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Do You Think I Might Have Celiac

Smunkeemom

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Smunkeemom Enthusiast
Smunkeemom
Posted

i have diarrhea and constipation one or the other all the time -

brain fog depression - tired all the time rash gaining weight fast

my dad- daughter and her two daughters have it

just for info, that's my mom posting under my account up there ^ I was trying to help her register and for some reason the thing signed on under my name, guess I had posted from her house before

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Ursa Major Collaborator
Ursa Major
Posted

Well, your symptoms sound just like mine before going gluten free. So, yes, in my opinion, there is a very good likelyhood that you have celiac disease, especially with so many people in your family having it. I say, definitely get tested!

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Smunkeemom Enthusiast
Smunkeemom
  • Author
Posted

she had the blood test, and it was pos. but the doctor told us that since we weren't losing weight that we didn't have it. I am trying to convince her the doctor was very wrong

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CarlaB Enthusiast
CarlaB
Posted

I would agree. Your symptoms sound very suspicious, and with the family history!

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Lisa Mentor
Lisa
Posted

Hey Mom:

For me it is very typical after D to have constipation. Brain fog, lack of concentration, in lah-lah-land while driving, which is scarry for me. I would certrainly entertain testing. It would be important to know, so if you are celiac, you can begin to feel better and to ward off other very critical issues.

Glad that you posted and feel free to ask away.

Lisa

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CarlaB Enthusiast
CarlaB
Posted

That's a common misconception!!!! Not all celiacs get skinny! There is another thread going on about how to lose weight. Even my doctor admitted learning from me about this disease ... I'm talking about my internist, not the GI who knows everything.

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KaitiUSA Enthusiast
KaitiUSA
Posted

Some people gain instead of lose and when they gain usually doctors blow it off. Your symptoms sound like they could be celiac.

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jerseyangel Proficient
jerseyangel
Posted
she had the blood test, and it was pos. but the doctor told us that since we weren't losing weight that we didn't have it. I am trying to convince her the doctor was very wrong

If she had a positive blood test, then she has it! When will doctors realize that we all don't lose weight? As we speak, I would love to lose 20 lbs :D . But seriously, I would take the blood test as proof (not to mention the symptoms, which also point to Celiac), and go gluten-free. Especially with so much of this in your family ;)

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Guest nini
Guest nini
Posted

hi mom, you have a positive blood test, you absolutely have Celiac. I did not lose weight before my dx either. I was extremely overweight and since going on the gluten-free diet three years ago, I have lost OVER 100 pounds! Yes you read that correctly! I was dx'ed by my positive blood test along with positive dietary response. I agree, when will these dr.s recognize that not all Celiac's are skinny before dx???!!!!!

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wolfie Enthusiast
wolfie
Posted

It is starting to make me really angry that drs dismiss people if they aren't losing weight or having the "Classic" symptoms! The symptoms sound very suspect to me. If the bloodwork was positive, she has it.

On a side note here, I watch a little boy who is almost 2.5. He has had constipation issues from the time he was a baby and has been on a perscription laxative for over a year now. His Mom (my friend) finally requested a second opinion from a Pediactric GI and even though he is in the 95% for height and weight, they are running a Celiac panel on him just to rule it out. I wanted to run over and hug this dr!!! I had to beg our Ped to run the test on my 10 y/o b/c he doesn't have any weight loss issues. He does have stomach, anxiety and possible ADHD issues, though. Sorry to go off on a tangent, but I really wish more drs would look outside of the typical presentation.

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penguin Community Regular
penguin
Posted

positive blood test = celiac

no question!!

I'm doing a gluten challenge after being gluten-free for 4 months because I want a biopsy, and I've gained 8 lbs in the past week! :o Not everybody gets skinny, and it is possible to have all of the classic symptoms EXCEPT wasting, or even no classic symptoms at all!

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  • 2 weeks later...
Smunkeemom Enthusiast
Smunkeemom
  • Author
Posted

Okay, so her new doctor retested her blood (couldn't find the old results on her medical record) and she tested pos. on her IgA and her ttg and he said that meant she "didn't have it" and said all her symptoms were IBS...

I thought your if the ttg was pos. then you had it, isn't that the specific celiac one?

I asked him and he said that if she had celiac all would be pos. :unsure:

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aikiducky Apprentice
aikiducky
Posted

My mouth just fell open when I read that a positive ttg wasn't enough for the doctor!!! AAAArgh!

Could she have a biopsy, positive ttg means there's a good chance of damage, it would be difficult to ignore THAT?

Pauliina

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tarnalberry Community Regular
tarnalberry
Posted

I'm tired, so I'm going to be blunt:

her doctor is a moron - your body doesn't produce antibodies to something when it doesn't think it's a problem. she should find a new doctor, try the diet, and listen to her body.

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Guhlia Rising Star
Guhlia
Posted

Ewwww.... I agree w/ Tarnalberry... No offense, but that doctor should be canned!!! You absolultely have Celiac w/ results like that. Starting the gluten free diet immediately will help prevent you from doing any further damage on your body. Good luck and please listen to the people on this board about your diagnosis. They know what they're talking about.

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loraleena Contributor
loraleena
Posted

Her doctor is a complete and utter idiot! She absolutely should be put on a gluten free diet!!!

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Smunkeemom Enthusiast
Smunkeemom
  • Author
Posted
Her doctor is a complete and utter idiot! She absolutely should be put on a gluten free diet!!!

I told her that, and she says "oh, but he went to medical school and took an oath and stuff"

I think she is in denial. I am going grocery shopping with her this weekend though, I will try to suggest gluten free foods, maybe if she see's all the food she can eat, then she will feel better about it.

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      Welcome to the community forum, @Anmol! There are a number of blood antibody tests that can be administered when diagnosing celiac disease and it is normal that not all of them will be positive. Three out of four that were run for you were positive. It looks pretty conclusive that you have celiac disease. Many physicians will only run the tTG-IGA test so I applaud your doctor for being so thorough. Note, the Immunoglobulin A is not a test for celiac disease per se but a measure of total IGA antibody levels in your blood. If this number is low it can cause false negatives in the individual IGA-based celiac antibody tests. There are many celiacs who are asymptomatic when consuming gluten, at least until damage to the villous lining of the small bowel progresses to a certain critical point. I was one of them. We call them "silent" celiacs".  Unfortunately, being asymptomatic does not equate to no damage being done to the villous lining of the small bowel. No, the fact that your wife is asymptomatic should not be viewed as a license to not practice strict gluten free eating. She is damaging her health by doing so and the continuing high antibody test scores are proof of that. The antibodies are produced by inflammation in the small bowel lining and over time this inflammation destroys the villous lining. Continuing to disregard this will catch up to her. While it may be true that a little gluten does less harm to the villous lining than a lot, why would you even want to tolerate any harm at all to it? Being a "silent" celiac is both a blessing and a curse. It's a blessing in the sense of being able to endure some cross contamination in social settings without embarrassing repercussions. It's a curse in that it slows down the learning curve of avoiding foods where gluten is not an obvious ingredient, yet still may be doing damage to the villous lining of the small bowel. GliadinX is helpful to many celiacs in avoiding illness from cross contamination when eating out but it is not effective when consuming larger amounts of gluten. It was never intended for that purpose. Eating out is the number one sabotager of gluten free eating. You have no control of how food is prepared and handled in restaurant kitchens.  
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