Jump to content
  • Sign Up

Archived

This topic is now archived and is closed to further replies.

Rachel--24

Omg...i Might Be On To Something

Recommended Posts

It seems bioset could help with clearing pathways for you.

Andrea...most of the BioSET practitioners arent trained for clearing pathways and the more extensive stuff that Anna is doing. I think the pathway stuff is only done by her and a few other practioners...I think they are all here in the Bay Area. From what Anna had told me before it was only like 3 or 4 practitioners doing this type of metabolic treatments.

Share this post


Link to post
Share on other sites

Thanks everyone for the birthday wishes! I spent my whole day in job interviews. It was not the best :lol:. I did have a tasty dinner though and (lots of) really awesome chocolate cake :rolleyes: , so I guess I can't complain. B)

Share this post


Link to post
Share on other sites

Miss M, we all care about you. I just hate that we are in this boat together (all of us). I feel blessed to have you all, as well.

I just got back from another IV and a follow-up doctor's appt. They are adding another abx, to take part time. They hope that I won't have to go on IV abx, which I agreed. She is re-running some of the co-infections testing, because I'm having some extra symptoms lately. They are also re-checking my liver tests, as they are elevated. Im deficient in some other vitamins/minerals so I'm adding another vitamin. She seemed to think that this is all going well, so I was encouraged. I still am having trouble with the Vit C IVs, but they lowered the dose and I can at least tolerate it.

Eric bought me the little bear (its like a beanie baby) that is the Lyme one. They had it in my drs office. He saw it and brought it back to me while I was having my IV. He said he knows I've been having a tough time dealing with this lately so he wanted to cheer me up. It did :)

Share this post


Link to post
Share on other sites
Eric bought me the little bear (its like a beanie baby) that is the Lyme one. They had it in my drs office. He saw it and brought it back to me while I was having my IV. He said he knows I've been having a tough time dealing with this lately so he wanted to cheer me up. It did :)

Glad that cheered you up. :) Sounds cute.

I hope the new abx goes well. Keep us posted on your co-infections and how you are doing.

Share this post


Link to post
Share on other sites
Dr. H has been treating Lyme for 20 years, so even though it's all experimental, I think he's learned a lot in that time. He does have an herbal protocol, but again, it doesn't work when someone's bacterial load is too high. He won't use it on me till I'm doing better. He also won't treat the heavy metals, lead in my case, till I'm doing better.

Each person is different and needs to be handled individually.

We're in Southern Georgia, heading to Atlanta tomorrow. I'll try to check in then.

Yes, very good to have someone who has been involved in the experiment for twenty years. :) It is so interesting to consider how each of us have come to illness, of all of us I would say you are the one who most clearly has worked on her health for the longest so I think in regards to antibiotics you would be someone able to benefit from them and require them. I'm so glad you are having good moments, hopefully that will begin to stretch into wellness each day.

Coming soon: an update on Rachelville's lawsuit against Auxigrow.

Sincerely,

NoGluGirl

:lol: Do tell.....

Rinne

its great to hear you are feeling a bit better!!! Do you feel like the chiropractor is having an effect on the digestion and bowels?

Miamia

Thanks Miamia, I can't see any difference with my digestion or bowels as yet, mostly just an easing of the pain in my back but I have only seen him four times. From the little I understand the idea is that our spinal cords are central to our health, our organs are connected to specific points on the spine so that if there is a subluxation -compression- then depending on where it is different organs would be affected.

I feel ok today besides the pressure on my right and left lower side that still keeps on balloning up in the morning only. I really hate that. I feels as if aliens are going to pop out of their. Still constipated to with bleeding you know what. It is very discouraging to want to eat. I never thought I would be afraid of eating anything. Now I don't even want to eat nothing at all. everything hurts. I also get real bad rectal cramping it hurts bad. I don't believe all this stems from Ibs I don't know.

lisa

Lisa, I am sorry to hear how wretched you are feeling, you sound like me about a year ago. The hunter/gatherer type diet has made a huge difference for me, I know you must have talked about this already but I wondering what your diet is?

Mercury can cause frequent urination. Yeah....it can cause damage anywhere in the body.

About the SeaCure. I took it about a year ago and stopped. I was too sensitive to take supplements. At the time the Dr. I was seeing was focused on leaky gut. I took some stuff like the SeaCure to attempt to heal my intestines.

Nothing he gave me worked and I felt sicker from whatever I tried. Finally that Dr. gave up and referred me to who I'm seeing now.

Bladder problems, I had almost forgotten about those, the day before my period would begin I would have to pee twenty - twenty five times, and generally my bladder was weak but it has improved to the point where I am no longer embarrassed by how may pee breaks I need. :lol: It just occured to me though that I am no longer drinking coffee and that might have something to do with it. <_<

LOL

Yes, I mostly agree with Rinne's statements. You can do the same thing with herbs, too, though. I was taking various herbs for my Lyme symptoms and for a long time I felt good. I was just putting off dealing with the real problem. I didn't know what the real problem was!

Most drugs seem to cover up symptoms. Antibiotics are used improperly way too often. But, antibiotics actually kill bacteria, so they are doing something. There are many infections you need antibiotics for or you will get very ill, maybe even die ... like strep.

That's a good point Carla, just because it is herbal doesn't mean it is safe. Samento overuse can lead to Lyme hiding in the cyst form too.

Hope you are enjoying your holiday. :)

If anyone is interested...tomorrow Oprah will be about Autism.

I plan on watching but I'll be at BioSET....so will have to watch it later.

I also asked about being the "in-store" job coach for the Autistic boy at work. We dont know yet whether or not he will lose the job coaches in June...its still up in the air. Anyways for now....yeah...I'm gonna help out with him. :)

A customer threw a fit at work today because when she approached him for help...instead of pulling out his laminated card....he told her "I'm busy." She was livid about it.....did not care that he is "challenged." :angry:

......

I dont know if this will work but its worth a try. Anyone have any ideas....Alison?? :unsure:

Some customer. :rolleyes:

Perhaps customers would be less annoyed if there were more people on the floor they could communicate with, (call me a frustrated Safeway shopper :P:lol: ) but then there are always customers like the one above.

At our local store there are several employees who are part of the same program and I feel like it is a good thing, I'm sure many people feel it is a good thing, I think it would be better for Safeway to trust that there are enough people who appreciate the effort they are making to include them in the workforce and ignore the complainers. I wonder though about signage and just generally informing the public about the programs Safeway is engaged in, how about advertising, employee of the month.....Safeway is proud to employ a diversity of people......

And back to the bowels, lol...I'm thinking it is one of the supplements I'm taking...that or the :ph34r:peanut butter :ph34r: I've been eating. Or, may it really is just a bug, but I feel fine otherwise. Anyway, I get to test the theories today because I am not taking any supplements today or tomorrow in preparation for ART.

I vote for the peanut butter. I thought you didn't do well with nuts. :unsure:

I'm with Mom on this one :D and besides the last time I ate peanut butter I threw up, bad peanut butter. :lol:

Happy belated birthday Meredith, how great to be 26.

Eric bought me the little bear (its like a beanie baby) that is the Lyme one. They had it in my drs office. He saw it and brought it back to me while I was having my IV. He said he knows I've been having a tough time dealing with this lately so he wanted to cheer me up. It did :)

What a sweetie.

Gosh, step away for two days and look what happens, another monster post. :P

Share this post


Link to post
Share on other sites

ok so today has been a very weird day- it was my last of the antibiotic shots. Its werid but very emotional for some reason. My doctor had been checking into Gherelin for me it is the hormone that controls- gives you- an appetitie- something I am lacking. SO the one doctor who deals with it is the one he has dealt with before He specielizes in kinestheology type stuff. And he does alot of work simililar to homeopathy. He works (like bioset) to desensitize you to allergies and other problems. He has had great results with patients and apparently is very well known and respected. He is not that close to me but its worth the trip. My doctor believes he may really be able to help me. He wants him to test me and work on Ghrelin levels, candida, lyme, and food specifically and than any other problems he discovers obviosly. I feel like this might be a good option for me right now it kind of encompasses alot of what I have been thinking about and I am just preying he can see me soon and that once I meet with him he thinks and I think he can help me. I am so tired now but I wanted to post an update - hopefully I explained things right but my heads on backwards lately so I can't be too sure.

Miamia

And oh by the way I have been having major Peanut Butter cravings- YUMMY peanut butter- why does it have to be so damn evil!!!

Share this post


Link to post
Share on other sites

Laura,

That bear looks cute. :)

Gosh, step away for two days and look what happens, another monster post. :P

Monster posts are good. :P

SO the one doctor who deals with it is the one he has dealt with before He specielizes in kinestheology type stuff. And he does alot of work simililar to homeopathy. He works (like bioset) to desensitize you to allergies and other problems. He has had great results with patients and apparently is very well known and respected. He is not that close to me but its worth the trip. My doctor believes he may really be able to help me. He wants him to test me and work on Ghrelin levels, candida, lyme, and food specifically and than any other problems he discovers obviosly.

This sounds like a very good thing to me.

I hope he can get you in soon too. :)

Share this post


Link to post
Share on other sites

Laura...how sweet of Eric to get you that bear!! :)

I probably would have gotten all teary over it. :rolleyes:

I saw that bear around Xmas time and was gonna get it. I have the hugest Beanie Baby collection ever. :ph34r: I like the bears the best and that bear looks just like a Beanie.

Believe it or not I was one of those people who hunted out EVERY Beanie Baby...during that heinous "Beanie" craze that went on. I spent crazy amounts of money on single Beanie Babies. :huh:

I have alot of them displayed in a curio cabinet at home. Its kind of dorky but it was ALOT of fun hunting for them. :P

I want to get that Lyme bear and also the Autism bear.....they may just be bean bag bears....but they're hecka cute and they represent something so significant to me now. :)

Share this post


Link to post
Share on other sites

Dear tabasco32,

I get twitches in my muscles as well. It sucks. You are just sitting there minding your own business, and the next thing you know, it is like an electrical impulse making your arm twitch. Sorry to hear you have felt rough. Maybe the chelator and lack of food were a problem. I have low blood sugar, so if I get too hungry, I get sick. Bubble guts were a problem for me since yesturday.

Dear Donna,

I would go with the peanut butter! I ate some yesturday, and have been sick. I thought it was probably the combo of the tortilla chips and then eating the PB later. Too much fat! After you have your gallbladder out, any oil does not seem to set well. Either that or it was cc from the Tostitos.

Usually, the reaction to gluten and casein is more violent. Right now I am feeling pretty rough, though.I had some reflux as well I do not normally get. You have Candida right? PB is bad for Candida! The woman at the healthfood store said no more PB for me! If I eat a little, I do not get sick, but I normally over do it. I think I am addicted to it.

You had trouble with your ampulla of Vater, which could be why the diarrhea is there. Do you still have your gallbladder? If not, anything with oil is bad. I can eat nuts and not get sick, but nut butters are a problem. Chips are usually fried and don't set well, either. When I fart, oil comes out or bile (bright yellow liquid I assume it is bile).

It also feels oil when I wipe after having bowel movements. :( I am really concerned about this. Someone on here said they were diagnosed with Post Colecystolic Syndrome. I wonder if that is what is causing the trouble. It is where you body has difficulty adjusting to not having a gallbladder.

Dear Laura,

That was so sweet of Eric! Good luck with your IV! Keep us posted! We are pulling for you!

We hope things improve. Maybe the co-infection will show and you can get some of these other issues resolved.

Dear Mia,

We know what you are dealing with. Family and friends don't have a clue half the time. Some try to be supportive. Then, after a while, they act bored after they have asked you how you are and you tell them. If they do not really want to know, they should not ask! It is called the do not ask, do not tell policy. :lol:

RACHELVILLE AUXIGROW LAWSUIT UPDATE

The militant geese testified on the town's behalf Wednesday, April 4th. It was discovered Auxigrow was attempting to bribe the geese not to testify against them. :( The geese refused, and the judge found out. One of the geese was able to prove the misconduct of the corporation by way of evidence.

The tape was used on a wire tap. :lol: The District Attorney Piper Li Jin, also the official Rachelville purple glittery bat care taker and owner of the Silver Dragon restaurant, attacked the lying CEO. He claimed that it was against company ethics to bribe witnesses, but that was quickly dismissed once the tape was played. The jury members, who included 3 geese, were very offended. Two purple glittery bats also made up some of the jury, which proceeded to drop berry scented glittery pink poo on the defense attorney (who deserved it). :P The remainder of the jury were people. They were disgusted by the Auxigrow bribery attempt, and the town of Rachelville was awarded $223.5 Million, as well as Auxigro being forced to contribute an additional sum of $22.8 Million to provide groceries from Whole Foods for all residents for one year, and medical coverage. :)

Sincerely,

NoGluGirl

Share this post


Link to post
Share on other sites
And oh by the way I have been having major Peanut Butter cravings- YUMMY peanut butter- why does it have to be so damn evil!!!

Yeah...maybe Rachelville should be peanut butter-free... :unsure: ..or maybe (a better idea) we have peanuts that dont attract mold...so yeah...we can have PB and Jelly sandwiches as often and as freely as we want. The gluten-free bread is soft like Wonderbread....it doesnt crumble when handled or anything like that. :D

Mia....thanks for the update.

I'm so glad that you're going to see this new Dr. Hopefully he can help out with the digestive issues and also work on the Lyme and Candida for you. Maybe he'll be able to figure out more pieces to the puzzle for you. A new Dr. is a new perspective on things....I'm excited for you. Cant wait to hear how things go. :)

Share this post


Link to post
Share on other sites
Thanks everyone for the birthday wishes! I spent my whole day in job interviews. It was not the best :lol:. I did have a tasty dinner though and (lots of) really awesome chocolate cake :rolleyes: , so I guess I can't complain. B)

Mango....a tasty dinner and excessive amount of CHOLCOLATE CAKE sounds like a dream....I wouldnt complain about about that either. :P

Sucks about having to go to a bunch of job interviews though....maybe you can celebrate this weekend with more fun stuff. :)

Share this post


Link to post
Share on other sites
I wonder though about signage and just generally informing the public about the programs Safeway is engaged in, how about advertising, employee of the month.....Safeway is proud to employ a diversity of people......

Rinne...thats a very good idea. :)

As an employee...I dont even know about any program?? :unsure:

Maybe I missed it when I was on disability.....I came back to work and since then most of our baggers have been challenged in some way. I think its great....but at the same time I was confused.

All this time I thought it was just something we were doing at our store...because the person doing the hiring was choosing to give these kids an opportunity.

Apparantly it must be company wide though. I'll have to ask my friend who's higher up in the company to find out more about this program....and why noone is really informed about it. :huh:

oh yeah...and I love that you are monster-posting again. :)

now maybe mine wont stick out so bad. :P

Share this post


Link to post
Share on other sites

Andrea and Patti....

I would love to show all my pictures of Ceasar. :D

I have pictures of other pets too.....Ceasar isnt an only child. :) I also have a dog, a bird and a turtle. I used to have more of a zoo...but the other pets didnt have as long life spans. I've had rabbits, ferrets and reptiles. Also...another dog who is now living with my ex.

I wanna put up links to my pets....but dont know how. :unsure:

I did it once a long time ago to show pics of the scrapbooking room I built....but I dont recall how I did it. :ph34r:

I had bioset last night...will post about it later. I watched Oprah with my mom last night. Overall...I thought it was a good show about Autism. Apparantly its Autism awareness month.....hence all the coverage on TV. :)

I was totally shocked that they even briefly touched on some of the possible causes. Oprah gets big-time points for that! :D

They even brought up the vaccinations...you could feel the tension in the air but it was apparantly discussed prior to the show and Oprah allowed them bring it up. I guess one of the guests (a mother) had said it would make her crazy to appear on the show and not mention it at all...I dont blame her and I'm glad she took the initiative...and that the Oprah show gave her that opportunity. :)

Share this post


Link to post
Share on other sites

Rachel--

If you can ever remember how to do it, I'd love to see your lil' critters! I do remember your scrapbooking room--it was fantastic!

I saw Oprah yesterday, and also thought they did a good job. When they touched on the causes, I sort of held my breath, waiting for more! I guess there's only so far they will go on a national show like that.

It's a good start, though, and will lead to more people looking further into it. Which is good :)

Interesting that we all seem to have issues with peanut butter. :unsure:

Share this post


Link to post
Share on other sites
Donna...arent you sensitive to molds??? I thought you were??

...

I think it could be the mold....you obviously dont get as severe a reaction as I get.....but I would think you would still get some "issues" from it.

Yes, I'm sensitive to molds. :ph34r: Also actually allergic to them on every allergy test I've ever had, both conventional and "alternative". Yep, I get issues. :ph34r: I do stupid stuff like this from time to time...I'm so addicted to peanut butter. I am not going to buy any more.

My face and tongue starts getting "prickly" feelings when I eat something moldy....so I pretty much know my "mold reaction" now. I can officially "detect" mold with one small sample. YAY for me...."Rachel...the official "Mold Buster". :rolleyes:

I sort of wish my reactions were immediate. Mine are stealthy and sometimes take days to show themselves. Not only does that make it hard to tell for sure what caused what, but it also does something to my mind which says you can eat a little of that and be okay.... stupid for sure. :lol:

Thanks everyone for the birthday wishes! I spent my whole day in job interviews. It was not the best :lol:. I did have a tasty dinner though and (lots of) really awesome chocolate cake :rolleyes: , so I guess I can't complain. B)

I'm so sorry I missed your birthday...HAPPY BELATED BIRTHDAY!!!

Eric bought me the little bear (its like a beanie baby) that is the Lyme one. They had it in my drs office. He saw it and brought it back to me while I was having my IV. He said he knows I've been having a tough time dealing with this lately so he wanted to cheer me up. It did :)

OMGosh, that is the cutest little bear...what a sweet guy he is!!!

ok so today has been a very weird day- it was my last of the antibiotic shots. Its werid but very emotional for some reason. My doctor had been checking into Gherelin for me it is the hormone that controls- gives you- an appetitie- something I am lacking. SO the one doctor who deals with it is the one he has dealt with before He specielizes in kinestheology type stuff. And he does alot of work simililar to homeopathy. He works (like bioset) to desensitize you to allergies and other problems. He has had great results with patients and apparently is very well known and respected. He is not that close to me but its worth the trip. My doctor believes he may really be able to help me. He wants him to test me and work on Ghrelin levels, candida, lyme, and food specifically and than any other problems he discovers obviosly. I feel like this might be a good option for me right now it kind of encompasses alot of what I have been thinking about and I am just preying he can see me soon and that once I meet with him he thinks and I think he can help me. I am so tired now but I wanted to post an update - hopefully I explained things right but my heads on backwards lately so I can't be too sure.

Miamia

And oh by the way I have been having major Peanut Butter cravings- YUMMY peanut butter- why does it have to be so damn evil!!!

Evil peanut butter!! Wow, the rest of your post sounds every encouraging to me! I hope he can get you in quickly.

I saw that bear around Xmas time and was gonna get it. I have the hugest Beanie Baby collection ever. :ph34r: I like the bears the best and that bear looks just like a Beanie.

Believe it or not I was one of those people who hunted out EVERY Beanie Baby...during that heinous "Beanie" craze that went on. I spent crazy amounts of money on single Beanie Babies. :huh:

I have alot of them displayed in a curio cabinet at home. Its kind of dorky but it was ALOT of fun hunting for them. :P

I didn't collect many, but have a few...I mostly have the ones from McDonalds...or did I give those away, lol. If I still have them somewhere and you and I ever meet in person, they are yours. :lol:

You have Candida right? PB is bad for Candida! The woman at the healthfood store said no more PB for me! If I eat a little, I do not get sick, but I normally over do it. I think I am addicted to it.

Yes, I have candida. :ph34r: I know in my head it's bad for me but keep thinking I can eat just a little...but I am just a rachel in training with my food. I tend to rachel things just as much if not more than Rachel rachels stuff. :lol:

You had trouble with your ampulla of Vater, which could be why the diarrhea is there. Do you still have your gallbladder?

Yes, and we never did find out exactly why the ampulla was enlarged...doctor thought it was from inflammation, but what caused the inflammation is a mystery...food intolerances? Who knows. I had three endoscopes last year...the first one was just a routine scope to check for damage in the upper GI area, but they found the enlarged ampulla but couldn't get to it for a biopsy. The second scope was with better equipment so they could get the biopsy--that was reviewed by three pathologists who couldn't agree whether the cells were precancerous or not. The third was for another biopsy after they had me on Zantac for 2-3 months to see if the inflammation was the culprit. The ampulla was still enlarged, but apparently the cells looked more normal (or they still couldn't decide cuz he never let me see the report), so my GI sent me home and said not to worry about it unless I felt bad. I do still have my gallbladder.

:lol: Augigrow lawsuit :lol:

Yeah...maybe Rachelville should be peanut butter-free... :unsure: ..or maybe (a better idea) we have peanuts that dont attract mold...so yeah...we can have PB and Jelly sandwiches as often and as freely as we want. The gluten-free bread is soft like Wonderbread....it doesnt crumble when handled or anything like that. :D

I want to move to Rachelville now. :lol:

Share this post


Link to post
Share on other sites

About 16 years ago I went on a rotation diet during what I know now was a Lyme flare-up. I was really sick like I am now (this was when I had my amalgams removed and went on an anti-candida diet). I discovered then that peanut butter and fruit juice caused fatigue for me, but only if I ate them more than one day in a row. I'm okay having either a couple times per week. I've gotten so used to almond butter, which doesn't affect me at all, that I like it better than peanut butter now. Interestingly, that was the ONLY food sensitivity that showed up at that time.

Laura, that's good news that you're progressing through treatment. What new antibiotic are they starting you on? Don't let them start you on doxy this time of year! My hands got very sunburned through the car window with #35 sunscreen on! :o

Lisa, keep us posted. That is what I took, DMPS, but I took four pills. The six hour collection is fun! <_<

Hello to everyone! We're home, but we're still on vacation ... we're going downtown to the Children's Museum today. I'm doing pretty well, the only symptoms I'm having right now are from the babesia -- heart palpitations, shortness of breath, loss of appetite (Adam's trying to stay on top of that one). Fatigue is bothering me, but nothing like normal. Occasional vertigo -- sometimes it gets bad and I need help walking so I don't fall over.

I've been thinking about our discussion of natural vs. antibiotics for Lyme. Since I've kept it in check for years naturally, I do believe it can be done, but once it's too bad, the antibiotics are needed. Plus, I did it without even knowing it was Lyme. If I had known, I think I'd have been able to avoid getting sick from it again.

The thing I notice about the people not getting better on Lymenet is that they aren't always consistent ... I think that when you do decided to go the antibiotic route, you need to follow it through till the end to avoid bacterial/protozoal resistance.

One lady was mentioning that she followed Dr. H's recommendations for two years, that was enough so she's not doing it anymore. He IS a holistic doctor, and she complained about all the supplements he recommends and the cost of them. She is doing some natural stuff, but I know Dr. H was upfront with me and said it would take at least a year or two. The way he added "two" made it sound like he really thought it'd be at least two years. That's what I'm talking about. I think you need to be dedicated to whatever you are doing because this bacteria is dedicated to surviving.

Also, my doctor says at the end he'll be working on building my immune system, which he's actually already doing. Over 2/3 of the pills I take in a day are for detoxing. If you don't rebuild the immune system, there's no way you'll keep the bacterial load low after antibiotics, at least that's how it seems to me. If you don't stick to treatment till the end, you don't work on this part.

It's just really interesting that almost all of us here have the same combination of issues, but with differing symptoms and differing treatment. It's easy to see why one thing doesn't work for everyone. Lyme, mercury, candida, are all very complicated, especially with two or more together.

Share this post


Link to post
Share on other sites
The thing I notice about the people not getting better on Lymenet is that they aren't always consistent ... I think that when you do decided to go the antibiotic route, you need to follow it through till the end to avoid bacterial/protozoal resistance.

Welcome back! :D

I agree that you would need to be consistant with the antibiotics--once started, finish right to the end. ;)

Share this post


Link to post
Share on other sites
I saw Oprah yesterday, and also thought they did a good job. When they touched on the causes, I sort of held my breath, waiting for more! I guess there's only so far they will go on a national show like that.

I unfortunately only caught the last fifteeen minutes of Oprah yesterday. I had been wanting to see that episode but I forgot...darn. I saw the part when the woman stated her opinion on vaccines. I thought she stated her case very well in the couple sentences they let her say. It looked like the pediatrician lady was not happy that that was brought up. What else did they say about causes?

Share this post


Link to post
Share on other sites
I've been thinking about our discussion of natural vs. antibiotics for Lyme.

Carla..me too. :P

I agree that we all pretty much have the same combination of things but yet they present themselves so differently in each of us.

The treatments vary from person to person...I think this is a good thing. First, obviously we are all different and it wouldnt be realistic to think everyone could recover under the same protocol. Second...we get to learn about other treatment options and different methods for healing....by sharing our experiences.

Since I'm not on antibiotics....when reading on LymeNET I tend to focus on the posts that pertain more to my own treatment....things like ART and also the stuff about mercury.

Holy Cow....There is alot of fighting that goes on over there...over the varying treatment options!! :blink:

I enjoy reading the posts though....so many very intelligent people to learn from. :)

I guess my thinking is along the same line as Scott's and Gigi's (dont know if you've seen any of her posts??). Its probably because we tend to research the same stuff....same doctors, etc. They both use ART and since theres not a ton of people doing this (although I do notice more people posting about it)...I really enjoy reading about their experiences.

This is what I read a couple days ago and its been on my mind alot. Examples of how the effects of various neurotoxins pile up on each other. In this case..the discussion is about mold. It was from some of the stuff discussed at the Autism seminar last weekend.

Thesis: in the presence of Mercury toxicity, even smallest amounts of other toxins are the last straw that broke the camels back, not the primary cause.

This was posted by Scott..

Mold and Lyme both add stress to the body. Someone could have Lyme and not have significant symptoms and then move into a moldy home and hit the limit of what the body can handle and you then become ill.

It sounds to me that part of the solution to your health issues is likely GET OUT of the moldy home. Unfortunately, my experience working with people seems almost that people are drawn to the things that make them ill and with moldy homes, they don't want to leave for some reason....and as a result, they will often never get well.

Our house is a former meth lab and the insulation in the attic is black with mold. We also have 2 other places with mold.

7 out of 8 have become sick this past year...all 7 diagnosed with Lyme. We've only been in our house a year. Coincidental??

Molds are spore forming organisms. The spores hatch in the human body, often in the nasal passages, and release potent neurotoxins.

Neurotoxins destroy the ability of the nervous system to both develop and function normally.

Neurotoxins are often also immunotoxins and alter or suppress functions of our immune system.

Some neurotoxins are also carcinogens.

Mold grows in moist areas of the house. The spores spread from there to other parts of the house and are impossible to remove completely.

This is input from people who really see and treat only very sick people. In almost ten years, I myself have yet to meet or hear about one patient who only suffers because of Lyme. That person I do not think exists. It is very apparent that only a multiple "attack" brings success.

This is basically how I see it as well...all other neurotoxins have to be taken into consideration when fighting Lyme. I think this is a key reason why people live many years....or possibly a life-time not getting sick from Lyme. Some people just never get hit hard enough with neurotoxin exposure.

When I think about Autism. These kids are definately getting hit hard...in some cases the vaccines do it....in other cases living in a moldy home...in other cases another environmental toxin pushes them over the line. It doesnt surprise me at all that over 90% are testing positive for Lyme.

You cant just detox these kids and ignore Lyme. You cant just treat Lyme and ignore mercury. You cant continue living in a moldy home if you are in this type of situation. You cant continue to consume MSG, pesticides, red dye 40, preservatives, etc...and expect to recover swiftly. All these things pile up onto each other.

I very much think this is something which requires attention in alot of areas.....the "multiple attack"...is the way I think people will get the best results.

I do think its possible to get somewhat better just addressing one issue...but to FULLY recover and to do it faster...other things should be addressed alongside whatever the "main" issue is. This is the approach I wanna take. I guess to do it..... I cant be leaving Lyme in the closet forever (like I wanted to). :ph34r:

Anyways...it makes the best sense to me. I think Autism can be much more effectively treated with this "multiple attack" approach....you cant single out candida.....you cant single out Lyme...etc. I also think the same thing applies to my own issues.

I totally agree about being committed to your treatment plan...whether its antibiotics or natural stuff. Pesonally I'm in agreement with Scott on this as well....a combination of conventional and integrative methods is the best way to go. They both have something to offer.

There are alot of people who are just taking antibiotics for Lyme...and thats it....nothing but antibiotics for years. I think this is a mistake...its hard on the immune system....its hard on the digestive system....and its not addressing other issues which may be critical to recovery.

I think we are pretty much on the same page Carla....we're just starting out on opposite ends. :)

Share this post


Link to post
Share on other sites
Interesting that we all seem to have issues with peanut butter. :unsure:

I think its because most of us here are sensitive to mold....and then peanut butter is loaded with it...and the mold most commonly found in peanut butter also happens to be a carcinogenic mold.

It sucks that peanut butter is soooo darn good...and yet so BAD for us. :angry:

And yeah....we all seem to crave peanut butter as well. :unsure:

Share this post


Link to post
Share on other sites

So I toke the test yesterday and waiting for the pickup. The pill I took was DMPS not DMSO. I believe they use that for instills in bladders. Something they instill in my bladder everyweek. So nothing, no reaction no bubble guts or anything. Isn't something suppose to happen if it is mercury toxicity? I did experience a horrible stomachache after dinner but I ate like a pig which I never do. It did affect my bladder a bit but that's about it. I have been taking the colustrum again and no bubble guts from that anymore. Sometime I wonder if it was the okra I was eating in large amounts everyday. Ever since I stopped eating okra my guts have seemed to settle. Still have that chemicals sensitivity though. I cut out all grains as well. So that's it. I sometimes also wonder if I got sick due to the extreme mold exposure at my last apartment. There was all kinds of mold in the tile. The tile looked black and stuff. Oh well we will see how this test goes instead of guessing. Hope it was worth it.

lisa

Share this post


Link to post
Share on other sites
a combination of conventional and integrative methods is the best way to go. They both have something to offer.

There are alot of people who are just taking antibiotics for Lyme...and thats it....nothing but antibiotics for years. I think this is a mistake...its hard on the immune system....its hard on the digestive system....and its not addressing other issues which may be critical to recovery.

I think we are pretty much on the same page Carla....we're just starting out on opposite ends. :)

Yep, I think we are. :) I think a combination is essential in treatment. I don't know how you can take all those antibiotics and not be building the immune system at the same time! I don't even know that we are starting on opposite ends ... I started out with mercury and candida because I didn't even know I had Lyme. When I got sick again, the first thing I did was get on the anti-candida diet VERY strictly.

Share this post


Link to post
Share on other sites

Thanks for the update Lisa.

We'll be waiting along with you for the results. :)

Share this post


Link to post
Share on other sites
It looked like the pediatrician lady was not happy that that was brought up. What else did they say about causes?

My mom and I were both trying to figure out the Dr's "real" feelings about the vaccines. Oprah is the one who started asking about causes and she directed her question to the Dr.

Also...the Dr. is a mom of two Autistic boys.....so not just some "clueless" Dr. not really familiar with Autism. I'm sure shes done her homework.

Anyways the Dr. said we dont really know the triggers...there are genes involved...and environmental triggers are suspected but nothing is certain. She mentioned infections and a couple other things (cant remember anything past infections :rolleyes: ).

She didnt mention vaccines....so Oprah did. To me the Dr. looked like a deer caught in headlights and she stumbled for a second before answering. She said that its controversial...that the medical community has ruled out vaccinations as being involved in Autism.

I got the feeling that she didnt *want* to say this...I could be wrong but I felt like she was trapped...being in the medical profession and on national television...and confronted with this highly controversial topic. It seemed that she was giving the "standard" reply given by the medical community...but her true feelings might be different??

She definately did not look comfortable or confident about what she was saying.

After that is when the other lady sort of bursted about her feelings on the vacs. I thought that maybe the Dr. looked more at peace after that?? They kept putting the camera on her as the other woman talked. I thought maybe she was happy that it was coming out.....and relieved that she wasnt the one saying it.

I dont know though....we just figured having two Autistic children and having been "let down" by the medical community as far as diagnosing early....she would not be backing them 100% on this issue.

It was a familiar story....all of the parents experienced the same type of treatment from doctors as we all have. :angry:

The lady brought up the immune system stuff...the food intolerance and all the sensitivities involved...but yeah...it was over in the blink of an eye. There was not alot of time given to this....but I'm not complaining since I wasnt expecting even that much. I was shocked!! :o

Share this post


Link to post
Share on other sites
Guest
This topic is now closed to further replies.

×
×
  • Create New...