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Rachel--24

Omg...i Might Be On To Something

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Melmak, I am sorry you are having a really rough time. Hopefully your allergist can help sort things out for you.

Sometimes it takes taking everything away to get a picture of what is going on and then adding things in one by one, lots of trial and error.

Carla, I agree it just doesn't taste the same after not eating it for so long.

My taste buds have completely changed and I just prefer different things.

A real slice of pizza (or something gluten filled) SOUNDS really good in my head, and LOOKS good, but when I eat it it doesn't live up to that excitement :lol: It's kind of a let down...

BUT, the important thing is it speaks mountains about how much you have improved with food sensitivities :D

Rachel, sounds like you had a really great appt and things are progressing well :D

I survived all the IVs, and Mia is plugging along with them. I think you will do great.

It's normal to be nervous since you don't know what to expect, that first one will probably be a learning experience and then once you get that behind you you will just sail through from there !

Kassandra, NSAIDS might be an issue.

I took lots and lots of ibuprofen for period cramping over a ten year period and I know it didn't help my intestinal problems. I was able to get off of it a year and a half or so ago when I switched to a Chinese herb that treats pain and inflammation (moving stagnant blood chi) .

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I am thrilled your appointment with Dr. S was so encouraging! Maybe the IVs will workout alright! We all will have our fingers crossed for you! This is exciting! Those metals should come out, and then you can get rid of the fungus, too!

Thanks Jin, Judy and everyone else. :)

I pray I dont have problems with anything. When I schedule the DMPS he wants it done on a Friday...so I can rest before returning to work. If I have any kind of stress going on...or just dont feel good...then he doesnt want me to get the DMPS until it passes.

Once I get the test done....it'll be 2 weeks till the results come in. :)

Rachel,

Good for you too! That sounds like great headway has been made. Again, I am jealous! :(

Kassandra...you will get there too!! You're just in the beginning stages of looking for answers. Check out my first post in this thread....it really wasnt that long ago!!

You are young and you are determined...it sucks to feel crappy but just *believe* that its not gonna be this way forever. :)

R: Wonderful news!!!!! Those IVs sound pretty similar to mine. I'm going away for yet another wedding, but I'll be in touch. Yes, I survived, but can't do them anymore.

Thanks Laura. :)

I thought about you with the IVs...glad you're not having to deal with them anymore. I'm hoping it wont be a nightmare. I'm not too good with needles, shots, IV's, blood...etc.etc. :ph34r:

I get so "weak"...the whole thing just usually makes me feel as if my arms might fall off. :rolleyes:

you are the

RACHELVILLE ANGEL IF we don't have one.

Well...we have Patti...she's an ANGEL for sure. :D

Jin is also an angel!! :)

And then there is Judy...Mia...Andrea...Julie...etc. etc.

Heck...Rachelville is *loaded* with angels. :)

Dunno about me though. :P

However, don't be too jealous (this goes for you, too, Kassandra) .... the brownies were NOT as good as Namaste, AND the pizza tasted doughy. Maybe a different pizza would be better, but I think that over time you just lose the taste for white flour just like you do for sugar. it. :)

Ummmm...I'm thinking my taste buds are still screaming out for flour and sugar...and REAL pizza!! :P

They havent forgotten...but are waiting semi- patiently for my recovery. :D

Carla...YAY for eating pizza!!! :)

Donna...if you thought my Dr. appt post was exciting...just wait till I post about my first pizza!!

OMG... :lol:

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Remember how he used to be so glum about my situation...and hang his head down with frustration??

Well... there was NONE of that tonight. It was GREAT! :D

He kept saying that he was very impressed with the changes. :)

He just seemed pretty amazed by it...

. . . .

It was the happiest visit I've had with him so far. :)

WOW!!

Congrats! Sounds amazing & fantastic & amazingly fantastic & fantastically amazing!! :)

Dear tom,

Are you in Phoenix again, now?

Yup. Flew on Tues. Only 95deg comin' today!! :)

. . . but it is funny that I had a dream the other day that I was told I was casein and soy intolerant. Maybe I should cut them out and see how I do.

Just "maybe"? I say "Just Do It"!! :)

Thank you for the Shelly (or is it Shelley?) update. I was glad to hear things are going well for her.

It's Shelly. I've been surprised at how well the 8 yr old follows the diet w/out whining or complaining. Very matter-of-fact about it.

Donna will probably be difficult to catch. Cookies are her thing! She knows WF! Be careful, man! You have no idea what she is capable of!

:lol:

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.if you thought my Dr. appt post was exciting...just wait till I post about my first pizza!!

OMG... :lol:

I am more excited that it didn't cause problems and that I don't have to be careful at restaurants/buffets than about the gluten itself ... this was NOT the reaction I thought I'd have .... I was in great anticipation of having a Big Mac again, and a couple months into eating gluten and I still haven't had one! In fact, I seldom have gluten. I thought I would still like it ....

Hopefully you still will and will thoroughly enjoy your pizza .... but the most excting part will be that it didn't make you sick. :)

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Rachel,

I am very interested in reading about that Japanese yeast/biotin study (or whatever it is) . I can't recall if you posted about it here, I must have missed that or I am completely drawing a blank on it.

Or maybe it was in the oxalate thread?

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Today at school I had what felt like a MAJOR hypoglycemia attack! I woke up at about 5 am and around 5.45 I had an omellete (with avocado and tomatoes and nothing else). Then I had decaf coffee ( :(<_< ) with hemp milk and cocoa powder. On my way to school I had starbursts (this is the problem with having a car...lol! I can stop anywhere and buy ANYTHING!!! :lol:) Then around 10 I was STARVING, so I had an apple!!!! I felt terrible. Then class started around 10.20 and we were revising essays and my friend was like...are you okay because I was shaking so badly I couldn't write without my handwriting looking like there was an earthquake. I stood up to get out of my chair and had to grab onto m desk because I almost fainted I was so dizzy. Then my teacher saw me and gave my lemon heads to give me a sugar rush because I was in such bad shape. It helped, but then they made me so nauseous I had to take Zofran. :( So, I guess my question is...is this because the sugar I ate...this usually doesn't happen. And, can you be hypoglycemic without having diabetes?

I talked to my mom about this and she said that I should try taking Chromium Picolonate to help with the blood sugar imbalance. Is this an okay supplement to take? Anything bad about it? (You all are so knowledgeable about these kinds of things...:)) Any answers to my millions of questions would be appreciated! :rolleyes: Thank you again!

Kassandra

yeah, you can be hypoglycemic without having diabetes... everyone in my family (mom, dad, and sister and myself, of course) are all hypoglycemic to various degrees without any of us having diabetes, though my dad's father had it...

I don't know how restricted you are with foods but there are some foods which are easy to keep on hand as snacks to eat when you feel crashing symptoms beginning... most nuts and nut butters have a good balance of carbs-protein-fat... you're already eating eggs in the morning, which I ate with success in the morning in regards to blood sugar for years before going egg-free... you can try checking for bars to carry with you though it's somewhat difficult finding a bar that has a good protein-carb ratio, especially with numerous food restrictions...

you may also find you can tolerate certain sugars/carbs at certain times of the day... for instance, for years before I went gluten-free, I couldn't eat pizza at any time other than the evening... if I had it for lunch, I felt off and out of it... same with having any sugar in the morning like a donut or whatnot... but at night, I could have something like pizza or a bowl of ice cream and be fine (maybe a little tired but fine otherwise)... I think it has to do with getting a certain stability throughout the day that my body could better handle certain sugars/carbs at night... even now, I can generally go a little longer between my later meals without eating than meals through the morning and afternoon...

and if possible, I would try to avoid eating things that are too sugary like candy if you start crashing... it may just cause you to crash even harder a little while afterwards... the best thing to do to handle blood sugar issues is to avoid the crashes and also the spikes (from something too sugary).. you want to try to keep an even keel as much as practically possible, which is why you should strive for a ratio of about 4:3:3 carbs-protein-fat... if you do eat something sugary, try to follow up within the next 20 minutes or so by eating something with protein to help stabilize your blood sugar...

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Hi Charlie!!

How are you doing?

How is your sister doing? Any news on when she heads overseas yet?

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Charlie,

Thank you for your advice. Were you all formally diagnosed by your doctors? It is really hard for me, because I need to eat ALL THE TIME, but at the same time I seem to gain weight easily when I eat as often as I should. Also, I can't have anything such as nuts except peanuts, but in really limited qualities. I am going to try to make a granola with all kinds of seeds and cereal and some peanut butter or peanuts so I can keep that with me at all times so if I feel like I'm crashing, I can catch it soon. I'll let everyone know how it turns out.

Again, thanks!

Kassandra

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Phew, busy day at work...literally worked on one document from hades for SIX full hours straight! And, didn't even finish it...had to pass it off to my co-worker.

Do you think you are in a better place healthwise this year? I hope you will get some rest on vacation so you don't get sick again this year.

I don't know about better...I think I'm in a different place than I was last year. I think the major difference will be not getting myself worn down. We went on the cruise last year, did a few shore excursions, but then went to Disneyworld...there's just no way to relax at DW, so I really overdid it. I could feel my adrenals getting weaker and weaker. Maybe that wouldn't have been enough normally, but it was right after the first half of my amalgam removals.

This year two big differences...we're not having to fly across the country in either direction, and we're only doing the cruise. I've already told my friend that I can't do a bunch of shore excursions and am perfectly happy to lay around the ship all day...she can do some excursions without me. We only have 3 ports so, it's not going to be a tough choice anyway. I think I don't have any major health hinderances like the amalgam removals, and I've been addressing the toxicity and food intolerances, etc. We'll see, lol. As long as it doesn't set me back months, it's worth the risks in my mind.

Dunno about me though. :P

Definitely NOT me, lol.

Donna...if you thought my Dr. appt post was exciting...just wait till I post about my first pizza!!

OMG... :lol:

:lol: Heck, I'll dance after you have your first pizza!

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Dear Julie,

Thank you for the link on lead in lipsticks! I had heard bad things on Estee Lauder before. It is not that surprising. Still, it is difficult not to be nervous about things now. Cosmetics are only one of many sources of lead. Chocolate, candle wicks, some plumbing for copper pipes, and housepaint made prior to 1978 are other common sources.

NSAIDs are deadly! My grandmother developed an ulcer the size of an orange that cause the bleeding forcing her into Alzheimer's. :( I will not take Ibuprofen, because it irritates my stomach. I used to take Aleve for cramps as a teenager, but now I only take Acitomenophen. A lot of people do not realize even Acitomenophen is dangerous.

Numerous deaths occur every year due to people damaging their liver by overdosing themselves. Normally, people did not read the labels of what their cold medication contains. Many already contain Acitomenophen. I always have read labels.

I wonder why more people do not?

Dear Kassandra,

NSAIDs are something to be very careful with. I avoid them at all costs. Acitomenophen is the only pain medication I take. It is in my sinus pills. Another important thing to keep in mind is to never take them on an empty stomach. This will definitely cause an ulcer. Always take them with food. My grandmother was on Naproxen for many years due to her arthritis, and the pain medication literally destroyed her stomach.

I hope you do not have an ulcer. Those are bad to have. Tests like endos can rule them out. Even if you do not have an ulcer, h. pylori is still a possibility. Killing it off take several antibiotics at once. Since you are like me and do not tolerate antibiotics well, it might really do you in. I did the Helidac Therapy, and did it for four times as long as most people.

There are some good natural things that can help kill h. pylori. Mastic gum is one of them. Life Enhancement sells it. I used to take it. If you can eat broccoli, there is something else that is helpful. It contains sulfurophane, which destroys this bacteria. All you need is an ounce daily. I assume raw would be best.

I get annoyed that doctors do not seem to feel our issues are important. :angry: I feel the same way about doctors. My doctor drags her feet. I am tired of waiting to feel good! Even worse, I could have a deadly disease, (Lyme), and I feel like I am just waiting to die! :unsure: These morons have absolutely no sense of urgency.

Getting enough sleep is important. I know if I do not get enough, I feel worse. Most of the time, I manage at least six hours. There are times where I can hardly rest at all. Every now and then, I go two days to several days in a row with only several hours of sleep or less.

As far as waking up, eucalyptus oil is one good essential oil. Mint and citrus are two other helpful ways to wake-up. There is also something called guarana juice. It gives you energy. If you want to increase your intellectual capacity, burn a lilac scented candle while studying. You can take a plain candle and dab a bit of the oil on the wick if you are chemically sensitive like me, and it should not bother you. Lead-free wicks are important, too.

Dear Judy,

Thank you for the compliments! :) I would be the clumsy angel running into everything. You know, the one who is not quite used to how those wings work? :lol: It is good to know my posts help everyone else keep up! I am glad my efforts are appreciated and noticed here, unlike the housework I do!

I do take notes, but not while I am at the computer. It sounds quite quirky, but I wait until I read everything. Then, I tap my "memory buttons" with my index finger on the top of my head. I go upstairs, and write down everything I remember from the thread. Later, I use it as an outline when typing out my posts. Usually, I will write each person's name down, then put a dash, and then a short description or key words I know will help me recall what I wanted to reply to.

Dear Andrea,

I could never miss a vegan diet. I would die without meat! When I do not eat enough red meat, I start feeling strange and weak. I used to be anemic, so maybe that has something to do with it. It amazes me how some people can go without meat, because I have to have it!

Dear Rachel,

Thank you for the compliments! ;) I am probably the only angel who uses profanity constantly! :lol: However, this is never in front of children or outside of my home when someone could hear. I agree everyone in Rachelville, including yourself, is an angel. There is so much love here! :wub:

I can see where you would be nervous about the IVs. Not knowing how your body will do with them is scary. At the same time, you want to bring forth good change. Standing on the threshold can bring a lot of mixed feelings. We all are pulling for you!

I cannot wait until you get to post about your first pizza again, either! We will all want to hear about it. Details are particularly important, so we can fantasize about eating it ourselves! :D The great part is, even if the fantasy food is not gluten-free, we cannot get sick! You have to have a Big Mac and fries for me!

Dear Mango,

I meant to address you yesterday, but had no room in my first post. It was so long, I was not sure it would even let me post something that long! I have heard good things about eucalyptus oil for allergies as well. You can spritz it on your bed and pillows to keep dustmites at bay. Essential oils have many good qualities and uses! I know citrus is very energizing as well. So is mint.

Dear Laura,

Another wedding? You sure know a lot of people who get married! Is it just me, or does everyone seem to get married at once? It is the same with having babies. Have you noticed this? Just make sure to take some time to care for yourself! Busy is okay, but do not overdo it!

The IVs probably will work for Rachel. I know you benefited from them. I was glad to hear you are out and about. Maybe one day soon I will be as well! For the time being, I need to get Lyme testing done.

Dear tom,

Shelly's son sure is mature for an 8 year-old! That is good to hear. He must not complain much. Children often have a hard time with going gluten-free. Everything changes for them. So many just want to seem normal to the others.

Yes, Donna is dangerous when cookies are involved. Do not try to apprehend her. You could end up in serious trouble. She might soy you to death! I would not risk it! Women wanting chocolate are capable of unspeakable acts! Trust me, I know.

Going soy and casein-free should not be too hard. That eliminates all processed foods, but I am sure I can figure it out. Sticking with the fruits and veggies is first and foremost. Adding meats is all that is left. I do not think they are the issue, but getting rid of them for a couple of weeks cannot hurt anything. This is something I can do now atleast!

Phoenix being only 95 degrees is something in itself! That is still very toasty, though. Lately, we are in the 40s in the evenings, and in the 60s, 70s, or 80s during the day. We keep having to flip back and forth from the air to the heat. So much for ever saving on energy costs. :(

Dear Carla,

I can see why things with gluten do not taste as good when you go back to them. The taste is something you are not used to anymore. It only makes sense you do not desire it, or even like it much now. Despite how tasty they might be, all of those foods remind me of being sick. I suppose it is because that is what they do to me. I go out of my way to avoid them, but you are recovering from the intolerance, so that is a bit different. Thank goodness your situation is not permanent.

You were talking about the fertility being effected by the Thyroid issues. Metals tie in with that. They can kill the Thyroid. That is what I meant. Sorry, I should never respond to posts when I have a migraine! I get a serious case of the duhs! Thinking straight is impossible when I get one of those horrible headaches!

Oh, I get it now! The lasers balance the body. They do not detox. LED is different. It does detox. That kit would be nice to have. Pricing was not as bad as I expected.

Dear Donna,

I have not been eating as much chocolate. I told myself if I eat chocolate, I have to cut my coffee consumption some. That is helping me feel a bit better, too. Overdoing it is hard to avoid. Chocolate is one of those things you just need sometimes.

Your friend is like me! She will take 1,000 pictures if possible! I have a great Toshiba my father used before he got his newer camera. I say go ahead and take 350 pictures if you want! Speaking of, I would not mind viewing all of them! I need to go see your pics online of Europe, still. Limiting computer time has become essential due to eye strain. New glasses will fix that. I am going to do that after I see the eye doctor.

Maybe you will convince your pal to go on the ATV ride. I would like it. My uncle used to take me, my cousins, and brother forf a ride on their three or four-wheeler. It was fun. They lived out in the county, so we got to ride all over the place. Not many cars went out that way.

Make sure you do not wear yourself out this time! Vacation is not vacation if you exhaust yourself! At least this year the amalgam removals are out of the way. That helps the situation a lot. Limit your activity.

That document sounded awful! I think I would been like "Screw this!" Six hours on the same document sounds exhausting and tedious. Your co-worker probably was glad you spent six hours on it before her! Maybe that will help her get it done faster.

I am sorry to hear the Oil of Oregano irritated your stomach. The stuff is potent. Oregano is in a lot of Middle Eastern food, and my best friend had the worst indigestion she had ever had from it! She said it was delicious, though! You must not be tolerating it at all if a drop bothered you. Cyprilic acid seems to always be the safer supplement when trying to kill yeast.

How is your sleeping? Are you doing any better with that? I am doing alright. Sometimes I hardly sleep, but now that I make sure not to eat certain things that helps. Chocolate really is bad to eat before trying to sleep. My blood sugar dropping causes major sleep issues, too. A mix of protein and carbs usually helps fix that.

Dear Charlie,

How is your sister? How are you? Is everything alright? We all have been very concerned about you and your sister's situation. Did you begin the antifungals? I know your energy level was not good the last you wrote. It was good to see you on here!

Are you referring to the 40-30-30 formula for the ratio of carbs, protein and fat? That is The Zone! It is one of the smartest things out there. The Zone is really the more scientific version of the all things in moderation philosophy. Biochemist Barry Sears, Phd. began it. I am hypoglycemic as well, and this stopped me from craving sweets so much. I am going to go back to it.

Dear melmak5,

All of your issues sound a lot like mine! :o I checked out the link you gave me. I would definitely pursue Lyme. It can cause bacterial dysbiosis, as well as so much more. Yeast Candida is yet another commonly linked issue to it. Also, I was wondering if you have any metal fillings in your mouth. That could be adding to your trouble.

Sincerely,

Jin

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Jin, sorry you've had a migraine. I'v got one too :angry: Not as bad as the last one I had though, but can't spend much time on here. I don't know what's triggered it, although I'm thinking maybe lack of chocolate :rolleyes: I have the big C too, despite taking large amounts of vit c, so I'm thinking that I'm detoxing something.

Anyway, one good thing is that I've been able to take my pain relief (not NSAIDs, I agree that they are v bad news) without developing hives. :D I think my zinc and vit c is doing me some good :D

There' a new TV series in the UK at the moment about all the toxins we bombard ourselves with. It's very interesting. They did a survey on breast milk and found the average b/f mum to have about 500 toxins in her milk :o It's making me realise I need to do more than just clean up my eating...

Have a good Saturday everyone

Susie

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Rachel - it's really great to hear about all your progress and being able to eat more :D Do you put some of it down to the biotin and low oxalate diet? Thanks for reposting the link about biotin. I've also been rereading some of your stuff about candida and celiac proteins which is very thought provoking. Thanks! Got a couple of questions - is the research suggesting that peole with celiac can have an immune response to candida because the protein is the same? Would it be doing the same damage to the villi? My last endoscopy showed my villi to be fine, so does that mean I'm less likely to have candida/ leaky gut? (my health suggests otherwise).

My York testing showed yeast to be one of my worst intolerances. However, despite the tests showing me as intolerant to most things, it said I was absolutely fine with mushrooms. I'm a bit puzzled by this. Does having an intolerance to yeast mean I must have a candida problem?

Oops, so many questions! Sorry!

Susie x

PS, don't think I said before, but Carla it's great to hear about your progress too :)

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Rachel-

That is such great news on the appointment. I am so happy for all your accomplishments!!!!!!!! I am also on just a third of the dose of the normal chelation. My advice is this and it should not be as big an issue for you since your bowels have been good and you have had good improvments with detoxing but when i first started the chelation i was getting really sick and then i took julies advice and would schedule a colonics right after. It made the side effects from the chealtion almost completly dissapate and i think it is what has allowed me to keep getting them. I know you don't do comonics but maybe an enema after if you do feel bad from it is a good idea. Again- you might feel fine so this is just a suggestion.

Carla-

Yeah it is so weird about how our tastes change A year or so back I tried a piece of spelt bread just to see what would happen it was so weird to have something that tasted like normal bread i realized how odd it is that i can completly do without.

Charlie-

I am that way now I can have certain things for dinner that I can't have for lunch and certain things for lunch i can't have for dinner its weird. I also have to have really balanced meal I don't do well with all of one thing but if i balance my protein with carbs and vegees I do my best.

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Could you tell me the name of the supplement you use for nausea again? I know it was licorice root or something, but it was LGS or some abbreviated name. Where do you get it? How much does it cost? I was thinking, maybe it would not only help with the nausea without making me drowsy, but help with my low blood pressure a bit.

Hi, it is called DGL, a formulation of licorice. I bought the powder from Beyond a Century, at $5.90 per bottle. It isn't very much because it lasts a long time, you only use a little bit at a time. I also bought tablets in a local health food store in Portland, was more expensive, but I keep them in my purse for travel.

Hope that helps.

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Rachel that is wonderful news! What a great confirmation of all of your research and hard efforts as well as investments. I need to look into the LED more before this winter.

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Yes, Donna is dangerous when cookies are involved. Do not try to apprehend her. You could end up in serious trouble. She might soy you to death! I would not risk it! Women wanting chocolate are capable of unspeakable acts! Trust me, I know.

Yes, and did I ever mention I made it to brown belt in Karate. :lol: Hum, I like the idea of carrying around some soy with me just in case. :lol:

I have not been eating as much chocolate. I told myself if I eat chocolate, I have to cut my coffee consumption some. That is helping me feel a bit better, too. Overdoing it is hard to avoid. Chocolate is one of those things you just need sometimes.

I've also been having a couple of sips (not an underestimate either) everyday at work. Thankfully, none on weekends.

Your friend is like me! She will take 1,000 pictures if possible! I have a great Toshiba my father used before he got his newer camera. I say go ahead and take 350 pictures if you want! Speaking of, I would not mind viewing all of them! I need to go see your pics online of Europe, still. Limiting computer time has become essential due to eye strain. New glasses will fix that. I am going to do that after I see the eye doctor.

If I take any I'll post them online.

Maybe you will convince your pal to go on the ATV ride. I would like it. My uncle used to take me, my cousins, and brother forf a ride on their three or four-wheeler. It was fun. They lived out in the county, so we got to ride all over the place. Not many cars went out that way.

If I REALLY wanted to go badly on this she'd go. Heck I went on a submarine ride for her one time. :P

Make sure you do not wear yourself out this time! Vacation is not vacation if you exhaust yourself! At least this year the amalgam removals are out of the way. That helps the situation a lot. Limit your activity.

Always a challenge for me because while I'm super lazy, I still like to do things. Doesn't make sense, but there it is. :P

That document sounded awful! I think I would been like "Screw this!" Six hours on the same document sounds exhausting and tedious. Your co-worker probably was glad you spent six hours on it before her! Maybe that will help her get it done faster.

Sad thing is that I KNOW she didn't take the time with it that she needed to. I came back a few minutes later and she was already done with one HORRENDOUS page that should have taken her much longer. But, I can't do everything so I'll just have to let it go. The attorney knows that she finished it up, so if there are errors hopefully she'll connect that it was in the back, lol.

I am sorry to hear the Oil of Oregano irritated your stomach. The stuff is potent. Oregano is in a lot of Middle Eastern food, and my best friend had the worst indigestion she had ever had from it! She said it was delicious, though! You must not be tolerating it at all if a drop bothered you. Cyprilic acid seems to always be the safer supplement when trying to kill yeast.

Yeah, I am having my 1 drop now in a vitamin cocktail and I can taste the oregano oil. I'll be tasting it for a while. It also burns going down, but I think that was discussed here already. I'm afraid that taking caprylic acid all the time will do one of two things...make me sensitive to it and/or the bugs will become immune to it.

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Here's an interesting link on migraines, one main focus being the connection with magnesium deficiency:

http://www.ctds.info/migraine-headaches.html

When you said you had a migraine for lack of chocolate, I was going to suggest a possible magnesium deficiency. Chocolate is high in magnesium, which is why I think so many people crave it ... it's different than just wanting sugar, people seem to need it.

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How is your sleeping? Are you doing any better with that? I am doing alright. Sometimes I hardly sleep, but now that I make sure not to eat certain things that helps. Chocolate really is bad to eat before trying to sleep. My blood sugar dropping causes major sleep issues, too. A mix of protein and carbs usually helps fix that.

Well, it was getting bad again because they want me to cut back on the 5-HTP, so I did a little, but the last two nights I upped it slightly and have slept better. Last night I had another 6 hour sleep before waking the first time, so that was exciting. I've ordered the supplements that the lab recommended for my neurotransmitter issues, but they haven't come yet. Anna carries some of them, but not the one that I really need...she was going to look into getting it, but I'm sure it wouldn't be in yet.

It's making me realise I need to do more than just clean up my eating...

Yes, this has really become an important aspect of my journey...I really need to make sure I can detox whatever it is I'm killing off by all these supplements. :P

My York testing showed yeast to be one of my worst intolerances. However, despite the tests showing me as intolerant to most things, it said I was absolutely fine with mushrooms. I'm a bit puzzled by this. Does having an intolerance to yeast mean I must have a candida problem?

Well, I know that my retired allergist always told me to avoid yeast foods when he thought I had candida...I'm not sure that it means you HAVE to have a candida problem, but most gut issues seem to result in some sort of imbalance eventually.

PS, don't think I said before, but Carla it's great to hear about your progress too :)

DITTO!!!! I don't think I mentioned it either and kept meaning to!

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Rachel-

That is such great news on the appointment. I am so happy for all your accomplishments!!!!!!!! I am also on just a third of the dose of the normal chelation. My advice is this and it should not be as big an issue for you since your bowels have been good and you have had good improvments with detoxing but when i first started the chelation i was getting really sick and then i took julies advice and would schedule a colonics right after. It made the side effects from the chealtion almost completly dissapate and i think it is what has allowed me to keep getting them. I know you don't do comonics but maybe an enema after if you do feel bad from it is a good idea. Again- you might feel fine so this is just a suggestion.

Mia..thanks for the reminder about the colonics and enemas. :)

I wont be doing IV chelation on a regular basis....its just for the challenge test.

For now I'm staying on the DMSA protocol...which I'll most likely continue through the rest of the year.

One of my MD's prefers DMSA...the other DMPS.

Dr S. is the one who prefers DMPS....but I think he is very cautious with it....I dont think he would start me on regular treatments at this point. Probably much later when I'm not having so many sensitivity issues.

I feel like its a miracle that he's said yes to the DMPS challenge...but I know that regular IV DMPS treatments are still a ways away for me. I'm ok with that....I just wanna do the test for now. :)

So far I havent had any problems on DMSA ....as long as that continues I dont see any reason to change it. :)

This is why I wanna mainly work with one Dr. who does ART...so that there is never any question as to what treatment will work best for me. Also things will change over time....its usually not just one type of chelator that will get to all the mercury. If I'm doing ART on a regular basis we'll know when things arent working anymore and what changes need to be made.

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Rachel - it's really great to hear about all your progress and being able to eat more :D Do you put some of it down to the biotin and low oxalate diet?

Definately not the low oxalate diet....thats not something I just started recently. I'd already been avoiding those foods for quite some time (I didnt know they were high oxalate though).

Also....I found one brand of chocolate chips that I dont react badly too....and I've eaten a ton of them this past week. Chocolate/cocoa is supposed to be high oxalate so its definately not *just* an oxalate thing.

I associate oxalates with fungi/metal issues. Thats just my personal opinion from all the various things I read about oxalates.

The biotin *may* be helping with the yeast....I cant say for sure though. The jury is still out on that one.

If the biotin is helping with the yeast....that would also very likely reduce oxalates in the body (since candida is an oxalate producing yeast).

It would seem more important (in my opinion) to get the yeast under control than it would be to limit all the high oxalate foods. Again...just my opinion.

I dont look at any of this as a "cure" though. Ultimately, I think in order to really get things functioning well again (without having all these dietary restrictions)...the metals have to be addressed...and the infections.

In the meantime...I think the low oxalate diet, possibly biotin, anti-candida, etc....can all be very helpful as far as reducing symptoms.

I've also been rereading some of your stuff about candida and celiac proteins which is very thought provoking. Thanks! Got a couple of questions - is the research suggesting that peole with celiac can have an immune response to candida because the protein is the same? Would it be doing the same damage to the villi? My last endoscopy showed my villi to be fine, so does that mean I'm less likely to have candida/ leaky gut? (my health suggests otherwise).

Were you reading my older thread about candida, celiac, gluten ataxia??

That stuff is pretty interesting and I do think that candida is a very likely trigger for Celiac Disease. Research seems to indicate most (if not all) autoimmune disease are triggered by pathogens (virus, fungi, bacteria, etc), toxins...basically things which are chronic/hidden and causing imbalances within our immune system.

The research about candida as a trigger for Celiac was suggesting that the immune system is originally responding to the candida attaching itself to the intestinal wall. So it produces antibodies to fight the yeast.

When candida does that (attaches itself to the the wall of the intestine)...it means that its changing form...its becoming an aggressive pathogen...its changing from harmless yeast to a more dangerous fungal form. The aggressive fungal form can damage the intestinal lining...causing leaky gut.

This can be a temporary situation in which someone's immune system became weakened (trauma, stress, antibiotics, steroids, infection, etc)...the candida tried to overgrow....but then the immune system was able to correct the situation (probably because the person was otherwise fairly healthy).

The research is saying that since candida albicans shares the identical protein sequence found in gluten...that even after the candida is no longer a threat...the disease was triggered and there is now a life-long response to the consumption of gluten.

The protein is what triggers the immune systems response (which results in damage to the villi)...so its possible that once the immune system has launched an attack on candida...everytime it sees that same protein sequence...its gonna launch that same attack. So far the only 2 things they've identified as sharing that identical protein sequence are gliadin and candida albicans.

The research is pointing to candida as a trigger for the onset of Celiac. Its how the autoimmune response became activated in the first place...its not really saying that if you *already* have Celiac....candida is gonna cause the same damage....its actually saying that the candida triggered the disease in the first place.

I think for diagnosed celiacs who do NOT get better on the diet (Refractory Sprue)...it wouldnt be a bad idea to look at candida as a possible reason.

I think in most cases where the candida situation is chronic the immune response would not lead to damaged villi...this is because the candida is actually *there*. If its on the intestinal wall and the immune system targets it...its not an autoimmune response. It would be a normal immune response to an infection....and the immune system would be targeting the infection and not our own tissue.

*IF* the candida situation (whether temporary or chronic) triggered Celiac disease....and the immune system is now attacking gluten (just as it would candida) it makes sense that there would be damage to the tissue....since the immune system is not actually targeting yeast at that point.

To answer your question....no....the fact that your last endoscopy showed no damaged villi does not mean that you dont have candida/leaky gut. It means that you are not eating gluten and not getting the damage from that autoimmune response.

Does that make sense?? I know that its kind of confusing stuff. :wacko:

Leaky gut is a different situation from damaged villi....although a person with Celiac can have both.

You can have a serious candida/leaky gut situation but if you do not have a genetic susceptibility for Celiac...you shouldnt get flattened villi.

I dont have celiec genes and my villi are fine.....but I do have candida/leaky gut.

Likewise...if you DO have Celiac (and follow the diet)....the villi should heal...even if you still have a candida/leaky gut situation.

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HI there. I'm new here, but not new to what heavy metals and candida can do to a person.

I have all the classic signs of hmt and high levels of aluminum, cadmium, arsnic, and lead according to my dmsa challange test. Mercury was very low on both dmsa challange test and hair test.

I am now pursuing Lyme testing and have the kit right here in front of me, but not sure what I should

order. I am in NY and from what I see I need to order the 5000 or the 5010. 5000 is the Western Blot IgG, Western BLot IgM, Lyme PCR-Serum

5010 is The same as the 5000 except it's whole blood rather than serum.

My question is Do I request the whole blood or serum? I can't do both because they cost $390 each and can barely afford the one.

Also what does PCR mean?

Also the one with whole blood uses 1SST and 1 EDTA what does this mean?

Sorry for all the questions... I've been sick for a long time and researching for about 3 years and still feel I'm just scratching the surface to all this.

Blessings,

TS

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