Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Brain Talk Forums

Nancym

By Nancym
in Meet Up Room

Recommended Posts

Nancym Enthusiast
Nancym
Posted

I really miss the Gluten Brain Talk Forum. Has anyone here heard if it is coming back? I wish they'd put a message up!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bluejeangirl Contributor
bluejeangirl
Posted
I really miss the Gluten Brain Talk Forum. Has anyone here heard if it is coming back? I wish they'd put a message up!

I don't know...I miss it too.

Nancym Enthusiast
Nancym
Posted
  • Author

I think of all the research and stuff collected by the members and it is depressing to think it might be lost!

chrissy Collaborator
chrissy
Posted

what was the brain talk forum?

mamaw Community Regular
mamaw
Posted

I too miss it, anything we all could do to make them bring it back????

swittenauer Enthusiast
swittenauer
Posted

I'm not familiar with it. What was it?

Nancym Enthusiast
Nancym
Posted
  • Author

They were a forum that dealt with a lot of different diseases. The gluten free forum there was really amazing. The members had collected a ton of research, genetic info, recipes, all kinds of stuff and kept it stickied. It was a very cerebral place where people loved to research and find things out. *cry*

The URL for the forum is/was: Open Original Shared Link

They had a message up for several days saying they would be working on it, but nothing now for a week.

I too miss it, anything we all could do to make them bring it back????

I wouldn't know who to contact. :( I'm hoping someone will see this that might know more.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


skbird Contributor
skbird
Posted

I'm not sure what happened over there but they did go offline about a year ago for a bit because something major on the server crashed. Maybe something similar happened again. It's an amazing resource for sure.

Stephanie

debmidge Rising Star
debmidge
Posted

That explains as to why several months ago I tried to register with them and emailed their administrator as to why my info was not "taking" and never got a response........I tried again last night coincidentially and they are totally gone from cyberspace.

This is a commercial for Celiac.com Board:

That's why we are grateful we have this board. A Thank You to Scott, the Administrators and supporters. Anyone at anytime can support the board with a donation (there's a button for it somewhere). End of Commercial.

rinne Apprentice
rinne
Posted

I went to the Brain Talk Forum link and found this message, just posted today.

July 20, 2006

Greetings! We've had a pretty major crash here at BrainTalk involving both software and hardware. I'm working on bringing everything back up as soon as possible, so please rest assured that BrainTalk will be back in a matter of days!

In the meantime, I will be using this status page to keep everyone updated on progress.

I'm terribly sorry for this downtime. It happened at the worst possible time for me (while I was traveling), and I know how important BrainTalk is to everyone. I will make sure it comes back online ASAP (good opportunity for me to upgrade some of the software, too!), and thank you for your patience.

-John Lester, BrainTalk Communities

braintalk@gmail.com

Nancym Enthusiast
Nancym
Posted
  • Author

Phew! So glad you saw that. I was losing heart. I hope they had good backups.

  • 5 weeks later...
Lesliean Apprentice
Lesliean
Posted

Does anyone know the status of hastypastry.com? Its been down now for a month tomorrow and there have been no updates.

Leslie

Lesliean Apprentice
Lesliean
Posted

I think of hastypastry.com or braintalk as the other website with a great message board. Similar to here with a huge research collection to peruse.

Since they went down a month ago there has not been a single update on the status of their upgrades and repair. That is a bit disconcerning. Does anyone know the status of hastypastry.com? When they will be back? I hope they kept their permanent file information that included everything from doctor abstracts and articles to recipes.

Is there anyone out there from braintalk who has information?

Leslie

Rachel--24 Collaborator
Rachel--24
Posted

I love this message board and I'm kind of partial to it but Braintalk had alot of research that I would turn to when needed. A huge collection of valueable information collected on that board. I hope its not all lost. That would be tragic. :(

gfp Enthusiast
gfp
Posted

Carla (jcc) has saved The Gluten File here: Open Original Shared Link

Nancym Enthusiast
Nancym
Posted
  • Author
Carla (jcc) has saved The Gluten File here: Open Original Shared Link

Yeah! I saw that in another post, and I have it bookmarked. Boy, it sure doesn't look like BT will ever be back. :(

Nancym Enthusiast
Nancym
Posted
  • Author

We've been talking about it in a couple of other threads. :( I have no idea, I'm kind of doubting it at this point. The Gluten File is around though still!

Open Original Shared Link

diamondheart Newbie
diamondheart
Posted

I've done some searching around to figure out who to contact about Brain Talk.

My understanding is that Brain Talk was created and kept up by John Lester. His website describes this:

Open Original Shared Link

He is no longer with the hospital that he first founded Brain Talk Communities under. This makes me wonder if he needs financial assistance in getting Brain Talk back up. Plus, I think he might be a pretty busy guy. The e-mail addresses I have found for John Lester include:

braintalk@gmail.com

john.e.lester@gmail.com

pathfinder@lindenlab.com

I have tried e-mailing him letting him know how great the website was, and asking about updates, with no replies. Perhaps if more fans wrote positive e-mails to him, he might finally respond. Maybe it's just going to take some time until it comes back up. I haven't lost hope yet, though I do miss the Gluten Sensitivity/Celiac Disease forum and the great bunch of folks who used to post there. Good to see you here Leslie! You were one of the first to respond to my querries about the DQ1 issues. I've seen Cara occassionally post, and am glad she created Open Original Shared Link on a separate web page. Too bad we don't have backups of all the stories everyone submitted though.

Claire

Calona Newbie
Calona
Posted

Hi everyone, I loved BT that board helped me so much in finding the solution to my health problems. I really miss it. Does anyone know if John Lester was the only one running BT? If so could something have happened to him, like, god forbid, he got sick. Someone must know more about him. I'm sure that thousands would flock to his door to help. I pray that everything will come together. Patricia :)

Lesliean Apprentice
Lesliean
Posted

I have an e-mail in to Cara. I'll post her response if I get one. Maybe she will know something. So many of us use more than one website and gravitate to one or the other for different things. I always refer to celiac.com for banned ingredient lists but use braintalk for recipes... The message board is just a personal preference. Thank God both are available to us. We need all the help we can get. :) John Lester did say he was traveling and down for a while only and doing repair and upgrades. Maybe it is a time consuming process. Especially if it requires parts.

Good to see you Claire! We are old friends. I hope all is well with you.

I hope all the people just working through their diagnosises and treatment find their way to websites and people who can guide them. We all probably have stories to tell about being sick and not knowing where to turn for help.

Leslie

jcc Rookie
jcc
Posted
I really miss the Gluten Brain Talk Forum. Has anyone here heard if it is coming back? I wish they'd put a message up!

BRAINTALK2

Open Original Shared Link

Come say hello! This is a temporary site put up by a good guy as a meeting place until we know what is going on with JL/Braintalk. Good guy is Doc John~ Open Original Shared Link

Cara

Matilda Enthusiast
Matilda
Posted

..

diamondheart Newbie
diamondheart
Posted

Maybe we need to start a thread for Brain Talk "alumni". I've been jonesing for BT too, but no word. At least Cara recreated The Gluten File, at least what she had of it!

Claire

diamondheart Newbie
diamondheart
Posted

For all you who loved Brain Talk, a temporary forum is now back up. You'll have to re-register. Spread the word!

Open Original Shared Link

For those of you who aren't familiar with it, the Brain Talk Communities Gluten Sensitive/Celiac Disease forum was formed to acknowledge the neurological symptoms that can happen with gluten reactions, though folks talk about a lot more than that.

Cara already posted the good news, but it's buried in this thread (I'm a little slow):

Open Original Shared Link

That's the good news. The bad news is that Open Original Shared Link is temporarily off-line. Let's hope Cara can figure out how to get it back up and running!

Claire

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,459
    • Most Online (within 30 mins)
      7,748
    MaryA Allen
    Newest Member
    MaryA Allen
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.9k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      NEW - 7 year old daughter diagnosed but 'not officially' - negligence from NHS

      By cristiana · Posted

      Hi @MTAC Welcome to the forum.  I am so sorry to read about your situation.  I'm a UK coeliac so I thought I'd add this  to Trent's and Scott's excellent posts. Here the UK my TTG test results frequently lag behind my other annual lab results.  I think the longest it took was a couple of weeks, but from memory on this forum I've read at least one other person had to wait three weeks or more.  I've never understood why this particular test takes so long to come back, but it does seem to be the way it is.  I wonder if my American counterparts on this forum have the same issue? Anyway,  it is dreadful that you weren't told, but I have friends and family in the healthcare sector and I know that staff are often so stretched, somethings are getting missed, despite their best efforts.  (It's happened to me, too -  I looked up some blood results recently on the NHS app to find that my cholesterol levels were elevated and yet my GP never told me.    I dread to think what they are now and I keep meaning to do something about them.)  Anyway, it is so good you asked for the blood test results and that will be an excellent habit going forward.  I've taken to getting my consultant to print them out now, or I print them out when I get home off the App.   I hope you get some more clarity in the next few days.  Going forward,  I recommend joining Coeliac UK - they do a wonderful App and a Food and Drink Guide that will make it easier for you to shop. Cristiana
    • Scott Adams
      New diagnosis for 3 year old. Help!

      By Scott Adams · Posted

      To me it seems like a slam dunk diagnosis, and the actual confirmation should be recovery on a gluten-free diet. If her symptoms improve on the diet, it would be final confirmation that she has celiac disease--and likely DH as well.
    • lizzie42
      New diagnosis for 3 year old. Help!

      By lizzie42 · Posted

      Thank you for all your help! We agreed with the pediatrician that if further testing is necessary we will reintroduce. Given all the evidence I would never put her out for an endoscopy even if recommended by the GI.  So today I'm purging the kitchen and cleaning.
    • trents
      New diagnosis for 3 year old. Help!

      By trents · Posted

      The blistery rash is almost certainly dermatitis herpetiformis, a classic indicator of celaic disease and for which celiac disease is the only known cause. There really isn't much doubt that she has celiac disease given all the evidence so far.
    • lizzie42
      New diagnosis for 3 year old. Help!

      By lizzie42 · Posted

      Thank you! Hers were much higher than 10x plus positive ema. Plus anemia, rash, low vitamin d. The GI appointment isn't till middle of April but the pediatrician said to go ahead and stop gluten as there is no question. We went ahead and she hasn't had gluten for about 36 hours. This morning her rash wasn't blistery for the first morning since it started. 
×
×
  • Create New...