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- trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms15Disaccharide deficient, confusing biopsy results, no blood test
Typical, I suppose. -
- jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms15Disaccharide deficient, confusing biopsy results, no blood test
yes, i told my brother that, but he’s fine with never getting an official diagnosis he says! he doesn’t often take my advice LOL -
- Aretaeus Cappadocia commented on Scott Adams's blog entry in Gluten Busters: Gluten-Free Product Alerts by Celiac.com9Simple Mills and Made Good Foods Products May Contain Gluten Levels Above the FDA's Allowable Limit of 20 ppm
yes, definitely old news by now. I posted in response to a reply posted on this topic this week. Sticking with the original story, I googled product recalls related to MAM's original claims. Did not see any so I am guessing MAM's claims of gluten contamination did not hold up to scrutiny. Trying to be objective about that whole controversy, to me GFW... -
- Tobo replied to HectorConvector's topic in Related Issues & Disorders333Terrible Neurological Symptoms
I'm 63 and was diagnosed in 2010. Prior to diagnosis I was suspected of having to strokes and medicated according each time. A neurologist called me in to discuss my scan. From that discussion I had a camera down and celiac disease was confirmed. I suffered continued pain and numbness down my left side and was offered amitriptyline, and antidepressants that... -
- trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms15
Disaccharide deficient, confusing biopsy results, no blood test
@jenniber, it would be pointless for your brother to get tested for celiac disease if he has already gone gluten free. Doing so invalidates the testing. He would need to undergo a "gluten challenge". That is, he would need to go back to consuming generous amounts of gluten (at least 10g daily, or the amount found in about 4-6 slices of wheat-based bread)...- 1
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Typical, I suppose.
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yes, i told my brother that, but he’s fine with never getting an official diagnosis he says! he doesn’t often take my advice LOL
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I'm 63 and was diagnosed in 2010. Prior to diagnosis I was suspected of having to strokes and medicated according each time. A neurologist called me in to discuss my scan. From that discussion I had a camera down and celiac disease was confirmed. I suffered continued pain and numbness down my left side and was offered amitriptyline, and antidepressants that was also diagnosed for nerve pain. I said no as I didn't want the stigma of being on antidepressants. Seven years later I begged my GP to prescribe them and my life was changed almost immediately. If I'm glutened accidentally whilst eating out then my nerves pain/symptoms get worse but it's nothing compared to taking the medication and feeling a little drowsy every now and then. The best of luck for the future.
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@jenniber, it would be pointless for your brother to get tested for celiac disease if he has already gone gluten free. Doing so invalidates the testing. He would need to undergo a "gluten challenge". That is, he would need to go back to consuming generous amounts of gluten (at least 10g daily, or the amount found in about 4-6 slices of wheat-based bread) for several weeks leading up to the day of the blood draw.
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