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Rachel--24

Omg...i Might Be On To Something

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I know the dentist did not use mercury on top of the crown but it looks like amalgam now.

Wow, that doesn't sound good, lol. Maybe it's just staining?? :unsure: And, wow, glad you made enough from the horses to do some of these things! I'm still so sorry you had to do that though. I really need to sell some of my exercise videos on eBay I think. I might be able to pay for my Igenix testing, lol.

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I haven't heard very good things about gold either. :( But, as you said, it's a major stressor you got taken care of.

Not only that...but Dr. Adams said that even porcelain has some metal in it. :(

OK, now I'm wondering about the injection treatment your getting (sorry, forget the name). Seems to me that that won't do a thing for the lyme and it seems likely that the pain would be from that or the co-infections. I could be wrong though.....just thinking out loud. :unsure:

This has crossed my mind more than once. And, in the beginning of my treatment with HN I mentioned that I thought the neck pain was related to something like TMJ, lyme, or mercury poisoning. I don't think they heard that part. :lol: The injections DO seem to be helping my range of motion from side to side. I can move my head farther from side to side without pain than I could a few weeks ago.

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Not only that...but Dr. Adams said that even porcelain has some metal in it. :(

We can't win for losing can we? It's better than amalgams though and the amalgams are what have caused the tooth destruction. :angry:

I don't think they heard that part. :lol:

Why does this not surprise me. <_< I'm glad you've seen some improvement though. :)

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Dear Rachel,

I love my little Chevy Cavalier! The Groovy Ruby Mobile! :P It is getting old now, so I do not know how much longer it will last. I hope a while. The original vehicle I wanted was a Chevy Tahoe, but it was too expensive. :( My dream car would be a Chrystler Concord, gold convertible. It was beautiful! They started at $22,000 though.

Yay! Progress! Eat some caramel drizzled ice cream for me!

Dear Donna,

OMG! I am so glad they are finally getting to the bottom of this with you! It sucks about the Lyme and Babs. I may have those. It is hard to say. My adrenals are another possibility along with my Thyroid being messed up again. The sleep issues are something I have had for years. I know it is hormone related somehow.

I cannot believe it! Your rachelizing a jar of peanut butter in five days is the same as me! OMG! We need to go to peanut butter rehab! And there is not one! Now what do we do? :o

I am glad you do not get the stomach pain. Sorry to hear about your upper body pain. Shoulders and neck hurting can really make things difficult. I get that some as well. TMJ and Fibro really irritate a lot things!

Dear Mango,

I am so glad your birthday was so great! ;) That raspberry sauce sounds delicious! A Whole Foods gift certificate is a great gift! There are some great things over there! I wish we had one here! The closest to us is in Louisville!

Dear moonlight,

OMG! Seriously? There is gluten in paper towels, paper plates, and cups? Are there any that are safe? This is freaking me out! I knew that the adhesive at the end of rolls are not safe. I thought the rest was okay. What should I do?

Dear Carla,

Happy early birthday! Enjoy the chili and the ice cream with caramel sauce! I treated myself to a dark chocolate candy bar tonight. It was nice! I am going to see over the next few days if I do okay. There is some dairy in it, but normally if I eat it in chocolate or certain other things, it does not hurt me. I wonder why. Baked goods do not irritate my stomach with it, but pudding does. Any thoughts?

Sincerely,

NoGluGirl

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Well, are ya sitt'n down...cuz you aren't going to believe this, lol. :lol:

LYME!

He found LYME!!! The main one plus a couple of co-infections.

Wow Donna! :o

Well....this was actually something that has run through my mind quite a few times...for some reason I kept thinking it might show up in ART. :unsure:

Sooo...even though its not a total shock...it still is....cuz I sort of felt like I got punched in the stomach when I read that. :blink:

I remember Scott telling me that he has yet to test someone who is chronically sick....without Lyme being part of the problem. I was the first one he had tested where he couldnt pick it up....so yeah....he is very thorough...I'm sure you can imagine how many times he was testing me trying to get something to show up. :lol:

Even at the end...when I was sitting up and we were just talking....he didnt want to give up...so he grabbed the Lyme Disease Bioset vial and tried it that way...but no...I guess Lyme was just really not ready to identify itself that day. :rolleyes:

He had said that the body reveals things in layers...so just because Lyme didnt show up for me...didnt rule it out. Obviously....it did show up in my next session. Dr. Amy felt certain it was due to my 2 weeks on NDF prior to my visit with her.

I'm thinking that since I've been doing nothing to treat candida and have been eating ice cream steadily for several months now... :ph34r: (as long as I've been going to Bioset...this has been my diet)....fungus shows up very strongly. I was also eating popcorn all this time as well. :rolleyes:

I think ART prioritizes the issues....not necessarily showing everything in exact order of significance....but rather identifying the biggest stressors on the body at the time of testing.

This can change with treatment...I think this would be why some people find out more as they continue with ART and as they treat the stressors...the "hidden" layers will begin to reveal themselves.

I would not be surprised if I had more than just Babs as far as co-infections....but even the Lyme and Babs werent presenting themselves strongly...in comparison to the fungus and metals.

Now that I'm getting a better understanding it seems that my body is sending very strong signals with regards to fungus.....because there is plenty of it...and yeah...its presence has to be putting alot of extra stress on my body. In your case you have been addressing it....I think this would make it alot easier for ART to identify Lyme and co-infections...without a lot of extra stress from the candida.

It makes me wonder how I would have ART tested back when I was very strictly doing anti-candida diet and treatment. Maybe Lyme would have showed up very strongly at that time. :unsure:

I think the amount of stressors you have...creates more and more layers...so basically the ones which are creating the biggest stress on your body are going to show up the strongest in ART and you address them in the order that they show up.

At the same time you keep control over the things that show up as weaker stressors. In my case...Lyme. In your case candida and metals.

The more I think about it the more I realize that Lyme (even if not my biggest stressor at this moment) ....has great significance in the overall picture. I think as well as being "The Great Imitator".....it is also "The Great Instigator".

I'm thinking it is alot to do with the bodies ability to handle all "incoming" neurotoxins. Whether or not our symptoms get set off by living in a moldy environment, or mercury exposure from the dentist, or a diet of processed foods, or mercury from vaccination or flu shots, or toxins from any other source....the one common demonitator seems to be Lyme. <_<

I think because Lyme is a neurotoxin and it becomes embedded deep within our tissue....it stresses the immune system....it triggers autoimmunity...and it makes us extremely vulnerable to other nuerotoxins...especially mercury.

I think if you have Lyme and get a good dose of mercury (from any source)...you will become symptomatic. Likewise...if you are mercury toxic and are exposed to Lyme...you will become symptomatic.

It seems like all of the evidence clearly shows that Mercury and Lyme together wreak havoc. They have some kind of affinity for one another...it seems that the two together create a level of toxicity that is far greater than if you were to only have one or the other. The body just cannot handle the presence of these two neurotoxins.

In the case of Autism...I dont think any study will ever truelly identify mercury as the *cause* of Autism. I know this is upsetting to alot of parents who watched their kids regress into Autism right after their vaccinations. I have no doubt that the incidence of Autism would decline without thimersol in the vacs...there is no doubt.

However, the problem is this...it wont prove mercury as the *cause*....because I believe the rate of Autism would still be high....even if mercury is removed from all vacs. The majority of these kids are born with Lyme...in most cases the mother is asymptomatic. Because of this exposure to a neurotoxin at such a vulnerable age...the susceptibility to other neurotoxins is high....and the impact would be great.

Even with mercury out of the picture...I think alot of kids would still regress from exposure to other neurotoxins. The amount in food alone is higher than it ever was...the environment is far more toxic than it ever was...I think this is alot to do with the rapid climb in Autism and also the "conditions" which are all so prevelant now...CFS, MCS, Fibro, IBS, TMJ, etc.

A moldy house would do it for sure. This is why I dont believe there will ever be clear evidence showing mercury in vacs as a *direct* cause in Autism. It sucks...but I just dont think that the mainstream will address it until *all* of the pieces of the puzzle come together.

Okay...my mind is clearly "busy" tonight. :huh:

Back to ART...

Donna...I really think Lyme showed up strongly because you've been addressing other things. You've been doing this before you got to the point that I'm at. This is really a huge bonus for you...to be identifying these things before you get to a state of MCS or severe food intolerance.

Its much easier for you to get started on appropriate treatment since you are still able to tolerate many things that I would not be able to handle. You've already addressed some of the very critical issues which could hinder your recovery. The amalgams is huge...I'm so glad you have that out of the way. :)

I guess hearing that this showed up today just sort of cements in my mind the significance of Lyme contributing to chronic illness in this country. When you hear the numbers from an LLMD...the numbers are staggering...to the point where its almost unbelievable....but then....here we all are. :unsure:

About the Babesia...I think its almost a given with Lyme. Its the most common co-infection. Someone on LymeNet had asked what the percentage is of people with Lyme also having Babs.

I think it was Scott who answered and said he "believed" it to be as high as 70%.

Someone else felt that 70% is probably a little conservative considering false negatives in testing, etc.

So yeah...babesia is really really common with Lyme.

By-the-way Rachel...his friend has lyme too, so maybe Amy let Scott do the testing for more experience. :unsure:

Yeah...his friend does have Lyme but my "logic" was that maybe he is more healthy than Scott?? :unsure:

Last time I saw Scott...he had said he is probably about 90% better than what he was 2 years ago...so I thought maybe his friend was maybe 95% better. :P

I'm pretty sure that when working with Amy....it is always her arm which is tested....she is in the position that Scotts friend was in today.

The difference is that Amy is not only the one who is physically connected to the patient....but she is also the one doing all of the testing. Scott does nothing other than test the strength/weakness of her arm.

You could be right but I think it would be more practice for him to be doing the actual testing.

Anyway, Scott said it would be interesting to see Western Blots and a C D-57 for me and asked if I planned to see a lyme doctor or was going to do it all with Anna, and I said I would probably want an MD as well, so I may see Dr. S afterall. He said he expected the Western Blot would not be positive, but that it would be interesting to see the specific bands.

Scott is really gung-ho about the C D-57....he loves that test. :lol:

The test basically would be very low in someone who is sick. Kind of like a person with AIDS having low T-cells.

Its similar but the number "might" indicate the severity of Lyme...and it generally goes up as you treat Lyme and other infections.

In his study of 89 chronic Lyme patients over a year, he found that patients with chronic Lyme disease and very low CD57 NK levels have significantly more coinfections, delayed diagnosis, more neurologic disease and persistent immunologic defects, compared to patients with higher CD57 NK levels

So when I talked to Dr. Harris at Igenix about C D-57 he said its not diagnostic for Lyme (Igenix doesnt run this test for that reason). He said the C D-57 count can be low due to other causes of illness. At this time there is no "scientific" evidence linking C D-57 to Lyme. However, people use this test to monitor their treatment...as they get better the numbers do seem to rise.

I guess it cant be used to diagnose Lyme specifically though. Thats why I didnt get the test...but I may get it later on. I'm sure my number is low...but it would be interesting to know for sure. If the test isnt too expensive I might want to get it done sooner. I meant to ask him about it.

Anyways...the BIG question is...How do you feel about this??

I know you werent totally comfortable with it not showing up in BioSET and wanted to go through the panel again. Did you feel a gut feeling that it was something you werent ready to dismiss yet...despite Anna's results??

Were you shocked that it showed up today?? :o

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No special plans. We'll probably go out for some Skyline Chili (it's a Cincinnati thing, you just wouldn't understand :lol: ). The ice cream is the big plan!

You're right....I dont understand the chili thing. :huh:

However....ICE CREAM....thats something I definately can relate to. :lol:

I bought a bunch of in-between stuff. A lot of stuff. :P

Good for you! Buying clothes is almost like "therapeutic" for me. :lol:

But, gummis, jelly beans, starburts, sweet tarts, basically anthing fruity, never did anything for me.

OMG...love the fruity stuff....especially gummis...which are really bad for me now. :angry: Lots of junk in gummis. :(

Sunflower seeds are all my all-time favorite. Noone ever saw me go anywhere without a bag of sunflower seeds. I feel so "robbed" now that I havent been able to eat them for the past 4 years....it sucks big-time. :(

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www.FibroFix.com is the all-free site I host that describes this method. I'm not a medical professional, just someone who went down the road ahead of you and found a way to tame the beast.

(She advocates taking Entex LA, which is Guai with a decongestant like noglu mentioned, with addtional guai, avoiding overly acidic foods, taking TUMS, and a SSRI. According to her theory a neutral or correct pH creates the necessary climate for the lymphatic system to drain correctly, A mucolytic expectorates mucus and a decongestant restricts cappalries and blood vessles so serious fuild can stay thin and flow properly. This way pain and pressure is eliminated.) There is no need to eliminate salyicilate foods, or take Mucinex, she claims that Entex LA is what works best and explains why on her website.

I read the link and everything you've posted. To me it seems like she is treating a symptom of disease...by not aggravating it with acidic foods and taking meds to reduce symptoms. The underlying problem is actually still there...as normal healthy people do not get this type of imflammation simply from eating.

There are many different combos of meds which people use to control Fibro. symtpoms. Also diet changes do make a difference. It sounds like she has found an effective way of reducing her symptoms but she is not "cured" as she must stay on the meds to control the symptoms??

Thats the way I understood her article. I'm pretty sure everyone's well aware of my thoughts on Fibro....so I'll spare everyone another "tangent" about that. ;)

I believe what shes saying could be true...and that she has identified the secretion of the body which is the mechanism behind the imflammation we feel. I wont dispute any of what she's saying since I have not researched this myself. It does sound like her theory isnt well accepted though. <_<

Of course we all know this doesnt mean much when we're talking about Western Medicine. :rolleyes:

I hope you get good results from this type of treatment. :)

For my own situation I'm trying to avoid medications as a treatment for symptoms. I'm hoping to effectively address the underlying issues which are causing imflammation to begin with.

Basically Fibro is imflammation within the body which leads to pain....for which there is no "known cause".

There is always a cause....its just a matter of identifying it.

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I'm lucky to have lots of people who are supportive of my food weirdnesses B)

Yup...I agree...its always nice when there are people who can love us despite the food weirdesses. :lol::lol:

The ones who SUPPORT our food weirdnesses by cooking and baking stuff without the offending ingredients...well those people are extra special. :)

Good luck to the person who might ever attempt to make me something totally free of offensive stuff. :P

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As to monster posting, you are Rachel of Rachelville, the mistress of racheling. :P:lol:

LOL...yeah...and I seem to be on a roll tonight. :lol::lol:

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He said he expected the Western Blot would not be positive, but that it would be interesting to see the specific bands.

Why doesnt he think you'll test positive?? Did he say?

Since you are in alot better shape then some of us you could probably get away with doing an antibiotic challenge. If you see Dr. S you can discuss all that with him.

I guess he's not familiar with ART though....cuz last time I mentioned it to him...he said he didnt know what it was. :huh:

Now that I've seen Dr. Amy....I'm gonna bring it up again. If he doesnt know what ART is...he will now!! :lol:

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He mentioned something called Transfer Factor to help with the lyme and when he added that to my supplement base, it seemed to take care of the lyme.

Donna....I took Transfer Factor for about 2 months last year. It was right before I started this thread. It really helps the immune system. Its got dairy though....its taken from cow colostrum. I dont know if that would affect you or not??

I dont know if it helped me or not since I wasn't doing well back then....I was taking other stuff along with the TF. I think the TF actually was ok for me...it was the stuff I added in that made me sicker.

This was all while I was going to HN....stuff that Dr. Rick gave me. He LOVES Transfer Factor...I'm surprised he didnt have you try it.

I was also on Florastor for a few weeks. He had me on it during and after taking antibiotics (metronidazole)for C.Diff. He had me on the other probiotic as well...I think it was HCL??

Anyways...I dont think my body liked Florastor at all. :blink: Unless I was having some kind of major healing crisis.... Florastor is not my friend. <_<

Maybe because I'm so sensitive to fungus...I'm not sure but Florastor is a type of yeast. Its suppossed to be very good....it "eats" bad stuff. Its seems to really help with getting C. Diff under control for some people.

I have everything written in my journals and I had severe constipation and alot of other problems until the day I got off the Florastor...then I finally started having BM's again. So yeah...Florastor is not my friend. :ph34r:

He liked all my supplements except for 3...all of which I bought on my own at Whole Foods...they just didn't test well, and interestingly, none of them tested really well with Anna either. One other (from Anna) he said wasn't actually adding anything, but it wasn't hurting, so it was optional if I wanted to continue with it.

I brought one supplement I had randomly picked from WF....it was some herbal anti-parasite supplement. It didnt test well in ART. Anna had tested it and said I could take some but in ART it was showing as not useful to me.

When we test stuff in BioSET it might show up as ok...meaning we can tolerate it. But in ART when its tested against the actual weaknesses in our body...it might show up as totally ineffective. So its just not doing anything for us....its not something we really need at this time.

There were 3 things Anna had given me which didnt show to be very useful in either of my ART sessions...so I just dont take those for now. I'm not on a ton of stuff right now so probably 3/4 of the stuff I'm on is ok for me.

I bought that chlorella from WF after I saw Dr. Amy. I've been taking it....so far it seems to be ok...I've increased my dose. It tested fine in BioSET but I'll find out how beneficial it is in my next ART session.

Dr. Klinghardt is big on taking chlorella. I've been reading some of what he's said about it. I read that taking small amounts can cause problems because it moves mercury around but its not ususally enough to mop it all up and move it out. So its better to take high doses rather than one capsule at a time....because if it doesnt get moved out...its getting redistributed and causing symptoms.

I'm trying to get up to a higher dose and see how that goes.

I'm doing 1 drop of NDF daily and so far so good. I havent freaked out yet...thats always a good sign. :P

:( Dropping is not a good sign. So she had to go in and figure out what exactly was draining it so she could fix it. Rest and water came up as big villains...THEN I told her I didn't sleep last night, lol. I also guess I need to drink more water. She retested my energy and it came up with a 9 and a 19...um, the scale goes up to 60 something I think, lol.

This happened to me this past Thursday. My energy was fine to start with though...it usually is....but it tends to go down if we're testing stuff which is really affecting me.

Denise tends to test alot of stuff so it ends up being alot of information even if there doesnt appear to be a ton of vials. Shes cross-checking so many things...I might go through 2 or three panels and then other stuff which is on the computer...so it ends up being alot of information in one treatment.

My energy went way down during the process. When we brain tested I failed on the left side. This is my weakest side...she said its generally everyones weaker side.

I think this was the third time I couldnt handle the treatment. The first time it was because I was dehydrated...so she added water and I was ok.

The second time...she tried water and rest and those things didnt help. I was depressed at the time and all this emotional stuff was showing up so she added some herb that helps the brain...and it worked.

This time it was rest. I totally havent had good rest at all in a couple weeks now....I've been getting only about 4 or 5 hours sleep each night....so its taking a toll. :(

I brought my one supplement that I reacted to. The minerals that Amy sent me....it has sulfur in it and I'm pretty sure thats the problem. It was pretty obvious my body didnt like something in the minerals and the reaction was the same one I get from sulfur foods.

Anyways...Denise tested it last week and said it was ok. This was when I first got it...the bottle was unopened. Denise didnt open it...she just tested the whole container. Usually Anna takes the capsules out and tests them that way. Well it tested ok that day.

When I brought it back this Thursday she took a capsule out and retested it....she said "Woah...you're body does not like it."

Yeah....no kidding. :lol:

It definately didnt test well this time.

It was included in my treatment...she put it in the glass to try to desensitize me.

I'm not trying it again any time soon cuz I just think my sulfur issue is pretty significant right now. :(

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I would love a new, clean car....one that doesn't smell like a wet kennel..... :huh:

Yeah...but Susan....it would only be free of the "wet kennel" scent while you drove it home from the lot. Your Dingo's would make sure of it! :lol:

Happy Easter to you too!! Hope you have a wonderful day! :D

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Dear Rachel,

I have a question about mercury. I had a root canal last summer. I am worried since I have heard bad things about them. Even worse, I need two more! :( It is just, I cannot have these molars pulled, or I will need a partial! They can have mercury in them, you know! What is that little metal rod they put in your tooth to support the crown made of? I am scared!

Sincerely,

NoGluGirl

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So many people have amalgams and no health problems whatsoever, and so many dentists are very healthy, too, that I'm kind of thinking that there must need to be some other issue to push you over the edge into ill health ... that the mercury contributes, but is not a cause on it's own.

Exactly...I agree with you on this 100%.

Also...so many people have Lyme and no health problems whatsoever...they are totally asymptomatic...completely unaware that its there. Lyme also requires other issues to push you over the edge. So the Lyme contributes...but its not the sole cause...it doesnt push you into ill health on its own.

People who end up sick seem to test positive for Lyme....but a much larger percentage of the population is walking around with this bacteria and they have no symptoms whatsoever.

Its only when you have a combination of these things that you begin to develop problems...when the "total load" of toxins becomes too great to bear.

Some people may be fortunate enough to escape this heavy burden of neurotoxin exposure. If I hadnt went to that fateful dentist appt....I would more than likely still be one of the ones with Lyme...who is still walking around symptom-free. I think with the amount of toxins we're exposed to on a daily basis...its much harder to remain healthy indefinately.

I think Lyme is an opportunistic instigator that lays dormant until you get hit with stuff like mercury or mold...or just an accumulation of everyday toxins. I think the presence of Lyme greatly contributes to the impact from these other neurotoxins.

I would have to say that I believe mercury to be #1 on the list of most damaging neurotoxins. If those dentists who are walking around perfectly healthy got bit by an infected tick...I'm pretty sure they would be pushed over the edge much quicker than someone with alot less exposure to mercury.

This is what I posted a couple days ago...

Thesis: in the presence of Mercury toxicity, even smallest amounts of other toxins are the last straw that broke the camels back, not the primary cause.

This is input from people who really see and treat only very sick people. In almost ten years, I myself have yet to meet or hear about one patient who only suffers because of Lyme. That person I do not think exists. It is very apparent that only a multiple "attack" brings success.

This is the input from Dr. K., Dr. Amy and other doctors treating some of the very sickest Lyme patients.

If you go to this page you can see Dr. K. and Dr. Amy's 2005 protocol for treating Autism.

http://www.defeatautismyesterday.com/drKan...ismprotocol.htm

Everything is covered...from heavy metals, to yeast, to parasites, to viruses, etc.

Then you get to Lyme...and it says this...

LYME:(Every Autism child we have tested so far through Igenex has been positive!)

So yeah...Lyme is definately a contributing factor...but none of these kids are only sick because of Lyme...they've got a multitude of problems that have piled on top of each other.

I think this is just the way it works. It cant be the only thing causing the drastic decline in health....otherwise there wouldnt be so many people walking around unaffected by the bacteria. Its basically a time-bomb waiting to go off if the opportunity presents itself.

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I have a question about mercury. I had a root canal last summer. I am worried since I have heard bad things about them. Even worse, I need two more! :( It is just, I cannot have these molars pulled, or I will need a partial! They can have mercury in them, you know! What is that little metal rod they put in your tooth to support the crown made of? I am scared!

Even without mercury...root canals and cavatations can cause serious health problems. On LymeNET I've read that root canals can be harmful enough that one cannot fully recover from Lyme while having root canals in the mouth.

I had one root canal...it was after I was already sick. I'm pretty sure the root canal worsened my situation. I had alot of pain surrounding that one tooth. It was looked at by a few specialists who could find nothing wrong with the root canal.

When I went to the biological dentist he said my only answer might be to just pull the tooth...I did...and it relieved some of my symptoms.

Knowing what I know now about root canals...I would never have had it done to begin with.

There is alot of info. about the impact root canals can have on our health...yeah...it can be just as bad as having amalgams. Also...the little metal rod can be amalgam.

I havent been reading much about this because my root canaled tooth is gone....and I'm happy I made that decision. If you want I can post some info. about this. I just dont know much offhand because I dont focus on it too much.....I dont have any root canals in my mouth now.

I do know that they advise people with Lyme to address the amalgams, the root canals and the cavitations...as these things can severely impact health.

If I'm remembering correctly root canals can create a very toxic environment....this by itself can push someone with Lyme over the edge.

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Even without mercury...root canals and cavatations can cause serious health problems. On LymeNET I've read that root canals can be harmful enough that one cannot fully recover from Lyme while having root canals in the mouth.

I had one root canal...it was after I was already sick. I'm pretty sure the root canal worsened my situation. I had alot of pain surrounding that one tooth. It was looked at by a few specialists who could find nothing wrong with the root canal.

When I went to the biological dentist he said my only answer might be to just pull the tooth...I did...and it relieved some of my symptoms.

Knowing what I know now about root canals...I would never have had it done to begin with.

There is alot of info. about the impact root canals can have on our health...yeah...it can be just as bad as having amalgams. Also...the little metal rod can be amalgam.

I havent been reading much about this because my root canaled tooth is gone....and I'm happy I made that decision. If you want I can post some info. about this. I just dont know much offhand because I dont focus on it too much.....I dont have any root canals in my mouth now.

I do know that they advise people with Lyme to address the amalgams, the root canals and the cavitations...as these things can severely impact health.

If I'm remembering correctly root canals can create a very toxic environment....this by itself can push someone with Lyme over the edge.

Dear Rachel,

I would appreciate it if you did post the info! Oh no! What am I going to do? One-fourth of that tooth is gone practically, and the other is chipping off more by the day! I am so freaked :o

My amalgam in the root canal is composite. I refused to have any metal put in there. I had trouble way before that. I read in my research that extractions can be just as detrimental if not more so to immunity, though. I cannot afford to get a partial. What am I going to do? Plus, partials can have mercury in them. It feels like a no-win situation.

Sincerely,

NoGluGirl

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First off, Scott and his friend (I'm so bad with names) are really nice people!

Yup...I felt totally comfortable with both of them. :)

The first time I ever ran into Scott (at Dr. S.'s office) he hugged me...he's just really open and friendly. :)

You can tell how much he cares about helping people get better....he's so enthusiastic too!!

They both appear to be very healthy...I know Scotts been through alot but he's had to of recovered a great deal to be devoting this kind of energy to learning, traveling, ART testing for quite a few patients, keeping his column in the Public Health Alert, etc..

Heck...I dont even know how he doesnt get overwhelmed with all that he's doing. :blink:

I think I have a ways to go in my recovery cuz I get overwhelmed by mowing the lawn. :huh:

Actually....I get overwhelmed by thinking about mowing the lawn. :blink:

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It feels like a no-win situation.

Sincerely,

NoGluGirl

I'll post what I can about the root canals. Dont have time tonight...but as soon as I can look into it. You'll probably have to research it and talk to a knowledgeable (preferably biological) dentist about it.

Since you're already sick and not knowing why...you dont want to do anything to make your situation worse.

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I am very interested in ART though. Since Dr Amy is up here I will contact her clinic when we can swing getting ART done (which would be a year, at least, out).

Andrea....yeah Dr. K. and Dr. Amy are in your state. Amy's got her own clinic now....I think its Bellvue?? Is this close to you??

If you did ever see Amy...I'm betting you'd be the healthiest people shes ever tested!! I think they are used to only seeing very sick people and Autistic kids.

I'm here to learn and because I've grown to love everyone here. :wub:

And we love you right back. :wub:

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Dear Donna,

I cannot believe it! Your rachelizing a jar of peanut butter in five days is the same as me! OMG! We need to go to peanut butter rehab! And there is not one! Now what do we do? :o

:lol::lol:

5 days.....are you kidding me??? :blink: The only thing that prevented me from finishing a jar of peanut butter in less than 48 hours was the heinosity caused by the moldiness.....it was just too much for me to continue racheling. :ph34r:

Yeah...I will stop racheling when the food is causing me to no longer be able to swallow and it feels like yeast is spreading up my esophagus so that its almost like cotton balls somehow grew in there. :huh:

Not to mention the extreme bloating, burping and urge to throw up.

So yeah....there are limits to my Racheling. That would be a good example right there...

Otherwise I would have gone through a couple jars in 5 days time. :P

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Yay...I'm all caught up. :)

Speaking of racheling.....I think I have just Racheled the past 2 pages of this thread. :ph34r:

Gotta go to bed now.

HAPPY EASTER to everyone!!!

By the way...NGG...I'm pretty sure paper cups, towels and plates are gluten-free...its been discussed many times on the board. I wouldnt stress over it...just avoid the last paper towels on the roll and you should be fine. ;)

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Yay...I'm all caught up. :)

Speaking of racheling.....I think I have just Racheled the past 2 pages of this thread. :ph34r:

Gotta go to bed now.

HAPPY EASTER to everyone!!!

By the way...NGG...I'm pretty sure paper cups, towels and plates are gluten-free...its been discussed many times on the board. I wouldnt stress over it...just avoid the last paper towels on the roll and you should be fine. ;)

Dear Rachel,

Whew! What a relief! :P I was all freaked about the paper towels and stuff. I have to open another thing of paper towels for me to use in the kitchen, because my mother has toast crumbs all over the top of the roll! That is not worth the risk!

Right now, I am feeling pretty rough. I downed a promethazine before it got too bad. I do not know if it was the candy bar, the pear, or the peanut butter. I ate peanut butter yesturday and was fine. I forgot to take my probiotic, too. That probably did not help!

I cannot believe someone else was so addicted to PB! :lol: I was pulling a Dave the other day, but now I am rachelizing. In fact, not long after I ate it, my tongue felt a bit tingly. You can be it has to do with the mold. Stupid mold! :(

I am so worried about my teeth. If I do not do something, I won't have them left! They just chip off more and more. Even chewing soft food they chip off! What can I do? I have cavities in my top teeth and my bottom molars look as if a meteorite hit them! This is a terrible situation to be in. Give me the info when you can. I will greatly appreciate it.

The problem is, I have difficulty getting treatment from a regular dentist, let alone a natural one! We have a general shortage of them. My grandfather is paying for my dental care, and I doubt he will pay for one of those dentists, even if I can find one!

Sincerely,

NoGluGirl

P.S. Happy Easter!

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This is just a quick drive by to say...

HAPPY EASTER!!!!

I've caught up on my reading but will have to respond later...I need to be at the church by 7:45. We're doing two services today and he wants us there 1 hour and 15 minutes before the first one to rehearse. I need it cuz I missed yesterday's dress rehearsal, lol. Anyway, I've got my little lunch packed but now I need to go get ready. (Food is always most important in my life, lol) :P

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Okay, I'm all ready for church (helped by the fact that I didn't have to get dressed up cuz we're wearing robes, so all I had to do is put on black pants and a white tee-shirt, lol), and now I have 45 minutes before I have to leave.

Oh, and by the way...I think I can confirm that the D was caused by my supplements, lol. :lol: Started taking them again yesterday and guess what's back. :P

I cannot believe it! Your rachelizing a jar of peanut butter in five days is the same as me! OMG! We need to go to peanut butter rehab! And there is not one! Now what do we do?

5 days.....are you kidding me??? The only thing that prevented me from finishing a jar of peanut butter in less than 48 hours was the heinosity caused by the moldiness.....it was just too much for me to continue racheling.

Oh, it would have been MUCH faster had I not been thinking about the mold, lol. :lol:

Well....this was actually something that has run through my mind quite a few times...for some reason I kept thinking it might show up in ART.

Sooo...even though its not a total shock...it still is....cuz I sort of felt like I got punched in the stomach when I read that.

I think I thought MAYBE it might show something other than what Anna had found, but I don't think I really expected it to be Lyme.

I remember Scott telling me that he has yet to test someone who is chronically sick....without Lyme being part of the problem. I was the first one he had tested where he couldnt pick it up....so yeah....he is very thorough...I'm sure you can imagine how many times he was testing me trying to get something to show up.

Even at the end...when I was sitting up and we were just talking....he didnt want to give up...so he grabbed the Lyme Disease Bioset vial and tried it that way...but no...I guess Lyme was just really not ready to identify itself that day.

He had said that the body reveals things in layers...so just because Lyme didnt show up for me...didnt rule it out. Obviously....it did show up in my next session. Dr. Amy felt certain it was due to my 2 weeks on NDF prior to my visit with her.

Yeah, I mentioned that I thought it was ironic that I went to BioSET to see if Lyme was a possibility, but nothing was found...not a reaction to a single vial and that YOU had said you were hoping that "everyone" had a reaction, but here I was and didn't have one. And, here at ART I wasn't expecting to find lyme and was hoping that he found it because it's found in "everyone" and that it didn't test as a major factor for you. He said no, he's actually tested a few now who he hasn't found it in.

Donna...I really think Lyme showed up strongly because you've been addressing other things. You've been doing this before you got to the point that I'm at. This is really a huge bonus for you...to be identifying these things before you get to a state of MCS or severe food intolerance.

Its much easier for you to get started on appropriate treatment since you are still able to tolerate many things that I would not be able to handle. You've already addressed some of the very critical issues which could hinder your recovery. The amalgams is huge...I'm so glad you have that out of the way.

Yah, I'm thinking that's exactly why it showed up. Anna tested me two or three weeks ago for Lyme, but in that time she gave me some new supplements to take, so it's possible that in addressing some of the other things that freed up some of the other stuff. I'm wondering (and can't remember if this was in any of the stuff you posted), does candida bind with the spirochets like it does to the mercury? Cuz if so, that could be why it's showing up a bit better now...I've been on the diet and using the natural antifungals and the new supplements for longer now...

I'm pretty sure that when working with Amy....it is always her arm which is tested....she is in the position that Scotts friend was in today.

The difference is that Amy is not only the one who is physically connected to the patient....but she is also the one doing all of the testing. Scott does nothing other than test the strength/weakness of her arm.

You could be right but I think it would be more practice for him to be doing the actual testing.

Hum, yes that would be better practice, lol.

Anyways...the BIG question is...How do you feel about this??

I know you werent totally comfortable with it not showing up in BioSET and wanted to go through the panel again. Did you feel a gut feeling that it was something you werent ready to dismiss yet...despite Anna's results??

Were you shocked that it showed up today?

Well, it was actually Anna who wanted to test me again after I brought up the skin neuralgia thing...but I was really glad she did because, yes, I felt like it might have been missed alhtough couldn't understand how it could be. It was something you said when you tested with Denise once...something wasn't showing up, and you said something to her so she did something different with the computer and found it...can't remember what exactly that was, but just remember the general gist of the thing...that's what made me think maybe lyme was being blocked or was hiding or something. So, yah, a little bit of a gut feeling I guess, but I wasn't ready to go pay for the western blot just based on that feeling. I was shocked because I had really talked myself out of thinking lyme could even be a possibility. It would explain a lot though. Even though I'm not extremely sick, I think I WAS heading in that direction, and so far nothing that has been addressed has really made a HUGE difference. I'm seeing small improvements which I'm not knocking...I'll take improvement in any form, but my thinking is that there was still SOMETHING that was slowing things down that wasn't being found.

Why doesnt he think you'll test positive?? Did he say?

Since you are in alot better shape then some of us you could probably get away with doing an antibiotic challenge. If you see Dr. S you can discuss all that with him.

I guess he's not familiar with ART though....cuz last time I mentioned it to him...he said he didnt know what it was.

Now that I've seen Dr. Amy....I'm gonna bring it up again. If he doesnt know what ART is...he will now!!

I think he was talking about CDC standards when he said that, but not I'm not entirely sure about that...

The way he talked yesterday it sounds like maybe Dr. S is now aware of ART cuz Scott said if I showed him my results he would be open to it...so Scott must have talked more to him about it.

Donna....I took Transfer Factor for about 2 months last year. It was right before I started this thread. It really helps the immune system. Its got dairy though....its taken from cow colostrum. I dont know if that would affect you or not??

...

Anyways...I dont think my body liked Florastor at all.

Hum, I'll ask Dr. Rick about the colostrum and maybe I can do some research tomorrow at work on it. If it's in a small enough dose it may be okay...the benefit might outweigh the dairy if it's small enough. And, for some reason I stopped taking Florastor too...I think I thought I reacted to it in some way...we'll see. :)

Dr. Klinghardt is big on taking chlorella. I've been reading some of what he's said about it. I read that taking small amounts can cause problems because it moves mercury around but its not ususally enough to mop it all up and move it out. So its better to take high doses rather than one capsule at a time....because if it doesnt get moved out...its getting redistributed and causing symptoms.

I'm trying to get up to a higher dose and see how that goes.

I'm doing 1 drop of NDF daily and so far so good. I havent freaked out yet...thats always a good sign.

Yes, so far the chlorella is turning out to be a wonder supplement. Anna said it would help the detox in my body. Scott had it as part of my core supplement base.

The one thing that really excited me about yesterday is that the supplements seem to be taking care of my issues. That means that when and if I do have to chelate, I can probably get by with something like NDF! That was exciting! AND, to take care of the lyme, at least for now, the supplements would be sufficient...and I bet that if the Transfer Factors turns out to be a no go, that there would be something equally effective...he didn't test cat's claw or anything like that.

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Had to do this in two parts cuz I said I had more than the maximum allowed quotes, lol. :lol: !!!

This happened to me this past Thursday. My energy was fine to start with though...it usually is....but it tends to go down if we're testing stuff which is really affecting me.

...

My energy went way down during the process. When we brain tested I failed on the left side. This is my weakest side...she said its generally everyones weaker side.

When I touched my left temple the first time, the darned thing went up a bit but it fell really quickly. The second time she tried (after wetting my hand a bit and adding the remedies) we both laughed because I said "is it even moving up at all" and she said "no but at least it isn't dropping". :lol:

I think this was the third time I couldnt handle the treatment. The first time it was because I was dehydrated...so she added water and I was ok.

This was the only time the remedies didn't help and she had to look for the reason why so she could fix it. :(

Even without mercury...root canals and cavatations can cause serious health problems. On LymeNET I've read that root canals can be harmful enough that one cannot fully recover from Lyme while having root canals in the mouth.

...

If I'm remembering correctly root canals can create a very toxic environment....this by itself can push someone with Lyme over the edge.

See, I've got two root canals...the first one was done in 1996 and that tooth is the one where I get the horrible jaw pain that radiates. Hum, I'm wondering if I should have that pulled.

You can tell how much he cares about helping people get better....he's so enthusiastic too!!

...

Heck...I dont even know how he doesnt get overwhelmed with all that he's doing.

I think I have a ways to go in my recovery cuz I get overwhelmed by mowing the lawn.

Actually....I get overwhelmed by thinking about mowing the lawn.

He does really care, which I think is just fantastic!

Heck I get overwhelmed when I THINK about cleaning my house, lol. :lol:

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