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Jules

Are There Any Other Celiacs That Are Overweight?

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Wow! I am so glad to hear about others that are in my boat.. I am 5'8" and currently weigh 285 pounds! :( I just started the gluten-free diet a couple of weeks ago... I am still trying figuring out what I can and can't eat... I am just hope that now that I am on gluten-free that I might lose some weight... I just have to be careful, I seem to be now eating everything in sight...I don't know why but i seem to be hungry all the time!

I am going to the grocery store today and I am going to get some fruits and veggies for me to snack on instead of chips (I have found Lays Stax...and they are addictive!)

I am also thinking of cutting out a lot of sweets... I think I am going to try to do only what I can cook for now... especially for dinner... like meat and veggies and a small amount of starch...either rice or mashed potatoes..but do like a little bit of the starch and then most of the meal the meat and veggies... like 1/2 meat, 1/2 veggies and a little pasta or rice or mashed potatoes....

any advice?

Thanks!!

--Maya

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Cut out the junk food, sugar and processed foods, even if they are gluten-free. Eat foods with protiens and natural fats plus green vegetables. These foods digest more slowly and you won't feel as hungry. Natural, whole foods are the best. It will take awhile for your body to adjust to eating less. It is really surprising how little food your body really needs. I used to eat constantly but now only eat a tiny fraction of what I used to eat and never feel hungry. I weighed well over 250lbs. I probably weighed closer to 260 or 265 but 250 was the last time I weighed myself when I was overweight. I now weigh 160.

All the dieting in the world is useless if you do not EXERCISE! I used to get exhausted just walking ten feet. Now I can walk for hours and a five mile bike ride is just a warm-up for me. I started lifting weights about four months ago and now do it every other day.

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HI everyone,

Just a quick note to tell you I have dropped 7 pounds in the past 15 days. I gave up gluten-free processed foods (bread, grains, beans) and have been eating a PALEO (caveman) diet. I feel so much better and I quit reacting to whatever was in the processed foods. I am not itching anymore and my stomach has calmed down.

I also bought a diet and exercise tracking program for my PALM, which is absolutely fabulous ! I use it to write down all foods and drinks every day. It keeps track of calories, carbs, protein, fat, saturated fat, and fiber. I also enter exercise and activities to track calories burned.

all the best - have a good week everyone -

kathleen

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I too am one of the overweight celiacs, my sister was one of the ones who got so very thin. When going gluten free, she gained and I lost. I lost 60# in the beginning and felt so much better. Gluten free flours are so much heavier and more calories. I eat lots of rice and I guess I need to cut back on that too. I have gained some of the weight back and I wont let that happen to me again. My sweetie tells me I am not fat, that I am fluffy, but I dont want to be fluffy. The most important thing is I am not sick all the time anymore. I have some bad days, but they are good compared to 4 years ago. Deb

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I too am one of the overweight celiacs, my sister was one of the ones who got so very thin. When going gluten free, she gained and I lost. I lost 60# in the beginning and felt so much better. Gluten free flours are so much heavier and more calories. I eat lots of rice and I guess I need to cut back on that too. I have gained some of the weight back and I wont let that happen to me again. My sweetie tells me I am not fat, that I am fluffy, but I dont want to be fluffy. The most important thing is I am not sick all the time anymore. I have some bad days, but they are good compared to 4 years ago. Deb

I lost 30 lbs before I was diagnosed with Celiac, and could actually comfortably fit into some of my clothes. In the past 6 months I have gained back the 30 pounds (plus 10). I know that a lot of my problem is depression.

I have a real problem with portion control. It would be nice to be able to freeze leftovers for extra meals, but I will eat a 4 serving meal by myself. I have found a lot of gluten free snacks. Instead of treating myself to one a few times a week, I will treat myself to many on a daily basis. I have managed to stick to a gluten-free diet, but I feed myself to make myself feel better.

I don't know how I am going to make it throug my first gluten-free Christmas season. People bring treats into the office almost on a daily basis. I am going to feel so deprived.

I think it is time to seek out some professional help. :(

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I dont know about professional help hun--you just need to start concentrating on the good things about knowing that you are gluten intolerant. I feel it is so much better to know what is wrong with me then to be going through life thinking its all in my head. When people at work bring things in, I just smile and say, no thanks! Patients bring us donuts all the time, I just tell the others which one to eat for me. You have to quit thinking that food is all there is to life, cause it isnt. You cant concentrate on what has been taken away from you, you must concentrate on what was given back to you. I have a life now--I can make plans--I dont live in the bathroom anymore! You just have to set your mind to the fact that we cant go back. Deb

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Karen don't give up, you will get through this. :D

so many of us understand....

sonja

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Hi, I have just been told that i am a celiac but I'm not convinced as i have been overweight all my life and I do not have the skin issue i have been reading about associated with celiac. While i have battled stomach issues all my life but not to the extent that i have been reading about. The Dr. did a biopsy and said i had it...but i am reluctant to make such a huge change in my eating habits until i am sure...is it possible to have this even though i am overweight and dont get violently sick everytime i eat gluten???

please advise

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Hi, I have just been told that i am a celiac but I'm not convinced as i have been overweight all my life and I do not have the skin issue i have been reading about associated with celiac. While i have battled stomach issues all my life but not to the extent that i have been reading about. The Dr. did a biopsy and said i had it...but i am reluctant to make such a huge change in my eating habits until i am sure...is it possible to have this even though i am overweight and dont get violently sick everytime i eat gluten???

please advise

If your biopsy was positive, you have it. Sorry.

I have it and I had no symptoms at all.

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Yes, it can be overwhelming at first to learn how to ship and prepare gluten-free meals. A couple of things that make it easier:

find a nutritionist who knows about Celiac Disease. This will be the best money you have ever spent (and maybe it's free, if covered by your health insurance). He/she can help you plan out meal ideas, appropriate foods, etc. I am not sure where you live, but I can recommend someone in NY City if you are close to here.

find a support group in your area. there are many such groups across the country. Meeting with other celiac disease patients can be very helpful.

I, too, have been slightly overweight for most of my adult life (10-20 pounds). After going on the gluten-free diet, i dropped about 16 pounds. I have gained back 4 of those now, but am hoping to lose another 10-15 pounds total. I am part of an EMAIL weight-loss group for celiacs. If you want more info, let me know.

I know what it's like to be overwhelmed by all the things in your life. Just remember to make and take the time for yourself first - especially while you are pregnant. This is very important! Even if it means ordering groceries online and having them delivered or hiring someone to do your housecelaning, DO IT ! (Our local super store delivers for a $6.00 charge. It's a pretty good deal, considering the amount of time I would normally spend in the store. I haven't used their service yet, but am hitting that point now. I did hire housekeepers, however, and that has been the SMARTEST thing I have ever done!)

all the best,

Kathleen

Kathleen.. I would also like to have th information about the EMAIL weight-loss group for celiacs.. MtLady

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I have to agree, positive biopsy, means you are positively celiac!

Come here for support, this place is GREAT!

Monica

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Hi, I have just been told that i am a celiac but I'm not convinced as i have been overweight all my life and I do not have the skin issue i have been reading about associated with celiac. While i have battled stomach issues all my life but not to the extent that i have been reading about. The Dr. did a biopsy and said i had it...but i am reluctant to make such a huge change in my eating habits until i am sure...is it possible to have this even though i am overweight and dont get violently sick everytime i eat gluten???

please advise

I didn't realize I had symptoms until I stopped eating gluten. So many "minor" things went away that I realized I had actually been feeling horrible for several years but things had changed so slowly that I had just adapted to everything. I had issues with dermagraphism (kinda like contact hives) and my boss suggested I might be allergic to wheat. Since I'd also recently had other allergic type reactions (throat swelling, face swelling) I went to an allergist and asked about food allergies. He insisted that if I had a problem with any food I would know it. I started doing some internet research on wheat allergies, found celiac.com and decided that I didn't really fit the profile. But then I started reading these postings. So many people have posted about so many things that were similar to experiences I had been having that I stopped eating gluten.

Within 3 days I knew that I would never willingly eat gluten again. I also am overweight and only have minor digestive issues, but the changes in my mood, my ability to think, headaches... all returned to how I used to feel 5 years ago. I consider the changes in my allergy levels, pain levels, dermagraphism, tummy problems etc. all just bonus.

And since I haven't said it yet, I want to thank everyone that posts here. Especially people that rant. For some reason those rants seem to have a lot of unexpected information and evoke a lot of "hey, me too"s.

Thank you

Jeanna

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Guest SusieQ
Hi, I have just been told that i am a celiac but I'm not convinced as i have been overweight all my life and I do not have the skin issue i have been reading about associated with celiac. While i have battled stomach issues all my life but not to the extent that i have been reading about. The Dr. did a biopsy and said i had it...but i am reluctant to make such a huge change in my eating habits until i am sure...is it possible to have this even though i am overweight and dont get violently sick everytime i eat gluten???

please advise

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Guest SusieQ

I went gluten free last December. My appetite normalized. Then about 17 weeks ago, I reduced my intake to start a weight loss diet. I couldn't get weight off before no matter how little I ate, and I was always starved. Now, I've lost 34 lbs, and it has been relatively easy. I'm not uncomfortably hungry.

I eat a lot of vegetables, salads, choose low fat meats such as fish or chicken, also include some fresh fruits. I have yogurt, popcorn, and even corn chips on occasion. I splurge on peppermints on occasion or coconut macaroons.

I suspected a gluten intolerance for a long time, but just couldn't make myself try the gluten free diet. I didn't want to accept it. Now, I wish I had done it years ago. I wouldn't have lost my health over it and have so far to go to try to get it back.

I read that there was an e-mail group for celiacs trying to lose weight. Anyone know what it is. I'd love to have that kind of support.

Since you tested positive, there really isn't any way of getting around it. However, there is hope since they may be coming up with a pill that will help us eventually. Personally, I'll never go back to eating wheat, even if this pill does come out. Well, o.k., I'll take it once every few months so I could have pizza. I miss pizza. <_<

Dx with fibromyalgia 10 years ago (Probably really due to the gluten, most of my pain is gone now)

Dx Hypothyroid abpit 4 years ago

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Hi. I'm new to the forum and have been reading many postings about folks suffering with diarrhea and having difficulty gaining weight. My case is actually the opposite. I have spent many years trying to maintain my weight. I have had terrible constipation that I've been hospitalized for, this was usually followed by weeks of diarrhea. :( I have recently been diagnosed with Celiacs and am slowly trying to learn about the disease and eat gluten free. :blink: Are there any of you out there who are overweight and constipated instead of underweight w/diarrhea?

I am very concerned about how to change my lifestyle to fit in gluten-free eating. It seems like a full time job. I live in a rural area, commute 1 hour each way to work at a fast paced law firm, eat lunch on the run, go to graduate school at night, am a newlywed of 6 months and am 3 months pregnant. :blink: How do you all find the time to shop for these special foods online or at health food stores, make bread from scratch, eat gluten-free lunches, dinners, etc.??? Obviously I want to be completely gluten-free as soon as possibly to help grown a healthy, happy baby in my belly. Help....

Jules

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I went gluten free last December. My appetite normalized. Then about 17 weeks ago, I reduced my intake to start a weight loss diet. I couldn't get weight off before no matter how little I ate, and I was always starved. Now, I've lost 34 lbs, and it has been relatively easy. I'm not uncomfortably hungry.

Congrats!! :-)

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I've been suffering from constant pain, bloating, feet swelling, heartburn, constipation/diarrea, high blood sugar, high triglycerides, anemia, headaches, dizzyness, black outs, vomiting, constant nausea, swollen tongue, itchy rashes and hives, liver and spleen pain and swelling. I've had so many tests done where they said nothing was wrong with me ~ and all docs have tried to put me on antidepressants and a weight loss plan. All weight loss plans have failed ~ I even gain when I'm not really eating at all.

I was JUST diagnosed last week with Celiacs with a "leaky gut" (?) ... anyway I'm 40 and while I'm sad I can't have cake and cookies anymore... I'm actually thrilled to know what is actually going on! From my research, all these symptoms could disappear if I avoid gluten ~ wow!! It seems so easy. Then I start reading labels, and this diet might be tougher than I thought. BUT, I'm going to do it because I'm so curious what feeling good feels like :)

I'm also happy to find this thread and others who are like me ~ I'm loving reading all this information and support!!

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Welcome, hope that you're on your way to feeling great soon! I use sparkpeople for weight loss and LOVE it! My ID is nahum1_7 on there. I've lost almost 20 pounds since going gluten free June 2, though I also had to give up dairy and soy too. But as long as I don't get glutaminated I 'm feeling so much better! ((((hugs))))) have a great blessed day!

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I have the same problem. I have always been overweight regardless of how much I eat. wheat makes me very constipated. I almost never get diarea. May be once every 5 or 6 years if that.

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I'm overweight and suffer from constipation as well. I also have rheumatoid arthritis and I'm stunned to find out there is such a strong link between celiac and RA! I'm so glad to have "refound" this group after being away from the boards for so long.

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I was diagnosed May 21st. The only way I have lost weight was that I went on the paleo diet 2.5 weeks ago. I lost 5 lbs., but cheated this weekend because I went to a wedding and had some wine. I have been overweight since I was 12 with a few exceptions. Weight Watchers does work. I chose Paleo beacause I would have to eliminate dairy and soy, neither of which I have a problem with. This week I'm having trouble with motivation.

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    Bakery On Main started in the small bakery of a natural foods market on Main Street in Glastonbury, Connecticut. Founder Michael Smulders listened when his customers with Celiac Disease would mention the lack of good tasting, gluten-free options available to them. Upon learning this, he believed that nobody should have to suffer due to any kind of food allergy or dietary need. From then on, his mission became creating delicious and fearlessly unique gluten-free products that were clean and great tasting, while still being safe for his Celiac customers!
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    • I am really glad you found something to help your child. It is hard to see them not feeling well.  For me, what helped keep me regular was taking a magnesium supplement, just 250 mgs a day at dinner time helps me.  When I run out, if I didn't buy more yet, I feel the difference within a few days.   I was wondering to try magnesium citrate, wasn't sure what the difference was between that and plain magnesium supplements. I am bummed because the magnesium I liked the best was in a liquid gel cap, but it has soy lecithin in it, so not sure if it bothers me.  Soy lecithin seems to be that iffy ingredient so I probably won't know if it bothers me until my stomach heals. Then I will try it sometime again to see.  
    • I’m wondering what my next steps should be. I’m struggling, I can’t figure it out, I’ve been dealing with the following symptoms since I can remember. I’ve talked to my GP, but I haven’t had much luck.    Fatigue/sluggish Brain Fog Irritable/moody Anxious Disoriented at times No focus No motivation Constant Blocked sinus/switches sides Insatiable appetite stomach issues/IBS Reoccurring nightmares Never feel rested   Occasionally: Dizzy/nauseas Swollen occipital lymph nodes   Where do I start?  Who should I go see?  I’m currently gluten and dairy free, but I haven’t noticed much of a difference.        
    • Has anyone had trouble with any prescriptions they take that you then found out had gluten in them, or corn or soy products (or any other ingredient) that bothers you?   Just when I was working on lifting my mood up (after starting to feel overwhelmed with all this), I now am realizing I could be having problems with some prescriptions I have been taking.  I need to stay positive and not sink into frustration, but wow ,this is getting hard.  It seems every time I think I am getting there, it's another step backwards. I am on four prescriptions and so far only one has been said to have no gluten, soy, or corn in it.  One has pregelatinized starch, which I guess is made from corn.  The other two have corn ingredients.  One that has no gluten though will not claim to be gluten-free, they will only say they have no wheat, rye, barley, or oats in it, but will not give an actual gluten-free claim. But it has two corn ingredients anyway, corn starch and polysorbate 80. The other RX's would say no gluten, no soy, etc (but some have corn).   Has anyone had issues like this?  I was taking some of these many months ago when my stomach actually was starting to get back to normal and starting to feel better (when I first stopped eating gluten, took a few months but I was starting to feel better).  Slowly it started having issues again (although not as severe as when I was eating gluten). I then started a new RX, and I felt it made my stomach worse, told my dr, but she just seemed to think it "should not" bother me.  I wonder if that one is the culprit?  In other words, could the other 3 I am on not be enough of the corn ingredients to have been bothering me?  I am wondering if it's possible to have small traces of some corn ingredients (or whatever ingredients bother you, no counting gluten) without it bothering you?  Has anyone noticed a prescription they are on that does have an ingredient that tends to bother them (other than gluten), but in such a small pill, it does not seem to be enough to bother you?  I suppose it could be different for different people.  I am ready to start an elimination diet, but it feels like I still won't be able to know what bothers me or not until I am off any RX's that bother me.  This could take some time and research though.  I doubt I can just immediately stop all the RX's suddenly since some are for blood pressure.  Has anyone been through this?  I take my RX's every night at dinner so it would make sense that for a while now (especially since starting the newest RX) I feel like I am constantly having issues every night.  So far a pharmacist said that sometimes they can find different versions of a pill that won't contain the ingredients that bother you, but it does not sound like a guarantee, of course, and takes them some time to look into.  I guess I might have to start with that.  The newest pill though, the one I did suspect was causing me some stomach problems, I'll call my dr tomorrow (they are not in today) and see if I can stop taking that one.  Hopefully so, asap, and then continue to look into the other RX's.   I am trying to feel like once I get this straightened out it will get easier, but the pharmacist also said that companies can change their ingredients all the time, and even they sometimes change manufacturers they use.  I was just curious how many people deal with this, and does it get easier? Does your dr work with you and are understanding or do they get an attitude?  Because it almost feels to me like sometimes they get frustrated. And that just is aggravating. They think it's frustrating for them? It's no picnic for us either. They are quick to tell you what foods not to eat, but when it comes to a prescription they act like, oh, it shouldn't bother you.  I wish it were that easy.  I would think they would know better though??     
    • Good doctor   I had a similar experience but opposite.  My lab tests were negative (we figure now that I was too sick to eat much at the time) and my biopsy they were not able to get in far enough they said... so with symptoms and the appearance of my small intestine along with genetic testing I was diagnosed with Celiac.    Gluten free for almost 8 yrs now and doing much much better. 
    • Was it a different lab?  A lot of labs just stop "counting" at 100.  Mine just said ">100".     She probably has symptoms, you just don't realize they are from Celiac.
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