Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

penguin Community Regular

Ooh! Ooh! I can get on topic, too!

I posted in another forum about bizarro pain I've been having. Does anyone else hurt a lot when someone scratches your back, gives you a massage, or you scratch your back? Or when you slide out of bed in the morning and your calves rub against the edge of the mattress? It's an intense soreness, like you just hit something really hard, only all of this is with avergage pressure. I've had it a few years, I never realized it wasn't normal :huh:

Since we're in the land of magical relevations, I figured this might be a more helpful place to ask advice :rolleyes:

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
dlp252 Apprentice
Tika is autistic, so she's mostly interested in hunting for lizards and staring intently at people to get what she wants...

Um, off topic? I am so consistently off topic that I"m sure to be voted off the cult farm....

I can't help but be off topic today, lol. I had a dog named Teaka! We spelled it differently obviously. Neat name! :D

Link to comment
Share on other sites
dlp252 Apprentice
I posted in another forum about bizarro pain I've been having. Does anyone else hurt a lot when someone scratches your back, gives you a massage, or you scratch your back? Or when you slide out of bed in the morning and your calves rub against the edge of the mattress? It's an intense soreness, like you just hit something really hard, only all of this is with avergage pressure. I've had it a few years, I never realized it wasn't normal :huh:

Haven't really had that kind of pain, but have had the kind where it feels like a really horrible sun burn when the skin is just lightly touched or even when clothing brushes against it...there's never any redness or rash or any other outward sign of anything amiss...the spots tend to differ from time to time.

I fell about a month ago and the bruising is gone, but my leg still hurts like it is bruised even with very light pressure...is that close to the pain you are feeling?

I had a massage on Saturday and thought I was going to die. Its a deep tissue massage and I always have her use heavy pressure and it's usually not a problem, but almost every spot she touched...even with lighter pressure on my feet hurt like crazy.

Link to comment
Share on other sites
AndreaB Contributor
Rachel-

thanks for the support- perhaps we should be the cheerleaders on our island either that or we could hire Mr Clark to stop by once a weekend to come give us all motivational talks!!

Miamia

Andrea-

not that I dont support your role as mayor but I feel you would be very well suited in a motherly role.

I think you should be the motherly mayor - or something to that extent - we can fool with the official title.

Miamia

Miamia,

You can only be cheerleader if it doesn't take away from chef duties. :D You were one of our chefs weren't you...or is my memory failing me. :lol: Did you guys know that msg has been linked with autism? That's in Excitotoxins...from our discussion about 70-80 pages ago. :P

Motherly mayor....we can go with that. :P

Link to comment
Share on other sites
dlp252 Apprentice
Rachel- I don't know if you ever said what your OMG moment was yesterday, maybe I missed it?

I feel like I am missing other things, I apologize if I left anything out.

Yes, I must have missed it too, unless it was the follow-up on the C.Diff thing...Rachel? :D

Link to comment
Share on other sites
penguin Community Regular
I fell about a month ago and the bruising is gone, but my leg still hurts like it is bruised even with very light pressure...is that close to the pain you are feeling?

I had a massage on Saturday and thought I was going to die. Its a deep tissue massage and I always have her use heavy pressure and it's usually not a problem, but almost every spot she touched...even with lighter pressure on my feet hurt like crazy.

That sounds pretty close. I can't tolerate anything more than a gentle backrub. Even a light massage on my shoulders HURTS LIKE HELL!! Not just during it, which could be tight muscles, but for a good 2-3 minutes after the touching ceases.

Link to comment
Share on other sites
jerseyangel Proficient
Ooh! Ooh! I can get on topic, too!

I posted in another forum about bizarro pain I've been having. Does anyone else hurt a lot when someone scratches your back, gives you a massage, or you scratch your back? Or when you slide out of bed in the morning and your calves rub against the edge of the mattress? It's an intense soreness, like you just hit something really hard, only all of this is with avergage pressure. I've had it a few years, I never realized it wasn't normal :huh:

Since we're in the land of magical relevations, I figured this might be a more helpful place to ask advice :rolleyes:

Interesting you should say scratching your back. My husband (trying to be nice) will come up behind me in the kitchen or something and rub my shoulders/scratch my back. These are things he loves, but I can't stand it--it hurts, and I just figured I'm just more sensitive. :blink:

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor
My goodness we have so many now here at Rachelville, how great, who was the cosmetologist? I really need her today :lol:

Nikki, Nikki, where are you?

Link to comment
Share on other sites
jerseyangel Proficient
Guess what? My son, daughter-in-law and my baby grandbaby Ana, are flying in tonight at midnight... can't wait to hold Ana again... they will be here for good now, they moved back home to sunny Florida!!

Celia--you must be over the moon!! Will they be living close by in Florida? I hope someday to have grandchildren--my sons don't seem to be in any sort of hurry, though :D

Link to comment
Share on other sites
penguin Community Regular

I just realized I made up a new word there - relevations. Kind of like revelations, only spelled wrong. Whoops :rolleyes:

I've been doing that a lot. Like, I'll intend to write "the dog chased the cat out of the house" and I'll end up writing "the dog chased the cat out of the credit card"

Man, this brainfog is so deep that no amount of red bull will save me now :rolleyes:

Link to comment
Share on other sites
DingoGirl Enthusiast
I just realized I made up a new word there - relevations. Kind of like revelations, only spelled wrong. Whoops :rolleyes:

I've been doing that a lot. Like, I'll intend to write "the dog chased the cat out of the house" and I'll end up writing "the dog chased the cat out of the credit card"

Man, this brainfog is so deep that no amount of red bull will save me now :rolleyes:

No, they're Malapropisms, and actually quite charming....sign of higher intelligence.... :lol:

Link to comment
Share on other sites
dlp252 Apprentice
That sounds pretty close. I can't tolerate anything more than a gentle backrub. Even a light massage on my shoulders HURTS LIKE HELL!! Not just during it, which could be tight muscles, but for a good 2-3 minutes after the touching ceases.

Wow, fortunately for me it doesn't happen very often, but I can think of two other times recently where I was nearly in tears and in one case felt kind of nauseated. Did you notice it happening when you were gluten-free? I'm wondering if maybe it will get better once you're off the challenge.

Guess what? My son, daughter-in-law and my baby grandbaby Ana, are flying in tonight at midnight... can't wait to hold Ana again... they will be here for good now, they moved back home to sunny Florida!!

How exciting!!!!!

Link to comment
Share on other sites
AndreaB Contributor
my gosh, your husband vacuuming.....how fantastic...be sure and post that on the why we don't need men thread...... :lol: Around here I don't look forward so much to the sound of the pitter-patter of little feet, but the sound of a man doing things for me (sawing limbs off trees, mowing the lawn, opening jars :lol: )

Celia and I must be doubly blessed. My hubby works hard all day and comes home and helps with whatever needs to be done. I just told him last night that I only eat 2 meals a day during the week but since he's home on the weekend I eat 3 because he takes such good care of me. :wub: He's always asking what I want for breakfast and if I don't know or don't feel like it, he figures something out. He also does laundry and vacuums on the weekends as well as doing the dishes that don't go in the dishwasher. And he let's me have most of the computer time so I can keep up with Rachelville. :P

Not to say the Celia and I are the only ones double blessed.....just no one else has written about it. :)

Link to comment
Share on other sites
jerseyangel Proficient

Ms Penguin, Just kind of goes with the territory! I managed to gluten myself (CC) right before we went away --a week and a half ago--and I'm still doing stupid things! Yesterday, I took a load of clothes out of the dryer, folded them and turned the drier back on--completely empty. A while later, I thought--what's that noise? It was the dryer running :ph34r:

Link to comment
Share on other sites
Green12 Enthusiast
Ooh! Ooh! I can get on topic, too!

I posted in another forum about bizarro pain I've been having. Does anyone else hurt a lot when someone scratches your back, gives you a massage, or you scratch your back? Or when you slide out of bed in the morning and your calves rub against the edge of the mattress? It's an intense soreness, like you just hit something really hard, only all of this is with avergage pressure. I've had it a few years, I never realized it wasn't normal :huh:

Since we're in the land of magical relevations, I figured this might be a more helpful place to ask advice :rolleyes:

When I am reacting to foods (not just wheat, but dairy and processed packaged foods/lots of grains does it for me too) and I amass a lot of swelling (rapid weight gain) I have this type of pain. It's like it hurts to be touched or to wear clothes, to even lay down because the weight of my body on myself hurts, if that makes sense?

It goes away for me when I lose the massive swelling and my body weight normalizes, it takes a while and it only goes down if I take out all the offending foods.

I just realized I made up a new word there - relevations. Kind of like revelations, only spelled wrong. Whoops :rolleyes:

I do that all the time, brain fog or nor brain fog. I think I am a dyslexic typer, always inverting letters.

I frankly prefer "relevations" to revelations. Here in the land of Rachelville, we make all the rules, and we have our own words and language, relevations must go at the top of the list :lol:

Ms Penguin, Just kind of goes with the territory! I managed to gluten myself (CC) right before we went away --a week and a half ago--and I'm still doing stupid things! Yesterday, I took a load of clothes out of the dryer, folded them and turned the drier back on--completely empty. A while later, I thought--what's that noise? It was the dryer running :ph34r:

:lol: Patti

Celia, I'm so excited for you, having your kids and grandbaby so close to you again!! I love having my family so close.

Link to comment
Share on other sites
AndreaB Contributor

Celia,

That is so exciting! You will have so much fun with your grandbaby......will we still see you on here? :unsure: I know we will and I'm happy for you. :D

Chelsea,

It sounds like your gluten challenge could be the culprit. You still have a month left? I meant to comment on the weight watchers pages ago but forgot. :blink: I would think the weight wouldn't be too hard to lose once you are back off gluten. I don't know if you've been eating products with a lot of refined sugar, but going off of refined sugar and only eating the sugar that's no so refined will help with weight loss. You still need to watch all sugar intake, it's just the refined stuff that so bad as far as weight.

Link to comment
Share on other sites
penguin Community Regular
Chelsea,

It sounds like your gluten challenge could be the culprit. You still have a month left? I meant to comment on the weight watchers pages ago but forgot. :blink: I would think the weight wouldn't be too hard to lose once you are back off gluten. I don't know if you've been eating products with a lot of refined sugar, but going off of refined sugar and only eating the sugar that's no so refined will help with weight loss. You still need to watch all sugar intake, it's just the refined stuff that so bad as far as weight.

I don't think it's the gluten challenge, I've had this going on for years, and being gluten-free did nothing for it. It may have been worse, actually.

I'm thinking the weight won't be too hard to lose when I'm off gluten, especially if I start WW at the same time. Double whammy of eating retraining :)

Link to comment
Share on other sites
Green12 Enthusiast
Celia and I must be doubly blessed. My hubby works hard all day and comes home and helps with whatever needs to be done. I just told him last night that I only eat 2 meals a day during the week but since he's home on the weekend I eat 3 because he takes such good care of me. :wub: He's always asking what I want for breakfast and if I don't know or don't feel like it, he figures something out. He also does laundry and vacuums on the weekends as well as doing the dishes that don't go in the dishwasher. And he let's me have most of the computer time so I can keep up with Rachelville. :P

You have a gem of a hubby indeed Andrea :)

Link to comment
Share on other sites
jerseyangel Proficient
Patti, you pm'd Lynne, and guess what, made my day to get a call from our friend in Kentucky, this board is amazing.

That's what friends are for, Susan! I knew Lynne would want to know cuz you two are buds ;) I'm sure this is another difficult day for the family--I'm thinking about you all :)

Link to comment
Share on other sites
rinne Apprentice

I'm wondering about your OMG moment too Rachel. :)

Relevations, great word, what does it mean? I'm thinking: relev as in important and elevations as in higher places, so relevations is the sharing of an important journey to the uplifted and inspirational community of Rachelville. :) Anyone else?

Celia, how wonderful that you will be able to hold that grandchild more often. I am so happy for you.

Link to comment
Share on other sites
penguin Community Regular

Off all topics, even the off-topic ones -

I just got off the phone with our tech guy for our prospect managment software that's showing me how to use this labrynth of a system that's supposed to make my life easier. He's maybe 30, and works with all of the councils nationwide.

Should I be offended he called me kiddo? :huh::rolleyes::P

C'mon guys, I know I'm young, but sheesh!

Better than "hun" I guess....

Link to comment
Share on other sites
Rachel--24 Collaborator
I'm wondering about your OMG moment too Rachel. :)

Ooops. :blink:

There seems to be alot of brainfog going around...I totally forgot. :ph34r:

I'm eating my lunch right now but will get back to this tonight. :)

Link to comment
Share on other sites
VydorScope Proficient
Off all topics, even the off-topic ones -

I just got off the phone with our tech guy for our prospect managment software that's showing me how to use this labrynth of a system that's supposed to make my life easier. He's maybe 30, and works with all of the councils nationwide.

Should I be offended he called me kiddo? :huh::rolleyes::P

C'mon guys, I know I'm young, but sheesh!

Better than "hun" I guess....

Kiddo is usally meant in an endearing way, so probably not, but if it bugs you, ask him to call you ma'am instead :D

Link to comment
Share on other sites
nikki-uk Enthusiast
My goodness we have so many now here at Rachelville, how great, who was the cosmetologist? I really need her today

:lo

That's me Celia,I'm here!!

(slight delay due to time zones-I'm in BST-British Summer Time,)

Whatcha fancy?Wash and blow dry?

God knows in this heat (36 celcius) I need something done to my hair!!!

It's frizzing outta control :lol::lol:

Link to comment
Share on other sites
Rachel--24 Collaborator
Should I be offended he called me kiddo? :huh::rolleyes::P

C'mon guys, I know I'm young, but sheesh!

Better than "hun" I guess....

I'm alot older than you and get called "kiddo" all the time...I get called "hun" too. People call me all kinds of things...as long as they are endearing it doesnt bother me one bit.

Oh...one of my co-workers calls me B****....thats just what she calls me and she says it affectionately so it doesnt offend me in the least. :)

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.



  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,069
    • Most Online (within 30 mins)
      7,748

    angie78
    Newest Member
    angie78
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @Nacina, What supplements is your son taking?
    • knitty kitty
      @BluegrassCeliac, I'm agreeing.  It's a good thing taking magnesium. And B vitamins. Magnesium and Thiamine work together.  If you supplement the B vitamins which include Thiamine, but don't have sufficient magnesium, Thiamine won't work well.  If you take Magnesium, but not Thiamine, magnesium won't work as well by itself. Hydrochlorothiazide HCTZ is a sulfonamide drug, a sulfa drug.  So are proton pump inhibitors PPIs, and SSRIs. High dose Thiamine is used to resolve cytokine storms.  High dose Thiamine was used in patients having cytokine storms in Covid infections.  Magnesium supplementation also improves cytokine storms, and was also used during Covid. How's your Vitamin D? References: Thiamine and magnesium deficiencies: keys to disease https://pubmed.ncbi.nlm.nih.gov/25542071/ Hiding in Plain Sight: Modern Thiamine Deficiency https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/ The Effect of a High-Dose Vitamin B Multivitamin Supplement on the Relationship between Brain Metabolism and Blood Biomarkers of Oxidative Stress: A Randomized Control Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6316433/ High‐dose Vitamin B6 supplementation reduces anxiety and strengthens visual surround suppression https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9787829/ Repurposing Treatment of Wernicke-Korsakoff Syndrome for Th-17 Cell Immune Storm Syndrome and Neurological Symptoms in COVID-19: Thiamine Efficacy and Safety, In-Vitro Evidence and Pharmacokinetic Profile https://pubmed.ncbi.nlm.nih.gov/33737877/ Higher Intake of Dietary Magnesium Is Inversely Associated With COVID-19 Severity and Symptoms in Hospitalized Patients: A Cross-Sectional Study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9132593/ Magnesium and Vitamin D Deficiency as a Potential Cause of Immune Dysfunction, Cytokine Storm and Disseminated Intravascular Coagulation in covid-19 patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7861592/ Sulfonamide Hypersensitivity https://pubmed.ncbi.nlm.nih.gov/31495421/
    • BluegrassCeliac
      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
    • Scott Adams
      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
    • Nacina
      Hello, I am a 45 year old mom, who was diagnosed at 29 with Celiac. My now 14 year old son was diagnosed just before his 4th birthday. Needless to say, we are old pros with the diet. He was experiencing some issues, overall health took a major plummet a year ago, and through a bit of work, was diagnosed with EOE. Tried diet alone, but his follow up endoscopy didn't show the improvements his DR. wanted to see, so I tried the medication. (Steroid). He became extremely backed up, and they had him taking Miralax daily. His health plummeted. He is a straight A honor's 8th grader who plays club soccer very competitively. His health continued to decline and at 13 had a colonoscopy and another upper gi. (He was still compacted even with the prep). I finally pulled him off all meds and mira lax, after reading much negative literature online, and put him on a gut detox diet and took him to a nutrition response dr. Finally things have improved. However...over a year later and he is having relapse stomach pain, debilitating stomach pain. Missing a day of school a week, to three this week. This is where we downward spiral with him. He says it doesn't feel the same as when he has gotten backed up before. He is eating prunes, taking his supplements, drinking water...all of the things. Yet, he is feeling horrible. Pain is abdomen, headache, lethargy, diarrhea . He is on a strict gluten dairy, egg free diet. He has adapted well in regards to diet. But I feel like we are missing something here. He is too active, too outgoing to be feeling sick all of the time. His Bilirubin is constantly high. His white blood count always runs slightly low. His vitamin D was very low last time he ran tests, (last month) when he was sick for a week. His celiac markers show negative, so it isn't that. His last endoscopy showed no Eosinaphils in his esophagus.  I have taken him to multiple Ped. Gastro specialists. They run tests, and we get zero answers. I meticulously go through labs, hoping to make some sense and maybe catch something. Any thoughts or ideas would greatly be appreciated. 
×
×
  • Create New...