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Rachel--24

Omg...i Might Be On To Something

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Bev--Candy-Spice :lol: Good one!

And I forgot to add my "don't give it another thought" about the other thread to you Rachel. What you said made sense and you explained it very well. ;):)

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Dear Carla,

Salt is good for you. I love salty snacks! Can you get the Himalayan salt over the internet? Can you eat it on food instead of drinking the salt water? I doubt my dad would buy the salt, though. He would be like "We have salt!" "What is the difference?" I cannot even get groceries without him arguing with me about the food I buy! He is always like "What do you need that for?" :angry: It is so annoying! In the slight chance I do obtain the salt, what is the salt to water ratio if I need to take it that way only?

I don't know, I've never bought the Himalayan. Salt is better in water, but I use it on the food, too. In the water it creates an electrolyte solution ... I can't remember all about it, but I remember someone explaining it to me and it made sense.

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Jin...I think this member contacted me awhile back (maybe about candida) and I did think she could have Lyme or mercury problems. If I remember correctly her kids may have been sick too?? Anyways...I answered her questions and suggested Lyme testing and also looking into candida/mercury.

I never heard back from her....which is usually the case when people contact me and I respond with this info. :P

Yeah...I dont think people wanna hear about Lyme. :ph34r:

I told her the same thing. We corresponded for a while. I actually have two others I'm corresponding with that really look like they have Lyme ... both PM'd me first ... I've invited them here, hopefully they are at least reading!

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Wow Laura...you've got alot coming up!! Hope you can still manage to rest a little in between all the activity. :)

My Dr. thinks I have Babs too. It showed up in my BioSET and ART stuff but not in my bloodwork. My Dr. thinks I have it based on my symptoms.

They can only test for 2 strains of it but there are actually 20 that they know of. Things would be so much easier if everything could just show up in the tests!!!!

I have the same lymph nodes/drainage problem as well. :(

My lymph nodes are always swollen to some extent but sometimes there are big flares.... its usually when I try taking new supplements or I make changes in my diet.

I think pretty much all of my lymph nodes get swollen but mainly the ones under my ears. I know I have drainage problems and its been brought to my attention lots of times at BioSET...basically my whole lymphatic system is affected.

They just told me it was due to high toxicity but never mentioned Babs specifically. I wonder if Babs could be contributing....but since I'm toxic everything might be contributing at this point. :rolleyes: My lymph nodes swell from perfumes and chemicals too. :(

Does anyone know if there are lymph nodes above the ears too?? I get ALOT of swelling here as well but I dont know if its lymph nodes or muscle. :huh:

Sometimes by massaging the affected areas I'll start feeling stuff start to drain. A few years ago my boyfriend was rubbing my neck and when he pressed on one area everything just totally drained out of my head and my head felt 100 x better!! :blink:

Unfortunately it could never be repeated with such dramatic results. :(

Anyways...thanks for the update. :)

Its very encouraging that your LLMD is noticing improvement!! :)

Good luck with everything you've got coming up this week!!

Rachel-

have you ever looked into lymphatic drainage massage?

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Thats how I feel!! I feel like Lyme doesnt contribute to any of my symptoms. My ART session showed F. Babs ( :lol: ) to be more of a problem for me. My Dr. seemed to feel the same way.

I read a Power Point lecture that my doctor gave (sorry, it's printed out, not on my computer) and he says that those with babs are MUCH sicker than those with "just" Lyme. He doesn't say that about any other coinfection. He says it makes it much more complicated to treat. So, it probably is making those of us with it sicker than even the Lyme itself.

Even though the Red Cross doesn't say anything specifically about Lyme (some places say that after 6 months symptom free you can donate blood), if you have had babs, you can NEVER donate blood.

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Yup...this pretty much describes me. Most of my pain/imflammation is in my upper body neck/head/shoulders/upper back....just like Laura. My neck and jaw get really stiff. My hands and feet used to be very affected but not so bad anymore. Lower back sometimes gets very achey.

Theres pretty much imflammation all over my body...I can feel it everywhere but my head is the WORST...followed by my neck and shoulders. :(

Pretty much the same for me. Upper body aches. The ONLY joint pain I had prior to my knee pain in 2003 is my TMJ problem. I also had a bad bite that caused the joint to be messed up, so it's not entirely Lyme related.

Now I get migrating joint pain, but that didn't start until 2003, and it's still not my worst symptom.

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That would make me feel a whole lot better too. :D

Well...I guess it wouldnt have the same effect once it was in my tummy. <_<

I would settle for just smelling a 3 musketeers bar. :)

I have to work the candy section again at work. I got away from it for about 6 months but TheDave had to "pull a Dave" and tell my new boss that I do a really good job with this section. :angry:

So yeah....now I'm tempted by candies all over again. :rolleyes:

HEINOUS!!

I swear....no matter what store I end up at....no matter what my job title is....NO MATTER WHAT....I always end up being the freaking spice and candy girl!! :huh: Its been more than 10 years now that I've been stuck with this section...I can only manage to get it away from it for short periods of time. :rolleyes:

Lots of times there will be damaged or opened bags of candy...and there I am sitting on the floor smelling the bags of candies. Ummm...yeah...wonder what people must be thinking about that??!! :lol::lol:

Rachel-

better the candy aisle than the dryer sheets!!!

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are there certain ABX that exclusively are used for treating specific spirochete infections or are some just more effective for certain infections than for others? from your post, it looks like the zithromax would be intended for the babs but is it not doing anything against lyme or any other possible co-infections?

Zith also treats one of the forms of babs ... when I get time I'll post some of my doctor's lecture notes on meds ... BUT Zith is usually used in conjunction with Mepron to prevent the babs from becoming resistant.

And, for those of you in CA, the babs there is much different apparently that the babs out east. I'll put those notes in, too, though there are not many.

I have to go to Indiana today, so I won't be able to do that till tomorrow.

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Laura-

I am so glad you posted an update!! I know you are going alot but I am happy you are so activly treating your health problems!! I hope some more relief is in sight.

Carla-

How was your trip? how was the pizza?

Ok I admit I still rely heavily on the microwave!!

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Okay, I skimmed everything ... Happy belated birthday Cheryl! Rachel, I didn't forget my laptop, I just didn't feel like dragging it around the airport since I would have so little time to be on it!

We flew in Sunday and went into NYC. Ate at the Risotteria! The breadsticks are GREAT! Adam said that they are great for breadsticks period, not just gluten-free breadstick. The pizza was good, too ... so was the carrot cake. :ph34r: Unfortunately, I had my braces tightened on Friday, so I am still having trouble chewing, but the food was all good.

I even felt good enough to walk around a little while, then we drove up to Hyde Park and watched a movie in our hotel room.

We didn't see Dr. H, but saw the assistant. She did a thorough workup on Chloe and took 13 vials of blood. Chloe will also be tested for heavy metals and cortisol. She tested her for celiac, but Chloe's been gluten-free, so that will be negative. She said other things than Lyme can cause the learning difficulties, so she was tested for everything. I can't imagine how many years it would have taken us to test her for all this stuff with a conventional doctor! She also did a food allergy test.

I feel really good about getting all this done. This way, even if she comes out with nothing, we will know for sure that we did all we could to help her. But I really think something will show up. Chloe gets headaches, some joint pain, sweats ... sounds like Lyme and babs.

For me, she was happy with the progress. She eliminated the mino and added Amox, since I won't do the bicillin injections. I'd deal with the constant discomfort of the knot in my butt if I weren't making progress without that treatment. It was painful for several days afterward, and I don't see the reason for dealing with that if I'm getting better without it. I can tell I'm much better than I was last time we went just because I wanted to go into the City and we also checked out some of Hyde Park. Last time I just wanted our room.

So, with the amoxy, I'm covering all three forms of borrelia, and the babs with the Mepron/biaxin (biaxin also gets Lyme).

After I ease into the large dose of amoxy, in a couple weeks, we're going to start chelating the lead. She said my lead and especially mercury are MUCH lower than what she normally sees and that the sauna has already started the chelation. Since it's not mercury that's the main problem, she's using a milder chelation process because lead is easier to get rid of. I'll be using Detoxamin Chelation Suppositories :ph34r: . It's over the counter, btw. I'll also be taking NAC and alpha lipoic acid to help with the detox.

She got on me for not taking my Questran daily. She wants me to take it twice a day to help eliminate toxins from the digestive tract. It has to be taken an hour apart from everything else, with everything else, I have had trouble getting it once per day!

She is also having me tested for parasites. She said to keep reminding her that I've ALWAYS had digestive problems because diarrhea to her seems like an issue with the meds. I keep reminding her this is NORMAL for me, that I think it's a Lyme symptom for me, not a medication symptom. I had this off and on whenever I've had Lyme symptoms. I can even think back to my previous times I've been sick from this, and it's always been mainly digestive issues and fatigue for me.

When we get Chloe's results back, if she tests positive for Lyme, we're going to get the other kids Western Blots here locally. They have minor symptoms ... but that's what I had for years and years. She said it was better to get it early.

I've got to get ready to go to Indiana now ... I'll chat with you later. It was a successful trip. Next time I get to see Dr. H again.

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carla- Soundslike your trip was productive! And you managed to have some fun too!

I have three questions. Could you guys explain chelation, BioSet and ART. I could google it all but it would probably be random. Even if you don't explain, some links or whatever. I did look up BioSet practioners in my area but I want to know more about these things. I'm afarid to go back :ph34r:

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Dear Rachel,

I do not believe you are paranoid at all! I think the pans could cause you trouble. I get dizzy when I am cooking and smell the chemical smell. :( Metals of all kinds can cause the reactions, and like you said, chemicals they are treated with may be getting into the food that stuck to it. That would make a lot of sense! I think you are onto something! The heat probably cooks the chemicals into the food, which causes an extreme immediate reaction! :o When you react that badly to one french fry, it must have chemicals getting in the food somehow.

I know how you feel about not being able to eat that candy. I am surrounded by goodies loaded with gluten I cannot have. :( There is half of a huge chocolate chip cookie (with decorative icing) that my brother gave my mother for Mother's Day, plus a beautiful cream pie, plus Angel Food Cake, and Famous Amos Chocolate Chip Cookies and Peanut Butter Sandwich Cookies. Talk about cruelty! I have nothing to even make some of this with! :( I want to cry! It is so hard, isn't it?

Dear Bev,

Candy Spice does sound like a stripper name! :lol: It is cute, though. ;) The lymph node pain in the breasts is difficult to deal with. It makes your whole chest hurt! The water hitting me in the shower hurts! I bet it is F. Babs behind this! :angry:

I get those olfactory hallucinations some as well! I smell bananas a lot! I have no idea why!

It is so strange. Well, it is better than rotten fish!

Dear Carla,

Yay! You will be near to me today! :) You should not be all that far from Evansville. It sounds like you and Chloe had a wonderful trip to the Big Apple! That is wonderful! This doctor is so thorough, too! I am sure they will find some answers. He seems to have a good grip on your situation as well.

Babesia is probably what it is making me so ill. I do not know the kinds that are common in Indiana. There is bound to be one kind at least. Who knows? Maybe I could poke around on Google and find something. Knowing the most common strain is important and how to test for the different strains for the proper diagnosis.

The salt is available over the Internet! I found it at Mercola! It is sort of expensive. For two ounces, it is $7 or $8. I thought it was interesting you mentioned electrolytes. When they thought my body was shutting down, they did a urine test before I went up to IU Med. They said I was losing electrolytes. Maybe that has something to do with what is wrong with me, too? Maybe I should start drinking Gatorade once a day or something. I sweat a lot, because my Thyroid is off.

Sincerely,

Jin

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.....

Rinne...I used to see spiders alot. :huh:

But then when I looked for them they werent there. :unsure:

It doesnt happen anymore but back before I made dietary changes it was happening alot where I'd see things out of the corner of my eyes.

I wish I was seeing birds or anything other than spiders. I'm scared of spiders. :ph34r:

A few months ago I clearly saw a spider on the bathroom floor while I was getting ready for work. I blinked and it was gone. :huh:

I searched the WHOLE bathroom several times....it was in the middle of the floor...and then totally vanished. I never saw it again and I thought I might have hallucinated it like I used to see the spiders out of the corners of my eyes....although they were never really there. :unsure:

The blurriness that you describe is something I always deal with. I hate it. It feels like my eyes are sticky with whatever is causing the blurriness. :(

Interesting that dietary changes have made a difference for both of us, I wouldn't want to be seeing spiders either. EEK!

......

One of my friends in high school asked me one time what I was upset about and then told me that whenever I bought a lot of candy I was upset. :blink: That was before a horse show so I was probably just stressed about that, don't remember.

:lol::lol::lol:

I was wondering if sugar was the horse or the cart? :lol: What came first?

OMG- you'e the other Spice Girl!!!!!!!!!!!!!!! You're Candy Spice (gosh- that sounds like a stripper name. :ph34r:

.....

:lol: Bev, I love your sense of humor.

......

Interesting about all of you and joint pain. I had terrible pain in my hip that actually went away after going gluten-free. It was so bad that it was hard to turn over in bed--the pain would wake me up. I don't get much joint pain now--my troubles are mainly in my digestive system. Except my head pressure and lightheadedness. :unsure: I'm better than I was 2 years ago, but it still does not take much to set my stomach off. I think my anxiety would improve if I wasn't so scared of getting sick in public.

Me too. I couldn't lay on my left side because of the pain from that and at the same time I couldn't lay on my other side because I had hurt my arm falling off my bike. I was a mess, getting no sleep and from normal too over the edge B**** took about two seconds. :ph34r:

......

And I forgot to add my "don't give it another thought" about the other thread to you Rachel. What you said made sense and you explained it very well. ;):)

Getting curiouser and curiouser, does this mean I have to leave Rachelville? :lol: I actually have ventured out a little bit recently but this really is my home on this board.

How are you today Patti? Laura? Jin?

Rachel- better the candy aisle than the dryer sheets!!!

Miamia, very cute. :lol:

Zith also treats one of the forms of babs ... when I get time I'll post some of my doctor's lecture notes on meds ... BUT Zith is usually used in conjunction with Mepron to prevent the babs from becoming resistant.

And, for those of you in CA, the babs there is much different apparently that the babs out east. I'll put those notes in, too, though there are not many.

.....

Glad to know your trip was productive, I think it is great that Chloe is being tested too. More travelling? You must be doing better, I find the idea of two days away daunting, mind you I am never going where there is fabulous gluten free food. :P

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Warning, warning, stupid DUH moment ahead... I may have figured out one MORE factor in my constant D! Back in December when I was so sick, Dr. Rick told me to take lots of Vitamin C...I was and it helped and I didn't have D as bad as now, but still had it a little.

When that supplement was tested by Anna, she said I could only handle 1 capsule 2 times a day. I took more anyway (still with no D), but started my search for one that I could take more of. A couple of months ago I bought some ascorbic acid crystals. I started with 1 tsp which totally caused MAJOR D and bubble gut...awful. I cut back to 1/2 tsp but still had symptoms. Since then I've been taking 1/4 tsp in the mornings, but still have bad D.

So last night I'm entering the info for that into my spreadsheet (see spreadsheets are good for SOMETHING, lol), and I look at the label for the dosage...there is 5000, yes FIVE THOUSAND mg in a teaspoon. No wonder it caused problems, lol. Even at 1/4 tsp, there is still 1,250 mg, which is more than a gram of vitamin C at one time. I think if I had worked up gradually, that wouldn't have been a problem, but starting out high and working backwards just kept my gut inflamed. Sheesh...maybe I should read labels more carefully, lol. So maybe it wasn't the chlorella after all. :P

Oh Laura, I just love your doctor. Sounds very thorough and it sounds like you will see very good progress!

And I though Hawaii was on the flater side.....aside from the mountain. I've never been.

Hawaii--very mountainous, lol. Lots of volcanos and extinct volcanos. :P

Rachel--I've heard for years that aluminum pans can cause reactions with the food...heard bad things about non-stick too, but chose to ignore them for a long time. Same with the microwave. Like Mia, I rely on it too much still. :(

Carla--I love your doctor too, lol. Also sounds very thorough! 13 vials of blood! Makes my 7 sound like child's play. :P

I was actually thinking today about how little people mention joint pain on this thread- then you mentioned your severe neck pain. There are days when I feel like every CELL in my body is screaming!

I think we just don't mention it cuz it's always there. I have constant neck pain and stiffness! My hip is problematic sometimes too and my knee flares up every few months...it hurt a bunch last night. Then there is the constant feeling like my skin has a sunburn...hate that the most cuz it hurts to wear clothing. :P

and needless to say, somehow I got myself involved in organizing (and likewise playing in) a 3 on 3 b-ball tourney with about 25 co-workers at the same time as I'm starting abx for lyme... great timing, huh?

Wow, lol, um maybe not. :P

There is a particular massage they do for the lymphatic system and bouncing, rebounders or even bouncing on an exercise ball will help to drain the lymphatic system.

Yes, all very good for drainage. I have a rebounder and an exercise ball, but don't bounce nearly enough. I DO get the massage from time to time at physical therapy. My lymph nodes are almost always swollen to some extent.

I don't think there are lymph nodes above the ears, at least not to my knowledge... I'm guessing it's probably just swelling from using your cellphone too much

:lol: :lol: and :lol:

I dont remember exactly what it means either...I'm thinking "pulling a Dave" must mean "doing something extremely stupid".

Ha, I thought of this yesterday too, but also couldn't remember what it meant...I think you are close! :P

OMG- you'e the other Spice Girl!!!!!!!!!!!!!!! You're Candy Spice (gosh- that sounds like a stripper name.

:lol:

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Duplicate post--hit the stupid button twice. :P

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carla- Soundslike your trip was productive! And you managed to have some fun too!

I have three questions. Could you guys explain chelation, BioSet and ART. I could google it all but it would probably be random. Even if you don't explain, some links or whatever. I did look up BioSet practioners in my area but I want to know more about these things. I'm afarid to go back :ph34r:

Here are some links...the first two about ART and the second two about BioSET:

http://www.justbewell.com/information/Auto...se_Testing.html

http://www.nihadc.com/ARTcomplete.pdf

http://www.delicatebalance.biz/joomla/inde...0&Itemid=46 (this is actually the lady I see)

http://www.energetic-balance.com/BioSET.html

The both involve computers (at least the practitioners I see), but the BioSET relies a little more on them for actual testing.

ART is strictly muscle testing whereas the BioSET uses a small vial of my blood which helps filter the things my body is fighting against immune-wise.

Here is a link to a thread on Lymenet which contains a great explanation of ART by GiGi:

Lame Advertisementubb/ultimatebb.ph...ic;f=1;t=054915

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Donna--

I think you're right about the vitamin C--that's a awful lot to take all at once.

I think you're supposed to start off with a lower dose and increase to the point of D--then back off a little and that's the maximum for you.

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okay, the stupid link to lymenet wouldn't work here it is again but put a space in before the .org

http://flash.lymenet .org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=054915

The post I was referring to:

ART, abbreviated for Autonomic Response Testing, does not search for antibodies, antigens, or look for particular strains. ART will find the major players, mutations/relatives, the co-infections if they are in the body, by resonance and other means, too involved to describe here. It finds viruses, fungi, molds, parasites, etc. ART will find it all in minutes an/or seconds.

ART involves physics, light, frequencies, resonance, etc. ART, if performed by a well trained practitioner, will locate the microorganisms in the body fluids, in the extracellular space, as well as intracellularly, encapsulated or free, or deeply buried somewhere, wherever they are.

ART can also pinpoint the location of toxins and microbes, the body compartments, and that way treatment can be applied directly and/or in a number of ways.

ART does not look or test for antigens, antibodies, or try to distinguish between the many strains/mutations.

ART = Autonomic Response Testing - is exactly what it says -- it tests the responses of the Autonomic Nervous System. If a person's Autonomic Nervous System is being compromised by a number of toxins, infections, etc., the results of ART will show the changes and the cause for the imbalance.

ART helps select remedial agents. If a medicine is not suited for the patient, it will "block" the autonomics = the body goes into a stress mode, or "blocked regulation" during which healing does not happen. This is avoided by selecting meds with ART.

A body cannot be tested when it is in blocked regulation. The practitioner has to find a way to unblock the patient. Only then can the body reveal the truth. It's the practitioner's job to

know the way to open regulation even if just for a brief period of time. It can take months before a sick patient is able to keep open regulation to the next visit. As toxins are unloaded, regulation starts to stay open. Healing is happening.

There are many reasons for a person's autonomics reacting to toxicity from heavy metals, bacterial pathogens, viral, etc., electromagnetic disturbances, chemicals, food allergies, clothing, jewelry, even emotional imbalances. To pinpoint any or all of these is the purpose.

The stress response that is used in ART is sensed, organized and expressed by the bio-field of the entire organism and the field of each individual cell. It is most visibly expressed by the autonomic nervous system (the Central Nervous System, the Sympathetic nervous system, the parasympathetic nervous system, and the Enteric nervous system).

Sympathetics of the skin are the sensors of the physical body. From here the impulse travels: to the sympathetic ganglia - spinal cord - brainstem - limbic system - hypothalamus - brainstem - spinal cord, autonomic ganglia - sympathetic fibers modulating the muscle spindle of the test-muscle.

ART can accurately identify which is causing the stress to the body. ART also checks for effects and changes in the Autonomic Nervous System from any prescribed treatment for the ART diagnosis.

It tests both - diagnosis and treatment.

That's why ART is my favorite diagnostic tool --- everything else, if lab tests are known to be inconclusive, I have found to be a guessing game. That doesn't mean that objective lab testing is not done by ART practitioners - if it verifies the ART results, great. And that is up to the patient to decide.

I remember being ART tested one time after I had already been treated for certain toxicities. I tested positive for arsenic toxins. Of course, I believed the ART results, but for the fun of it, I requested a lab test: Results - arsenic level offff the chart.

No seronegative test results with ART. Well practiced ART lets the body tell the truth and gives clear signals of causes of problems and how to best treat them. Non-invasively.

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Hi Rinne,

I'm pretty good today--thanks for asking :D How about you? Life must be hectic for you these days with your business and all. When you have a chance, I'd love to hear what all is happening.

I can totally relate to "from normal to b****" in a few seconds! :P Gluten makes me an emotional mess--I go from annoyed and cranky--to anxious--and then to foggy and stupid. Bah! :P

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Patti...your description made me laugh :)

Rinne, you are so sweet...always asking about everyone....

And you would be proud of me. I was orginally planning to go to the GIG conference and I really wanted to. But, I declined because of everything else going on-I know I need to rest. I said NO to something! Shocker!

I think that I think a lot of things and then never write them down. :(

By the way, today is a pretty good day. Have an IV this afternoon, too.

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Now that I'm thinking about it whenever my food gets stuck to the pan/pot I think I react more. :huh:

Do you think by getting stuck there is more exposure?? :unsure:

This could be part of the problems I've had with eggs too. <_<

I made cookies last night and baked them in a pyrex instead. I didnt feel ANYTHING after eating them...no burning eyes...nothing.

I dont think its the cause of all my reactions but it really could be contributing quite a bit.

I think it is definately part of the problem of continuing to poison you. Sounds like you're on to something. :P

Try and pace yourself, though, so you don't get exhausted with everything you've got going on right now. ;)

Ditto Laura. :)

Interesting about all of you and joint pain. I had terrible pain in my hip that actually went away after going gluten-free. It was so bad that it was hard to turn over in bed--the pain would wake me up. I don't get much joint pain now--my troubles are mainly in my digestive system. Except my head pressure and lightheadedness. :unsure: I'm better than I was 2 years ago, but it still does not take much to set my stomach off. I think my anxiety would improve if I wasn't so scared of getting sick in public.

Is your round of testing coming up in a couple weeks? Getting sick in public would be worrisome, can't blame you for anxiety over that.

Ok I admit I still rely heavily on the microwave!!

Rachel does too so I can't say much. Rinne and I feel the same way about microwaves. ;)

I feel really good about getting all this done. This way, even if she comes out with nothing, we will know for sure that we did all we could to help her. But I really think something will show up. Chloe gets headaches, some joint pain, sweats ... sounds like Lyme and babs.

Sounds like a really good trip and appointment. I think it's a good idea to have the rest of the children WB tested. If nothing else it will give you a starting point for future reference if needed.

Will be waiting anxiously to hear all her results as well.

Getting impatient for Bev's results. I don't want to wait til next week! :ph34r:

So last night I'm entering the info for that into my spreadsheet (see spreadsheets are good for SOMETHING, lol), and I look at the label for the dosage...there is 5000, yes FIVE THOUSAND mg in a teaspoon. No wonder it caused problems, lol. Even at 1/4 tsp, there is still 1,250 mg, which is more than a gram of vitamin C at one time. I think if I had worked up gradually, that wouldn't have been a problem, but starting out high and working backwards just kept my gut inflamed. Sheesh...maybe I should read labels more carefully, lol. So maybe it wasn't the chlorella after all. :P

See, if you weren't doing the spreadsheet you may have been awhile figuring this one out. Good detective work. :P

Now what? Do you totally back off and give yourself a little time to heal and then start up again?

okay, the stupid link to lymenet wouldn't work here it is again but put a space in before the .org

Great write up! :D

Thanks for posting that Donna. :)

And you would be proud of me. I was orginally planning to go to the GIG conference and I really wanted to. But, I declined because of everything else going on-I know I need to rest. I said NO to something! Shocker!

Good for you!! :D

Hope all goes well with the IV today. :)

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OMG- you'e the other Spice Girl!!!!!!!!!!!!!!! You're Candy Spice (gosh- that sounds like a stripper name. :ph34r:

:lol::lol:

It does sound like I'm a stripper with that name!! :lol:

I definately dont look the part with my jeans and baseball cap. :P

Oh yeah and t-shirt. I dont actually go around topless. :lol:

I get the swollen lymph nodes too. My worst ones are behind my ears and my doctor said therer are a lot of nerve endings there so that makes them even more painful. I think you have lymph nodes all over your body (in places where you don't realize they are).

I get the ones behind my ears too....I think all my nodes get swollen...plus muscle. :(

Rachel- Get those new pans. I think I'm going to follow you and do the same. That stuff can't be good if we're all so sensitive. And you with the heavy metals. maybe you're Heavy Metal Spice :P

I'm totally getting them. My mom told me to pick out what I want so I'll probably go to Macys later to check them out. If they're not there I guess we'll have to order online....until then I'll be cooking everything in the oven with pyrex. ;)

I think instead of "Candy Spice"...I might actually be "Candida Spice". :P

I'd be willing to bet that you're reacting to something (metals/chemicals) in your cookware. I got rid of all non-stick cookware almost 2 years ago.

I cant believe I've eliminated all this stuff and then continued using these teflon pots and pans!! :blink:

DUH!! :ph34r:

I did think about in the past but obviously not seriously enough. I do think alor of reactions are coming from metals or chemicals. The muscle swelling I get comes from chemicals. Its happened when I've left water bottles in my car and then tried to drink from them. I could taste the plastics and my muscles get tight and swell immediately...same with perfumes and other chemicals. This is sometimes happenning after I cook my food....which is totally organic and unprocessed.

Thats what happened last night when I peeled that potato off the baking pan and ate it. I cant taste metals or chemicals but the reaction is there...and I dont have a problem with potatoes. I even test fine for them in BioSET.

Rachel-

have you ever looked into lymphatic drainage massage?

Yeah...I wanna do this. I think they have these massages at BioSET....except I dont wanna get one from the massage guy they have there.

I'm pretty sure they also do it at HN (the clinic that I used to go to). I keep meaning to call and find out more.

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I read a Power Point lecture that my doctor gave (sorry, it's printed out, not on my computer) and he says that those with babs are MUCH sicker than those with "just" Lyme. He doesn't say that about any other coinfection. He says it makes it much more complicated to treat. So, it probably is making those of us with it sicker than even the Lyme itself.

Carla....I've read that quite a few times. Basically anyone with any co-infection (in addition to Lyme) will be worse than someone with only Lyme. The more co-infections...the worse the symptoms. I never read that its only babs that makes someone sicker...but all the co-infections can have this affect.

The more things you've got going on the sicker you're gonna be.

Rachel-

better the candy aisle than the dryer sheets!!!

Yeah...the most I'll handle the dryer sheets is when I'm taking them off the display and throwing them in shopping carts. :P

There is always a big empty space on the laundry display where the dryer sheets are "suppossed" to be. :lol:

I wasnt easily convinced to take over the candy/spices again. They promised me no checking and I caved. :P

I would never agree to anything involving dryer sheets. ;)

And, for those of you in CA, the babs there is much different apparently that the babs out east. I'll put those notes in, too, though there are not many.

Yeah....we have a different F. Babs over here. Ours is actually F. U. Babs. :lol:

Its a different strain. :P

Ok I admit I still rely heavily on the microwave!!

Me too....I cant see this changing either. :ph34r:

Everything I do is pretty inconvenient nowadays....take away my microwave and you may as well shoot me. :rolleyes:

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Dear Patti,

I know exactly how you feel about getting sick in public. That is the main reason I do not hardly go out. I am too tired, and my stomach is screwy. I bet that Flagyl I did set off the Lyme and Babs. What do you want to bet? I was doing great until then.

Dear Rinne,

I am doing alright. I am hungry and stressed, though. There is so much food I want to make, but have none of the ingredients! Dad does not get paid until the 1st. My stomach is bothering me, but that is not new.

Dear Laura,

Yay on saying no! Congratulations! I always said yes to everything, too. It sucks, because you feel obligated to say yes, even when you do not have the time or energy. That is never good to do. I hope your IV goes well.

Dear Donna,

I am so glad you figured out what was bothering you. That D can really make you tired and miserable. That does not include the fact it makes you feel so bad. Thanks for the links. I am so glad you found those for us! I have them in my favorites now. I doubt we would have any people here that do ART or BioSet.

Sincerely,

NoGluGirl aka Jin

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