Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Else Can Cause Lactose Intolerance Besides Celiac?


Sarah8793

Recommended Posts

Sarah8793 Enthusiast

On my quest to figure out if gluten is my problem, I always think about the fact that I am lactose intolerant and have been for about 6 years, right after my first child was born. I became even more sensitive when my second child was born, and can no longer have ANY. Not even with a lactose enzyme pill. So then I wonder why is this progressing? :unsure: Can the villi become more sensitive to milk over time on their own without damage from gluten? I am getting ready to do tests with Enterolab for gluten.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular
On my quest to figure out if gluten is my problem, I always think about the fact that I am lactose intolerant and have been for about 6 years, right after my first child was born. I became even more sensitive when my second child was born, and can no longer have ANY. Not even with a lactose enzyme pill. So then I wonder why is this progressing? :unsure: Can the villi become more sensitive to milk over time on their own without damage from gluten? I am getting ready to do tests with Enterolab for gluten.

Lactose intolerance is quite common among many populations, and actually, the ability to digest lactose is a - evolutionarily speaking - recent change in some human populations. Humans don't generally (in the grand scheme of things) consume milk after weaning - milk is designed as a food for babies. Even in populations that can handle lactose, the ability to handle it (the quanitity of lactase, the enzyme that digests lactose) declines with age.

MySuicidalTurtle Enthusiast

I always thught it gets worse as you get older. When I was younger I could have milk- now I can't even cook with it.

Nancym Enthusiast
On my quest to figure out if gluten is my problem, I always think about the fact that I am lactose intolerant and have been for about 6 years, right after my first child was born. I became even more sensitive when my second child was born, and can no longer have ANY. Not even with a lactose enzyme pill. So then I wonder why is this progressing? :unsure: Can the villi become more sensitive to milk over time on their own without damage from gluten? I am getting ready to do tests with Enterolab for gluten.

That probably isn't lactose intolerance then, probably casein intolerance.

Sarah8793 Enthusiast
That probably isn't lactose intolerance then, probably casein intolerance.

Forgive me if this is a silly question. What is the difference between lactose and casein? And can you have a casein intolerance and not a lactose intolerance or vice versa? confused :unsure:

tarnalberry Community Regular
Forgive me if this is a silly question. What is the difference between lactose and casein? And can you have a casein intolerance and not a lactose intolerance or vice versa? confused :unsure:

Lactose is a milk sugar, casein is a milk protein. You can have one, but not the other, or both.

Lactose intolerance occurs when you don't produce enough lactase, the enzyme which breaks down the milk sugar, and the lactose passes into the lower intestine where bacteria in the gut break it down instead, releasing gas as a byproduct. It won't harm you, but it can produce very uncomfortable symptoms. The production of lactase is genetically regulated, and declines overtime, and varies by ethnic group.

Casein intolerance occurs when your body reacts, via an IgG mediated immune response, to the casein milk protein. It is not a milk allergy, which is an IgE mediated immune response that releases histamine. Casein intolerance is less well understood than a casein allergy, which is in-turn less well understood than lactose intolerance.

If you are lactose intolerant, you can tact Lactaid, or another over-the-counter lactase supplement, which will supply you with the enzyme to break down the milk sugar. This will do nothing at all for a casein intolerance or allergy.

Sarah8793 Enthusiast

Are the symptoms of casein and lactose intolerance the same? For years I could take a lactose enzyme but now since I became more sensitive, they don't work. AND interestingly, when I became more sensitive, the symptoms changed. Now when I have had milk or milk product, the pain is in a different place and affects my upper digestive tract. I'm wondering if I started out lactose intolerant and then have now become casein intolerant additionally. Thanks for the info.! I can't believe I never distinquished between the two.

Sarah

Lactose is a milk sugar, casein is a milk protein. You can have one, but not the other, or both.

Lactose intolerance occurs when you don't produce enough lactase, the enzyme which breaks down the milk sugar, and the lactose passes into the lower intestine where bacteria in the gut break it down instead, releasing gas as a byproduct. It won't harm you, but it can produce very uncomfortable symptoms. The production of lactase is genetically regulated, and declines overtime, and varies by ethnic group.

Casein intolerance occurs when your body reacts, via an IgG mediated immune response, to the casein milk protein. It is not a milk allergy, which is an IgE mediated immune response that releases histamine. Casein intolerance is less well understood than a casein allergy, which is in-turn less well understood than lactose intolerance.

If you are lactose intolerant, you can tact Lactaid, or another over-the-counter lactase supplement, which will supply you with the enzyme to break down the milk sugar. This will do nothing at all for a casein intolerance or allergy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nantzie Collaborator

My MIL is from Germany, with family and friends still there. She says that over there they don't drink milk. They put cream in their coffee, and cook with it, and use other dairy products of course, but they would never just drink a glass of milk. Kids don't drink milk after their weaned. They drink weak tea.

Nancy

eKatherine Apprentice

I've been lactose intolerant my whole adult life. When I first noticed it the symptom was abdominal bloating and gas. After being essentially gluten-free for a few years, I decided to try a 'challenge'. I drank a tall hot, flavored milk. Within half an hour I had diarrhea, then again about 6 hours later - classic lactose intolerance. At the six hour point, my feet and ankles were swollen so I couldn't see any shape at all - a sensitivity reaction which took about a week to go away.

ravenwoodglass Mentor
On my quest to figure out if gluten is my problem, I always think about the fact that I am lactose intolerant and have been for about 6 years, right after my first child was born. I became even more sensitive when my second child was born, and can no longer have ANY. Not even with a lactose enzyme pill. So then I wonder why is this progressing? :unsure: Can the villi become more sensitive to milk over time on their own without damage from gluten? I am getting ready to do tests with Enterolab for gluten.

With your pattern of excaberating symptoms after the birth of each child I feel your problem may be the gluten. I would totally eliminate the gluten and dairy both for a while and then do a challenge with them. I was told I was lactoese intolerant for years but after 6 months gluten-free could even drink a cold glass of milk with no ill effects.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,201
    • Most Online (within 30 mins)
      7,748

    Judy Wysocki
    Newest Member
    Judy Wysocki
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.