Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
I was thinking, by the time we can get ART done IF they happen to find lyme I don't even know if this thread would be around to report it. :unsure: We'll see if we can swing in for that next fall so we've got to keep this thread going for at least another 1 1/2 years. :P

Well...I'm hoping we'll all be better by then. :P

Even if I was 100%....eating mickey mouse shape pancakes for breakfast and huge plates of spaghetti for dinner.....I'd still be there for you Andrea. :)

And...anyone else who is looking for some help.

I remember when we all started to realize more about MSG and there was so much info on everything it was in at the time I was trying to avoid so much I felt so overwhelmed with info I had to just step back becasue I felt like I was gonna go crazy!!

Yeah....MSG and corn <_< ...betweeen the two of those things....WOAH...total brain overload. :blink:

And then came Auxigro. :lol:

Scott did say he tested me in "reverse" (which just means that when he had a strong arm it was bad, but when he had a weak arm it was good)...not sure why, but he was using a technique that he learned when Amy was here.

I think with traditional muscle testing when the arm goes weak...its bad...and then a strong arm is good?? I dont know if Scott told me this or if I read it somewhere. :unsure:

With ART its the opposite...strong arm is good. I thought thats how they always tested but maybe they can switch stuff around?? I dunno...but I did figure he would be better at it when he tested you...since he just spent about 4 days testing people with Amy...he's gonna learn more and more each time.

He's always learning....always absorbing stuff. I dont think he's the type to say he's learned it *all*...he will keep expanding his knowledge as long as he's doing this stuff.

HEY....too bad the *real* Dr.'s out there couldnt have that same frame of mind.... that same type of dedication....wilingness to help others...etc <_<

Yeah...maybe I'm still a little bitter. :ph34r:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
Mango04 Enthusiast
Mango04
Posted

This is random but did anyone see "Planet Earth" last night? There was this scene showing really fierce protective geese trying to scare away a fox. I was thinking those are the exact geese Rachelville needs :lol:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
So I've been thinking more about the ART/BioSET Rachel/Donna testing, lol. It fascinates me, but I'm too foggy brained to really think too much about it. :P Anyway, I find it fascinating that Rachel was tested at BioSET and found right away to have lyme and in ART was not found right away to have Lyme. I was not found to have lyme with BioSET but was found right away to have it with ART.

Maybe its because of how Lyme can hide behind other things. It can hide within the mercury...same with Candida...it also burrows very deep into the tissue. Depending on whats going on with the Lyme...or other things you might be treating...it might sometimes reaveal itself and then other times there is no sign of it??

Kind of in the same way that its difficult to get it to show up in the bloodtests...or urine tests. Because it hides. It will use the metals and candida to hide behind...so that it can avoid attack from the immune system.

If you stir things up it might be more likely to appear in testing. I wasnt really taking anything at all when Scott tested me....except my cats claw for Lyme....but I'd been off of it for about a week before I saw him.

Also I hadnt touched the metals and was not on any antifungal.

He had suspected maybe the cats claw was the reason it wasnt showing up...even though I had been off of it for that week. He had already seen my Western Blots via email before I ever set up ART with him....so I think he was expecting to find Lyme. He does feel my WB's indicate Lyme.

He also knew that Anna was finding Lyme in BioSET.

So he just didnt know why he wasnt picking anything up that day....except for the fact that I tested really well for the Cats Claw.

I think I really stirred things up before I saw Amy....I had the 2 weeks on NDF.

If any metals were moved around...this could have released some Lyme.

Also...while I was doing NDF....I did not take Cats Claw. I had stopped taking it because for some reason I get freaked out about taking more things...and I just wanted to try the NDF on its own.

So...I actually hadnt been on the Cats Claw for a a few weeks (at least) before I saw Amy.

Something was happening at that time because I got really toxic.....remember....I wasnt even excited about seeing Dr. Amy!! :blink:

I was actually crying that day....on my way to BioSet...I didnt even want to go!!

So yeah...there was some toxic overload...dont know if it was from candida getting released...or if I moved too much mercury than I could get through my kidneys...or what. Definately stuff was getting stirred up though. <_<

I think that might be why Lyme showed up with her and not with Scott.

The issues of mold, candida and metals are showing strong in all of the tests...all of the time. I think Lyme just hides within them and sometimes avoids detection. <_<

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
I'm wondering if somehow my energy...which seems to kill batteries and stuff, lol, also makes it more difficult to get readings at BioSET

Donna....WTH?? :huh:

Your energy kills batteries?? :o

Ummm...did I miss that story?? :unsure:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
My mom says "but don't you have trees and bushes here" :lol:

:lol::lol:

Yeah...theres that....and then theres also the fact that you are Donna...and bugs just love you. :wub:

A tick would probably find you in Alaska. ;)

dlp252 Apprentice
dlp252
Posted
I think with traditional muscle testing when the arm goes weak...its bad...and then a strong arm is good?? I dont know if Scott told me this or if I read it somewhere. :unsure:

With ART its the opposite...strong arm is good. I thought thats how they always tested but maybe they can switch stuff around?? I dunno...but I did figure he would be better at it when he tested you...since he just spent about 4 days testing people with Amy...he's gonna learn more and more each time.

He's always learning....always absorbing stuff. I dont think he's the type to say he's learned it *all*...he will keep expanding his knowledge as long as he's doing this stuff.

Hum, so I wonder what he was talking about with "reverse"...maybe I didn't hear the part about traditional muscle testing, lol.

This is random but did anyone see "Planet Earth" last night? There was this scene showing really fierce protective geese trying to scare away a fox. I was thinking those are the exact geese Rachelville needs :lol:

:lol:

If you stir things up it might be more likely to appear in testing. I wasnt really taking anything at all when Scott tested me....except my cats claw for Lyme....but I'd been off of it for about a week before I saw him.

This could be it too...I was taking all the new supplements Anna had given me, and started taking the Chlorella but that was AFTER she tested me the second time for lyme I think.

Donna....WTH?? :huh:

Your energy kills batteries?? :o

Ummm...did I miss that story?? :unsure:

Well it was more of a sentence than a story. :lol: Somewhere in the last 10 pages I just said that I stopped buying and wearing regular watches because the batteries die after a very short time...not a normal time frame either. So I always say that I have some sort of weird energy. :lol:

:lol::lol:

Yeah...theres that....and then theres also the fact that you are Donna...and bugs just love you. :wub:

A tick would probably find you in Alaska. ;)

LMAO!!!! :lol: How could I forget! :lol:

Okay, I've already started the denial thing, so bear with me and please forgive me in advance--sheesh, I'm not even diagnosed yet. :lol:

AndreaB Contributor
AndreaB
Posted

It's beginning to sound like I may need to have everyone here take some chlorella for a little while before we head to ART testing.

Rachel, you'll have to tell me what kind you got at Whole Foods that was supposed to be good.

I don't blame any of you for being bitter about your doctors experiences. I was fortunate that the doctor recommended to me just happens to be a family doctor who does a lot of different things. I'm still willing to send whatever info his way that I can though. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AndreaB Contributor
AndreaB
Posted
This is random but did anyone see "Planet Earth" last night? There was this scene showing really fierce protective geese trying to scare away a fox. I was thinking those are the exact geese Rachelville needs :lol:

:lol::lol: That's a good one. Didnt' see it though......don't have TV.

:lol::lol:

Yeah...theres that....and then theres also the fact that you are Donna...and bugs just love you. :wub:

A tick would probably find you in Alaska. ;)

That why she's our pest relocator. :P

Okay, I've already started the denial thing, so bear with me and please forgive me in advance--sheesh, I'm not even diagnosed yet. :lol:

You're forgiven. I haven't hit denial with anything YET. Hopefully, that trend will continue. :) It surely would be nice if we could swing ART this year......but, oh well. :(

dlp252 Apprentice
dlp252
Posted
That why she's our pest relocator. :P

Yes, and last night I was laying on the couch with my head on the arm rest and something caught the corner of my eye...it was a tiny little spider crawling near my head! You better believe that thing got relocated real quick. :lol:

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
FYI:

Title: Gastrointestinal pathology in children with Lyme disease

Authors: Fried MD, Duray PH, Pietrucha D

Source: JSTD 1996; 3:101-104

Abstract:

Ten children between the ages of 8 and 19 with Lyme disease presented with chronic gastrointestinal symptoms. Biopsy evidence of inflammation was found in the stomach, duodenum, and colon. Pathologies included gastritis, duodenitis, gastric ulcer, colitis, and a histopathology resembling Crohn's disease. Spirochetes with the microscopic appearance of Borrelia were found in five patients with chronic inflammatory conditions of the gastrointestinal tract. The inflammation may have been due to the spirochete itself, a reactive product related to their presence in the gastroin-testinal tract, or a consequence of medications used to treat Lyme disease.

Wow, I am so far behind, I may never catch up! But I just saw this and wondered if anyone was still in touch with Penguin? She was diagnosed last year with Crohn's--but it might very well be Lyme, mightn't it? :blink:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
She was diagnosed last year with Crohn's--but it might very well be Lyme, mightn't it? :blink:

You never know. :huh:

In my mind its starting to look like Lyme is mistaken for alot of stuff. <_<

The list is loooong...

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
It's beginning to sound like I may need to have everyone here take some chlorella for a little while before we head to ART testing.

Andrea,

I dont think you need to worry...I dont think you guys have alot of issues for Lyme to even hide behind. If you did...you would be feeling it...and trust me...you would FEEL it. :o

Soooo...if you ever got tested...if its there..I'm sure it would show up. ;)

I dont think you'd need to "stir" things up.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Carla....I SEE YOU.

HAPPY BIRTHDAY TO YOU...HAPPY BIRTHDAY TO YOU.... :D:D

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Its a good thing you dont have to hear me sing.... :lol::lol:

Hope you're having a great Birthday. :)

CarlaB Enthusiast
CarlaB
Posted
Carla....I SEE YOU.

HAPPY BIRTHDAY TO YOU...HAPPY BIRTHDAY TO YOU.... :D:D

Thank you! :)

I put up a new avatar ... it was taken on Easter ... I know, I don't *look* sick, LOL.

dlp252 Apprentice
dlp252
Posted

OMGosh, we talked about it all weekend and I still forgot to say...

HAPPY BIRTHDAY CARLA!!!!

CarlaB Enthusiast
CarlaB
Posted
Its a good thing you dont have to hear me sing.... :lol::lol:

Hope you're having a great Birthday. :)

:lol::lol::lol:

We had our Skyline Chili, now I'm waiting for my daughter's soccer practice to be over so we can have our ICE CREAM!!

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
This is random but did anyone see "Planet Earth" last night? There was this scene showing really fierce protective geese trying to scare away a fox. I was thinking those are the exact geese Rachelville needs :lol:

Did our geese escape??? :o:o

They have left us...apparantly someone fed them Auxigro....they've lost their minds!! :blink:

They abandoned Rachelville....the geese got chemicalized...total MSG addicts now....giving into the temptations of the crazy gluteny world.....and television. :o:o

What are we gonna do now?? :rolleyes:

CarlaB Enthusiast
CarlaB
Posted
OMGosh, we talked about it all weekend and I still forgot to say...

HAPPY BIRTHDAY CARLA!!!!

Thank you!

Anne AMP Apprentice
Anne AMP
Posted

My sister said that there are a lot of false negatives in lyme testing. I tested negative and they have now labeled me with leaky gut. They did not do any testing but said the massive loss of weight and loose bowels is how they got this diagnosis. They put me on Nystatin, digestive enzymes and probiotics. I weigh only 94lbs now so I hope it works.

Anne AMP Apprentice
Anne AMP
Posted

Sorry! I was reading something Rachel had posted earlier. Opps.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
We had our Skyline Chili, now I'm waiting for my daughter's soccer practice to be over so we can have our ICE CREAM!!

Oooh...Caramel. :D

Love the new pic......heck....I couldnt even tell which was was you...everyone looks healthy and happy. :)

CarlaB Enthusiast
CarlaB
Posted
My sister said that there are a lot of false negatives in lyme testing. I tested negative and they have now labeled me with leaky gut. They did not do any testing but said the massive loss of weight and loose bowels is how they got this diagnosis. They put me on Nystatin, digestive enzymes and probiotics. I weigh only 94lbs now so I hope it works.

That is true. Were you tested by Igenex? They have the most accurate testing available, but it still can be a false negative, especially if you're going by CDC standards. Do you have your results? If you have a couple positive bands that are specific to Lyme but don't meet CDC tracking criteria, you still probably have it, especially in the presence of symptoms.

dlp252 Apprentice
dlp252
Posted
My sister said that there are a lot of false negatives in lyme testing. I tested negative and they have now labeled me with leaky gut. They did not do any testing but said the massive loss of weight and loose bowels is how they got this diagnosis. They put me on Nystatin, digestive enzymes and probiotics. I weigh only 94lbs now so I hope it works.

Yes, I've heard the same thing about the false negatives. Which lab were you tested through...did they use Igenix? They still have false negatives, but I think they're still the most accurate for testing.

Sorry! I was reading something Rachel had posted earlier. Opps.

Hey, not to worry, this is still a current topic around here, lol. Welcome by the way!

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
My sister said that there are a lot of false negatives in lyme testing. I tested negative and they have now labeled me with leaky gut. They did not do any testing but said the massive loss of weight and loose bowels is how they got this diagnosis. They put me on Nystatin, digestive enzymes and probiotics. I weigh only 94lbs now so I hope it works.

If you werent tested by Igenix...I wouldnt trust the test results. They have the most accurate testing for Lyme. Other labs are pretty useless for Lyme testing.

I was at 94 lbs. awhile back...I also have Leaky Gut. Lyme could be behind it for you....I'd get tested through Igenix and see an LLMD (Lyme specialist) before ruling it out.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,794
    • Most Online (within 30 mins)
      7,748
    MarciO
    Newest Member
    MarciO
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Manaan2
      Hidden Gluten in distilled vinegar

      By Manaan2 · Posted

      Hi Trents-Thanks for reading and sharing insight.  We need all the help we can get and it's super appreciated.  She is currently dairy, soy and oat free and those have mostly been completely excluded from her diet since the diagnosis (we tried going back on dairy and oats at different times for a bit, didn't see a significant difference but have now cut out again just to be extra safe since her issues are so persistent.  We did cut eggs out for about 3 months and didn't notice significant difference there, either.  The only one we haven't specifically cut out completely for any portion of time is corn, however, we've kept it minimal in all of our diets for a long time.  She definitely goes 3-4 weeks without any corn products at times and still has issues, but I'm guessing that's not long enough to confirm that it isn't causing issues.   We could definitely try to go longer just to double check.  Thanks again!   
    • Jordan23
      Potato Intolerance

      By Jordan23 · Posted

      Ok so know one knows about cross reactions from yeast,corn, potatoes, eggs, quinoa ,chocolate, milk, soy, and a few more I forgot.  There all gluten free but share a similar structure to gluten proteins. I use to be able to eat potatoes but now all of a sudden I was stumped and couldn't figure it out when I got shortness of breath like I was suffocating.  Then figured it out it was the potatoes.  They don't really taste good anyways. Get the white yams and cherry red 🍠 yams as a sub they taste way better. It's a cross reaction! Google foods that cross react with celiacs.  Not all of them you will cross react too. My reactions now unfortunately manifest in my chest and closes everything up . Life sucks then we die. Stay hopeful and look and see different companies that work for you . Lentils from kroger work for me raw in the bag and says nothing about gluten free but it works for me just rinse wellllll.....don't get discouraged and stay hopeful and don't pee off god
    • K6315
      Newly gluten free… withdrawal?

      By K6315 · Posted

      Hi Lily Ivy. Thanks for responding. Did you have withdrawal? If so, what was it like and for how long?
    • trents
      Can I trust the gluten free label if a product was made in a facility that also processes gluten?

      By trents · Posted

      Welcome to the forum, @Doris Barnes! You do realize don't you that the "gluten free" label does not mean the same thing as "free of gluten"? According to FDA regulations, using the "gluten free" label simply means the product does not contain gluten in excess of 20 ppm. "Certified Gluten Free" is labeling deployed by an independent testing group known as GFCO which means the product does not contain gluten in excess of 10 ppm. Either concentration of gluten can still cause a reaction in folks who fall into the more sensitive spectrum of the celiac community. 20 ppm is safe for most celiacs. Without knowing how sensitive you are to small amounts of gluten, I cannot speak to whether or not the Hu Kitechen chocolates are safe for you. But it sounds like they have taken sufficient precautions at their factory to ensure that this product will be safe for the large majority of celiacs.
    • Doris Barnes
      Can I trust the gluten free label if a product was made in a facility that also processes gluten?

      By Doris Barnes · Posted

      Buying choclate, I recently boght a bar from Hu Kitchen (on your list of recommended candy. It says it is free of gluten. However on the same package in small print it says "please be aware that the product is produced using equipment that also processes nuts, soy, milk and wheat. Allergen cleans are made prior to production". So my question is can I trust that there is no cross contamination.  If the allergy clean is not done carefully it could cause gluten exposure. Does anyone know of a choclate brand that is made at a facility that does not also use wheat, a gluten free facility. Thank you.
×
×
  • Create New...