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Symptoms?


Smunkeemom

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Smunkeemom Enthusiast

I have a friend whose child is being tested for celiac. You would think since I have such a strong family history for it I would know more LOL

Her child has the following symptoms (that I know of)

asthma

weight loss

anemia

chronic sinus infections

I think he probably has some GI symptoms too since the GI is the one who ordered the Celiac test, they got the blood work taken last week still waiting on the results.

I told her that for sure the anemia and weight loss could be symptoms of celiac, and I think the others fall in line too since my doctor told me my immune system is depressed when on gluten and her doctor said his asthma is being caused by all the sinus infections.

Does that seem right?

I know people keep saying there are over 200 symptoms but does anyone have a link to a good list? All I find is the GI symptoms and a paragraph about how only 10% have those and that there are others. :unsure:

I want to print her out some info before I see her tomorrow. If anyone has any please share.

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CarlaB Enthusiast

As far as the asthma, it's my understanding that when you have one autoimmune disease like celiac, it's common to have a second, like asthma, diabetes, etc. I guess when our bodies don't know how to work, they're good at it!

I don't have any info.-- but I did used to have many sinus infections.

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Chako Apprentice

Does the child have any food aversions, vomiting or such? How old is the child? Reflux is a possibility as well since high aspiration can cause chronic sinus infections and GERD related asthma. My youngest has that. Plus he was food averted (100% to solids until he was diagnosed and put on reflux meds at the age of 14 months), failure to thrive and suffered from deficiencies due to non eating status. All from silent reflux. I am sure that there are many different things to look at but I highly reccommend infantrefluxdisease.com to look up symptoms and see where it takes you.

Seems to me after spending a bit of time on the board that celiac and reflux go hand in hand too. My middle son is the one being tested for celiac now. Let me know if you need more reflux information and I will try to help.

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Smunkeemom Enthusiast

He is not quite 3, he isn't eating at all now, he hasn't for about a week, I was watching him yesterday and got him to eat a waffle. He told me later that his "belly hurt" and that he didn't want to eat any more. I tried to get him to drink his pediasure, but he was very resistant, he said it makes his belly hurt and his head swimmy when he eats.

I know that one of her doctors did tell her he had reflux and put him on meds for it, but it never resolved so they said he probably had something else wrong (maybe that's why he got refered to the GI?)

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wolfie Enthusiast

Poor little guy!!! DS (recently tested positive tTG for Celiac, awaiting GI appt) has asthma, anxiety, constipation, behavioral issues and stomach pain. He is in the 75% for height and weight, so dr never suspected Celiac with him. I think everyone is different with their symptoms. I hope they get some answers for the little guy so he can feel better soon.

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    • Anmol
      Thanks this is helpful. Couple of follow -ups- that critical point till it stays silent is age dependent or dependent on continuing to eat gluten. In other words if she is on gluten-free diet can she stay on silent celiac disease forever?    what are the most cost effective yet efficient test to track the inflammation/antibodies and see if gluten-free is working . 
    • trents
      Welcome to the community forum, @Anmol! There are a number of blood antibody tests that can be administered when diagnosing celiac disease and it is normal that not all of them will be positive. Three out of four that were run for you were positive. It looks pretty conclusive that you have celiac disease. Many physicians will only run the tTG-IGA test so I applaud your doctor for being so thorough. Note, the Immunoglobulin A is not a test for celiac disease per se but a measure of total IGA antibody levels in your blood. If this number is low it can cause false negatives in the individual IGA-based celiac antibody tests. There are many celiacs who are asymptomatic when consuming gluten, at least until damage to the villous lining of the small bowel progresses to a certain critical point. I was one of them. We call them "silent" celiacs".  Unfortunately, being asymptomatic does not equate to no damage being done to the villous lining of the small bowel. No, the fact that your wife is asymptomatic should not be viewed as a license to not practice strict gluten free eating. She is damaging her health by doing so and the continuing high antibody test scores are proof of that. The antibodies are produced by inflammation in the small bowel lining and over time this inflammation destroys the villous lining. Continuing to disregard this will catch up to her. While it may be true that a little gluten does less harm to the villous lining than a lot, why would you even want to tolerate any harm at all to it? Being a "silent" celiac is both a blessing and a curse. It's a blessing in the sense of being able to endure some cross contamination in social settings without embarrassing repercussions. It's a curse in that it slows down the learning curve of avoiding foods where gluten is not an obvious ingredient, yet still may be doing damage to the villous lining of the small bowel. GliadinX is helpful to many celiacs in avoiding illness from cross contamination when eating out but it is not effective when consuming larger amounts of gluten. It was never intended for that purpose. Eating out is the number one sabotager of gluten free eating. You have no control of how food is prepared and handled in restaurant kitchens.  
    • knitty kitty
      Forgot one... https://www.hormonesmatter.com/eosinophilic-esophagitis-sugar-thiamine-sensitive/
    • trents
      Welcome to the forum community, @ekelsay! Yes, your tTG-IGA score is strongly positive for celiac disease. There are other antibody tests that can be run when diagnosing celiac disease but the tTG-IGA is the most popular with physicians because it combines good sensitivity with good specificity, and it is a relatively inexpensive test to perform. The onset of celiac disease can happen at any stage of life and the size of the score is not necessarily an indicator of the progress of the disease. It is likely that you you experienced onset well before you became aware of symptoms. It often takes 10 years or more to get a diagnosis of celiac disease after the first appearance of symptoms. In my case, the first indicator was mildly elevated liver enzymes that resulted in a rejection of my blood donation by the Red Cross at age 37. There was no GI discomfort at that point, at least none that I noticed. Over time, other lab values began to get out of norm, including decreased iron levels. My PCP was at a complete loss to explain any of this. I finally scheduled an appointment with a GI doc because the liver enzymes concerned me and he tested me right away for celiac disease. I was positive and within three months of gluten free eating my liver enzymes were back to normal. That took 13 years since the rejection of my blood donation by the Red Cross. And my story is typical. Toward the end of that period I had developed some occasional diarrhea and oily stool but no major GI distress. Many celiacs do not have classic GI symptoms and are "silent" celiacs. There are around 200 symptoms that have been associated with celiac disease and many or most of them do not involve conscious GI distress. Via an autoimmune process, gluten ingestion triggers inflammation in the villous lining of the small bowel which damages it over time and inhibits the ability of this organ to absorb the vitamins and minerals in the food we ingest. So, that explains why those with celiac disease often suffer iron deficiency anemia, osteoporosis and a host of other vitamin and mineral deficiency related medical issues. The villous lining of the small bowel is where essentially all of our nutrition is absorbed. So, yes, anemia is one of the classic symptoms of celiac disease. One very important thing you need to be aware of is that your PCP may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining to confirm the results of the blood antibody testing. So, you must not begin gluten free eating until that is done or at least you know they are going to diagnose you with celiac disease without it. If you start gluten free eating now there will be healing in the villous lining that will begin to take place which may compromise the results of the biopsy.
    • Anmol
      Hello all- my wife was recently diagnosed with Celiac below are her blood results. We are still absorbing this.  I wanted to seek clarity on few things:  1. Her symptoms aren't extreme. She was asked to go on gluten free diet a couple years ago but she did not completely cut off gluten. Partly because she wasn't seeing extreme symptoms. Only bloating and mild diarrhea after a meal full of gluten.  Does this mean that she is asymptomatic but enormous harm is done with every gram of gluten.? in other words is amount gluten directly correlated with harm on the intestines? or few mg of gluten can be really harmful to the villi  2. Why is she asymptomatic?  3. Is Gliadin X safe to take and effective for Cross -contamination or while going out to eat?  4. Since she is asymptomatic, can we sometimes indulge in a gluten diet? ----------------------------------------------------------------------------------------------- Deamidated Gliadin, IgG - 64 (0-19) units tTG IgA -  >100 (0-3) U/ml tTG IgG - 4   (0-5) Why is this in normal range? Endomysial Antibody - Positive  Immunoglobulin A - 352 (87-352) ------------------------------------------------------------------------------------------------ Thanks for help in advance, really appreciate! 
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