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Rachel--24

Omg...i Might Be On To Something

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Donna,

I admire you for starting today! I am feeling awful today, and I think it's because of the stupid rocky road bark we have in the house! I think I'm going to ask if I can throw it away!

I'm sorry to hear there wasn't improvement....that always sucks to hear! :(

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Donna, sorry there's been no improvement .... when you stop all these things you've been taking, are you still going to take Ambien?

Kassandra, I'm glad the red urine is normal ... you would have thought they would have warned you.

Sherry, I just watched this conference ... the Dr. B on Bartonella. http://www.lymediseaseassociation.org/VideoView.html He said in the conference that one sign of bart is when a patient is pulsing meds and has symptoms return in the couple days they are off. He said that doesn't make sense for borrelia to do that, and that he sees it in patients with bart.

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I have been avoiding the board as of late, here is my quick run by.

A fight about dietary restrictions blew way out of proportion and I ended up not spending the holidays with family. It was a horrible fight and I was really upset. Its not like I needed to feel more guilty/self conscious/upset about not being able to eat ANY of my favorites, nor even staples.

I thought my family "got" it, but my mom flipped out when I said I couldn't eat fish. And I said, "two weeks I could, but the last time I ate it it came back up"

Her "well its really frustrating not knowing what you want, Kristina"

Me: "YOU'RE FRUSTRATED?! I don't even know what I can eat!"

Her: "If you don't want to come here, then just say so"

It ended with yelling and tears and me spending the holiday on the couch with the tv till a friend dragged me to the neighbors house (which ended up with some sweet Boggle playing, I have to say that I have pretty amazing friends)

I have endoscopy #2 tomorrow morning, hopefully it will shed some light onto what the hell is going on.

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i have been reading in here for the last few days and i was trying to wait for a time i could pop in to the conversation, but never could find the right time to jump in, so i figured what the heck and just jump in. The last few weeks and months i felt something else was going on in my body, but im not sure what it is. Im not sure if its metal toxictiy or candida, i really dont think its lyme (there is no human cases in colorado) or that is what the research i have done shows.

I do have an appt the end of january with a naturalistic dr, my moms best friend sees one and she got me an appt for christmas, i cant wait to go.

I hope no one minds me jumping in.

paula

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Paula,

We don't mind anyone jumping in at any time! :P I'm glad you did! When you say something is wrong with your body, what exactly do you mean? What are your symptoms? If you give us more info, we may be able to help you pin point a little more of what is going on.

I believe, and I could be wrong, that there are Lyme cases in every state in the US...Carla, Sherry...is that right?

That's a great Christmas gift you got! I hope you can get some answers there.

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Paula,

I'm glad you jumped in.

There are cases of lyme in Colorado. One poster on this thread is from there and she's not the only one in the state who has it.

Yes, symptoms please. That would help people to give you ideas on what to look for/question at the doctor when you go. Most of us have not found the answers with mainline medicine......maybe none of us.

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I didn't do a coffee enema yesterday .... I wonder sometimes how much credit to give that .... could that take so much of the toxic load off that it would make a difference in a cold? I just pretty consistently feel better when I do them ... I guess even if it's a mental thing, it's still worth the effort. :lol:

Carla, I notice a huge difference with the ecoffee and colds. My doctor had mentioned it originally but I forgot he said that. Then over time I noticed how I could be coming down with one and the ecoffee just nipped it in the bud. Several experiences later, and even with full fledged colds, the symptoms improved....I was convinced. Then I remembered my doc told me he does an ecoffee when he starts to come down with a cold...

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Sherry, I just watched this conference ... the Dr. B on Bartonella. http://www.lymediseaseassociation.org/VideoView.html He said in the conference that one sign of bart is when a patient is pulsing meds and has symptoms return in the couple days they are off. He said that doesn't make sense for borrelia to do that, and that he sees it in patients with bart.

Wow, this does really fit me! I am going to go watch this video.

What are the best places to test for Bart? Should I do Igenex and Frys?

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It ended with yelling and tears and me spending the holiday on the couch with the tv till a friend dragged me to the neighbors house (which ended up with some sweet Boggle playing, I have to say that I have pretty amazing friends...

Kristina, I am so sorry for what you went through. Somehow around the holidays families' expectations are pretty high and many don't take it well when we don't measure up. I imagine that part of it also is that your mother is worried about you and feels frustration that you are not getting answers. But to respond like that was very unhelpful and hurtful to you, and not what we hope from a mature adult. I am so glad your friends reached out to you.

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Rachel that is fantastic! I did quite well with my dinner too, other than bloating. I am thankful to not have so much digestive distress as many of you do.

Donna, good for you for starting already....I've got some apple pie here and it won't keep, so when it is gone probably today, I'll launch my reforms, LOL.

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Paula,

Glad you decided to jump in...and no..we dont mind at all. :)

Lyme is everwhere....Colorado is no exception. The ticks travel...they dont recognize boundaries. I recall looking up some info about 4 years ago trying to figure out if I could have Lyme. I was looking to see if Lyme was here in Nor Cal....every page I came accross was basically leading me to believe that Lyme isnt a problem here.

Now I know better and the reality is that California has a HUGE problem with Lyme....lots and lots of cases right here in my area...in fact we have quite a few LLMD's here as well.

So what kind of symptoms are you dealing with?

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Andrea,

I LOVE the new pic! :wub:

Kristina,

I'm very sorry about your holiday. :(

You've had it rough lately...I hope the endoscopy will provide you with some answers.

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Sorry i had to eat dinner so i couldnt post my symptoms.

Well a couple of months ago rachel mentioned something when i was having a problem with garlic and onions and it has stayed in the back of my head since, she said it was one of her symptoms with metal toxity.

Then a couple of weeks ago i had my celiac panel re-done and my numbers are still high, they are lower then before but still not close to normal. And i know i have been about 99 percent gluten free, so im thinking something must be keeping me from healing.

I am still tired, i can get out of bed at 5 or 6, but by 10 im so exhausted and just want to go back to bed. I am having some joint pain and my feet hurt if i wear tennis shoes for too long.

The last two months i just have not felt right, lots of sinus infections and pain. I dont know if im missing more food intolerances or what.

A couple of weeks i also did the spit candida test and it came back postive, but hubby said it was cause i had an beer the night before.

I know there is more but that is all i can think of right now.

thanks everyone

paula

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Paula, it sure seems like lyme should be clearly ruled out for you. Candida is something to consider, have you tried the anti-Candida diet for any length of time?

Are you only gluten free? Or have you eliminated anything else that helps?

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Paula, it sure seems like lyme should be clearly ruled out for you. Candida is something to consider, have you tried the anti-Candida diet for any length of time?

Are you only gluten free? Or have you eliminated anything else that helps?

No i havent tried it, im afraid to give up my fruit. How long would i have to try the diet to see if it helps, im willing to try anything the first of the year.

So far i have given up

gluten

casein

soy

garlic

onions

beans

paula

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I just thought of something else, i see some talk about mold. Well about 18 months ago we had an huge issue with mold in this house, it was from the bathroom threw toy room threw family room all the way into the kitchen. This is about the time that my stepson and i became the sickest. Could of all ths mold causes problems?

paula

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The last two months i just have not felt right, lots of sinus infections and pain. I dont know if im missing more food intolerances or what.

I was going to mention soy, but I see from below that you've already elminated that.

So far i have given up

gluten

casein

soy

garlic

onions

beans

I would definately look into metals and molds (from your post below). Metals and lyme can cause joint pains (as well as soy IMO).

If you know of anyone in the area who does muscle testing or bioSET then you could have that done too. The muscle testing would tell you what is going on and then you could pursue other testing based on those results.

I just thought of something else, i see some talk about mold. Well about 18 months ago we had an huge issue with mold in this house, it was from the bathroom threw toy room threw family room all the way into the kitchen. This is about the time that my stepson and i became the sickest. Could of all ths mold causes problems?

Mold can cause all sorts of problems. Rachel knows more about that though.

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Paula, I'm glad you jumped in, welcome!

I believe, and I could be wrong, that there are Lyme cases in every state in the US...Carla, Sherry...is that right?
Right, it's everywhere .... in other countries, too.

My own case, which was CDC positive was NOT reported. The county I contracted it in 35 years ago is STILL listed as NO risk! :angry:

Wow, this does really fit me! I am going to go watch this video.

What are the best places to test for Bart? Should I do Igenex and Frys?

In the video he says that 80% of the people with clear symptoms and response to treatment test negative. I don't know where I was tested, but the test was negative. It has to be clinically diagnosed. You'll like the video, it will ring a lot of bells for you. :)

Paula, it sure seems like lyme should be clearly ruled out for you.

You mean she should rule it out, right? Your comment could also be taken as it doesn't sound like a possibility ... stupid internet, we can't get facial expressions and tone of voice! It sounds like some of those symptoms could be attributed to Lyme -- joint pain, sore feet, multiple sensitivities ....

Paula, you might check out the symptom list on the first page of the Lyme Disease thread.

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carla,

Do you have to have red bulls eye to have lyme tho. I have been thinking about this for weeks and i have never had a bulls eye rash, i even asked my parents yesterday for christmas and they said nope.

paula

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