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Canadian Karen

Results From Upper Gi Series Test And Dr. Appt.

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Well, had the upper GI series yesterday.

I ended up having to drink more of that barium stuff because when they took me back in to do more pictures, the stuff had already gone through me. The technician said I was what they call "rapid transit", LOL, "No Kidding Bub! More like Super Sonic!" LOL! :D<_<

Anyway, I had to stick around the hospital until 1 pm for the doctor appt to discuss the results. I get on the elevator to go outside, and lo and behold, there is a pizza delivery man with about 8 large pizzas delivering to some people at the hospital. How cruel!!!! :angry:

When I got into the doctor, he said that he didn't see any indication of any ulcerative jujenitivis (or whatever that name is......) or cancer. He did say that it was very difficult to see the bowel though because it was absolutely full of water. He also said he wanted to do another biopsy to check the villi, so that is booked for June 14/06. He also wants to start me on IV iron, but not until after the biopsy.

He said that our next course of action will be to try a stronger regiment of prednisone and for a longer period of time. But he did say that even if this works, usually it will only be for awhile, and it will come back again, back on prednisone, etc. etc. Basically, he said it will be a chronic, ongoing thing.

So, that's where we are now.......

Hugs!

Karen

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I remembered that you mentioned you were going for this test--thanks for letting us know, I was wondering how it all went. I wish that there was more that could be done--hopefully the treatment will work for longer than they expect--maybe even enough time for them to think of something else. I really hope so. :)

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Hi Karen,

Hopefully the prednisone will work for you. I hope they see lots of little villi standing on guard when your endoscopy is done. Is your tTg level still high?

Did you want to trip the pizza guy? :rolleyes:

Good luck with your endo. Let us know how it goes.

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Hey Karen, maybe I am in the dark here, but why were you having the tests done? Are you still having problems after going gluten-free? I hope things get better for you!!! I am glad that the doc didn't find anything too serious!

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Tiffany, Karen has a chronic D problem due to a disease that she has besides the Celiac. She has been gluten-free for a long time, but has been hoping they would solve the problem. It is really tough news for her. It is great she does not have Cancer as that can happen with the disease she has. Her villi have always been flat with every exam they do. I hope this next one shows some soldiers standing at attention. It has to be tough to raise four children with the exhaustion due to the D problem. She has a wonderful supportive husband and great kids. I always keep her in my prayers.

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Tiffany, Karen has a chronic D problem due to a disease that she has besides the Celiac. She has been gluten-free for a long time, but has been hoping they would solve the problem. It is really tough news for her. It is great she does not have Cancer as that can happen with the disease she has. Her villi have always been flat with every exam they do. I hope this next one shows some soldiers standing at attention. It has to be tough to raise four children with the exhaustion due to the D problem. She has a wonderful supportive husband and great kids. I always keep her in my prayers.

Ah! I didn't know about the other disease! I see. Thanks for the info!

Karen, my prayers are with you! You are a mighty strong woman! -Tiff

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Thanks guys. I don't feel strong right now, I feel like a broken shell of the person I used to be....

This too shall pass.......

Tomorrow is another day....... ;)

Hugs.

Karen

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HI Karen

Wrote you a long email.

Yes, tomorrow is another day. You know that so many of us on the forum will continue to pray for your healing and strength to deal with all you have going on.

we love you and care deeply for you Karen.

Love and hugs

Judy

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Karen, you have my prayers and kindest thoughts for your Dr. to find a resolution to your chronic D and get you back in good health.

I know that the vibrant Karen we all know and love will be back on track; so keep positive thinking going.

D.

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Hey Karen,been thinking about you.

Well at least they didn't find anything sinister with the barium.

I'd imagine you're not looking forward to the Pred -but fingers crossed a higher/longer dose may kick start your stubborn little villi guys into growing back a little,and maybe lessen the D ?

Positive vibes coming your way :):)

Nikki x

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Thanks guys. I don't feel strong right now, I feel like a broken shell of the person I used to be....

This too shall pass.......

Tomorrow is another day....... ;)

Hugs.

Karen

Well, it is a real blessing they didn't find cancer or something like that! ...but I understand that knowing that doesn't 'make it all better' for you. Glad you're having the iron treatment done...I remember us talking about that a while back. So did you decide that the SCD wasn't for you? Here's to being frustrated and sad with you friend... Hang in there...

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Well, had the upper GI series yesterday.

I ended up having to drink more of that barium stuff because when they took me back in to do more pictures, the stuff had already gone through me. The technician said I was what they call "rapid transit", LOL, "No Kidding Bub! More like Super Sonic!" LOL! :D<_<

Anyway, I had to stick around the hospital until 1 pm for the doctor appt to discuss the results. I get on the elevator to go outside, and lo and behold, there is a pizza delivery man with about 8 large pizzas delivering to some people at the hospital. How cruel!!!! :angry:

When I got into the doctor, he said that he didn't see any indication of any ulcerative jujenitivis (or whatever that name is......) or cancer. He did say that it was very difficult to see the bowel though because it was absolutely full of water. He also said he wanted to do another biopsy to check the villi, so that is booked for June 14/06. He also wants to start me on IV iron, but not until after the biopsy.

He said that our next course of action will be to try a stronger regiment of prednisone and for a longer period of time. But he did say that even if this works, usually it will only be for awhile, and it will come back again, back on prednisone, etc. etc. Basically, he said it will be a chronic, ongoing thing.

So, that's where we are now.......

Hugs!

Karen

Aw Karen you have been through so much and then to run into the pizza guy! Are they making sure the barium they are giving you is gluten-free? Not all are, we found that out the hard way. I hope the prednisone helps, it was one of the few things prediagnosis that did for me. I'm glad they didn't find anything awful but I hope they can give you some relief soon. ((((((((((Hugs)))))))))

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Karen, Sorry to hear what the doctor said about being on Prednisone for so long. It would of been nice if the Doctor could of told you more though after going through all that. Don't get it why can't you see through the water,......anyway I don't know what I'm talking about either. I'll be praying for you in June. Keep strong. {{hugs}}

gail

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Karen,

Sorry that I am so late responding. Have not been on the computer for several days, as it's been a little hectic here. I know that you are disappointed that no solution was found but your a trooper and I feel that there is one just around the corner. So keep the faith girl.

When you get down, just remember that you are the official God-Mother of our Celiac world. You pick us up when we're down, you cry with us when the tears just come, you make us laugh at ourselves and you have an incredible sence of justice, caring and faith. So cheers to you and that happy husband of yours.

Love ya, Lisa :):):)

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