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BRUMI1968

Auto-immune Diseases

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I have Celiac, eosinophilic gastroenteritis and a ton of food allergies. I was not diagnosed with Celiac until I was in my mid 40's but had GI problems for a good 10 + years prior, so that may have contributed to my other problems.

Susan

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Anyone else with other autoimmune diseases? I have ITP (Idiopathic Thrombocytopenia Purpura), though I'm currently untreated and just fine. It is when the spleen decides to kill off all your platelets until you bleed to death. Great!

Now I'm thinking having Celiac all my life might've contributed to getting ITP.

Yep! I have autoimmune hepatitis, Hashimoto's Thyroiditis, asthma, psoriasis, and rheumatoid arthritis. I'm being tested for celiac disease at the moment (I'm HLA DQ8). I also have a severe case of fibromyalgia that has put me in a wheelchair as of the beginning of September....there's some controversy as to whether or not fibro is an autoimmune disease.

Good luck to you!

JoAnn

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Another auto-immuner here (at the risk of sounding... complainish - autoimmune diseases suck!)

I have Hashimotos Thyroiditis, Celiac Disease, Fibromyalgia.. I also have type II diabetes ;)

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Hello, I just wanted to let you know that when I was a child (4 or 5) I got Henoch-Schonlein Purpura. It came shortly after I had pneumonia and had it for about 6 weeks. I am 22 now but I still remember how terrible it felt when I was young, so I can sympathize with your daughter. Since it was so rare, especially then, doctors barely knew anything about it and I don't think my kidneys were ever even mentioned. I hope your daughter recovered well and has no long-term damage as a result. Anyway, I have tested mildly positive for Celiac in the recent past and I'm just wondering if there could be some link to this "allergic purpura" as a sign of what is to come in the future. I hope your daughter doesn't get Celiac D., like I did, but it would be smart for her to be tested for it. If you have any questions please feel free to email me at boysenberry_14@yahoo.com and I will do my best to help if I can.

Sincerely, Meghan Ganstine

My son had HSP when he was 14. A long drawn out episode. Prednisone didn't work, so he took injections of methotrexate. At the time he had to deal with painful intermittent stomachaches from the HSP and the metho. The HSP went into remission 14 months after the first onset. Off the meds, he had 3 good months followed by 3 more months of illness/weight loss before being diagnosed with celiac. I wonder if the damage the HSP / metho did to his gut contributed to the onset of the celiac. Of course, the doctors are not aware of any connections betweend his HSP and his celiac.

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I have RA, anxiety, depression, psorasis. Had been misdiagosed with IBS for years before discovering I had Celiac.

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I have RA, anxiety, depression, psorasis. Had been misdiagosed with IBS for years before discovering I had Celiac.

Is your RA sero-negative like mine? After I developed the psoriasis my diagnosis was changed to psoriatic arthritis.

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On 5/22/2006 at 5:30 PM, AndreaB said:

No one in our family is Celiac that I know of. I am allergic and having my family tested by enterolab for wheat/milk/soy/egg/yeast.

 

I am curious as to whether anyone here has had a child with Henoch-Schonlein Purpura. They don't know much about it (medical profession). My daughter just got over it and still needs to see a kidney specialist for a few months. She was going through a lot for the 2 1/2 months she had it. Very painful. My older two children have always had a very mild eczema on their cheeks. One of the reasons I'm getting them tested by enterolab. The gal there recommended the stool test over the allergy test. She used to work for an allergist. At least it goes over 4 of the main allergens.

Yes my daughter had HSP at 3, then diagnosed celiac at 8.  So many symptoms over the years.  I finally pushed to figure out what was wrong with her

0A8E2AFC-4FB6-4B14-813D-E186AC756542.png

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7 hours ago, celiacmomcedarpark said:

Yes my daughter had HSP at 3, then diagnosed celiac at 8.  So many symptoms over the years.  I finally pushed to figure out what was wrong with her

0A8E2AFC-4FB6-4B14-813D-E186AC756542.png

Hello and welcome :)

You've replied to an old post, Andrea was last on the forum 4 years ago so may not see this. Although not all is lost, others will see your post in the future if they're looking for a connection between the two. :)

 

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5 hours ago, Jmg said:

Hello and welcome :)

You've replied to an old post, Andrea was last on the forum 4 years ago so may not see this. Although not all is lost, others will see your post in the future if they're looking for a connection between the two. :)

 

celiaccomcedarpark,

Let me add my welcome to jmg's.

Activity on the thread triggers the renewal of the thread.

I just wanted to add this new research on eczema in babies.

tI has been tied to the nutrient status of the mother. . .  so it possible you would need to be checked

for Celiac or NCGS yourself.

https://www.nutraingredients.com/Article/2016/09/26/Mother-s-vitamin-B-levels-affect-eczema-risk-study-finds

We don't think about disease being inherited traditionally through vitamins in this genetic age but research is finding more and more research ever day is acknowledging the role stress plays in a celiac diagnosis.  Who now's we might find it is more a 50/50 relationship than previously thought someday.

They are even studying the possibility of a vaccine for Celiac disease someday.

https://www.celiac.com/articles/23506/1/Stress-Common-Before-Celiac-Diagnosis/Page1.html

and that B-Vitamins can help/are beneficial for those who have received a celiac diagnosis.

https://www.celiac.com/articles/21783/1/B-Vitamins-Beneficial-for-Celiacs-on-Gluten-Free-Diet/Page1.html

I hope this is helpful as Jmg said for the next reader that comes along and finds this new research you have posted.

I am certain you are not the only one who has noticed this connection between hsp and celiac disease and who might/benefit can help from it.  And who knows who you might could help by sharing.

2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included.

posterboy by the grace of God,

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  • Forum Discussions

    To the OP, once in a while this stuff happens.  Please feel free to start a new topic if that would make it easier.  I am afraid this is just part of forums on the internet. 
    @anasss Nobody in this thread has called anyone "ignorant," so please don't say that if it did not happen. Also, the use of all capitals is, in forums and other places on the Internet, generally considered yelling and impolite, and there ...
    Bshake, Look up the "baking soda test" ...it is a nice home test to see if your daughter could have low stomach that is triggering the ulcers or creating the perfect conditions for ulcers to develop....mastic gum as has been mentioned...
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