your comments. i have been doing alot of thinking. So today I see my doctor and I am really going to talk to him. I do know he has dealt with a lot of lyme cases and is contact with alot of LLMD's so he definitly has experience. I seem to be a really strange case- I know I don;t always post everything so I can completly see why sometimes hes methods seem erratic, but I also know I shoulden't feel so confused right now- although my brain fogginess could be partially to blame. Like I said I am going to talk to him today and really try to get a clear picture of what is going on. All I know s I have been feeling really bad I had a bad reaction 2 days ago to something i ate for luch and for some reason have not been able to bounce back from it. I haven;t had a reaction that lasted multiple days in a while and it is really wearing me down phsically and emotionally.

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Rachel-

how long have you been doing the bioset now? Do you notice any changes? differences in reactions or your ability to tolerate things, etc.?

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This is one of the reasons people get a bad response to DMPS DMSA, etc. These chelators are essentially sulfur compounds. Sulfur is needed to chelate the heavy metals but some mercury toxic people cant break down sulfur....or the pathway is impaired.

I'm also worried because the modifilan I'm taking is from seaweed...which is high in sulfur. So I have to watch how I'm reacting to this supplement too.

I also get a weird "sweet" smell that comes off me when I get really toxic. I dont know if that could be from excess sulfur as well.

I'm thinking the weird and sudden changes to my nails must be from too much sulfur. <_<

I cant think of any other reason for it. I've always suspected it must be too much of "something" in my body....particularly something that strengthens nails. :unsure:

This is so totally opposite of me, lol. Apparently I don't have a problem with sulfur, and my nails are so incredibly weak. I have ugly ridges that go up and down the nail and they split and peel like crazy. Maybe I'm not as mercury toxic as I think. :blink:

The NDF is only chlorella and cilantro.

I'm taking chlorella by itself (store bought) and it doesnt cause the frequent urination. It has to be the chelating effect that the NDF has.

It must be the combination of the cilantro and chlorella...or maybe even just the cilantro. I've read a couple of things about it (cilantro) on the mercury board, but can't remember exactly what.

Remember to not take anything as far as supplements or meds (unless they are necessary like thyroid) for 48 hours before the test. No antifungals or other supplements at all.

Scott should email you the info. and also paperwork to fill out. Just wanted to mention it in case he didnt tell you already. ;)

I'm glad you posted this...I was actually going to ask because I remember you saying something about it. Scott is supposed to email me the info, but he hasn't yet, so this way hopefully I'll remember NOT to take anything starting Thursday. :)

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Hi Carla!!

Glad you are doing well with the cc!! :)

I think I missed when you said you were coming back?? :ph34r:

Is Carla gone for the summer?? :huh:

LOL! No, it's just spring break!

I can only see one page, the internet at this hotel doesn't work right, so I can't catch up. We left my dad's. Now we're in Tampa for yesterday and today. Tonight we'll head to GA, then TN. Then we'll be back Friday to spend Easter weekend with Morgan.

I'm glad the cc isn't bothering me, too. With all this eating out, I'd be miserable. I mean, I'm being careful, but still, I used to get sick eating at restaurants that don't have gluten-free menus.

Maybe the antibiotics have my immune system working better so that a little cc doesn't bother me anymore???? Am I no longer in an autoimmune state? What I was thinking is that maybe the stealth bacteria hiding in my system is making my body attack everything. It would be interesting if there were some studies on this ... but with both Lyme and celiac being so underdiagnosed, I doubt it exists.

I don't fully expect to be able to eat gluten again since Morgan and Chloe can't, but not worrying about cc as much is nice. Of course, Morgan and Chloe were exposed to Lyme through me ....

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Well a few months ago I would have said I was getting benefit from them, but I've changed my mind in the last few months. I think what I'm doing with Anna and the HN doctors are helping more with my situation than anything else.

First there was the gluten and dairy thing, then in the last few months we've found and fixed the H.Pylori, we're working on the candida, I've had my amalgams out and we've identified foods that my body doesn't like and I've cut them out (with a few minor lapses here and there). The strain on my body and digestive system is so much less than it was, that I think my body can work better now. I have to think that as my intestines heal from the candida, etc. it will only get better, both for foods and environmental stuff. (Keeping in mind that I NEVER had allergies until just about 4-5 years ago--it might be different if I'd had allergies for a long time.) I was never convinced that the allergies were the cause of my main problems anyway, lol.

Interesting, I think that as we begin to find our own paths to wellness and begin to heal our bodies make it clear to us what works and what doesn't, I'm glad to know your body is letting you know what works. IMO conventional medicine just works at suppressing symptoms and only results in bigger problems further along.

LMAO :lol:

Rinne,

You're not alone with the cheese lust! I LOVE cheese. Ever since I ate a block of swiss cheese last year I have not been tempted again. :ph34r:

I still have "cheese lust" but the "cheese fear" is more powerful at this time. :o

Soooooo, you racheled the cheese. :lol:

There are kids working at my store who are on the autistic spectrum. Most are "high functioning".... the one who is probably the most Autistic is my favorite.

I just have such a strong liking for this boy...I'm very protective of him.

Other people are bothered by him because he tends to repeat the same stuff over and over. I dont get bothered at all and I always initiate conversation with him and I give him encouragement always.

I'm so glad he has you.

This is a good sign. I know when I'm not feeling well I lose my desire to fight, I dont feel encouraged or inspired.

Just the fact that you're posting and feeling encouraged to move forward means you're feeling alot better. I missed you while you were away and I'm glad to "see" more of you. :)

I am finding the effect the network chiroprator is having on me is subtle but is making a difference. The interesting thing was his description of my personality based on the condition of my spine, he was accurate. He says it will take three to six months but he can help.

I feel like I am getting better slowly, my digestion is greatly improved, my bowels are regular, I eat a wider range of foods, I've gained five pounds, I've crawled out of the funk I was in and I am busy with spring projects.

I was thinking back to a year ago and even though I am not "well" I am so much better now, this thread has helped me so much, I am grateful for you Rachel. Thank you.

I am back!! Have not been able to get in here for several weeks and finally made it...hope you are doing better and sounds like Rachel is doing her scientific thing that she is so good at..hope you are at least as well as you were when I got knocked off...I have been busily getting 2nd opinions at U of I..have seen several Dr's and had lots of tests..think should soon be ready to get evaluation of all with a decision of what will be best for me...was there Wed, Dr. said he wanted me to drop one med + double amount of 2 others plus weigh and record each day then report next week..may have a decision after that..may not need a pacemaker after all. ..have a good night all...evie

Evie, nice to see you, glad you will be getting some answers.

I watched the show. I feel alot like that one lady...I think its DEPLORABLE and infuriating that this is not getting the national attention that it deserves. :angry:

I cant even comprehend why our government isnt taking more aggressive steps to research and determine the triggers of Autism. CLEARLY....this is an epidemic....this is very serious stuff and I dont feel like people know anything about it!! :blink:

......

Just the "noise" and stress from him calling me so many times totally messed up the chemistry in my body. :blink: I wanted to sit down and hold my head and my body just wouldnt calm down or relax for more than an hour.....my heart was racing for all that time. I think if someone would have approached me during that time and stressed me out even more...I might have lost it. :ph34r:

The doctor described it as being similar to watching a suspenseful or scary movie....when all the tension is building up inside you and then if someone were to come and surprise you...or jump out at you...all of that "build-up" would come to the surface. She said thats the state that my body is in all the time.

That is a good description of how it feels....except when I was normal that type of reaction would subside after a few minutes. Now it doesnt goes away for HOURS at a time. That feeling of your heart beating out of your chest....or just feeling totally stressed out....it just STAYS there for hours....and other things will occur to just add to that stress and make it even worse.

Does *anyone* else have these types of problems?? :unsure:

It has to be from the mercury. <_< All of these things are on the symptom list for mercury toxicity. For me its very very frusterating to not have control over some things that are happening in my body. Its more frusterating than the food and chemical issues...at least I have *some* type of control over those things.

Not to the same extreme but yes, problems, for me it is sometimes like going from normal to a extreme irritibility in a split second, this doesn't happen so much now but about three years ago I thought I was losing my mind and even last fall when I went to Calagary I was having weird rushing sensations in my body. The acupuncterist I saw at the Hoffman Centre said it was similiar to a child with ADHD, an overload of the system. It makes sense to me that it is mercury related.

Mia,

I'm sorry you're feeling confused....its gotta be frusterating for you. :(

I know the feeling all too well...unfortunately.

I hope you can get a more clear picture on Tuesday. If not.....I would be concerned that this Dr. might not be the right one for you??

You should feel more certain about your diagnosis, treatment and prognosis by now. It doesnt seem like he's giving you those answers and the treatment is random and not specific to anything.

I know that you like him...and that finacially he is better for you.....but in the long run...if he's not capable of getting you better (or even given you a clear picture of whats going on) he might not be the best choice...even if he's nice...and even if he cares about you.

I think for all you've been through you deserve to...at the very least...feel less confused about your treatment. I do think we all feel somewhat confused given the nature of our illness....but I'm still concerned that your Dr. doesnt have the experience needed to tackle something like this. :(

There are other Dr.s who have alot of experience and will know exactly how to proceed with you. I dont think it would be wrong for you to seek more knowledgeable and experienced Dr.'s.

I cant be 100% certain that my own Dr.'s will get me better....or make all the right choices. However...I know that they do have the experience and there is no hesitation, confusion or question of how to go about treating me. It makes a HUGE difference in my state of mind, depression....just the whole "outlook" that I have on everything.

I'm more optimistic now and when I was feeling confused with my previous doctors....I was very depressed, scared and definately less optimistic.

I dont want you to continue feeling that way and if this Dr. cant give you a better picture I would definately look into seeing someone else. You never know....you might find someone just as nice...and just as caring....but also more experienced.....someone who can give you all the answers to your questions.

I dont mean to put down your Dr. in any way...I just want you to get the best care possible and to feel good about your treatment. :)

Miamia, I really support everything that Rachel is saying.

It strikes me that it is critical to understand that all treatments of Lyme at this time are experimental and that includes antibiotics, further I think antibiotics may be the most dangerous treatment of all because it may cause other problems but not resolve the Lyme anyways.

I plan to get the lyme test done on Tuesday... I have the kit from Igenex and have an appt scheduled with a LLMD that was recommended to me from a couple people... I'm assuming I'll get the blood drawn that day and then get the results within 2-3 weeks...

I can relate, I hope you'll post your Igenex results when you get them.

Hi everyone, we are having a minus 23 day with the wind chill and it doesn't matter if it is Fahrenheit or Centigrade that is cold. I'm wishing it was a stay at home day but I have errands to do.

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