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    Do you have questions about celiac disease or the gluten-free diet?

Smunkeemom

Do You Think I Might Have Celiac

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i have diarrhea and constipation one or the other all the time -

brain fog depression - tired all the time rash gaining weight fast

my dad- daughter and her two daughters have it

just for info, that's my mom posting under my account up there ^ I was trying to help her register and for some reason the thing signed on under my name, guess I had posted from her house before

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Well, your symptoms sound just like mine before going gluten free. So, yes, in my opinion, there is a very good likelyhood that you have celiac disease, especially with so many people in your family having it. I say, definitely get tested!

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she had the blood test, and it was pos. but the doctor told us that since we weren't losing weight that we didn't have it. I am trying to convince her the doctor was very wrong

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Hey Mom:

For me it is very typical after D to have constipation. Brain fog, lack of concentration, in lah-lah-land while driving, which is scarry for me. I would certrainly entertain testing. It would be important to know, so if you are celiac, you can begin to feel better and to ward off other very critical issues.

Glad that you posted and feel free to ask away.

Lisa

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That's a common misconception!!!! Not all celiacs get skinny! There is another thread going on about how to lose weight. Even my doctor admitted learning from me about this disease ... I'm talking about my internist, not the GI who knows everything.

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Some people gain instead of lose and when they gain usually doctors blow it off. Your symptoms sound like they could be celiac.

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she had the blood test, and it was pos. but the doctor told us that since we weren't losing weight that we didn't have it. I am trying to convince her the doctor was very wrong

If she had a positive blood test, then she has it! When will doctors realize that we all don't lose weight? As we speak, I would love to lose 20 lbs :D . But seriously, I would take the blood test as proof (not to mention the symptoms, which also point to Celiac), and go gluten-free. Especially with so much of this in your family ;)

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Guest nini

hi mom, you have a positive blood test, you absolutely have Celiac. I did not lose weight before my dx either. I was extremely overweight and since going on the gluten-free diet three years ago, I have lost OVER 100 pounds! Yes you read that correctly! I was dx'ed by my positive blood test along with positive dietary response. I agree, when will these dr.s recognize that not all Celiac's are skinny before dx???!!!!!

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It is starting to make me really angry that drs dismiss people if they aren't losing weight or having the "Classic" symptoms! The symptoms sound very suspect to me. If the bloodwork was positive, she has it.

On a side note here, I watch a little boy who is almost 2.5. He has had constipation issues from the time he was a baby and has been on a perscription laxative for over a year now. His Mom (my friend) finally requested a second opinion from a Pediactric GI and even though he is in the 95% for height and weight, they are running a Celiac panel on him just to rule it out. I wanted to run over and hug this dr!!! I had to beg our Ped to run the test on my 10 y/o b/c he doesn't have any weight loss issues. He does have stomach, anxiety and possible ADHD issues, though. Sorry to go off on a tangent, but I really wish more drs would look outside of the typical presentation.

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positive blood test = celiac

no question!!

I'm doing a gluten challenge after being gluten-free for 4 months because I want a biopsy, and I've gained 8 lbs in the past week! :o Not everybody gets skinny, and it is possible to have all of the classic symptoms EXCEPT wasting, or even no classic symptoms at all!

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Okay, so her new doctor retested her blood (couldn't find the old results on her medical record) and she tested pos. on her IgA and her ttg and he said that meant she "didn't have it" and said all her symptoms were IBS...

I thought your if the ttg was pos. then you had it, isn't that the specific celiac one?

I asked him and he said that if she had celiac all would be pos. :unsure:

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My mouth just fell open when I read that a positive ttg wasn't enough for the doctor!!! AAAArgh!

Could she have a biopsy, positive ttg means there's a good chance of damage, it would be difficult to ignore THAT?

Pauliina

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I'm tired, so I'm going to be blunt:

her doctor is a moron - your body doesn't produce antibodies to something when it doesn't think it's a problem. she should find a new doctor, try the diet, and listen to her body.

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Ewwww.... I agree w/ Tarnalberry... No offense, but that doctor should be canned!!! You absolultely have Celiac w/ results like that. Starting the gluten free diet immediately will help prevent you from doing any further damage on your body. Good luck and please listen to the people on this board about your diagnosis. They know what they're talking about.

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Her doctor is a complete and utter idiot! She absolutely should be put on a gluten free diet!!!

I told her that, and she says "oh, but he went to medical school and took an oath and stuff"

I think she is in denial. I am going grocery shopping with her this weekend though, I will try to suggest gluten free foods, maybe if she see's all the food she can eat, then she will feel better about it.

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