Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

HeatherG

So Does Igg Antibodies Matter Or Not..

Rate this topic

Recommended Posts

My daughter had a celiac test run when she was 18 months old. Only the IgG was positive - it was 89. I was told that meant nothing. Since she still has GI issues without answers we had the test run again - she's almost 7 now. The IgG was again the only thing positive but it wasn't nearly as high this time. It was 14 - the lab ranges were over 9 is ++. I called the Celiac Center with Dr. Fasano since they are nearby to get their feedback on the results. I was told it meant she doesn't have celiac and doesn't need a gluten free diet. She said by now she would have measurable damage.

On the other hand I contacted Dr. Fine and he said that absolutely she needs a gluten free diet - even though she might not be technically celiac with villi atrophy. My DH doesn't want to turn our lives upside down (and that of our other kids) with a gluten free diet unless she's actually having a gluten problem.

So which is it???

Heather

Share this post


Link to post
Share on other sites

My understanding it that an IgG alone is more of a allergic response. Have you ever had her tested for food allergies. I see Dr. Fasano on a regular basis and was recently released with just a gluten sensitivity not celiac. However, I showed a very positive reaction to wheat in an allergy testing. Why not try the gluten free diet for a month and see if she feels better. I would think not having the GI issues would be better than turning the house upside down. It really is only scary in the beggining once you get used to the diet you don't really give it much thought you know it inside and out.

Share this post


Link to post
Share on other sites

I had the IgG and IgE allergy test. From my understanding the IgG traces immune reactions over time. If she has had a food panel done and the wheat (or others) shows up high or moderate then that food should be eliminated at least for a time. If it is in the low range I was told it would be up to me what I wanted to do. I was in the moderate range for wheat/gluten/spelt and soy as well as kidney and navy beans. I have recently gone on a Gluten Free/Dairy Free/Soy Free diet. My son's eczema has all but disappeared. The test I had done shows the IgG in a bar from no reaction to high. Dr. Fine's test can show sensitivities even if there has been little damage done.

Share this post


Link to post
Share on other sites

Did she have any other tests run for celiac? The IgG is the least accurate of the bunch of tests but is usually one of the first to elevate with celiac. It is obviously high for a reason...it does not mean nothing.

Share this post


Link to post
Share on other sites

I can't offer anything helpful here, just wanted you to know that you're not alone. I have the same bloodwork--only my IgG is off the chart, everything else is normal (but I'd been gluten-free for three weeks before the bloodwork). Anybody else have the same?

I'll be very curious to hear what the final answer is here!

Share this post


Link to post
Share on other sites
I can't offer anything helpful here, just wanted you to know that you're not alone. I have the same bloodwork--only my IgG is off the chart, everything else is normal (but I'd been gluten-free for three weeks before the bloodwork). Anybody else have the same?

I'll be very curious to hear what the final answer is here!

Both of my kids were IgG positive and everything else came back normal, my youngest IgG test came back greater than 100. We are waiting to see Dr Fusano in July to figure out what is going on, Its nice to hear of others with the same questions. I am so confused bieng they did the Ttg IGg test first and were floored at how high they were then before we go see dr fusano he wanted more tests done and thats when a week later they had the TtG IgA and the tests were normal, so one minute there was no doubt my kids had it now we are not so sure, but I would love to know what others in this situation have been told. Any info would be great bieng I have to wait and wonder until July.

Share this post


Link to post
Share on other sites

My son's IgG was very high (58?) and his IgA was only slightly elevated. They did not do an IgA deficiency test, though. Many celiac patients have an IgA defiecincy which skews the results. He was very symptomatic, so we tried the diet and it has been miraculous. Is your daughter symptomatic? Did they run an IgA deficiency screen?

Share this post


Link to post
Share on other sites
Did she have any other tests run for celiac? The IgG is the least accurate of the bunch of tests but is usually one of the first to elevate with celiac. It is obviously high for a reason...it does not mean nothing.

Yes they ran the IgA, tTG and IgA deficiency. All normal. I don't get how it could be high for no reason either. Even if I wanted to see Dr. Fasano they can't see her until October and honestly I don't see the point if the nurse is already telling me she isn't celiac/gluten issues etc.

Thanks

Heather

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


×
×
  • Create New...