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Rachel--24

Omg...i Might Be On To Something

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Confuused,

Mold can contribute to fungal infections such as Candida and mixed with heavy metals is a bad combo. So, I would suggest an anti-candida diet. You can get more info on www.wholeapproach.com or http://s11.invisionfree.com/Health_411. There are others but those come to mind. You can still have fruit as long as it does not inhibit you from getting better. For me in the beginning, I had to restrict it. I can now have some of the low sugar fruits and do fine on them. Its a good idea to take some antifungals and a good quality probiotic. Rule of thumb is to Kill the candida, keep the elimination organs flowing, then replenish with good bacteria - preferrably human strain only.

Somewhere in there you will probably need to get tested for heavy metals. A DMSA challenge test is usually the best way. Though sometimes people use hair analysis but I don't know much about that.

If after the anti-candida, anti-fungals, and probiotics you don't get better, then you may need to consider lyme as well. I am starting to think lyme should be tested for at your annual checkup!

I am considering lyme testing if I can find an LLMD in my area. For one reason, I have done the anti-candida for over 1 1/2 years and although I am better than before, I am definately not back to "normal" whatever that used to be!

It seems I have to work too hard to keep feeling good and if I stray from my program then I feel it. This tells me something else is producing too many toxins either in my body or in my environment. I guess thats an okay way to look at it.

Anyway, I am rambling now......

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You mean she should rule it out, right? Your comment could also be taken as it doesn't sound like a possibility ... stupid internet, we can't get facial expressions and tone of voice! It sounds like some of those symptoms could be attributed to Lyme -- joint pain, sore feet, multiple sensitivities ....

Yes, sorry. I meant Paula should look into this and be sure she doesn't have lyme because it sounds very suspicious for lyme in my opinion given her other efforts haven't worked.

Paula the insomnia fits the lyme picture as well.

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In the video he says that 80% of the people with clear symptoms and response to treatment test negative. I don't know where I was tested, but the test was negative. It has to be clinically diagnosed. You'll like the video, it will ring a lot of bells for you. :)

check out the symptom list on the first page of the Lyme Disease thread.

I just finished the video, wish I could see the whole thing. Some of the symptoms seem like a possibility though it isn't a dead ringer for me.

Brain fog, yes. Along with the concentration, confusion and poor memory, however, I have had a lot of periods where this clears pretty much. When I have symptoms, I usually have this.

Insomnia yes, better now.

Fatigue, yes, when I have symptoms I have this.

Sore soles of feet, I used to have this from what is described but don't notice it so much now. This is different from the sore balls of the feet that I have--at least from the description.

Subcutaneous nodules: I don't know, not that I have noticed in the areas described.

Rashes, not that I have noticed.

Lymph nodes: not that I am aware

Elevated temperature, not regularly, but on occasion. Haven't noticed it being in the morning.

Gastritis, currently pretty much resolved.

Rapid return of symptoms after cessation of lyme treatment: Yes, but not every time I have tried to go off treatment.

I haven't taken the main BLO meds

So, yes it could be---I think it needs to be checked and ruled out at least.

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Paula,

I agree that you should look into Lyme. It is WAY more common than I think we think...kinda like Celiac...lol! I think something like 60% of the people with Lyme never remember having a bull's eye rash.

I got one when I was at sleep away camp 10 years ago and have been symptomatic ever since, but it's always been manageable...until I had steroids over the summer, it went haywire!

I agree you should look at the symptom list on the Lyme Disease Thread.

As far as the anti-candida diet...you probably read that Donna, Sherry and I are going to try and stick to the diet and help each other through it because it *is* hard! You're more than welcome to come here for moral support through that.

Carla,

I took my temp this morning when I woke up and it was 97.2....does that suggest something is up with my thyroid? Hmmm...sure got me thinking. It has been really low lately... average is 97.4. Thought I'd ask you since you know a lot about BMT.

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carla,

Do you have to have red bulls eye to have lyme tho. I have been thinking about this for weeks and i have never had a bulls eye rash, i even asked my parents yesterday for christmas and they said nope.

paula

I never saw a bullseye rash .... I think it's something like half of the people with Lyme don't see a rash .... in fact, a lot never even see a tick!

Paula the insomnia fits the lyme picture as well.

Seems like a common symptom for those of us on this thread who have Lyme!

I just finished the video, wish I could see the whole thing. Some of the symptoms seem like a possibility though it isn't a dead ringer for me.

So, yes it could be---I think it needs to be checked and ruled out at least.

It wasn't a dead ringer for me either, which I guess is why we missed it. I don't get sore feet, sore nodules ... my lymph nodes aren't all that swollen (at least I don't think they are, they're the same as they've always been). My symptoms are only CNS and GI. I get red dots and a little rash once in a while, but nothing like the pictures. Oh, and the insomnia is bad.

I'm just wondering for you because of the trouble getting off the meds. It was interesting how he said that when they only treated Lyme very long-term that it eventually made the coinfections go away because it was the Lyme preventing our body from healing them .... that babesia will resolve itself in the absence of Lyme in about six weeks!

So, if not bart, I wonder if it's another missed coinfection.

Carla,

I took my temp this morning when I woke up and it was 97.2....does that suggest something is up with my thyroid? Hmmm...sure got me thinking. It has been really low lately... average is 97.4. Thought I'd ask you since you know a lot about BMT.

That is considered low. Dr. Broda Barnes, who developed the temperature method, considers below 97.8 to be too low. In my experience, the women who were below 97.6 were symptomatic of low thyroid. My temps were at 97.6-97.8 when my LLMD started me on Armour ... it used to be lower than that, but eating more salt raised it some.

That's really the first thing to do ... are you eating salt? If it's not iodized, are you getting enough iodine?

I have a friend who was overweight .... she had all the low-thyroid symptoms ... she tested in the normal range, but her temps were low, so she went to the health food store and bought thyroid ... she was also seeing a naturopathic person who was okay with her doing this .... she ended up having much more energy, not needing a daily nap, and dropping 60 pounds!!!

So, definitely do some research on it. I saw women raise their body temperature just by adding salt to their diet .... nine times out of ten, it was the women who ate "healthy" and "low-salt" who I saw have a problem with low temperature. Of course, in your case, it could be the Lyme causing it.

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Welcome Paula,

I see lots of others have given you lots of good info. I'm struggling big time with mold issues and my doctor won't even begin more agressive treatments with me until I can fix the mold problem. It's his experience that people who are exposed to mold will not get better. I have lyme, mold toxicity, metal toxicity and am plagued with bacterial and viral issues it seems. Mold can definitely cause a lot of issues and make other issues MUCH worse.

I have lyme...I live in California, a supposedly low lyme risk area, but as Rachel says, it is definitely a big problem here. I never remember being bitten nor do I remember a bullseye rash. I DO remember two times where I had a very bad case of a flu-like illness, so one of those times may have been around the time I got bit. We can be exposed to lyme in many different ways. If you've ever been to another state on vacation, there you go. :P

And re the sinus issues...mine were apparently related to food intolerances (caused by what I don't know, lol). I had a three year period where I had a never ending sinus infection. I cut out gluten and casein and the sinus issues seemed to resolve. I can eat a lot of things I know I shouldn't and not have anything but GI problems, but if I eat too much dairy I can feel the sinuses come back. For you it may not be dairy, but might be something else.

Kassandra,

Yeah, I DID eat the remaining pumpkin tart on Christmas day so that it wouldn't be around yesterday, lol.

Carla,

I actually haven't been taking the Ambien. Did it take you more than a couple of days for it to take affect? After two days I figured it wasn't going to work for me and I stopped taking it. I will still probably try to take it on choir nights or any other night where I'd be out later than normal.

Laura,

Belated Merry Christmas to you too, and a Happy New Year!

Kristina,

I'm so sorry about the family fight. Hope your endoscope is going well...can't wait to hear what comes of it.

Sherry,

Ha, I understand about the pie, see my comment about the pumpkin tart to Kassandra above, lol. I had two pieces left and decided to eat them both on Christmas day even though I'd already had some brown rice pasta, just to get rid of it, lol. Gee Donna, wonder why you don't feel well. :lol:

Somewhere in there you will probably need to get tested for heavy metals. A DMSA challenge test is usually the best way. Though sometimes people use hair analysis but I don't know much about that.

Yeah, the hair analysis is good only if it shows something, lol. If your body isn't able to rid itself of the metals, nothing will show there. I had the hair analysis but the only thing that showed high was silver. All of my doctors agree that the hair analysis result doesn't mean I don't have metal toxicity though. Metals come out really strong in all the alternative testing methods I've tried. I still think the best way is a challenge. Hopefully I'll get mine in February, lol.

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It wasn't a dead ringer for me either, which I guess is why we missed it.

I'm just wondering for you because of the trouble getting off the meds. It was interesting how he said that when they only treated Lyme very long-term that it eventually made the coinfections go away because it was the Lyme preventing our body from healing them .... that babesia will resolve itself in the absence of Lyme in about six weeks!

So, if not bart, I wonder if it's another missed coinfection.

Yes, this is on my list to talk with my LLMD. I think I should have the testing, and then consider the treatment. However, if my liver enzymes don't improve, I am guessing I won't be able to treat with abx for awhile.

I have treated for the babs and erlich...and haven't have the bart meds in my long list, so it does make sense.

I'm going to see what happens on the humaworm. I should get mine on Sunday!

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I'll be heading out of town tomorrow and back to where I get the massages. I am a bit unsure after my last one after which I haven't yet felt good. It really stirred something up.

I think I'll ask her to do the upper back, avoid the lower back for now, and do the abdomen and see what happens. Then I'll do the gua sha again.

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Donna, no, I think the Ambien is supposed to work right away. It's not like the supplements that need to build up. I didn't really like the CR .... does it help you get to sleep? It does help me fall asleep, but not stay asleep .... that's why I like the regular, I can take a small dose to get to sleep, then another when I wake up.

Sherry, oooh, have fun with the Humaworm! Have some chlorella handy. ;)

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I'm going to see what happens on the humaworm. I should get mine on Sunday!

Oh, good, some excitement again, lol.

Donna, no, I think the Ambien is supposed to work right away. It's not like the supplements that need to build up. I didn't really like the CR .... does it help you get to sleep? It does help me fall asleep, but not stay asleep .... that's why I like the regular, I can take a small dose to get to sleep, then another when I wake up.

Yeah, I figured it was supposed to work right away. I don't usually have a problem falling asleep unless I've been out late. My biggest problem is staying alseep. The CR is supposed to help with that--kind of frustrating that it doesn't, lol. I'm going to ask for the regular when I seen him in February. At least I know I can safely take the CR at anytime because it definitely doesn't make me sleep for 8 hours, lol.

Do you think Dr. E up in Bellevue will be able to check for the presence of bartonella? Does anyone know?

Should be able to. My ART practitioner (Scott, who knows and works with Dr. Amy who works in the same office as Dr. E, lol) is the one who found lyme first...along with that he was able to tell me that I had bartonella, erlichia and babesia.

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Sherry, oooh, have fun with the Humaworm! Have some chlorella handy. ;)

No chlorella unfortunately. I can't find it here. I'll take more charcoal I guess.

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Should be able to. My ART practitioner (Scott, who knows and works with Dr. Amy who works in the same office as Dr. E, lol) is the one who found lyme first...along with that he was able to tell me that I had bartonella, erlichia and babesia.

Good! If she finds it, that will be one more pointer...and I can discuss it with my LLMD on the 22nd.

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Donna, LOL, yeah maybe some excitement, more like preparing myself to freak out!!!

I am a little worried about it given that I have had a poor month, hope I can handle it. But I really want to give it a try before I see Dr. E and my LLMD next month.

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Ok i have been researching for about 3 hours now, and i really dont think its lyme, but i think it has to do with the mold. I just cant pinpoint that yet, but i know im going to figure this out then i can talk to the naturalist dr next month.

I also think it is candida cause i have had many yeast infections this past year.

I am going to go look up the anti-candida diet now and see what i have to give up eating.

Should i get any probotics or antifungals to help with this.

paula

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Probiotics are essential. Anti-fungals are good.

If you have candida, be sure to look for the cause of it .... many people with candida also have heavy metal toxicity ... if you get the underlying cause taken care of, many times the candida resolves itself or is easy to resolve.

Why do you think you can rule out Lyme? Just curious ....

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Paula, it's most likely more than one thing .... I'm not saying it's Lyme, or that starting with candida is a bad start, because it's not! But chronic illness comes in layers ... you peel one away, then you find another.

I've had many layers myself .... as has everyone here. :)

How is your thryoid? Cold hands/feet and low sex drive are often indicators of low thryoid. I was on the low end of normal and saw a lot of improvement when I started taking Armour Thyroid (one of my layers, LOL).

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Paula, it's most likely more than one thing .... I'm not saying it's Lyme, or that starting with candida is a bad start, because it's not! But chronic illness comes in layers ... you peel one away, then you find another.

I've had many layers myself .... as has everyone here. :)

How is your thryoid? Cold hands/feet and low sex drive are often indicators of low thryoid. I was on the low end of normal and saw a lot of improvement when I started taking Armour Thyroid (one of my layers, LOL).

Oh i know its not just candida, i think it has something to do with the mold or metal toxicity. I just havent figured out the missing part yet lol.

My thyroid is fine, i actually had all of that rechecked when i redid the celiac panel a couple of weeks ago. My anemia is even getting a little better to. But my ttg is not were the dr wants it to be at. In februry it was 118 and now its only 75, 20 and below is normal. He just thinks i keep cheating, when i know im not. So i figured it was a time to look into other illnesses.

paula

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If you're still struggling with that, it would seem that celiac itself might cause candida problems ... but I'm not sure on that one .... but it seems like a common topic on the board.

Mold is a bad one, too.

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I am a little worried about it given that I have had a poor month, hope I can handle it. But I really want to give it a try before I see Dr. E and my LLMD next month.

Yeah, I think it was a rougher month than I thought, lol. Two days off of it and I'm already feeling a bit better, lol.

Ok i have been researching for about 3 hours now, and i really dont think its lyme, but i think it has to do with the mold. I just cant pinpoint that yet, but i know im going to figure this out then i can talk to the naturalist dr next month.

I know i could be wrong but i just really dont think that is what it isNow i just read an article on candida and omg it feels like that is what it is. I have every single symptom that they mentoned. I have the burning, i have the crying spells, i have the cold feet and hands, i have an loss in sexual appetitie.

Yes, it's quite possible that candida is causing your symptoms, but SOMETHING is causing the candida to flourish. I'm quite sure that a majority of my symptoms are from the metals and/or candida, but it's the mold exposure, lyme and metals that allow the candida to thrive in the first place.

In your case, it could also be something simpler than that that allows the flora to be off balanced. It gets very frustrating trying to figure it all out. I finally went to an ART practitioner because I was going around in circles, trying to put out fires. ART identifies what is stressing or burdening your body most. In my case it was Lyme, metals and bacterial/viral issues are stressing my body the most.

The candida diet just lessened the symptoms for me...I felt good as long as I was on the diet, but as soon as I loosened up, I felt badly again. I also took anti-fungals and nystatin. But, if you don't find out WHY the candida flourished in the first place, you could have a long battle.

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Do you think it would be best just to worry about getting my numbers down first or should i at least try the candida diet also. I told hubby this house was going completely gluten free on the first, cause i cant do this anymore. I got glutened christmas eve day cause i was cleaning the house from top to top and cleaned up pizza and donuts and other gluten stuff. I was in so much pain christmas morning. But that was like the first time i got glutened in over an month.

I am going to go research more on mold, anyone know of any good websites on that?

paula

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Paula,

So far all of my doctors want me on the anti-candida diet...it'll keep the symptoms down until we start treating more agressively.

Good for you on insisting on completely gluten free house! THe more you can minimize the accidentaly glutenings the more you'll be able to heal.

Here are some of my mold links:

http://www.mold-survivor.com/symptoms.html

http://www.toxic-mold-news.com/toxic_mold/mold.html

http://www.wayof-life.co.uk/candida.htm

http://jmm.sgmjournals.org/cgi/content/full/53/10/1013

http://healthandenergy.com/mold.htm

http://harmon-group.com/mold_faq's.htm

http://www.newconnexion.net/article/01-07/...ntal_Molds.html

http://www.homehealthscience.com/toxicmold_inhouse.asp

And one addressing diet:

http://www.mold-survivor.com/dietcopyright.html

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I'll be heading out of town tomorrow and back to where I get the massages. I am a bit unsure after my last one after which I haven't yet felt good. It really stirred something up.

I think I'll ask her to do the upper back, avoid the lower back for now, and do the abdomen and see what happens. Then I'll do the gua sha again.

I'd be really nervous too. Keep us posted as you can on this trip and I hope the massage/gua sha goes well this time.

Do you think Dr. E up in Bellevue will be able to check for the presence of bartonella? Does anyone know?

She has a "box" of vials for lyme so I'm pretty sure she can test for it.

How is your thryoid? Cold hands/feet and low sex drive are often indicators of low thryoid. I was on the low end of normal and saw a lot of improvement when I started taking Armour Thyroid (one of my layers, LOL).

I believe metals can cause the same symptoms.

Definately look more into the mold and metals.

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