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Changing Symptoms

cgilsing

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cgilsing Enthusiast
cgilsing
Posted

So I know that celiac disease can be "triggered" by a pregnancy/illness/surgery/etc., but if you already have celiac disease can your symptoms change after any of these events? I'm not reallly sure, but I'm starting to think maybe that has happened to me. When I am glutened my main symptoms are usually C, a lot of cramping, and bloating, a little DH but not much, sleep disterbances and depression. I just had a baby though and I've had a few strange things happen. It's been a while since I was glutened last, because I was very carefull during my pregnancy. When I was in the hospital though I had a lot on my mind and didn't ask about the gluten statis of any of the medication the were giving me. After I got home I was worried about being glutened, but ended up having D for 2 weeks, and just chalked it up to my body being stressed since when I'm glutened I normally get C. Then a few nights ago we went out to eat and I'm 90% sure I was glutened. The chef assured me it was fine, but my fish had a very suspicious sauce on it. The next day I once again had D, this time accompanied by an ichy rash from head to toe. I'm starting to wonder if this is a gluten reaction??? :unsure: It's nothing like what I usually have, but pregnancy does change your body. I kindof hope that this is the reaction I'm going to have from now on because at least it's not a painful as what I usually have! Has anyone else had their symptoms change after a pregnancy/illness/surgery or know if its possible?

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BRUMI1968 Collaborator
BRUMI1968
Posted

This is not an answer to your question...but...when I was pregnant several years ago, the hair on the back of my head became way more curly. It still is, even though I neither had the baby (miscarriage) nor am pregnant. I also can no longer eat right before car trips, or be hungry on car trips (a bit of a trap, there) or I'll get nasueus, which I never did before.

Pregnancy is nuts! HOpefully, though, someone else will be able to actually answer your question. Good luck!

nettiebeads Apprentice
nettiebeads
Posted

My symptoms have changed over the years; at least the physcial ones. I used to get D - you know the special kind of D only celiacs have. But for the past 4 years or so it's been the C - severe enough to have to use MOM at times. But Citrucel is very effective for it. And I've found that bananas, rice and cheese really bind me up when before they were never a problem. The other symptoms - brain fog, fatigue and such are just the same. You do experience changes because of child birth and also because of age.

Annette

cgilsing Enthusiast
cgilsing
Posted
  • Author

Thanks for your responses! I'm still not sure what this is all about....If it is gluten it's not as painful as my usual response, but this rash is really itchy!! :( so I guess it's an even trade. All kinds of weird things can happen while your pregnant, so I had wondered how it would affect celiac disease. I have an uncle that has to take cortizone shots for his DH (although he won't stick to a gluten-free diet, so who knows if he would have to take them if he did), I hope I don't end up with that :unsure:

wozzy Apprentice
wozzy
Posted

My symptoms have gotten worse over time...

If you *really* wanted to see if gluten was causing your symptoms, you could intentionally eat it...but you probably don't want to do that.

queenofhearts Explorer
queenofhearts
Posted
Thanks for your responses! I'm still not sure what this is all about....If it is gluten it's not as painful as my usual response, but this rash is really itchy!! :( so I guess it's an even trade. All kinds of weird things can happen while your pregnant, so I had wondered how it would affect celiac disease. I have an uncle that has to take cortizone shots for his DH (although he won't stick to a gluten-free diet, so who knows if he would have to take them if he did), I hope I don't end up with that :unsure:

I had no idea that I was Celiac when I was pregnant, but I did have severe hives just after my boys were born, which were never explained. Now that I look back, I wonder if it was a gluten-related thing... could've been just stress or wacky hormones too I guess... the ironic part is that the only treatment I was allowed (due to breastfeeding) was oatmeal baths!

My hair also went curly then & never straightened out. Go figure!

Leah

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      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
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