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Omg...i Might Be On To Something


Rachel--24

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NoGluGirl Contributor

Dear Donna,

Thank you for the birthday wish! :) Do not worry! You are not late. You are right on time! It is amazing! Rachelvillians are the only ones of all my friends that remembered my birthday! My two best friends are the only ones the usually remembered out of all my friends in high school!

I am sure your pathways will get unblocked soon. LED might be what you need. Cost may be an issue, though. They can be expensive treatments. Not many insurance companies will cover that type of treatment.

Meanwhile, maybe Dr. Amy will have another appointment you can take in the future.

Dear Andrea,

I just checked my e-mail. Thank you for sending the update from Rachel! It just popped up in there!

I wish I was as on top of things as you are! Of course, with three children, you have to be!

Sincerely,

Jin


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CarlaB Enthusiast
Well...my stomach has not been happy with me at all today!!! :( I am just wondering what "safe foods" are for everyone?

Kassandra

I don't have time to catch up completely, but this caught my eye. Oddly enough, when my stomach is killing me, either potato chips or cheese curls helps. In fact, it must be my new med because I've been nauseous the past couple days .... I ate tons of cheese curls yesterday .... but when I was at my worst, it was potato chips.

That's how I got started on the whey protein smoothies .... to balance out all those carbs.

There's a thread on LN about this .... there were about a half-dozen of us who find potato chips to be the answer. :lol:

Happy Birthday, Jin!

I'll have to catch up later this afternoon. :)

Rachel--24 Collaborator
Rachel,

What are you emailing? If its your treatment plan and all that I would love to get a copy. I am always interested in that!! :P

April,

I sent you an email with the rest...did you get it??

I dont know if its your current email address that I have.

I'll check if your email is available here or on YC....I'll send it to you again. :)

NoGluGirl Contributor

Dear Carla,

Thank you for the birthday wishes! I have been suffering again this morning. I am pretty sure it was the Cool Whip. So much for casein not being the issue as much. Now I am doped up on promethazine, so I should feel much better soon.

That is funny what you mentioned about potato chips. They often help me as well! It is so strange. Mom always said the one thing she could always handle was french fries when she was sick. This is interesting. Meanwhile, I hope you start to recover from the new medication.

Dear Rachel,

I have not gotten to read much of your update yet. So far, what I have read is very encouraging. We all have hope now! Thank goodness there is some! There are times things looks quite bleak.

Sincerely,

Jin

Rachel--24 Collaborator
Nope, not surprised about your little alien, lol.

HEY!! Maybe this worm really *is* the alien baby??!! :o

Do you think its possible that the parasite was actually causing my intestines to move all over the place...pushing my ovaries out of view during my ultrasound?? Remember...the OB had said shed never seen anything like it before and she said it was something going on with my intestines. :blink:

I had to go back and redo the u/s because she couldnt see my ovaries at all that day.

Maybe the worm (aka alien baby) was very upset that day...maybe it was a full moon or something? :unsure:

Thats kind of disturbing actually. :ph34r:

What do you guys think?

Maybe the worm was moving things around and causing that abdominal pain that I was calling "ovary pain"??

AndreaB Contributor
Is your DD okay?

She said her stomach was hurting. She didn't have anything that should have been a problem yesterday. She was very good about staying away from all the food at the fellowship meal. I don't know if I wrote that she had a chip at Whole Foods a couple weeks ago and was severely constipated for 24 hours afterwards. Don't know if the gluten in that was the cause or something else but it did get her attention. We have had lots of sugar lately so that could be it too.

Parasites are known to cause skin conditions. Eczema is a common problem when parasites are present. Yeast typically causes it, too.

Dark chocolate is the best kind, but I am sure any organic kind would be fairly healthy.

Chocolate cravings are much worse during your cycle. They always have been for me, too. Once a month, I have got to have it!

I was that way as a child, too. I was always quiet around people I did not know very well. Other times, I threw tantrums. The allergy shots I had did not help. Many of the mannerisms that Rachel described, my brother and I both have. The rocking is something my mom, brother, and I all still do!

I may have gotten Lyme from my mother. She knows for certain she was bitten by a tick.

I wonder if the problem with my ears and eyelid is from mercury and parasites. Can't mercury cause skin problems too?

We only eat dark chocolate and I definately crave it once a month. :P

Sounds like the possibility for mercury toxicity and lyme is very probable for you.

I don't remember if I commented on the adrenal fatique before. I don't consider my family chronically ill as we can still function daily, but we still suffer from adrenal fatique. I don't know about the boys though and T may have had enough taken care of to get over hers. Mitch and I do have adrenal fatique though. I do think we would have wound up chronically ill had we not started things when we did. Mitch and I haven't been able to afford to do any treatments for us so we are just on chlorella, fish oil and adranal support.

I just checked my e-mail. Thank you for sending the update from Rachel! It just popped up in there!

I can't take credit for that. Rachel sent it to you. :)

AndreaB Contributor
HEY!! Maybe this worm really *is* the alien baby??!! :o

What do you guys think?

Maybe the worm was moving things around and causing that abdominal pain that I was calling "ovary pain"??

I think it's a very good possibility.


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NoGluGirl Contributor

Dear Rachel,

Maybe it really is the alien baby! :o Worms can do some scary stuff. That makes sense to me why they could not see your ovaries. Parasites are capable of a lot. People often underestimate them.

Thank you for the e-mail, by the way! I thought Andrea sent it. I finally got to read the rest of it. Wow, that is a lot of progress! You will be eating well in no time! :D

Dear Andrea,

Poor T! :( Since she was careful not to eat anything bad for her, I am not sure what it could be. I hope she is not reacting to anything new. It seems everytime I turn around, something else irritates my stomach. Has she started any new supplements or anything? The sugar is a good possible cause.

You did not mention she had the bout of C the other week. Being stopped up is awful. I used to get C all the time as a child. Sugar overload might be effecting her. Didn't you say she has issues with yeast?

Mercury does cause skin problems. The organic kind does not usually, only the inorganic mercury. Upon exposure, the inorganic compounds are very dangerous and can be linked to rashes and skin cancer. There is a good reason not to go swimming in the ocean! Our river probably is loaded with it.

It is good you guys eat dark chocolate only. I normally ate milk chocolate. Now, I cannot eat any. Maybe I can order some organic casein-free, gluten-free, soy-free. I may even attempt to make some myself. We will see! I do not crave chocolate near like I used to now that I do not eat dairy.

Mercury toxicity from vaccines is likely. I had the tetanus shot before entering high school. That also is about the same time I may have contracted Lyme if I did not have it already. Mom has a few metal amalgams as well, plus she smoked while carrying me. My love of shrimp, salmon, and tuna add to it further. Of all of the metals, I think aluminum is probably my largest one, then mercury.

Lyme is a good possibility due to my mother being bitten prior to my being born. Also, ten years ago in the summer, I had a rash around my waist for two or three weeks. I did not have nerve pain, so I doubt it was shingles. That is also around the time my sleep issues started, but they did not get really bad until I was about 17 or so. I filled out that questionnaire from the Lyme Thread, and had 53 of the 75 symptoms.

Adrenals are probably some of my trouble. I know my thyroid is out of whack. I have made a health improvement plan, and my adrenals are part of that. I wrote out things that could help. You and Mitch sound like you are probably worn out all of the time!

Having three kids is some of it, but adrenals being exhausted really makes everything difficult. There are some exercises called TTAP that are supposed to help them. I will see if I can find them somewhere and give you a link. I want to include them in my treatment plan. The more help I get, the better!

I am glad you told me Rachel sent the e-mail! I should have known it was from her. The address was not familiar. Now I know her address as well! One day, I will be sending out updates and reports of my progress and road toward wellness!

Sincerely,

Jin

Rachel--24 Collaborator
There's always the metal problem to keep on top of with removing the tapeworm, too. So, it's probably good to wait another month. If it's a big one, then there could be lots of metals.

True....it will probably cause a release of metals. I better make sure to take charcoal when I get to that point. It sucks that I still cant take any other binders but she said that charcoal does the job...and thats the main thing.

I should be taking charcoal when I have my DMPS but I havent because of my gut being so sensitive to everything. From now on I'm going to be sure I take it....I also need to be on it when I start the transdermal DMPS.

BUT, of all the parasites to have you have to have THE GIANT AMONG THE HUMAN PARASITES?????????

:lol:

Yeah...and I'm a small girl!! Geeez...couldnt I have a smaller "guest" ...preferably one who doesnt require alot of food...and who leaves some for me. :P

Stupid greedy worm! :angry:

I wonder if I'll still be racheling everything once I get better?? :P

I did kind of freak out when I read that "Giant among the human parasites" thing. NICE...just what I wanted to be dealing with. Merry Xmas to me! :rolleyes:

I'm actually not too grossed out by it...its not a big shock. Remember...I'm the one who wanted to go look at all the "bugs" that have been removed from people. That would be my idea of "fascinating" stuff. :lol:

My mom is really freaked out though. She hugged me and said "I dont have a daughter...I have a parasite". :blink:

Nice. :rolleyes:

So all the stuff I've gone through already hasnt really phased her too much...but THIS....this is really disturbing stuff. Shes worried that its gonna "hurt" me....nevermind all the mercury thats inside me. :rolleyes:

She said she cant "see" mercury...so she cant picture it hurting me...but she pictures a worm inside me and she doesnt like it at all. :lol:

She said her stomach was hurting. She didn't have anything that should have been a problem yesterday. She was very good about staying away from all the food at the fellowship meal. I don't know if I wrote that she had a chip at Whole Foods a couple weeks ago and was severely constipated for 24 hours afterwards. Don't know if the gluten in that was the cause or something else but it did get her attention. We have had lots of sugar lately so that could be it too.

Awww poor T. :(

I wonder if the problem with my ears and eyelid is from mercury and parasites. Can't mercury cause skin problems too?

Yeah....mercury does cause skin problems. One Dr. (cant recall which website) was saying she always looks for skin stuff as signs of mercury toxicity. Anything like excema, redness, blotchy skin, rashes, spots, etc..

Rachel--24 Collaborator

It really seems like all of the treatments I've done have helped alot as far as things going so smoothly with chelation. Amy agreed that I probably really benefited from the LED's....especially having that sulfa treatment. The 2 that I had a noticeable detox reaction from were the sulfa and mercury treatments.

Since the Lyme and babs are not showing up now Scott asked if Dr. M. had done a LED for those. I did get a LED for all of the bugs.....except the parasite which was not found. I wonder if those LED's really helped with the bugs too...because even the yeast isnt showing up as a major stressor anymore. :huh:

Maybe right before I start treating the parasite I should get a LED for it. I'm gonna ask about that.

Green12 Enthusiast

Happy Birthday Jin!!!!!!!!! I hope you have a special day :)

Kass, I can eat chicken, turkey, and beef, carrots, lettuce, steamed veggies (like asparagus, zucchini, broccoli), red skinned potatoes, rice, winter squash. I makes sure to eat a protein portion with a starch and a veggie at every meal.

Also I had some Biometric testing done (EAV) test showed my body doesn't like any detoxing formulas. No matter what was tested my body rejected it. The practioner said "your body just does not want to detox" OK so what do I do about that?????????

This was my experience with the bioscan as well, which is a good thing imo because you don't want to push your body to do something before it is ready. Usually what will happen is you will work on supporting other things, and building and strengthening, and when your body is up for detoxing it will happen. It might go back and forth like that for a while.

Rachel, thanks for the email update :) FABULOUS!! Oh and yes Patti has a new email, did someone get it to you??

:lol:

Yeah...and I'm a small girl!! Geeez...couldnt I have a smaller "guest" ...preferably one who doesnt require alot of food...and who leaves some for me. :P

Stupid greedy worm! :angry:

Well now we know who got all those sweet potatoes :lol::lol::lol:

It's good you are ok with it, not too freaked out anymore after the initial shock. IMO it's a better mind frame to be in when fighting to eliminate it, not giving it the power.

AndreaB Contributor
Maybe right before I start treating the parasite I should get a LED for it. I'm gonna ask about that.

It certainly wouldn't hurt.

That reminds me. Has Lisa had all her amalgams taken care of? I know she said she just had a LED treatment. Dr. E wouldn't treat me with amalgams in, but it may be different with Lisa as toxic as she is.

AndreaB Contributor
My mom is really freaked out though. She hugged me and said "I dont have a daughter...I have a parasite". :blink:

Nice. :rolleyes:

So all the stuff I've gone through already hasnt really phased her too much...but THIS....this is really disturbing stuff. Shes worried that its gonna "hurt" me....nevermind all the mercury thats inside me. :rolleyes:

She said she cant "see" mercury...so she cant picture it hurting me...but she pictures a worm inside me and she doesnt like it at all. :lol:

I can see her reasoning. Look at it this way though. That worm has helped absorb some mercury along with the candida.

Yeah....mercury does cause skin problems. One Dr. (cant recall which website) was saying she always looks for skin stuff as signs of mercury toxicity. Anything like excema, redness, blotchy skin, rashes, spots, etc..

I do have skin problems.

Another thing I have is the small blood blister-like things (they aren't blisters though). My dentist said those are areas where the mercury blocked the blood vessel and another way was made through. Now that I know what they are I can see that the mercury has traveled.

September still seems so far away. :(

AndreaB Contributor
Rachel, thanks for the email update :) FABULOUS!! Oh and yes Patti has a new email, did someone get it to you??

I sent a copy on to Patti. :)

Rachel--24 Collaborator
Well now we know who got all those sweet potatoes :lol::lol::lol:

:lol::lol:

Yeah...I guess we do!!

That reminds me. Has Lisa had all her amalgams taken care of? I know she said she just had a LED treatment. Dr. E wouldn't treat me with amalgams in, but it may be different with Lisa as toxic as she is.

I dont think Dr. M. would do a LED for mercury on her until after her amalgams are removed. I met another patient in his clinic....she was having LED's but was not gonna be able to have the mercury LED because she was still in the process of removing the fillings.

I'm sure Lisa will have LED's for her other issues...but not mercury because she still has alot of fillings to take care of.

Another thing I have is the small blood blister-like things (they aren't blisters though). My dentist said those are areas where the mercury blocked the blood vessel and another way was made through. Now that I know what they are I can see that the mercury has traveled.

HEY! I have those tiny blood things too. <_<

Mine are bright red and they showed up right around the time I got sick....I never had them prior to that. They arent blisters but look like little freckles that are bright red...they are a little bit raised but not like a blister.

Thanks for sending my email to Patti. :)

Green12 Enthusiast

Good Andrea, you are on top of it as usual!

Thank you for the birthday wishes! I have been suffering again this morning. I am pretty sure it was the Cool Whip. So much for casein not being the issue as much. Now I am doped up on promethazine, so I should feel much better soon.

Jin, this has been a while, maybe 5 years ago or so, but I tried to eat Cool Whip at Thanksgiving and it made me sick as a dog. There are so many chemicals in that stuff, things you can't even pronounce in the ingredient list, chances are it was one or all of those that made you so sick.

AndreaB Contributor
HEY! I have those tiny blood things too. <_<

Mine are bright red and they showed up right around the time I got sick....I never had them prior to that. They arent blisters but look like little freckles that are bright red...they are a little bit raised but not like a blister.

That's what they are, you described them better than me. Now you know what they are from.

I've been thinking about asking Dr. E if she can clear me for sulfa's before I undergo the mercury removal. I'm thinking that one would be beneficial.

melmak5 Contributor

Jin - Happy birthday!

mftnchn - legumes, no, they cause too much gas

I tried quinoa and some sorghum this weekend - no good.

Also tried some dairy - even worse

I think the rectal bleeding was from the corn.

I regurgitated chicken and voided carrots in their original form.

I am back to "what the hell CAN I eat?!" again.

If anyone knows of a competent, open-minded doctor in the Northeast, I am sufficiently ready to hear.

Rachel--24 Collaborator
Jin, this has been a while, maybe 5 years ago or so, but I tried to eat Cool Whip at Thanksgiving and it made me sick as a dog. There are so many chemicals in that stuff, things you can't even pronounce in the ingredient list, chances are it was one or all of those that made you so sick.

I agree! The same thing happened to me about 2 years ago. I felt really bad after eating cool whip....it couldnt have been caesin because I ate organic ice cream for 9 months without getting those symptoms.

It was definately the chemicals for me.

dlp252 Apprentice

I have TONS of those blood spots too. I thought they were petechae(sp?)...makes sense that they are mercury though. I've just got tons of them. I've also got the kind that are more like blisters. I thought those were cherry angioma (or something like that). I think I'll ask Dr. S about them too when I see him tomorrow.

There's a thread on LN about this .... there were about a half-dozen of us who find potato chips to be the answer. :lol:

It's funny because remember a couple of months ago when I was craving and eating chips...the reason I ate them is because it seemed like it would make me feel better. It sort of did unless I ate to many and then it just made things worse.

HEY!! Maybe this worm really *is* the alien baby??!! :o

...

What do you guys think?

I have to admit that it's the first thing I thought of when you said you had the little beast. Maybe it's also why your intestines were so kinked up that they couldn't get the scope through. I wonder if it was a full moon then?

I wonder if I'll still be racheling everything once I get better?? :P

I'll bet it normalizes a little...although SOME of that HAS to be us, lol.

You know, it probably wouldn't hurt your mom and her husband to take some of the anti-parasite stuff. :unsure:

Maybe right before I start treating the parasite I should get a LED for it. I'm gonna ask about that.

Certainly couldn't hurt, that's for sure.

I am back to "what the hell CAN I eat?!" again.

If anyone knows of a competent, open-minded doctor in the Northeast, I am sufficiently ready to hear.

I'm so very sorry...I really wish I knew of someone back there! You could always see Carla's LLMD...at least he'd run the proper tests.

Rachel--24 Collaborator
If anyone knows of a competent, open-minded doctor in the Northeast, I am sufficiently ready to hear.

Sorry, I'm on the West Coast...but I think there are others here who might know of someone.

Rachel--24 Collaborator

Here are some of the symptoms caused by parasites....but of course they can be caused by other infections as well. It seems like once the balance is upset we're getting alot of different infections. So far I've had the C. Diff, yeast and now this parasite. I'm sure thats not gonna be the end of the story but getting the mercury out should make it possible to restore normal balance...eventually.

Constipation

Some parasitic worms are actually large enough to physically block the passage of nutrients and waste at certain points in the digestive system. Severe parasitic infections in the bile duct or the intestines can make bowel movements difficult, leading to constipation.

Diarrhea

This intestinal parasite symptom is the development of diarrhea, or frequent, loose, watery stools. Many parasites produce a prostaglandin that leads to a sodium and chloride loss in the body. This in turn causes diarrhea. This process is especially true in the case of protozoan infection.

Gas and Bloating

Parasites that live in the upper small intestines can cause intestinal symptoms such as inflammation that leads to gas and bloating. Frequent occurrences of gas and bloating are classic signs of a intestinal parasite infection. The discomfort is aggravated by the consumption of hard to digest foods such as beans and non-organic meats.

Irritable Bowel Syndrome

Intestinal parasites dig in and attach themselves to the intestinal wall. This often causes irritation and inflammation that can in turn lead to muscle spasms, intestinal blockage, and a malabsorption of nutrients. Fatty substances in particular can be difficult to digest.

Joint and Muscle Aches

Intestinal parasites can also move and migrate throughout the body. It is not uncommon for them to become encysted in joint fluids or even in the muscles themselves. This causes pain, aching and irritation that are often mistaken for arthritis. Joint and muscle pain can also be caused by the body's own immune system response to the parasite infection.

Anemia

There are several varieties of intestinal parasites that attach themselves to the lining of the intestines and divert nutrients away from the human body. In severe infections, these parasites can lead to blood loss sufficient enough to cause anemia.

Allergies

Intestinal parasites cause irritation and inflammation. This in turn can make it difficult to digest certain types of foods. The body's response to these undigested food particles may be to produce increased levels of eosinophils, which are one of the body's immune system defenders. These eosinophils then inflame the body's tissue and cause an allergic reaction.

Skin Conditions

Intestinal parasites can cause the release of hormones and immune system defenders that can in turn irritate the skin. Hives, rashes, weeping eczema, and other allergic reactions are common with intestinal parasites. Protozoan infections can also cause ulcers, swelling, sores, lesions, and dermatitis.

Tumors

The body may develop a tumor like mass in response to the parasitic infection that is also known as a granuloma. The tumor is developed to encase parasitic larvae or eggs. Granulomas most often develop in the colon or on the rectal wall, but they are also found in the lungs, liver, peritoneum, and the uterus.

Nervousness

Intestinal parasites release waste products and other toxic substances into the body's system. In chronic or severe parasitic infections, these toxins may irritate the central nervous system resulting in restlessness, nervousness, and anxiety.

Sleep Disorders

Intestinal parasites can cause irritation that can disturb sleep patterns making it difficult to fall asleep and to stay asleep. In the night, the body works to eliminate toxins via the liver. Parasitic infections can interrupt this process and upset the rhythms of the body. Some parasites also migrate out of the anus at night causing itching, discomfort, and irritation.

Teeth Grinding

This intestinal parasite symptom can also cause a condition known as bruxism, or the abnormal grinding, clenching, and gnashing of the teeth. This condition occurs most often at night, and it may be linked to the restlessness and anxiety caused in the body by the parasite's release of waste and other toxins.

Chronic Fatigue

Parasites can exhaust and deplete the body, on physical, mental, and emotional levels. It can lead to the mal-absorption of protein, carbohydrates, fats, and vitamins, draining the body of both nutrients and energy. Chronic fatigue can develop with symptoms such as exhaustion, aches, apathy, depression, difficulty concentrating, and impaired cognitive ability.

Immune Dysfunction

Parasites leech vital nutrients from the body, forcing the immune system to operate with a poor supply of vitamins, minerals, and energy sources. Parasites also stimulate the production of immunoglobulin A, which is a defender against foreign substances. Over time, this over stimulation can exhaust the body's supply of immunoglobulin A, leaving the body susceptible to attacks from bacteria, yeast, fungus, virus, and other foreign invaders.

Kassandra...I wonder if it might be a parasite causing your anemia??

Rachel--24 Collaborator

Donna...I was thinking we might be able to meet yesterday. Dont you normally have BioSET on Saturdays?? I thought I might run into you...but nope...you werent there. :(

Actually noone was there when I got there. I went plenty early cuz of the parking heinosity. Anna, Amy and Scott were out to lunch. I ended up seeing Denise...so I guess she still works there. :)

CarlaB Enthusiast

Rachel, I had every symptom on that list except tumors ...

My FIL came over for lunch today and we were talking about my BIL I told you about. Ends up, my MIL has/had a D problem that was rather bad. She's overweight and somewhat reclusive. Umm, sounds like celiac definitely is a possibility here ... he is going to be tested for it.

I gave my FIL a lot of food for thought about possibilities and what the GI can and cannot do. He was interested in all of it and wrote it down to Google later.

Now he's scheming how to get my BIL to listen to him.

Rachel has been through the gamut trying to find foods that caused the least amount of discomfort. It's different for everyone. You definately need some good protein. Did you write about going vegetarian recently or was that someone else? Rachel has done well with beef. I don't have so many food sensitivities but I get along real well with beef. Make sure (if you can afford it) to buy 100% grass fed beef.

I know you've done ok with the raw diet but have you tried super cooking your veggies to see if they get along with your system better? Maybe pureeing stuff. I don't know.

Yes, you want to be sure you're getting enough protein. Protein requirements for the chronically ill are much higher than for the general population.

I used to eat about 50% raw .... but since I've been sick, I can't handle much raw ... especially carrots, cauliflower, broccoli, etc.

HEY!! Maybe this worm really *is* the alien baby??!! :o

Maybe the worm was moving things around and causing that abdominal pain that I was calling "ovary pain"??

I don't know ... do the worms move? I haven't had that motion stuff since I got rid of it, come to think of it. My stomach used to quite often make constant noise .... no longer.

My mom is really freaked out though. She hugged me and said "I dont have a daughter...I have a parasite". :blink:

Is she disowning you are accepting the worm as her daughter now? :lol: Nah, just tell her she has a daughter with a pet .... what did you name him? (He's a pest, so he's a guy...)

I have TONS of those blood spots too. I thought they were petechae(sp?)

I get these from the Bartonella. They flared when I started bart treatment. Might be different than what Andrea is talking about though .... they would cluster up on my forehead/scalp, but I also would get random ones on my arms and legs.

I'm so very sorry...I really wish I knew of someone back there! You could always see Carla's LLMD...at least he'd run the proper tests.
If you want his number, let me know.
Rachel--24 Collaborator

Carla...Yup, I have/had most of the symptoms listed for parasites on various lists I've seen. I was pretty convinced I had a parasite over 3 years ago...but unfortunately I still had my HMO and the Dr. was saying I couldnt have parasites since I havent been to a 3rd world country. :rolleyes:

I also couldnt possibly have mercury or candida either. :rolleyes:

Morons. :angry:

I did get them to test me but they only tested me for like 2 parasites.....or maybe it was just Gihardia (sp?). I did get them to test me for mercury too...but they gave me a blood test and an unprovoked urine test. :rolleyes:

Morons. :angry:

So after all these years the stupid parasite has probably grown plenty...not to mention all the babies and eggs. :(

I asked Amy if I'd "see" anything when I'm on the Alinia...she said I *might* but that the parasite would be encased in mucous and other gunk...so I might see lots of mucous....or other weird things. She said I will definately have stool changes.

She said the meds wont touch the eggs so thats why we have to repeat treatments. It sounds like the Alinia is gonna be harsh....and I'm guessing I have more than just the tapeworm.

This is what I read about Alinia's effectiveness.

Dr William P. Stuppy, a Harvard trained gastroenterologist and pathologist gave a paper at the 2006 Annual Scientific Meeting of The American College of Gastroenterology with some worrying figures. For people with abdominal complaints, even mild, or just fatigue, sleeplessness and vague rashes, he was finding parasites. Lots of

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    • Scott Adams
      It's possible he's in the early stages of celiac disease, and it has been caught before villi damage. The blood test results so far do indicate possible celiac disease, as well as his strong family history of celiac disease. If his symptoms get better on a gluten-free diet this would be another strong indication. Personally I think it's definitely better to proceed on the safe side and go gluten-free, rather than to risk severe villi damage and all that comes with it.
    • Dora77
      For some context: I have type 1 diabetes (T1D) (since 11 years) and celiac disease(since 4 years) For about a year now, I’ve been experiencing permanent floating and undigested stools. I’ve had a pancreas elastase test done. The first result was extremely low at 44, but a second test came back at 236. My doctor said that since one result is normal, it rules out pancreatic insufficiency because, according to them, elastase levels would always stay low if that were the issue. However, could the 236 have been a false result? My doctor also thinks I don’t have pancreatic insufficiency because I’m able to gain weight. I also get hgh injections as my bone age is younger than my real age, this also contributes to weight gain, so I dont know if weight gain can rule out malabsorption. But maybe if I had real malabsorption I wouldnt gain any weight even with hgh? For celiac, I’m on a gluten-free diet, but there might b small cross-contamination from things like pepper labeled as “may contain gluten.” or sausages which dont have gluten ingredient but say may contain. My doctor said that small amounts like this wouldn’t harm me and even mentioned that an occasional small exposure to gluten may not do much damage (which seems questionable since I thought even tiny amounts could be harmful). She also said that when Im older (Im m17) I could try eating small amounts of gluten and do antibody blood tests to see if I can tolerate small amounts or not. For reference, I’m asymptomatic when it comes to celiac, so I have no idea if I’ve been “glutened” or not. My first concerning celiac blood test was semi high IgA, then 3 months later we did a check up and my IgA was high so it was confirmed celiac. Since than I’ve had celiac antibody tests done yearly to see how my diet is going, and they’ve been negative, but I’ve heard those aren’t always reliable. I’ve never had a follow-up endoscopy to confirm healing. I also always kept eating „may contain gluten“ food. (I live in Germany so I dont know if „may contain gluten“ is as risky as in the usa but I suppose both are as risky) These stool issues started around the same time I was doing excessive heavy lifting at the gym. Could stress or lifting have triggered this, or is that less likely since the symptoms persist even after I stopped lifting? Occasionally, I’ll feel very mild stomach discomfort, but it’s rare and not severe. My doctor (also a dietist) said floating, undigested stools could still be “normal,” but that doesn’t seem realistic to me. Could this be impacting my vitamin or protein absorption? I also did a fructose intolerance breath test and had a high baseline of 20 ppm, but it never increased—only decreased over time. I fasted for 12 hours and didn’t eat fructose beforehand, but my stomach didn’t feel completely empty during the test. Could this mean the test was inaccurate? For lactose intolerance, I did the breath test but only fasted 10 hours and had eaten lactose prior because I wasn’t aware of the proper diet restrictions. My results were: 14, 12, 15, 25, 35, 40, 40 ppm—which would be considered positive. But given that I didn’t fast long enough or follow the right diet, could this result be unreliable? Has anyone else dealt with similar symptoms? What ended up being the cause for you? And sorry for the long text!
    • TerryinCO
      The Docs' and NP haven't committed to Celiac determination yet but say go gluten-free diet because...  And I have with improved physical results - feeling better; overall functions better, and more energy.  Still 10 pounds down in weight but I still have BMI of ~23.  It's been just over a month now gluten-free diet.  I'm fortunate I get along with diary/milk well and most other foods. I wanted ask about this site's sponsor, gliadin X.  If this is legit, seems like a good product to keep on hand. Though it says it's only a safety for incidental gluten contact - not a substitue for gluten-free diet. What's your input on this? This may be sensitive subject since they're a sponsor. I've used resources here and other sites for information, gluten-free food/product lists. So thank you for all that support. That's it for now - Stay warm...  -2F this morning in Colorado!
    • cristiana
      I did suffer with gastric symptoms before diagnosis, but got all sorts of weird and wacky symptoms after going gluten free.   Things got much better once my antibodies fell to normal levels, but it took years (please don't panic, many people's go to normal levels relatively quickly when following a gluten-free diet). Causes of the symptoms you mention that I also experienced were iron supplements, a temporary dairy intolerance (this is common in coeliacs and should pass when your gut heals properly), and eating oats, as mentioned above.  Other symptoms I got were musculoskeletal pain after diagnosis, but again, once my coeliac blood tests were normal, I had no more pain. I did notice patterns emerging in foods that I reacted to and learned to steer clear of them, then gradually reintroduced them when my gut healed, such as soya, pure oats and dairy products.    You might like to keep a food diary. Cristiana
    • Jy11
      Well the conflicting results continue as the biopsy has come back negative. 😵‍💫 Waiting to discuss further but I really don’t know what to think now? Eight biopsy’s were taken from duodenum which surely should be sufficient if it was coeliac? 
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