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Rachel--24

Omg...i Might Be On To Something

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Happy Birthday, Sherry!

I think China is ahead of us .....

Donna, I really feel it is helping with the bloating, and nothing has before. :) Fortunately, today I did not see any tapeworm. :) I SAW about 4 feet, and I didn't do a thorough search, so there very well could have been more. It was making me nauseous for quite some time after I used the bathroom .... I think just the idea of it nauseated me!

I have to adjust to the new colors, too! I'm looking at it for the first time and don't have my glasses on ... so we'll see later! I didn't like the gray and blue, but I liked the blue it was before .... I think I'll like the green ... it's my favorite color!


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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I'm not so sure I like the new board format. It's a little confusing...I guess I'll get used to it. ;)

Kassandra


Dairy/Casein Free- March 2007

Gluten Free- May 2007

Soy Free- August 2007

Sugar Free- January 2008

Starch Free- January 2008

Egg Free (again!)- February 2008

Sulfur Free- May 2008

Dx'd Lyme Disease and co-infections- December 2007

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Okay, I have REALLY GOOD NEWS!!! The insurance has approved up to $800 a day for iron IV's!!!!! YAY!!!!!!!!!!!!!!!! Since the IV's cost about $300- 500 a day, so there will be enough for a PICC line also. The Dr. just needs to order that and figure out exactly how this will all work out. I am so relieved!!!

On another note, the Igenex stuff still hasn't gone through. We decided that we are going to get blood drawn through the Medical Group I was going to (the ones who ran the most recent blood work) and since it's only $35 for the Western Blot, my mom figures if it comes back positive then great...but if its negative we will pursue Igenex.

Kassandra


Dairy/Casein Free- March 2007

Gluten Free- May 2007

Soy Free- August 2007

Sugar Free- January 2008

Starch Free- January 2008

Egg Free (again!)- February 2008

Sulfur Free- May 2008

Dx'd Lyme Disease and co-infections- December 2007

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Sorry to interrupt here with an unrelated (but related) item:

This is a new report on possible link between electro-magnetic radiation and mercury toxicity. YIKES!

http://www.prweb.com/releases/2007/11/prweb570198.htm

catesfolly, you aren't interupting! Jump in any time.

YIKES is right! Thanks for posting that.

Kassandra, GREAT NEWS on the insurance coming through for your iron IV's!! I am sure you and your family are so relived about that.

That is the route I went, same price for the test, might even be the same lab. Igenex is the next step so you can see how that one worked out for me :lol:

Anybody heard from SUsie UK? She hasn't posted in a long time.

Carla, that's good you are noticing less bloating with the product.

You must be feeling well, I can tell when you aren't around as much you are probably out and about living your life!

I don't care for the board change, I love green, but I can't read this very well, the posts are muddled together :(

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catesfolly, thanks for posting that!

Kassandra, I'm glad the iron is covered ... and the Western Blot sounds like a good idea, maybe you'll get a positive and won't have to worry about IGeneX.

It looks like I am going to get through this cold without a Lyme flare! This is HUGE! I do have more muscle aches than normal, and a little knee pain, but a small cold used to send me to bed for two weeks .... this time it was a fever and bed only one day. :)


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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Sorry to interrupt here with an unrelated (but related) item:

This is a new report on possible link between electro-magnetic radiation and mercury toxicity. YIKES!

http://www.prweb.com/releases/2007/11/prweb570198.htm

Thanks Catefolly. I've heard lots of stuff about how bad cell and cordless phones are. It's interesting to see a report on it.

That is the route I went, same price for the test, might even be the same lab. Igenex is the next step so you can see how that one worked out for me :lol:

Anybody heard from SUsie UK? She hasn't posted in a long time.

Carla, that's good you are noticing less bloating with the product.

You must be feeling well, I can tell when you aren't around as mucch you are probably out and about living your life!

I don't care for the board change, I love green, but I can't read this very well, the posts are muddled together :(

Is Igenex in your future?

Susie UK was reading a day or two ago.

Yep, Carla's not on as much when she's feeling better.

I don't like the format very well. I agree it's hard to read the posts now with the poster information strung across the top of the post instead of the side. I do like the green color though.

It looks like I am going to get through this cold without a Lyme flare! This is HUGE! I do have more muscle aches than normal, and a little knee pain, but a small cold used to send me to bed for two weeks .... this time it was a fever and bed only one day. :)

YAY!!!!!

Kassandra,

I thought I'd hit quote for your post.....anyway YAY on getting the IV's approved!

I do hope your mom will follow through with Igenex if your other lyme test comes out negative.....which I won't be surprised if it does......see Julies response.


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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Yeah, I get busy playing catch-up when I'm feeling well. Today I feel pretty good ... it's just that I'm supposed to be cleaning ... gosh, I'm worse than the kids!


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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Sorry to interrupt here with an unrelated (but related) item:

This is a new report on possible link between electro-magnetic radiation and mercury toxicity. YIKES!

http://www.prweb.com/releases/2007/11/prweb570198.htm

Unfortunately this stuff is true. I've posted a little about it awhile back. There is a definate link and very often people who are highly toxic with metals will notice reactions to EMF's. There was a time when I'd feel it just sitting in front of the computer...although its not so bad anymore.

My Dr.'s have talked to me about EMF's and I've been tested for EMF stress...and they did find that my body was under some stress from that. I had to stop using my electric blanket and I unplugged the cordless phone that was in my room...also the alram clock that was over my head.

I'm supposed to avoid putting my cell phone up to my head but I havent addressed that yet. :ph34r:

One of my Dr.'s said that this is definately showing up as a problem with her autistic kids. She said some of them will go nuts when they get around a cell phone tower...and some have to be holding onto some type of electronic device at all times or they have meltdowns.

I asked her if this stuff is gonna prevent me from recovering. She said that right now we just really need to focus on getting the metals out.

She also told me to not put my body right next to the computer tower....she said to keep my body away from it as much as possible.


Rachel

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I cant read the board as well....it hurts my eyes. :(

I'm not sure what it is cuz I love green ....its my favorite color...but my eyes dont adjust too well to this. All the posts seem to run together. :unsure:

Hopefully my eyes will adjust cuz right now its hard for me to read the posts.

Maybe its the font?? Is the font lighter or something?? :unsure:


Rachel

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Julie,

Lol! I am not expecting anything from this lab. If it comes back negative, we will pursue Igenex, but if it's positive, we won't unless the LLMD wants us to.

Kassandra


Dairy/Casein Free- March 2007

Gluten Free- May 2007

Soy Free- August 2007

Sugar Free- January 2008

Starch Free- January 2008

Egg Free (again!)- February 2008

Sulfur Free- May 2008

Dx'd Lyme Disease and co-infections- December 2007

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Thank you all for your kind words of support. You are all a great group of people :wub:


Ami

Hypothyroid - diagnosed early 1999

Negative blood work for Celiac 12/05

Gluten free since 12/05

Tested positive for heavy metal toxicity, low functioning thyroid (even while taking Armour), hormone imbalance & adrenal fatigue 9/07

Started chelation for heavy metals began new medication/supplements to balance thyroid, hormones and adrenals 9/07

Enterolab Results:

Myself - positive IgA: 11

HLA-DQ 2,3 (Subtype 2,7)

11 yr old son - positive IgA: 11

HLA-DQ 2,1 (Subtype 2,6)

8 yr old son - negative

HLA-DQ 3,1 (Subtype 7,6)

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Okay, I have REALLY GOOD NEWS!!! The insurance has approved up to $800 a day for iron IV's!!!!! YAY!!!!!!!!!!!!!!!!

YAhOOOOOoooooooooooOOOOOOOO!!

So happy for you!!! :)

It's a lonely and precarious position to be hoping an Insurance company will do the right thing. <_<


>>>>>>> tom <<<<<<<

Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.

Gluten-free since 12-03

Dairy-free since 10-04

Soy-free since 5-07

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YAhOOOOOoooooooooooOOOOOOOO!!

So happy for you!!! :)

It's a lonely and precarious position to be hoping an Insurance company will do the right thing. <_<

Tom,

Lol!! Thank you! We are very happy! Now I am freaked out to get the PICC line! AHH!!

Everyone,

The place that was going to run the test for Lyme (western blot) didn't call me back today! I guess I will have to wait until Monday or Tuesday.

Kassandra


Dairy/Casein Free- March 2007

Gluten Free- May 2007

Soy Free- August 2007

Sugar Free- January 2008

Starch Free- January 2008

Egg Free (again!)- February 2008

Sulfur Free- May 2008

Dx'd Lyme Disease and co-infections- December 2007

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Thank you all for your kind words of support. You are all a great group of people :wub:

I've been thinking a lot about you Ami, I hope you are holding up ok.

Don't be a stranger.

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Everyone,

The place that was going to run the test for Lyme (western blot) didn't call me back today! I guess I will have to wait until Monday or Tuesday.

Kassandra

You might be in for a little bit of a longer wait with the timing of all of this. It will be a short week for offices/labs next week with Thanksgiving.

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Oh My Gracious........... :blink:

I haven't been on a few days............

This format has sure changed

It is so bright i just can't read it.

I was just reading the one page posts here and I'm going to have to get off.

I just have to squint to keep the brightness out. :o:(


Judy in Southern CA

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Judy,

If you press refresh, it won't be as bright...

Julie,

Grr! I hadn't thought about that! It's like there something going on because every time I try to get something done...it doesn't happen!!! :angry:

Jin,

WHERE ARE YOU!???

Kassandra


Dairy/Casein Free- March 2007

Gluten Free- May 2007

Soy Free- August 2007

Sugar Free- January 2008

Starch Free- January 2008

Egg Free (again!)- February 2008

Sulfur Free- May 2008

Dx'd Lyme Disease and co-infections- December 2007

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My Dr.'s have talked to me about EMF's and I've been tested for EMF stress...and they did find that my body was under some stress from that. I had to stop using my electric blanket and I unplugged the cordless phone that was in my room...also the alram clock that was over my head.

She also told me to not put my body right next to the computer tower....she said to keep my body away from it as much as possible.

I had EMF stress come up on my ASYRA testing. I'm still on the computer almost all day. :(

Looks like the main board color has been toned down now........still light print though.


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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Andrea,

I know...the print is too dull...it needs to be black...not charcoal! LOL!

Kassandra


Dairy/Casein Free- March 2007

Gluten Free- May 2007

Soy Free- August 2007

Sugar Free- January 2008

Starch Free- January 2008

Egg Free (again!)- February 2008

Sulfur Free- May 2008

Dx'd Lyme Disease and co-infections- December 2007

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I had DMPS again yesterday. It went really well...no problems at all.

I wish I had been collecting urine again but I do feel alot better knowing that last time the metals were coming out.

I wish I had started earlier so that I might be eating holiday food this year. :(

I had a baby dose again (1cc). My Dr. wrote on my chart "DMPS 1-3". The nurse told me since he wrote that I could pick which dose I want 1-3. :huh: I was really tempted to say "2 please". :)

I know what my Dr. meant by 1-3...so I told her he wants me to start with 1 and then work up to 3.

So I got the smallest again. :rolleyes:

I asked her if anyone else is getting 1cc...and she said no..that most people get 5cc's...which is the "normal" dose. I said "Everyone else is getting 5 cc's??" :blink:

She said thats what most people get. I told her my doc said I probably wont ever have 5 cc's. :(


Rachel

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Thanks guys this is better.

doing it in bold so we'll see how this comes out.


Judy in Southern CA

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Dear Everyone,

Just when I thought I was getting caught up, there was more! Do not worry, I am reading along and will post soon. I have been busy, but will respond shortly.

I just worry this new format will mess up my ability to recall things as well. Tomorrow, I may get my hair done! Maybe by this time tomorrow, I will have my Jen Zen going on!

Sincerely,

Jin


Jin

Strawberry Allergy, mold allergy, dustmites allergy, ragweed allergy, dust allergy, food dye allergy - 1985

Asthma - 1994

Ovarian Cyst - May 1999

Anemia - 2000

4 More Ovarian Cysts - March 2000

Bloodwork for Celiac - November 2000 negative

Colonoscopy, Endoscopy, Intercolisis, Gastric Emptying Study - May and June 2001 negative biopsy

Fibromyalgia - June 2001

IBS - June 2001

Gallbladder Removal - July 28, 2003 after doctor said the tests showed nothing, so it was not gallbladder disease. It was very inflamed and irritated and nearly ruptured the surgeon told me at my 10 day post-op check-up.

Thyroid Disease - August 2004

Celiac Disease - March 2007 Current Dr. refers to me as Celiac, as she says blood tests are often inaccurate.

Official Purple Glittery Bat Keeper, District Attorney, and Chinese Restaurant Owner of The Silver Dragon of Rachelville

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Thanks guys this is better.

doing it in bold so we'll see how this comes out.

I need to try and remember to post everything in black. :)

Just when I thought I was getting caught up, there was more! Do not worry, I am reading along and will post soon. I have been busy, but will respond shortly.

I just worry this new format will mess up my ability to recall things as well. Tomorrow, I may get my hair done! Maybe by this time tomorrow, I will have my Jen Zen going on.

Thanks for the drive by. I've been worried about you.


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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So I know plenty of you have had to deal with insomnia, so I was just wondering what is something that I can get over the counter that won't make me sleep for 10 days straight...lol.

Kassandra


Dairy/Casein Free- March 2007

Gluten Free- May 2007

Soy Free- August 2007

Sugar Free- January 2008

Starch Free- January 2008

Egg Free (again!)- February 2008

Sulfur Free- May 2008

Dx'd Lyme Disease and co-infections- December 2007

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