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Megan's Gagging Isn't Any Better

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Dear TCA!

I am so wonderfully happy to hear the improvements Megan is making! Even coming through a cold with flying colours shows how much stronger she is getting! It's also wonderful to hear that she is starting to taste foods. Interesting that her favourites seem to be salty stuff. She sounds exactly like me!

On another note, When you mentioned you got a walker at a yard sale, my internal warning signals started beeping wildly. Please, if you happen to have stairs in your house, reconsider having a walker and get a stationery exersaucer instead..... I wouldn't be able to stand it if there was a tragic incident involving the walker and stairs, NOT AFTER EVERYTHING SHE HAS BEEN THROUGH!!! :unsure:

Please keep the updates coming. They brighten my day!

Hugs.

Karen

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What marvelous news!!!!!

. It would not be surpising if gluten was causing her so much difficulty.

NoGluGirl, I think TCA totally eliminated gluten about a year ago!

I second Karen's concern's about the walker--everything I have read says that they are at best, not helpful for walking skills, and at worst extremely dangerous in that the child can scoot very quickly into a dangerous situation without the parent realizing. Stairs are the obvious danger, but stoves are also dangerous, tables with heavy lamps, tables set with tablecloth, china, knives, etc.

The daycare my children attended got rid of walkers about 10 eyars ago, and only uses exersaucers.

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Tanya,so glad to hear Megan is improving- and getting familiar with food.

The fact that she managed to get 'just a cold' instead of a raging chest infection tells you how far she has come!!!!

:):):)

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Thanks everyone for the concerns about the walker, but this was something that her PT and I discussed for about 2 mos before getting it. We have no stairs that she can possibly access with it. The yard sale was one of my husband's best friends and I cleaned it thoroughly first. We have an exersaucer, which she uses often, but the PT thought this might help her to realize that she can be mobile on her own. She refuses to be on her tummy at all and since she can roll over very well, we can't keep her there. Trust me, I'm VERY cautious and wouldn't do ANYTHING to risk her health at all. I was aware of the drawbacks, but it was something the PT thought might be worth a shot in getting her to stand. I promise to be careful with "our" baby! :P

NoGluGirl - Yes, we've been gluten-free around her for 13 mos now!!! I think ragweed is the culprit rather than gluten! My son and I are both allergic and we have allergies right now too! I hope you improve soon!

Nikki - great picture!

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I really do appreciate the offer to give blood again, but we should be able to cover it. I was planning to give, but you may have a point. We have 6 family members who have given for her before, though and are anxious to do so again. 3 have never given before and this gives them incentive! (Is that mean of me? :huh: ) As for getting a sitter for Tim, it is a children's hospital and hyper is common! They let Cole in there! We'll see how the plans are shaping up closer to the cath and make contact. You really are a saint and I so appreciate your willingness to help out. "God blesses us so much", as Cole would say. :):):)

LOL Your as bad as the Red Cross Vampires! :D

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Dear Tanya

haven't been posting much but so glad to see this GREAT NEWS.

I THINK THE WALKER is a great solution for helping her get her leg muscles to get stonger and realize she can walk around with that tool.

You have made excellent decisions for Megs care in the past and know this is another one that you did not make lightly as it took 2 months. NO STEPS..THE VERY BEST OF ALL WORLDS.

MY LOVE AND PRAYERS STILL FOLLOW YOU DAILY

HUGS

JUDY IN PHILLY

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Hi Tanya,

I hope you didn't take any offense to my pointing out the dangers of walkers. It was in no way meant to imply that you were not being other than a totally loving parent who has your child's best interest at heart. But if I didn't voice my concern, and something did end up happening, I would have never forgiven myself.

I know you know what you are doing and if my comment was taken the wrong way, I am deeply sorry.....

Hugs.

Karen

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oh dear, Karen please don't be upset. i didn't mean anything ..

you know i don't seem to get the words out the way i want anymore.

i'm glad you warned her about walkers. of course they can be so dangerous.

guess it's just time to hang up trying to type what i want to say.

it's just not working any more.

judy

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Tanya that is such great news about Megan. At the rate she is improving, you will be posting to us in about 1 1/2 years (that is what the time will seem like), that she is going to her first day at kindergarden. Hugs and prayers still coming your way. And thank you for posting ever so often about how Megan is doing. Yes, we all think of her as "ours", but you get the dirty diapers :lol:

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Great news about Megan's progress!! So glad things are progressing there and so good you could visit the other grandparents. Glad you have time to post news accasionally. Hugs and prayers from here too. evie

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Don't worry Karen. I did not take offense at all, just wanted you all to know that I'm watching out for "our" baby. I'm just so glad you are all so concerned about my baby girl! How could I take concern as a personal slam? Love and hugs! :D

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here's the update from caring bridge . go ahead and laugh at me - everyone else is! :P

*************************************************************

Last week was quite a week for Megan. She went to her first birthday party for a friend on Saturday and had a great time. On Monday she had to have a new feeding tube put in. The old one was stopping up. The procedure is very simple, she just has to be put under an X-Ray to make sure the placement is correct. I was helping to hold her down and looked up at the screen after it was over. I saw something very strange and asked what it was. The Radiologist wasn't sure, but after about a second I said, "That's the hairbow we lost on Saturday!!!!!!!" The look on my face had to be sheer terror. My next sentance was, "The child won't eat a cracker, but she swallowed her hairbow?" At this point the Radiologist was laughing at me and assuring me that this happens all the time and most parents never know it. The funny part was he had just finished bragging on how good of a job we do caring for Megan, then we see that she swallowed a hairbow right in front of me without me even suspecting it. I was really feeling like Mother of the Year at that point. : (

He consulted with her GI and they decided to give it a week to see if it would pass. It did the next day, thank God, but I had a sleepless night worrying about it. Apparently her issues with eating are not because she can't swallow!!!!!! It's funny now that it passed but I about went crazy before it did!

She had her 18 mo. checkup on Monday and all is looking much better. Her height is approaching the growth curve and her weight is at 15th percentile now. She was 21 lbs. Her gaining is finally leveling off and she is getting healthier every day. She finished up her vaccinations and got her flu shot. She felt bad yesterday from that, but has been great today.

She is LOVING her walker. It's like she knew she was supposed to be mobile, but wasn't able to and getting very frustrated. She is so much happier now and is amazing me at what she can into it with it. She's pulling things out of cabinets and anything she can reach off of a shelf or table. I'm readjusting to having one in that stage.

She's still trying new foods, but not really eating. I'm sure the eating will follow and I'm just trying to give it time and be patient. God has taught me a lot about patience through all of this! I don't recall asking for the lesson, though. ; )

We hope you all have a Happy Halloween. Megan is going to be a Sunflower and Cole a Robot. They're getting ready for our pumpkin carving contest at church.

Love you all!

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Oh Tanya--The hairbow story was wild! I'll bet food won't be far behind now :D

It's so good to hear of her wonderful progress. The children's costumes sound cute--if you get a good picture, would you post it?

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Hooray! Even about the hairbow . . . because now you know that she CAN swallow . . . and it's just a question of when she WILL :lol:

And, Vincent, glad to see you post, even just a short one here. I was sorry you felt driven away. :(:(:(

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That is great news Tanya. And I love that she ate a hairbow. Because you now know she can eat also and not just drink liquids. LOL

This is my second post here as the other went somewhere. It is those little gremlins that get into our computers and this one must have been hungry.

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here's the update from caring bridge . go ahead and laugh at me - everyone else is! :P

*************************************************************

Last week was quite a week for Megan. She went to her first birthday party for a friend on Saturday and had a great time. On Monday she had to have a new feeding tube put in. The old one was stopping up. The procedure is very simple, she just has to be put under an X-Ray to make sure the placement is correct. I was helping to hold her down and looked up at the screen after it was over. I saw something very strange and asked what it was. The Radiologist wasn't sure, but after about a second I said, "That's the hairbow we lost on Saturday!!!!!!!" The look on my face had to be sheer terror. My next sentance was, "The child won't eat a cracker, but she swallowed her hairbow?" At this point the Radiologist was laughing at me and assuring me that this happens all the time and most parents never know it. The funny part was he had just finished bragging on how good of a job we do caring for Megan, then we see that she swallowed a hairbow right in front of me without me even suspecting it. I was really feeling like Mother of the Year at that point. : (

He consulted with her GI and they decided to give it a week to see if it would pass. It did the next day, thank God, but I had a sleepless night worrying about it. Apparently her issues with eating are not because she can't swallow!!!!!! It's funny now that it passed but I about went crazy before it did!

She had her 18 mo. checkup on Monday and all is looking much better. Her height is approaching the growth curve and her weight is at 15th percentile now. She was 21 lbs. Her gaining is finally leveling off and she is getting healthier every day. She finished up her vaccinations and got her flu shot. She felt bad yesterday from that, but has been great today.

She is LOVING her walker. It's like she knew she was supposed to be mobile, but wasn't able to and getting very frustrated. She is so much happier now and is amazing me at what she can into it with it. She's pulling things out of cabinets and anything she can reach off of a shelf or table. I'm readjusting to having one in that stage.

She's still trying new foods, but not really eating. I'm sure the eating will follow and I'm just trying to give it time and be patient. God has taught me a lot about patience through all of this! I don't recall asking for the lesson, though. ; )

We hope you all have a Happy Halloween. Megan is going to be a Sunflower and Cole a Robot. They're getting ready for our pumpkin carving contest at church.

Love you all!

Dear TCA,

It is such wonderful news that Meg is doing so well! LOL! I can't believe she swallowed her hairbow! Don't blame yourself. No matter how much you watch them, they will manage to swallow things that are not supposed to be swallowed. That is a baby. Most people have a Gerber baby, I have a Goober baby. He is a 3 year old Yorkshire Terrier named Dart. I watch him like a hawk, but he still manages to swallow plastic, the stuffing from his toys, paper, cardboard...you name it! Oh yeah, he also eats fur that falls out if he sheds, and my hair from when I brush it if I shed. I have really long, thick black hair, and I worry he will get a hairball! He he! I am so happy for you guys! We all are here on the forum! This is so exciting! Keep the updates coming! Oh, and watch those hairbows! :lol:

Sincerely,

NoGluGirl

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Tanya,

Thanks for the adorable picture of the children dressed up for Halloween! They both look so cute :D Did you all have a nice time yesterday?

I was hoping you'd like the picture. Cole's going through the stage where he doesn't want his picture taken, so I had to get in it with them! We had a great time, but Meg kept falling asleep. The time change is just too much for my early bird! She was soooo glad to finally get in her bed!

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