Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Blood Result Number

missy

Recommended Posts

missy Newbie
missy
Posted

Hello fellow silly-acks!

I have been recently diagonsed...I think. My blood results showed that the Iga (?) number was a 16. The paper showed anything below 11 was ok. Anything above 17 was bad. What is the average number? The doctor said I wasn't off the charts, but that I should start following a gluten-free diet so that I won't be bad later in life. I'm 35 now and my mom just got diagnosed also and she is 57.

If anyone knows about the diagnosed numbers and what it means to be positive, that would be helpful. You all sound like nice, helpful people.

Does anyone else miss beer? I know of the three breweries, but this summer, I'mm attempting my own brew!

Thanks,

Missy Frey

Hampton Bays NY

Link to comment
Share on other sites
  • 2 weeks later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


deco2339 Newbie
deco2339
Posted

Ummm...I can only speak for myself but I had my first blood test at the same time they did the endoscopy/colonoscopy and my results were over 100. I guess when it's over 100 it just shows over 100 and not a specific number. so I guess I was off the charts. I'm surprised no one else responded

After a few months on a gluten free diet I am down to healthy normal levels

Link to comment
Share on other sites
BRUMI1968 Collaborator
BRUMI1968
Posted

I haven't seen my test results. I'm going to request to see the lab work come Monday. I was told I had "mild" celiac. Anyway, it's been a month now and I feel better (no canker sores, almost no itching) in most ways (though the C is back with a vengeance - now starting to clear up on my new diet of slow cooked brown rice and veggies 24/7), other than the fatigue, which is taking a spell to get rid of.

Link to comment
Share on other sites
honeybuzzed Rookie
honeybuzzed
Posted
I haven't seen my test results. I'm going to request to see the lab work come Monday. I was told I had "mild" celiac. Anyway, it's been a month now and I feel better (no canker sores, almost no itching) in most ways (though the C is back with a vengeance - now starting to clear up on my new diet of slow cooked brown rice and veggies 24/7), other than the fatigue, which is taking a spell to get rid of.

OHHHHH that is what the Dr meant when he said I have a touch fo Celiac. I was so confused I thought that was like say well..... your a little bit pregnant ! :blink: I wonder what my numbers are now? I will have to ask them to give me a printout as well.

Link to comment
Share on other sites
wolfie Enthusiast
wolfie
Posted

I would ask for a copy of your labwork and keep it with your own records. Did they run any other labwork other than IgA? Usually there is a whole panel of tests, but not all drs run them all. Usually it is recommended to have a endoscopy & biopsy to diagnose Celiac, but not all people are diagnosed that way, some are diagnosed by positive dietary response. It just depends on the dr.

I say stick with your diet and see how you feel. Did you have any symptoms before being tested or were you tested b/c your mother was diagnosed?

Welcome to the board. There are a bunch of great people here with tons of useful information.

Link to comment
Share on other sites
honeybuzzed Rookie
honeybuzzed
Posted
I would ask for a copy of your labwork and keep it with your own records. Did they run any other labwork other than IgA? Usually there is a whole panel of tests, but not all drs run them all. Usually it is recommended to have a endoscopy & biopsy to diagnose Celiac, but not all people are diagnosed that way, some are diagnosed by positive dietary response. It just depends on the dr.

I say stick with your diet and see how you feel. Did you have any symptoms before being tested or were you tested b/c your mother was diagnosed?

Welcome to the board. There are a bunch of great people here with tons of useful information.

I did have a endoscopy and a biopsy. I was admitted into the hospital for my symtops on my wedding night !! and they didn't know what was wrong with me. I didn't even want to put on my wedding dress on on the big day. What a gong show ! I think they did run other lab work but the specialest didn't recieve it so ( I am just reading the lab slip now ) it looks like he has ordered ( doc's writing is hard to read) anit -ttb and ab ? and serum iga ,,,, that make sense ? I will then be asking for copies from my GP so I have a better understanding of these things.

I did have a endoscope and a biopsy. I was admitted into the hospital for my symptoms on my wedding night !! and they didn't know what was wrong with me. I didn't even want to put on my wedding dress on on the big day. What a gong show ! I think they did run other lab work but the specialist didn't receive it so ( I am just reading the lab slip now ) it looks like he has ordered ( doc's writing is hard to read) anit -ttb and ab ? and serum iga ,,,, that make sense ? I will then be asking for copies from my GP so I have a better understanding of these things.

I guess this stuff is difficult to gage because it really depends on what your dr says is bad and as I read more and more that varies widely!

You were asking about my mom and no she wasn't aware of this disease but she did have problems with wheat ( I already have some yummy wheat free recopies ) but she did die of non-Hodgkin's lymphoma < if that is how you spell it. My family history of illness is a little scary. Her brother was just diagnosed with the cancer as well my cousin is on dialysis 3 days a week because lupus attacked his kidneys and my aunt on my fathers side is soon to be in palliative care for cancer as well. My dad has Diabetes . My niece has some sort of rash that happens with food but they can't figure out what it is and they went to the best specialist in Vancouver for children with food allergies and he said she wasn't allergic to anything ... yeah right .... she breaks out in hives after eating? So I talked to my brother last night but I didn't have to much to tell him because I am still in the info gathering stage.

I have been diagnosed with two things in the same week so my head is spinning with info ! I also was diagnosed with Poly Cystic ovaries as well. Between the two of these conditions one of them is making me loose my hair :( which I am not happy about and the Dr are not sure if there is at least one more condition happening here.

Link to comment
Share on other sites
BRUMI1968 Collaborator
BRUMI1968
Posted

The hair loss could be from gluten in your hair products. Check for what protein and wheat germ in there. There are some other ones...alcohol maybe ... that could be from gluten.

wow...I hope you get some answers soon.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


missy Newbie
missy
  • Author
Posted

Thanks to all for writing back. I was worried no one had any clue as to what I was talking about. Here are my exact results:

IGG Gliadin/Gluten 16 High <11 is what they look for to not have Celiac

IGA Gliadin/Gluten <3 low

IGA Endomysial AB <5

so the doc said that I could go get a biopsy, but try gluten free for 2 weeks and see how you feel. Well, after a month of trying different foods and figuring out what I CAN eat, I have to say I feel better! I don't have a stomach ache everytime I eat. I do feel more energetic, and I've dropped 6 solid pounds! I guess I'll stick with this for a while...mostly because my mom hounds me to death about not cheating.

'

I'm very interested in people who write about itching. I have been scratching in my bikini area for over a year now. I've tried lotions and creams...I do shave and workout, but that wasn't it. Maybe it was the gluten. Now, the itching has subsided, but if I do have something with gluten, I itch. I never would have put the 2 &2 together. Amazing!

Thanks for all the info. Oh, for anyone who lives on LI, since I live to far out east, there are too many big chain natural food stores. They did open up a Wild by Nature which is great, but I went to Whole Foods in Jericho...OMG! A mecca of great things! Lots of gluten-free foods by their own baker. I found a gluten-free beer there too. Not too bad. Not Belgian, but drinkable.

Thanks!

Missy

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. plumbago
      - plumbago replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed...
    2. trents
      - trents replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    3. Suzi374
      - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it.
    4. Suzi374
      - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be be...
    5. Peace lily
      - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight

      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,226
    • Most Online (within 30 mins)
      7,748
    NYKaren
    Newest Member
    NYKaren
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • plumbago
      Lots of tests

      By plumbago · Posted

      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed by endoscopy and biopsy of the duodenum. So, pathology will need to weigh in. It's not diagnosed on gastroscopy. (At least, not as far as I know). Two, did you get blood tests for celiac disease? You will need to be eating gluten in order for those to be accurate. Three, where was the CT angiogram (of what)? I could go on and on, but thought I'd start there.
    • trents
      Lots of tests

      By trents · Posted

      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      Lots of tests

      By Suzi374 · Posted

      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Lots of tests

      By Suzi374 · Posted

      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Would like to gain weight

      By Peace lily · Posted

      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
×
×
  • Create New...