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Rachel--24

Omg...i Might Be On To Something

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BTW, I found a note in the info from Dr Cowden that spirulina is acceptable in place of chlorella!! So maybe I will try to get some, as long as I can find it pure.

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Jin,

Ugh! How does one get tested? I don't know if you saw but I had some freak allergic reaction to something I ate last night. I had hives, itchiness, a hard time breathing, etc. It was really bad! I called my doctor about this, and I don't want to also mention the gallbladder thing!

Kassandra

It also could be related to my periods and their craziness. Since I keep having break-through bleeding my body thinks its getting its period so I get cramps, but I can't really be sure that's what it is. Who knows?

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Since I was on vacation my mom decided to have someone come and steam clean the carpets!!! Major chemical heinosity for me. Its the biggest set-back I've had since taking NDF in February. :(

:( that's so horrible. I can barely believe you have to deal w/ such bs just as things are looking up. :(

. . . . . She always says "But you seem sooo much better....I thought it wouldnt affect you anymore."

AAAAAAAAAARGH!!!!!!! :angry:

I dealt w/ a little of that attitude. Nowhere near this extent or impact. :(

P.S. I was just looking for Kassandra's post about the rashes and allergic throat-closing, then finally realized it was its own thread. Anyone know if she's gotten better? I don't think she's posted here since.

I'll have to look for that thread.

[Edit!!!: There you are!! While I'm off looking and posting you sneak in a post!

Well, Kassandra, good to hear you're ok after that allergic reaction. Been able to figure out what did it? I thought Rachel's dried fruit theory held promise. So many seem to not be "just" dried fruit. Are the rashes gone? Faded? ]

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Tom,

Lol! We must have been posting at the same time! :D I am waiting for my Dr. to call me back. The appt. lady freaked out...she was like COME IN!!! And I told her the hives, etc. are gone because of the benadryl. I am SO TIRED today though! I took a benadryl this morning before school and I had 3 tests today...NOT A GOOD IDEA!!! I kept falling asleep. Lol!! I am better-ish, but still really freaked out just because I don't know what it was and I am afraid it's going to get worse and worse!

Kassandra

Thank you for your concern!

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...I might have to sleep in the living room with windows open or something. I just dont know. :(

Heck, I'd sleep in a tent if she has a backyard!

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What a great pic of you and broncobux, mouse, and Momma Goose! :) I bet you all had a wonderful time. What all did you talk about?

:) Well, let's see . . . . . I think the 1st 45min or so we talked about talented southern indiana 'chinese' girls lol. :P:lol:

You haven't had a chance to any drawing in a long time I bet. :(

OK, seriously, it was madness! :wacko: There was not near enough time w/ them. And w/ 7 ppl at the table there's usually 3 or 4 conv going on at once. Even *while* I'm talking to one person, I'm trying to listen in on the side. It's madness!! :lol:

But broncobux had tix for the NFL game, and lol Goosey had to run off to a brunch w/ her brother. Her sister was w/ her/us for the gluten-free pizza. (So good that a non-celiac preferred it) The sister had us laughing at their having breakfast at the hotel, 11am pizza, then off to brunch lol.

We talked a little forum and a lotta regular how-ya-doin what-are-ya-doin stuff and no shortage of "mmmm great pizza" comments. I didn't have any but there was this one 1/2 slice of pepperoni sticking up at a cut point, as they're wont to do, and I just *had* to taste it.

. . . . . . .. .mistake!!! I was dizzy and light-headed and even a little out of it for ~10 min. So I can't vouch for what was talked about during that stretch. Never expected that reaction. I'd had a bit off a pizza last Halloween w/ no such problems. Maybe there were some spices on it that did it.

It really just flew by SO quickly!!

But mouse and I got to chat for another hr over coffee, so that was cool. I expect we'll meet up again sometime when I'm back visiting mom, since she lives in the area. WAYYYYYY east tho, up against the mountains.

So YES! Fantastic and we also wish you could have been there. (That goes for ALL y'all btw!)

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Heck, I'd sleep in a tent if she has a backyard!

That's because you don't have Lyme Disease!

I'm glad you're doing better again Kassandra. I couldn't have stayed awake after Benadryl either. I definately could not have done any kind of school work!

Rachel, don't forget to send me your email address again so I can send you that info. ... though I'll try to remember what yours starts with ... sometimes my Outlook will fill in the rest ... yep, it's there.

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Dear Carla,

I agree that sleeping in a tent is not appealing to anyone who has a fear of ticks! :o That would be anyone who has Lyme! Ticks are evil! They must all be destroyed! Donna, get your relocation gear ready! :lol:

Dear tom,

ROTFLMAO! :lol: Yeah, we Chinese hicks are everywhere! :blink: Nope, it is just me and Henry Cho. :( We are all by ourselves! Maybe we should start our own society. That would be safer!

The meeting sounded very fun! I am sorry you had such a bad reaction to the pepperoni! :( They probably used dried spices in it. Also, those types of meats are often moldy. It was wonderful so many of you got together. Gluten-free pizza sure sounds terrific right now!

I have not gotten to do any drawing that is really great lately. I hope to get some stuff submitted to Marvel soon. The guidelines are very strict. Everything must be perfect! I am quite nervous about it. I think I know what I am going to do now, though.

Dear Kassandra,

Gallbladder tests are usually the HIDA scan, and an ultrasound. Abdominal CTs are run sometimes, but they normally are not the best with accuracy. However, that is the test my gallstone showed in. It must have been a low-density stone. Only low-density stones tend to show up in that test. The other two are not necessary very accurate, because according to my research, is only 33 percent at best. :(

Nothing showed in mine. There are people where those tests identified the problem. HIDA scans are best for identifying a blockage or obstruction in the bile duct. Gallbladder ultrasounds typically do better at identifying stones in the gallbladder. They are not foolproof, and can miss problems. Another issue is, stones can pass between tests.

Itching is actually a common symptom of liver problems. Hives sound more like an allergic reaction. Benadryl always made me hyper, as odd as it is. Polyhistine made me violent, so I could not be on that. No OTC or prescription med to date has had any effect on my allergies, except for sinus tabs from Wal-Mart or Sam's. They are the only thing that gets rid of my migraines.

I agree that dried fruit might have set off a nasty reaction. It is moldy. Sulfites also are a problem for a lot of people. I react badly to dried fruit with them. I avoid it anyway due to the mold content.

I did not see your previous post. Susie's did not show, nor did Rachel's other post on here. I wonder why? This thread is weird. The forum acts strange a lot.

Dear Sherry,

I am glad you can use the spirulina! :D That should help with detox a lot! I will keep that in mind for future use. I thought it probably could be used to help chelate and purify, but was not sure. Everything has unique abilities to a point.

Dear Rachel,

I am sorry to hear about the heiniosity! :angry: It always sucks having difficulties with your surroundings. Inconsiderate people are the worst! I live with two of them. Somedays, it takes all the strength I have not to smack the crap out of them!

The steam cleaning is very harsh on your system. They say those things are safe for pets, but I highly doubt it. If they upset your system, what could it do to a small animal? I shudder to think of it. Clean is good, but there are safer ways to do so. Not to mention, the environment needs the consideration.

Dear Carla,

I do not tolerate smells well. Chemical smells and perfumes really irritate my system. If they do not make me dizzy, they make me queasy or make me sneeze. Candida is likely to blame for that. At least I am off of the muffins now. That should help! I made some gluten-free blueberry muffins, and racheled them for several days. I am back to fruit now.

Dear Susie,

Charcoal is probably the least expensive thing to help detox. Lemons are another cheap way to cleanse your system. Epsom salt baths or baking soda baths are another good idea. Are you rebounding still? Sleeping trouble certainly makes it harder on your system.

I have noticed the soy overload will aggravate my system. Estrogenic foods are something I need to limit. I would have replied earlier, but for some reason, your post did not appear. That is really annoying about this forum. The software they use must get overloaded easily.

Linseed and flax are the same thing. If you tolerate flax, you should be fine with linseed. They are great for Omega 3 fatty acids. There is flaxmeal, too. Many Candida plans recommend it, as well as Evening Primrose Oil and/or Borage Oil.

Dear Andrea,

I am sorry to hear your tooth socket is giving you trouble. My molar is really irritating my sinuses. I need to get it removed. Doing anything makes me nervous due to my not knowing if my stomach will behave itself. I am going to call my doctor tomorrow about the Lyme testing. I know she is apprehensive because she does not know how to read Western Blots.

Dear Donna,

I will check our healthfood store. If anyone will have Pau D'Arco, they will. I am glad it does not taste bad! Thank you for the info! How much do you need to drink a day? One or two cups?

I can see the hemp butter would be expensive. Hemp shakes do not sound that appetizing, either. I am not a picky eater, but I am a supertaster, and so things taste stronger to me than they do to other people. I enjoy a lot of different things, but like them prepared a certain way. I know how funny that sounds!

Sincerely,

Jin

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Have you and Mitch began the Pau D'Arco yet? I was wondering, because that might be affordable for me. I have never tried it. I hope it does not taste bad. I heard it is not too expensive.

We take capsules. It's by Nature's Way and isn't very expensive. That's the brand Dr. E wanted us to get.

I bought some blinds from the hardware store for our bedroom. They said they were real wood. Well, I guess it depends on your definition of "real wood" :angry: . Anyway, they are particle board and had a definate smell ... that smell always bothers me ... So, I put the air cleaner in that part of our room and it's helping. It'll be a while before these blinds lose their scent though. If it weren't for the air cleaner, I'd have returned them. They're white blinds, so there was no way to tell that they weren't "real wood" as the package stated.

I think I would have tried taking them back but you'd probably have had a hard time trying to find real wood.

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Rachel, that's awful about the chemical exposure. I've had periods of time where those things are really troublesome. Less so now. Oh boy, there is ONE major thing that really does me in--mosquito coils which are common in Asia. It can be far away in the same building (several stories away) and come up through the stairwell and really do me in.

Sure hope it doesn't set you back. Remember it takes 10 days for a chemical to move through your system (according to my allergist anyway), so lots of water and detox!

Kassandra--we are all so unique. Benedryl would have me hopping for probably two days and no sleep at all.

Glad it is helping though.

Carla, how's the herx doing?

Can anybody tell me how much soda to put in the bathtub?

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That's a good link about baths, thanks. I'm going to ask a silly question now ;) Is the bath part of the detox process or is it designed to get rid of the toxins released by the detox? What I'm concerned about is redistributing the toxins. I feel pretty toxic at the moment and want to dump the toxins rather than send them back! Would baths and brushing help with that? Exercise seems to be making it worse.

Also, the link talks about rebounding and says bouncing not jumping. Am I being thick here, but what's the difference?

Susie x

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Linseed and flax are the same thing. If you tolerate flax, you should be fine with linseed. They are great for Omega 3 fatty acids. There is flaxmeal, too. Many Candida plans recommend it, as well as Evening Primrose Oil and/or Borage Oil.

...

I will check our healthfood store. If anyone will have Pau D'Arco, they will. I am glad it does not taste bad! Thank you for the info! How much do you need to drink a day? One or two cups?

Yeah, I searched a little yesterday evening and found that flax and linseed are the same...so no linseed for me.

The box of Pau D'Arco tea says to have 1-4 cups a day or as directed by a health care professional. I'm still just doing 1 per day (steeped for 10-15 minutes per the package directions), but have ocassionally had 2 in a day.

Never mind, I found some stuff online. You all might like this link on detox, baths, skin brushing, etc.

http://brimhallwebsite.com/pdfs/detoxbaths.pdf

Great site, thanks.

Also, the link talks about rebounding and says bouncing not jumping. Am I being thick here, but what's the difference?

Not quite the same thing. Bouncing would be where your feet don't leave the mat, whereas jumping the feet would go airborn...bouncing is a gentler form. I tend to jump... :ph34r: I like jumping.... :ph34r: especially jumping jacks on the rebounder, but I try to end with a few minutes of bouncing.

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I think I would have tried taking them back but you'd probably have had a hard time trying to find real wood.

These are Levalor, too. They do sell real wood blinds at the expensive blind store down the street from out house, but they are very pricey. The people who owned the house before us covered many of the downstairs windows with them. There is a reason they are three times more expensive ... they are real wood and look three times as nice.

Carla, how's the herx doing?

I take the Levaquin at 4 PM and feel worse afterward. Up till that time I feel the same as I did before I started taking it. I'm sure it will take some time to start working. It's not a constant herx ... and it's still like I've been drinking.

I make a smoothie every evening to take my nighttime meds/supplements. I use whey and frozen raspberries, and I also eat a piece of "fudge". Well, last night it was pretty humorous. I was looking for the frozen raspberries ... first the refrigerator, then the pantry. Then I realized I had no clue what I was doing and yelled into the family room to Adam for suggestions. He didn't hear me, so I stood there and really thought hard. Then I finally found the raspberries in the freezer ... but they had been moved, so I really had to look hard.

So, I came downstairs today. Two of my girls left notes on my meds of what's going on after school ... so the family has adjusted to my lack of brain!

Yeah, I searched a little yesterday evening and found that flax and linseed are the same...so no linseed for me.

Yuck. My mom used to use linseed oil when she'd refinish antiques. Yuck. I didn't know that was the same as flax oil. Did I say yuck?

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Dear Andrea,

I will keep the Nature's Way in mind in case I cannot find Pau D'Arco tea. If anything, they will have the tea, though. Have you noticed a difference yet? I am not sure how long it will take to show a difference with the Candida. I know some people have experienced die-off, but it may depend on how severe the case is.

Dear Sherry,

Mosquito repellants and such are bad to be around! :( I react badly to many things as well. Bug sprays are definitely something to avoid, as well as anything that is supposed to exterminate them, like you mentioned. Chemicals can take forever to be removed from your system. I need to start detoxing! I am exposed to cigarette smoke, perfumes and colognes, and so many other things daily!

Thanks for the link on the baking soda baths! :) We have a big old box full of the Arm & Hammer. I might as well use it! I do not know if I have everything for the castor oil packs or not. I need to see. Lemon water is a good, inexpensive method to detox I will probably start out with first.

Benadryl and some other allergy meds did the same to me! :o They hype me up. I do not know why. It is so strange how one person can be knocked out by something, and another be totally wired by it. The OTC sinus pills I use can make me drowsy, but usually it is not like the promethazine I take, where it completely knocks me out!

Dear Susie,

You are not thick at all! There is a difference between bouncing and jumping. Like Donna said, jumping is when your feet are up in the air. Bouncing is gentler. You might be feeling worse from the exercise as a result of your adrenals being worn out.

Dear Donna,

It sounds like no linseed for you! :( You have to wonder why the heck they do not just use one name for things. That would be much less confusing! Regardless, flaxseed and linseed are one in the same. There is bound to be something out there with Omega-3s you can have! How about Evening Primrose Oil or Borage Oil? Have you tried those?

Thank you for the answers to my Pau D'Arco questions! I hope it does not react with medications. I am on a few. The Prilosec will probably not be a problem. The Celexa and Depo may be another story.

Dear Carla,

You are right, flaxseed and linseed oil are the exact same thing! They do use it on antiques. Wood particularly is conditioned with it. I take it you did not care for the taste or smell? :lol: I never minded it too badly.

I am sorry to hear the new med makes you feel rough for a while. Hopefully, the misery from that will improve soon.

Getting used to new medication can be difficult on your body. Just do the best you can! That is all you can do! Meanwhile, your raspberry story was priceless! :lol: I have had my raspberry moments, too!

Sincerely,

Jin

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Yuck. My mom used to use linseed oil when she'd refinish antiques. Yuck. I didn't know that was the same as flax oil. Did I say yuck?

:lol: I think I got it! :D:lol:

That's good your family is aware of your downswings as well as your upswings. It will get better soon again.......I'm being real hopeful that this stuff will get the Bart under control quickly so you can feel somewhat normal again. :)

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Dear Andrea,

The Bart probably is getting killed off. That may be why Carla is having it so rough. This makes sense. I am sure she will be doing well in no time! We are sending positive energy her way!

Sincerely,

Jin

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I'm being real hopeful that this stuff will get the Bart under control quickly so you can feel somewhat normal again. :)

Oh, let's not hope for that! I hope becoming healthy doesn't make me become NORMAL!!! :lol:

Thanks, I hope it works quickly, too.

Mom used to mix the linseed oil with tung oil and heat it up (yeah, you have to be VERY careful with that, LOL). It smelled NASTY. Did an awesome job on the antiques though.

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I will keep the Nature's Way in mind in case I cannot find Pau D'Arco tea. If anything, they will have the tea, though. Have you noticed a difference yet? I am not sure how long it will take to show a difference with the Candida. I know some people have experienced die-off, but it may depend on how severe the case is.

I haven't noticed a difference but I'm not on the anti-candida diet either. Doesn't help that we are extremely low on food stuff and out of grocery money for another week. I did have a piece of fruit this morning. I've cut back on my meals. We have lots of rice and meat but I don't want to overdo either. T has been on an eating frenzy which doesn't help. I don't know if it's a growth spurt or the candida talking.......since she mostly eats grains.

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Jin!! See this yet?

Evansville celiac group!

http://www.glutenfreeforum.com/index.php?showtopic=38452

And, somewhat related, I'm meeting *another* forum member tomorrow!

He even lives in my little Ahwatukee part of Phx and owns a Health Food / Vitamin store. He's offered up his resources and knowledge re: pills, supplements etc on this thread.

http://www.glutenfreeforum.com/index.php?showtopic=38438

Sorry to hear about the setbacks some are having. :( Seemed last week like many R'villers were making good progress. I hope we can get back to another upswing very soon. :)

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Thank God yesterday is over with. :D

It seemed like everything went wrong. My new lipgloss exploded after being in my car too long...big mess all over my hands. Then trying to scrub that off I dropped and spilled a bottle of rubbing alcohol. The whole day my head just throbbed like it used to a long time ago...when I nedded to take pain meds everyday.

I'm still feeling it in my jaw, nose, and teeth but not nearly as bad.

I went to my appt....I was not expecting traffic on the way there but of course nothing was going smoothly for me yesterday. Major accident on the freeway and it took me 2 hours to get there.

What I love about my Dr.'s is that they take their time. Even when they get behind and people are waiting they are not rushing with people. I thought my appt. was only gonna be 30 minutes but I was with the Dr. for about an hour and then with the girl for another hour. I was there until 8:00 last night.

My mom was there with me.

I was pretty exhausted from the day and then had to drive back home.

My appt went really well. The Dr. said I'm testing much stronger than I did when he first saw me. Even with the setback he said I'm still doing very well. He said the setback is not interfering with my recovery. :)

Most of the testing and focus was on my jaw and head area....where I was having the symptoms from the reaction. He did some acupuncture to see if it could help with that. I felt better when I left there but I dont know if the acupuncture helped or not.

I also used the Chi machine and was massaged around my head, neck and shoulders. They used the quantum ray on all the toxic foci areas...especially my head and jaw. This time she used the quantum ray for a longer period of time.

This is what is actually the first part of a LED treatment but we did not actually do a treatment...only the quantum ray....which is infrared that they use to loosen up the toxins.

I had charted my basal temp and originally I thought it was low. Its usually 97.7....I looked it up online and found that it was actually normal. The Dr. was happy with my basal temps and said my thyroid is looking good. :D

He wants me to continue keeping track to see how normal my cycle is. So he said any problems or symptoms that look like low thyroid are from the adrenals...because my thyroid looks good but my adrenals are really stressed.

I gave him my list of abx and he said we may have to treat those later but we didnt do anything with regards to that last night.

I asked about my DMSA protocol since its different from what most are doing. I take DMSA once every 3 days....whereas alot of people say it needs to be taken every 4 hours to prevent redistribution....a certain amount of days on...and then 7 days off to rest the body.

Personally, I dont think I would do well with taking it that frequently. So far I havent had any symptoms that would indicate redistribution but I wanted to ask him about it. He said they've had alot of success with this protocol and it works well for him and other Dr.'s doing it....so I feel good about it.

He said I'm taking glutathione, binders, drinking lots of water, etc....those things will keep moving mercury out on the days I'm not taking DMSA. The girl said I can do coffee enemas or saunas on the days I'm not taking DMSA....which will also help.

He said the MCS problems like what I went through yesterday will definately start being less noticeable as I progress with treatment.

I aked him how can I be sure if I'm excreting any mercury?? He said if I want to spend the money we can do the test but if it shows that I'm excreting mercury we'll just keep doing exactly what we're doing now...and if it no mercury is showing up...we'll continue doing exactly what we're doing now...so it doesnt change anything in his mind as far as treatment.

He said all of the metals will be coming out. The heavier ones will come out first and mercury is one of the heavier ones so its not like it comes out last.

I asked him if its gonna take months?? Years?? He said the LED speeds that up alot....the effects of the LED will continue for months and as long as I'm taking the DMSA and other supplements to move it out...it should be coming out quickly.

During the 25 hour detox period after LED he said the energies are spreading through the body....branching out and getting to all the cells. The EMF's....cell phones and other things that might interfere with that can interupt the process so that it doesnt reach all areas of the body...which is why we have to avoid those things.

After that the process of dumping toxins begins and continues long after the LED.

The girl said I should be noticing the changes in the next couple months...if not...and if I'm still having problems with sulfur foods....they might do some testing for genetic problems with the sulfation pathway. If that were the case they would need to address it.

She doesnt think that there would be any genetic blocks because of the fact that I was healthy for almost 3 decades with the amalgams in place and having had vaccinations and so much exposure to other toxins over the years. She said it would have happened much sooner....like it does with autism.

So most likely my sulfation pathway is having problems because of the mercury...which would correct itself once we detox enough of it. If it were a genetic problem there wont be any improvement without doing something to overcome it.

For now we just wait and see how I do with the DMSA.

I think the chemical sensitivities are heightened right now and I reach my threshold quickly because I *am* detoxing and my liver is working overtime. The Dr. agreed that could very well be the case. He said its a really good sign that I'm sweating alot easier now too.

So I wont be seeing them again for about a month.

Still no date for when Amy is coming....possibly Oct/Nov.

The only new thing they added in yesterday was Trace Minerals....to be put into my water every day.

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Carla...thanks for the email. :)

I dont know if an air cleaner would help or not. My mom is having the guy who did the carpets come back today and just use warm water to try to rinse it out better. The Dr. said it will probably bring it more out into the air but if they keep the windows open it should help to clear it out.

He said to not overwhelm myself by staying inside next time I'm there. In case its still a problem I should go slow and see how my body feels...go back outside and then enter again until I know its safe.

I'm excused from work till next Monday. I'm scared about the carpet situation still.

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Sounds like another good appointment Rachel.

Hopefully your mom will keep the house well aired this week to help with the carpet situation. I'm glad she's having the guy come back and rerinse it.

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I'm excused from work till next Monday. I'm scared about the carpet situation still.

Your appoint sounds like it went really great!!! Poopy traffic!

So maybe the house will have a chance to air out really well between now and next Monday. Hope. Hope. Hope. :unsure:

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