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    Do you have questions about celiac disease or the gluten-free diet?

L.A.

Gluten Free Nerd?

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I am new to this site. Diagnosed with celiac disease and most of my knowledge etc has come from personal research. I hope you can help me with this...how long after you're "glutened" do you get sick? Also, when everyone says "sick" what do they mean...throwing up? Runs? I am trying to pin down how long after I'm glutened I have a reaction. My reaction is always the same...burps (this is really gross) that taste like rotten eggs, the runs, throwing up and them so and and so forth. For three years I had no problems then last year this reaction came back and in the past 3 months I have had these episodes almost once every 2-3 weeks. Any and all input would be greatly appreciated.

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Each person's reaction is different ...

If I get enough gluten (say, about 1/4 to 1/2 teaspoon of wheat), then about 20 minutes later I'll get the runs and will be in the bathroom several times for the next few hours.

No matter how little I get, I have various different ailments that follow over the next several days, including dry eyes, inability to concentrate. neurological problems, memory loss, irritability and depression, etc.

Eventually you learn to map out your own reaction and will recognize when you are having one, even when you don't get enough gluten in you to make you head for the bathroom.

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I can get my reactions up to a couple days later, and every time they have been differnt, but one thing is always in common, my thyroid goes comepltely out of whack and takes quite a while to get back to normal and i usually need to change meds once and a while. My symptoms are very different evrey reaction, with a lot of gluten i can get a mild anaphalyxis and not so much i start throwing up and get hives sometimes get runs, and always get the worst heartburn to the point where i cannot lie down and must sleep sitting up.

So yeah, every person is differnt this is just based on how your body reacts to the gluten adn how it processes it and how long it takes you to process it and when it gets to your intestines.

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I get dizziness/brain fog in 15-30 minutes, intestinal cramping/some pain in 4-8 hours, intestinal noises and diarhhea in 8-12 hours or so. Fatigue sets in within a day or so. This is approximate for me, and it can vary.

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Well, my first symptom is usually a bad stomach ache, within an hour or so. Next I'll get acid reflux. By the next day all my joints ache, I get this film over my eyes that makes it hard to see, my eyes will be tearing from the corners, I will get a bad backache, headache, my knees will buckle on the stairs. Next I will be swelling up (feet and hands especially), then I get bloating and gas, I can't think and get forgetful, my eyes won't stay focused properly (feels like I need a new prescription for my glasses), the Tourette tics get much worse, I am itchy all over, I get rashes. And now, after being gluten-free for eight months, the diarrhea doesn't come until nearly a week later, and could last for another week. I am probably forgetting some, my glutened symptoms are crazy, and I don't think I've bothered yet to catalogue them all (might take several pages :rolleyes: ).

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For me, I find that I will be throwing up with 30 minutes of barley ingestion, and acutely ill for the following 6-8 hours, and flu-like for the following day or teo, with brian fog, etc. With malt extract/barley extract, I find that I become very nauseous after approx 6 hours, and get very bad abdominal pains and run. Wheat gluten on the other hand always takes nearly exactly 48 hours to take affect, and is more chronic than acute, and leaves me feeling sick, with stomach upsets, and brain fog for about 5 days, but its about 2 weeks before im back to normal. This is the same with my Dad, who has been coeliac a lot longer than me - its nearly 20 years for him now, and we have the exact same responses and times, so it is very obvious if we have eaten the same conaminated food. You'll soon figure out your own response to different types of gluten, etc as it is amlmost impossible not to trip up with the gluten free diet now and again.

Good luck :)

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My biological father and I get back aches and leg pain. That's what's funny, for 20 years he thought it was a bad back, it always hurt after he ate.

My doctor told me I didn't sit up straight. haha

I also get the runs really bad and sometimes I get nauseous bad. I get brain fog, too. I usually attribute it to working with 8 year olds all day, but it's probably the gluten, since I'm not an expert on the diet yet.

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