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Omg...i Might Be On To Something


Rachel--24

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happygirl Collaborator

FYI:

Title: Gastrointestinal pathology in children with Lyme disease

Authors: Fried MD, Duray PH, Pietrucha D

Source: JSTD 1996; 3:101-104

Abstract:

Ten children between the ages of 8 and 19 with Lyme disease presented with chronic gastrointestinal symptoms. Biopsy evidence of inflammation was found in the stomach, duodenum, and colon. Pathologies included gastritis, duodenitis, gastric ulcer, colitis, and a histopathology resembling Crohn's disease. Spirochetes with the microscopic appearance of Borrelia were found in five patients with chronic inflammatory conditions of the gastrointestinal tract. The inflammation may have been due to the spirochete itself, a reactive product related to their presence in the gastroin-testinal tract, or a consequence of medications used to treat Lyme disease.


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Rachel--24 Collaborator

Laura.,

Interesting. Thanks for posting that. Lyme can mimick alot of things...I would imagine all affected areas would have some type of imflammation.....including the GI tract.

I know alot of people dont agree with me on this but this is the exact reason I think the that continued testing is necessary when Celiac results are negative or inconclusive (lack of genes, positive IgG only, etc.).

I think its important to know all that is going on...especially when symptoms and food intolerance persist. Lyme mimicks so many diseases.....including Celiac. It can also be responsible for triggering the gene.....but obviously the gluten-free diet isnt going to cease to cause other autoimmune problems if the Lyme infection goes undiagnosed.

Even though what you posted did not specifically mention Celiac...I couldnt help but think about it. Most people would not suspect Lyme when presenting with these types of symptoms.

Also...if the bacteria will favor the weakest areas of the body...if a person has Celiac or if it becomes triggered by the stress from the infection....I would think that the intestines would be a weak and vulnerable area.

Obviously in this scenario giving up gluten wont be enough to stop imflammation.

It makes sense to me that people with Lyme can have symptoms occurring in different areas of the body....depending on where that person is most vulnerable....genetically and otherwise.

Rachel--24 Collaborator

Donna,

Its a bummer about missing rehearsal on Saturday....but I'm super glad you didnt cancel ART. :D

dlp252 Apprentice
Its a bummer about missing rehearsal on Saturday....but I'm super glad you didnt cancel ART. :D

Me too, lol. Got my email from Scott last night so I'm ready to go. I'm glad too because I think one of the supplements is causing the D and so stopping them all for a couple of days will tell me for sure.

tabasco32 Apprentice

OK so I have the urine mercury test hear um I see no supplement or chelator. I know she told me to take a pill. it is dmso or something. people I am seriously just thinking of taking the hair analysis test because my bladder is so bad I am afraid to take anything that will worsen it. i urinate at least 20 to 25 times a day already. Can mercury damage the bladder? Rachel I have the same gum pressure as well. It usually happens though when I stand up and start doing something. I thought maybe it was my heart going out since I lost so much weight to this thing or anxiety. I feel ok today besides the pressure on my right and left lower side that still keeps on balloning up in the morning only. I really hate that. I feels as if aliens are going to pop out of their. Still constipated to with bleeding you know what. It is very discouraging to want to eat. I never thought I would be afraid of eating anything. Now I don't even want to eat nothing at all. everything hurts. I also get real bad rectal cramping it hurts bad. I don't believe all this stems from Ibs I don't know. maybe. noglugirl so the hair would be better. I think I will try the hair analysis instead because maybe I am to toxic right now. The only supplement I am taking is seacure. Has anyone taken this? It is not suppose to have mercury in it and your intestines are suppose to heal good with it. anyways take care girls

lisa

NoGluGirl Contributor
OK so I have the urine mercury test hear um I see no supplement or chelator. I know she told me to take a pill. it is dmso or something. people I am seriously just thinking of taking the hair analysis test because my bladder is so bad I am afraid to take anything that will worsen it. i urinate at least 20 to 25 times a day already. Can mercury damage the bladder? Rachel I have the same gum pressure as well. It usually happens though when I stand up and start doing something. I thought maybe it was my heart going out since I lost so much weight to this thing or anxiety. I feel ok today besides the pressure on my right and left lower side that still keeps on balloning up in the morning only. I really hate that. I feels as if aliens are going to pop out of their. Still constipated to with bleeding you know what. It is very discouraging to want to eat. I never thought I would be afraid of eating anything. Now I don't even want to eat nothing at all. everything hurts. I also get real bad rectal cramping it hurts bad. I don't believe all this stems from Ibs I don't know. maybe. noglugirl so the hair would be better. I think I will try the hair analysis instead because maybe I am to toxic right now. The only supplement I am taking is seacure. Has anyone taken this? It is not suppose to have mercury in it and your intestines are suppose to heal good with it. anyways take care girls

lisa

Dear Lisa,

Mercury and Candida irritate the bladder in some people. I think the hair analysis would be a better bet. They can measure how long you have had it in your system that way, too. That is good. It can give you an idea of what is causing it.

I get gum pain as well. My teeth are badly overcrowded, and I have terrible TMJ. I literally scrape bone against bone! :( The only thing that helps is sinus pills. Nothing else does the trick. Even migraine medication did not stop the excruciating migraines I get.

Dear Laura,

That is so interesting! Where did you find that? It is not really surprising. Lyme seems to take so many forms! It really is scary!

Dear Mia,

It was so cool your doctor could tell your personality by your spine! That is really neat! I wonder how they do that. Anyway, it sounds like your appointment went well. You are so right about conventional medicine being dangerous and useless. They just mask the symptoms with pills. I went through that for years, until finally, I saw the light.

Sincerely,

NoGluGirl

Rachel--24 Collaborator
Dear Lisa,

Mercury and Candida irritate the bladder in some people. I think the hair analysis would be a better bet. They can measure how long you have had it in your system that way, too. That is good. It can give you an idea of what is causing it.

NGG...

This isnt exactly true. The best test is the provoked urine test....but the hair analysis is SAFER.

Mercury does not always show up in hair analysis. In fact....a person can be highly mercury toxic and have LOW levels of mercury in hair analysis.

My own hair analysis was low for mercury. A provoked urine test gives a more clear picture of mercury toxicity.

I dont know about the test showing how long metals have been in your system?? My hair analysis test did not show anything like that. It basically only showed what my levels were for the heavy metals and minerals....within normal....low or high.

If mercury is stored in tissue and not being excreted (which is often the case with poisoning from amalgam) the levels can be low or normal in hair analysis...because the body is not excreting the mercury this way.


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Rachel--24 Collaborator

Lisa,

The pill is the chelator used for the urine test. It basically is used for pulling mercury and other metals out to be excreted in your urine. Its a "provoked" urine test....the metals in your urine would then be measured.

Dont do anything you're not comfortable with. Did the Dr. discuss anything with you....or just gave you the kit?? A pill is usually not a large dose...its probably DMSA??

If so...it is most likely a safe amount. Sometimes Dr.'s do IV's for this test....which can be harmful.

If you decide to go with hair analysis....just be aware that low or normal levels do not mean that you are not toxic....you can be totally poisoned and have low levels show up in the hair analysis.

Rachel--24 Collaborator
i urinate at least 20 to 25 times a day already. Can mercury damage the bladder?

Mercury can cause frequent urination. Yeah....it can cause damage anywhere in the body.

About the SeaCure. I took it about a year ago and stopped. I was too sensitive to take supplements. At the time the Dr. I was seeing was focused on leaky gut. I took some stuff like the SeaCure to attempt to heal my intestines.

Nothing he gave me worked and I felt sicker from whatever I tried. Finally that Dr. gave up and referred me to who I'm seeing now.

NoGluGirl Contributor
Lisa,

The pill is the chelator used for the urine test. It basically is used for pulling mercury and other metals out to be excreted in your urine. Its a "provoked" urine test....the metals in your urine would then be measured.

Dont do anything you're not comfortable with. Did the Dr. discuss anything with you....or just gave you the kit?? A pill is usually not a large dose...its probably DMSA??

If so...it is most likely a safe amount. Sometimes Dr.'s do IV's for this test....which can be harmful.

If you decide to go with hair analysis....just be aware that low or normal levels do not mean that you are not toxic....you can be totally poisoned and have low levels show up in the hair analysis.

Dear Rachel,

That is very interesting! It sounds like the doctor did not say much to Lisa about what the pill was for. Poor Lisa! :( The reason I expected hair analysis to be better was because of the forensics shows. This one man was being poisoned. They used hair analysis and blood tests.

Of course, it may depend on whether or not a toxicologist is performing the tests. That probably makes a difference. Perhaps the protocol is different. Does it makes a difference how the mercury gets into the body? Would the blood tests and hair tests show more than a urine test if say you were poisoned by ingesting fish instead of having amalgams?

Sincerely,

NoGluGirl

CarlaB Enthusiast
Carla,

At some point something weakened your immune system enough to let Lyme get the upper hand.

It is tricky and it does vary from person to person but I dont think mercury is OK for some people with Lyme.

Yes, it was stress. Each time I've gotten sick from it, it was stress.

And I agree that mercury is bad for everyone with Lyme. For everyone, period. However, many people seem to handle mercury in their mouths without getting sick at all ... it just doesn't seem like the ideal.

CarlaB Enthusiast
You dont have chemical sensitivities or even alot of food intolerance....heck you're doing fine eating out of a "shared" toaster!! :o

I only did that once, at my dad's. :ph34r: At home it's a dedicated toaster! I also took Glutenease enzymes before I ate the toast! And, gluten is my only food intolerance. Other than that, I seem to have an iron stomach.

I think antibiotics would be very counter-productive for you right now.

CarlaB Enthusiast
OMG...If reading my own posts...I would have thought I was some kind of "alternative" freak. :lol:

I would have totally ignored and dismissed everything that I type on this thread. :rolleyes:

I was thinking about it today after reading Rinne's post about conventional medicine only "covering up" the problem so that it can get worse down the road.

LOL

Yes, I mostly agree with Rinne's statements. You can do the same thing with herbs, too, though. I was taking various herbs for my Lyme symptoms and for a long time I felt good. I was just putting off dealing with the real problem. I didn't know what the real problem was!

Most drugs seem to cover up symptoms. Antibiotics are used improperly way too often. But, antibiotics actually kill bacteria, so they are doing something. There are many infections you need antibiotics for or you will get very ill, maybe even die ... like strep.

CarlaB Enthusiast
I know alot of people dont agree with me on this but this is the exact reason I think the that continued testing is necessary when Celiac results are negative or inconclusive (lack of genes, positive IgG only, etc.).

I totally agree! Even my GI thought that it was celiac until he tested for it. I presented the classic symptoms. It really seemed like celiac.

Now, gluten does make me feel bad ... I don't understand the couple times contamination have been okay because I had a supplement with barley that was making me ill. I've been taking Glutenease whenever I eat out ... I wouldn't do that for celiac, but I really feel that I just have trouble digesting it because of the GI issues from Lyme. I think that gluten is difficult to digest and can be a problem once in a while for everyone.

CarlaB Enthusiast

This morning in our hotel room Chloe was watching the history channel. The show was about the Black Plague. She had just studied it in school, so she was really interested in it.

Towards the end of the show, they were talking about how this could happen again and how people still get the Bubonic Plague, but if it's recognized, it can be treated with antibiotics.

Then they talked about how other microbes might cause illness like the Plague did ... they mentioned ones that we already know about -- AIDS, avian flu, and Lyme! I was thinking Lyme, but I was shocked they mentioned it!

AndreaB Contributor
NGG...

This isnt exactly true. The best test is the provoked urine test....but the hair analysis is SAFER.

Mercury does not always show up in hair analysis. In fact....a person can be highly mercury toxic and have LOW levels of mercury in hair analysis.

My doctor does both the hair analysis and the challenge (or provoked urine test).

Rachel--24 Collaborator
Does it makes a difference how the mercury gets into the body? Would the blood tests and hair tests show more than a urine test if say you were poisoned by ingesting fish instead of having amalgams?

It does depend on the source of mercury and also the type of poisoning (acute or chronic). Toxicity from amalgams would be from vapors and a blood test or standard urine test would not be useful. It would not show up. I'm pretty sure poisoning from fish can show up in this type of testing.

My conventional Dr.'s did test me (blood and urine) and these were normal.....it was not the correct type of testing for the type of poisoning I had but it was all that they offered me back then.

I remember the Dr. telling me that someone had eaten alot of ocean caught fish and got extremely sick. The woman had gotten mercury poisoned and it was showing up in the conventional tests of blood and urine.

Rachel--24 Collaborator
Rachel-

how long have you been doing the bioset now? Do you notice any changes? differences in reactions or your ability to tolerate things, etc.?

Miamia,

I thought about this today at work.

Its so hard to answer because of amount of things that I'm sensitive to and the severity of the illness, etc.

My mom does think that BioSET has made a big and noticeable difference. It may be true that while I've been going there I have improved alot...no doubt about it. However, I think alot of it comes from learning more through the testing and having a better idea of whats going on with me.

First, just knowing alot more about my health issues affects my attitude in a good way....so yeah...that would make me feel better.

Even though BioSET is "desensitizing" me to various things...my overall toxicity is still tremendous. This has not changed much...considering I still have the metals, candida and Lyme. The toxicity is going to remain high until the mercury starts coming out.

We can go through alot of layers....an endless amount of layers and desensitizing but if my toxicity remains high my body will re-sensensitize to alot of these things.

There are very likely improvements through my treatments but they would be so subtle that I would not be able to notice at this point and at this level of toxicty.

I dont get treated for foods...we dont put alot of focus on those types of things because I dont feel it would be helpful to me at this time.

I dont feel like my reactions are improved....but I have alot less of them because I'm learning more about what bothers me. I dont get alot of bad reactions from various things because I get tested for everything prior to taking them. So this helps alot too.

My diet is just as limited as before I started treatments...I dont try to introduce new things. I figure all good things will come in due time. :)

I dont believe my body is going to be able to properly digest foods until I am less toxic. I dont feel like my body can cope with anything which is not organic for sure...it cant cope with certain substances ( both natural and synthetic)...it cant cope with anything which is even the tiniest bit toxic.

Some things which are natural are toxic to me right now because my body isnt capable of breaking them down. All I can do is avoid these things so as to not allow myself to become even more toxic than I already am.

I think as far as desensitizing goes....it depends on how sick the person is....how toxic they are.

Donna is far less toxic than me and she may actually be able to notice improvement...she may actually be able to be cleared for things and notice it.

I, on the other hand, may have so many layers that I wont be able to clear foods and then eat them w/out problems...not until some of this mercury burden is lessened.

I could be reacting to one food for a multitude of reasons. The food could have mold, it could also have other triggers that might set my system off. When we're talking about hundreds of foods and various reasons or possibilities for my reacting to each individual food....thats a whole lot of de-sensitizing!! :o

Also...because I'm so toxic....I wouldnt hold alot of stuff...but then if I react to the food...is it the mold? Is it the sulfur content? Is it because its got histamines? Etc.

This is basically why I dont bother with foods right now. Same with chemicals and things of that nature.

So to answer your question....nope...I dont notice improvement with reactions or that I can tolerate more things. I just dont get very many bad reactions because I have a good picture of what things would totally set me off so I avoid those things.

I've been going to BioSet since probably late October...early November. Probably around January I came to realize that I'm pretty bad off with how deep these issues go and how reactive and "out of whack" my body is. At that point I gave up on thinking I could be desensitized and eat normally just from these treatments.

It just became more important for me to get all of the answers from the testing we do there. If there is some stuff going on inside which is helping me cope right now...then great....it could be part of why I'm doing better....but there is no way to know for sure.

Right now I mostly want to continue with BioSET for guidance with treatment. Testing my supplements, figuring out the right doses..stuff like that. Also if a supplement bothers me but its important that I take it....they can try to determine why I'm reacting to it and desensitize that one thing so that I can hopefully continue taking it....stuff like that. Making sure my pathways stay clear while I'm detoxing.....thats also a big concern to me.

Overall...I think I do hold alot of my treatments....when I'm retested it seems like alot of the treatments have held....but still....I would not be able to notice these things when alot of them have to do with stuff going on inside.

I figure even if 100 things have been cleared...I've probably still got thousands of things occurring in my body that havent been cleared....so it seems it can be endless. The main thing is to get rid of the toxicity so that I dont have a million different immune responses occuring to begin with.

I would assume that you are as toxic as I am....or close to it??

I guess what I'm trying to say is that if you go to BioSET....dont go with the mindset that they can "fix" everything. You likely still wont be able to eat these foods.....the issues and the reasons for reactions go deep. There is alot of cross-reactivity and other things going on.....at least in my situation its been this way. My body is simply overwhelmed....I just want to focus on getting to the point that my body is less toxic and less stressed out.

Dont know if this helps much. :unsure:

tabasco32 Apprentice

I feel pretty toxic right now. I feel like there's nothing but green toxic smoke in me. My bladder pain was excrutiating today I just wanted to die. You should thank god that you don't have to go through this bladder pain everyday. I know with all the other stuff you are going through you are all still struggling too. So I drank the colostrum like my naturopath said an I got bubble guts. I don't know if I should keep drinking it. My guts sound like sweak, swake, ekkk , irrrr. Like their talking or something. Anyways yeah so my naturopath says dmso? I hope that this thing will go away someday. I am willing to do the urine test and I found the pill in the box. It is about the size of a capsule. What have I got to lose. I don't think I can feel any worse? :huh:

Rachel--24 Collaborator

Miamia,

I dont know how your visit with your Dr. went....hopefully it went well and you are feeling less confused. :)

Sometimes one Dr. just cant get you where you need to be....even if that Dr. is good.

When I started going to HN (where Donna goes now) I thought the Dr. was the BEST I'd come across....and he was at that time. He was very knowledgeable about alot of things....particularly gluten intolerance, candida and leaky gut.

He just wasnt capable of dealing with my situation....it was out of his realm and when he realized that he sent me to my current Dr.

This Dr. is very good at everything that I need him to be good at...Lyme Disease, candida, heavy metals, etc. Only thing is...I came to him as someone who is already so toxic I'm chemically reactive...cant eat anything, cant take anything, etc.

This isnt new to him....he's had patients like this before and he just felt he couldnt start treating me for anything without first clearing my pathways, starting some liver detox, going through some BioSet stuff to get a better picture and see if theres anything that I can tolerate in the way of treatment.

So he sent me to Anna because he said he cant do it on his own...he cant just give me treatments when I'm in this state of reactivity and he cant begin to guess all thats wrong with me or what I can or cant tolerate.

So I go to BioSET and through the testing at some point Anna realizes that there are sooooo many issues it would be helpful and quicker to do an ART session and try to see where the biggest problems are. So she sets me up with Scott.

Also...she wants me to see Dr. Amy...who can get me started in identifying and actually treating these big issues.

I still have my Dr. and now that BioSET and ART have pinpointed the problems he can help with the treatment. Now that we know whats going on and I can actually take some things to address these issues.

So I have two Dr.'s who are experienced in treating all the big issues...my Dr. here will be the one who sees me most. Dr. Amy will only come to the area once every three months.

My visits with Dr. Amy will always involve ART and the focus will be on how to proceed with treatment. Testing to see what my body needs most to address the metals, lyme or whatever else.

The point I'm trying to make is that each Dr. I've seen has done what they could to the best of their capability at that time and then brought in someone else for furthur assistance....to get more answers so that we could proceed with treatment.

Dr.'s need help too. Its not always easy and sometimes it takes more than one person to get every answer. If the first Dr. from HN had not realized that the problem was too big for him to handle....I would not be where I'm at today. I owe him alot for his observation and also his referral to a better and more experienced Dr.

I had seen him almost weekly for 7 months and I did not improve at all....nor did we have a clear picture of what was wrong with me...this is why he said he didnt feel we were getting anywhere and I needed to see someone else. I felt kind of rejected but also thankful....because yeah...I wasnt getting anywhere and clearly he couldnt get me to where I needed to be.

I dont know how long you've been seeing your Dr. but if he cant recognize that maybe you need a little "outside" help.....more answers that can help him to help you get better....then maybe he is not looking out for your best interest??

Hopefully your visit went well but if it didnt...this is something to think about. Because if a Dr. truelly wants to do everything in their power to get you well....sometimes that includes saying "I need help with this." or "There is a better Dr. for dealing with this...this Dr. can help you more than I can."

If you are more complicated than what he's dealt with in the past...rather then try to muddle through this...he should find someone who deals with complicated cases on a regular basis and refer you to that person.

I dont think you are more complicated than I am....if there are Dr.'s out there for me....then there are Dr.'s out there for you too. :)

I hope that your Dr. has a good plan for you or has someone in mind who can help you if he cant. You totally deserve to have someone who can make you feel at ease while you go through treatment. Treatment itself is not easy....it makes it alot harder when your Dr. is leaving you with alot of ???'s and not enough answers.

I'm only saying this because I know how agonizing it is on the mind when there is so much uncertainty. Its very draining and just makes everything harder to deal with. I care about everyone here and Miamia...you've been here since the beginning....so I care alot about how things are going for you. I want you to get better. :)

Rachel--24 Collaborator
Yes, I mostly agree with Rinne's statements. You can do the same thing with herbs, too, though.

Good point Carla.

I agree......and I also think there are alot of alternative Dr.'s out there who are doing the same thing that the conventional Dr.'s are doing...treating symptoms. Its just that they are going about it in a different manner. Either way.....its covering stuff up.

The best Dr.'s are the ones who dont do this. Instead of throwing some herbs at you....they will try to figure out *why* you need any treatment to begin with......because in reality our bodies should function fine without intervention of any kind.

If we need meds to feel good...or supplements to "help" adrenals and keep candida "at bay".....they should definately be trying to find out *why* those things are necessary to begin with.

I did have one alternative Dr. who was just treating me for Candida...nothing else. This is not the kind of Dr. that is going to get me better. <_<

Also...I was basically treating myself...she just agreed with everything I said. :unsure:

So yeah...I paid $125 bucks everytime I saw her....just so she could agree with me. At that time...I guess I *needed* that. I needed *someone* to acknowledge that I was sick.

Rachel--24 Collaborator

If anyone is interested...tomorrow Oprah will be about Autism.

I plan on watching but I'll be at BioSET....so will have to watch it later.

I also asked about being the "in-store" job coach for the Autistic boy at work. We dont know yet whether or not he will lose the job coaches in June...its still up in the air. Anyways for now....yeah...I'm gonna help out with him. :)

A customer threw a fit at work today because when she approached him for help...instead of pulling out his laminated card....he told her "I'm busy." She was livid about it.....did not care that he is "challenged." :angry:

So my first thing to work on is this. We cant do "role plays" with him because he knows us. When I try to "pretend" I'm a customer he can do everything right because he's repeating exactly what he knows I *want* him to say.

If a random customer approaches he is not in the same situation. He cannot do the same thing he did with me...because he cant process things this way. When he sees me he knows what he's supossed to do....by memory. He doesnt have any "memory" with a new customer approaching him. All he knows is that "He's busy".

So I will try to enlist actual customers for help with this. To actaully approach him and see how he responds. To see what is happening when he's approached in different scenarios.....by people he doesnt know. I dont know if by doing this we can get him to understand that he needs to take the card out when ANY person approaches him.

Anyways...I'm gonna try it. The customers will get a discount off their groceries...or whatever for helping. We want him to understand and to do well. I know he is capable....but it has to be done in a way that he can understand.

I dont know if this will work but its worth a try. Anyone have any ideas....Alison?? :unsure:

Rachel--24 Collaborator
I feel pretty toxic right now. I feel like there's nothing but green toxic smoke in me. My bladder pain was excrutiating today I just wanted to die. You should thank god that you don't have to go through this bladder pain everyday. I know with all the other stuff you are going through you are all still struggling too. So I drank the colostrum like my naturopath said an I got bubble guts. I don't know if I should keep drinking it. My guts sound like sweak, swake, ekkk , irrrr. Like their talking or something. Anyways yeah so my naturopath says dmso? I hope that this thing will go away someday. I am willing to do the urine test and I found the pill in the box. It is about the size of a capsule. What have I got to lose. I don't think I can feel any worse? :huh:

Lisa,

I'm sorry you had such a bad day with the bladder stuff. :(

I looked up DMSO. I dont think its generally used as chelator....which means its probably not as powerful as what I'm familiar with (DMPS and DMSA). It doesnt sound like its very toxic or unsafe.

It says it has a flushing effect of toxins. I'm sure the dose used for the test is small. It doesnt sound too scary to me.

If you do the test keep us posted as to how everything turns out.

I'm going to look more into the DMSO...but not tonight cuz my eyes are tired. My boss called and wants me to go in early.

Man...why did I ever answer the phone. :(

NoGluGirl Contributor

Dear Rachel,

That makes sense with the mercury. There is a lot of stuff that could cause it. I believe the only ways I could have been exposed are from my mother while she carried me, and from eating a lot of tuna. So, if I am tested, do you think that blood work and the urine test would be better to diagnose it? My doctor was going to do the hair sample only. From what you have told me, that would not be in my best interest.

I am glad you might get to help your friend at work! I think you would make a great coach! Hopefully they will keep them! The customers are not going to be very understanding for the most part. No one wants to understand handicapped people. It is such crap! :angry: This is something we can relate to! Having Celiac for me is like that. People down right refuse to understand.

I am with you, Rinne, and Carla on doctors. Many just treat symptoms. They do not actually identify the cause. You cannot heal an illness without identifying its source. I was with a doctor that gave me pills all the time. I could not take it anymore. My system was too fragile. So, since last year, I have been going to a holistic physician who is also a regular MD.

Dear Lisa,

I am so sorry to hear about the pain you are in. :( My body hurts all the time. I get constant charlie horses, and parts of my body go numb off and on all the time. It is no fun. Do you get any of that? The bubble guts are something I relate to all too well. Colustrum could be irritating the Candida.

It tends to reside in the colon. Dairy in any form sets poorly with Candida, because of the natural sugars in it. The lactose feeds the Yeast.

Sincerely,

NoGluGirl

tabasco32 Apprentice

noglugirl

I don't really get charley horses or numbness in my body parts but I do get terrible charley cramps up my rectum that are soooo excrutiatingly painful. i also get a lot of muscle twitching that drives me crazy. It usually happens after I eat. It can be on my shoulder or back or leg.

rachel sorry you had to answer the phone. I know how that is when you can't say no even though you don't want to go early. When I was working before I got sick I would hate that so much. I would say "so much for sleeping in" to myself.

I'm craving jelly beans!! Sugar sugar anykind of sugar. This is tourture isn't it people. And easter is on sunday. My moms making chili beans, bbq chicken and of course lots of candy. uuugghhhhhhhh :angry:

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    1. - trents replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
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      Hidden Gluten in distilled vinegar

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      Hidden Gluten in distilled vinegar

    3. - Mynx replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
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      Hidden Gluten in distilled vinegar

    4. - trents replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
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      Hidden Gluten in distilled vinegar

    5. - Mynx replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
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      Hidden Gluten in distilled vinegar


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    • trents
      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
    • Mynx
      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
    • trents
      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those two sentences seem to contradict one another.
    • Mynx
      It isn't a conjecture. I have gotten glitened from having some distilled white vinegar as a test. When I talked to some of my scientists friends, they confirmed that for a mall percentage of people, distilled white vinegar is a problem. The cross contamination isn't from wheat glue in a cask. While yhe gluten protein is too large to pass through the distillation process, after the distillation process, the vinegar is still cross contaminated. Please don't dismiss or disregard the small group of people who are 100^ gluten intolerant by saying things are conjecture. Just because you haven't done thr research or aren't as sensitive to gluten doesn't mean that everyone is like you. 
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