Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Rate this topic

Recommended Posts

Finally i can count my doctor bills and know how much i ow without worrying about more bills pooring in, I finally got the word back about my parasite test, it came back negative so this would have made me worry more but then my doctor said "I talked to a specialist before i had you do those tests about your condition he said to test for white blood cells because no matter how early chrons or ulceritive colitis is it will show up in your stools because it causes you to relese white blood cells into your stools" so aparently thats what that other cup was they had me bring up, and that came back negative, so my doctor talked to the specialist and he says there is no need to have me come in for a colonoscopy but if i felt i wanted to talk to him i could come up and have a meeting with him to discusse things, so with the specialists help with the doctor they came to the conqulusion that all of my problems are causesd by 2 things, A spastic colon(a form of IBS) and Gluten Sensative. He says jugeing by how i have been improving i should be fully healed in about 3 months and then he will do another upper GI to see if the folds healed themselfs or not. I also got some gluten free medsd for my colon, and wow they do really help but they kinda dope me up so i try not to take them. So yes finally life is good now that i have some answers to my questions and it makes me feel way better. I personoaly am doing pretty good besides for my left side keeps cramping like somtimes really bad to the point of where i cant move for like 20 minutes, but i think thats my fault i had a really big dinner when usualy i just snack all day plus i did not have my pineapple juice to help it go down afterwards anyways woohoooooooooo

Share this post


Link to post
Share on other sites
Finally i can count my doctor bills and know how much i ow without worrying about more bills pooring in, I finally got the word back about my parasite test, it came back negative so this would have made me worry more but then my doctor said "I talked to a specialist before i had you do those tests about your condition he said to test for white blood cells because no matter how early chrons or ulceritive colitis is it will show up in your stools because it causes you to relese white blood cells into your stools" so aparently thats what that other cup was they had me bring up, and that came back negative, so my doctor talked to the specialist and he says there is no need to have me come in for a colonoscopy but if i felt i wanted to talk to him i could come up and have a meeting with him to discusse things, so with the specialists help with the doctor they came to the conqulusion that all of my problems are causesd by 2 things, A spastic colon(a form of IBS) and Gluten Sensative. He says jugeing by how i have been improving i should be fully healed in about 3 months and then he will do another upper GI to see if the folds healed themselfs or not. I also got some gluten free medsd for my colon, and wow they do really help but they kinda dope me up so i try not to take them. So yes finally life is good now that i have some answers to my questions and it makes me feel way better. I personoaly am doing pretty good besides for my left side keeps cramping like somtimes really bad to the point of where i cant move for like 20 minutes, but i think thats my fault i had a really big dinner when usualy i just snack all day plus i did not have my pineapple juice to help it go down afterwards anyways woohoooooooooo

I am so happy for you that you at last had a good outcome from the discussion with your doctor. I am also quite relieved about the negative parasite test, gluten free is enough to deal with. Be patient with your body you may still have some ups and downs for a while as you heal. You were so lucky that they found this when they did and that your doctor did not write you off with just the IBS diagnosis. Imagine feeling like you did for 15 years while the doctors say IBS and here have a prozac. Unfortunately thats what many of us dealt with. If you follow the diet strictly including your shampoos and such you will most likely be much more healthy for your lifetime than most around you. I am sooooo glad for you are feeling better.

Share this post


Link to post
Share on other sites
Guest nini

that is good news, but do keep in mind that the three months the Dr. mentioned, isn't a guarantee. Each person is different in their healing process. Sure some can heal completely in three months, but the lowest time frame I've heard is six months and the AVERAGE is two years. So if at three months you are still not completely healed, do not panic. Give it time.

Share this post


Link to post
Share on other sites

Hey Lister--that is great news!! Now it is more important than ever for you to make sure everything you use and eat are gluten-free. Also, don't stop being obsessive about that CC! :D Be patient, while you will be healing on the gluten-free diet, you may not feel completely better for a while yet. Unfortunately, there's no way of knowing how long it could take, and I think the doctors do us a disservice by saying 3 months. But at least now you're on the right track--that is wonderful news :) Oh--I used to get the pain on my left side after eating, too. I think it's part of the healing process. It will eventually work itself out ;)

Share this post


Link to post
Share on other sites

even though the doctor has "ruled out" all of the other things (ulceritive colitis,chrons,cancer,) should i exept the rule out with the simple facts that my stools did not contain the white blood cells nesasary to be any of those. What im trying to say is should i exept his diagnoses of IBS aka spastic colon, without having a colonoscopy or should i go thru with it anyways. The specialist and the doctor both agree that its nothing more then Gluten Sensastivity and IBS- ibs was probably caused by beeing gluten sesative and not knowing for so long. But as i keep reading everyone says that IBS is a BS dianosis when they dont know whats wrong with you, but i meen if they feel that i dont have any of those bad things then can it acually be IBS.... i dont know who should i belive the forum or the doctors i found this

http://www.helpforibs.com/footer/spastic.asp

it says tha IBS is real but you should not take the dianosis without the proper tests, well since the doctor says i have had the proper tests then can it acually be? i just dont want to let it go and keep living my life and then find out that i acually DO have something wrong with me thats serise and cant be fixed by a diet. Plus i was reading about inflamation leading to cancer, i know my intestines are currently inflamed because of the damage from gluten and its going to take a while to heal so now im worried that while im healing i will secretly be getting cancer and not know it ( colon cancer has taken the lives of my uncle and great grandpa) so i have concern i know i worry alot and im really trying not to but everytime i read something bad on this forum it just instantly makes me go back to worrying. Maybe i just need to stop reading so much but i cant help it i thrive for information constantly

Share this post


Link to post
Share on other sites
even though the doctor has "ruled out" all of the other things (ulceritive colitis,chrons,cancer,) should i exept the rule out with the simple facts that my stools did not contain the white blood cells nesasary to be any of those. What im trying to say is should i exept his diagnoses of IBS aka spastic colon, without having a colonoscopy or should i go thru with it anyways. The specialist and the doctor both agree that its nothing more then Gluten Sensastivity and IBS- ibs was probably caused by beeing gluten sesative and not knowing for so long. But as i keep reading everyone says that IBS is a BS dianosis when they dont know whats wrong with you, but i meen if they feel that i dont have any of those bad things then can it acually be IBS.... i dont know who should i belive the forum or the doctors i found this

http://www.helpforibs.com/footer/spastic.asp

it says tha IBS is real but you should not take the dianosis without the proper tests, well since the doctor says i have had the proper tests then can it acually be? i just dont want to let it go and keep living my life and then find out that i acually DO have something wrong with me thats serise and cant be fixed by a diet. Plus i was reading about inflamation leading to cancer, i know my intestines are currently inflamed because of the damage from gluten and its going to take a while to heal so now im worried that while im healing i will secretly be getting cancer and not know it ( colon cancer has taken the lives of my uncle and great grandpa) so i have concern i know i worry alot and im really trying not to but everytime i read something bad on this forum it just instantly makes me go back to worrying. Maybe i just need to stop reading so much but i cant help it i thrive for information constantly

Relax! The doctor said you have gluten sensitivity and he is going to monitor you. It will take time to heal--you will probably not feel 100% right away. Don't worry about the whole IBS/spastic colon thing. Doctors do use that as a diagnosis when either they have ruled out other things, or they just don't know what is wrong. I does not *necessarily* mean that you have an additional problem--it is probably his take on your discomfort right now while you are beginning the gluten-free diet.

Celiac does not lead to colon cancer--untreated, it can lead to intestinal lymphoma which relatively rare, and affects the small intestine. You are very young--staying gluten-free is the best way to avoid that. I have read that after being gluten-free for 5 years, we have the same chance of getting it as the general public. Colon cancer in your family is a separate issue. I have that--my Dad was diagnosed when he was 50. (he is fine now--got diagnosed early) What you need to do is to begin having a colonoscopy when you are 10 years younger than the age your family member was when diagnosed. Your doctor will advise you best on that, but that's the rule of thumb. My sisters and I have all been screened, and thankfully we're all fine.

It's understandable that you're anxious after all you've been through this month--hang in there, it will get better :)

Share this post


Link to post
Share on other sites

thank you jersey your always such a good help and i hope you tried your frys already and enjoyed them they are really good. but anyways thank you so much your really a help

as for getting tested 10 years before they got it well my uncle got it when he was 73 and my great grandpa got it when he was 80 so i guess i dont need one tell im 60? meh will probably get one in my 40s just to be sure

Share this post


Link to post
Share on other sites

Lister, I've been quietly following your progress for some time. I'm so glad you FINALLY got your diagnosis, and it's a GOOD ONE! Hallelujah! You are also feeling better...that's great news. What meds did the doctor prescribe for you?

Anyway, I think this good news is a sign that you can relax and take a deep breath now. Go to sleep with a smile on your face and wake up tomorrow like you've been given another chance. Also glad to hear you're eating real meals now...enjoy!

P.S. I think you should accept your diagnosis...don't keep killing yourself over it. Don't worry about it being "BS." They've done tests and you feel better. Stay on a strict gluten free diet and live your life to the fullest. Congratulations!

Share this post


Link to post
Share on other sites

He gave me Bentyl or i guess its genaric so Dicyclomine. I have not taken them yet as i dont like pills, especelly ones with 1000 possible side effects -kinda funny since i have made the mistake of taking E like 6 times (never will again) but i hate pills so unless my cramping is so bad it makes me hit the floor i think i will just avoid them

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


×
×
  • Create New...