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    Do you have questions about celiac disease or the gluten-free diet?

Jennhaz

Found Out What Was Wrong

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I dont know if you guys remember me but in June I was a new member on this board. I was not tested for celiac but thought I had it because of my food allergy to wheat and problems with my gut. Then I posted that I may have neuropathy or ataxia and some people on here thought I had neuropathy, well I dont ..I went to my neuro and he said I have BFS(Benign Fasciculation Syndrome) it wont kill me nor will it disfigure me but I will live with it forever. I have twitches all over my body everyday sometimes all day, tremors, vibrations, you name it we get it. Anyway I just wanted to post what happened with me. I still have not been tested for celiac and I hope to be in the future. I dont think you can get BFS from celiac but I will ask my Dr. Thanks and good luck..Jenn

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I dont know if you guys remember me but in June I was a new member on this board. I was not tested for celiac but thought I had it because of my food allergy to wheat and problems with my gut. Then I posted that I may have neuropathy or ataxia and some people on here thought I had neuropathy, well I dont ..I went to my neuro and he said I have BFS(Benign Fasciculation Syndrome) it wont kill me nor will it disfigure me but I will live with it forever. I have twitches all over my body everyday sometimes all day, tremors, vibrations, you name it we get it. Anyway I just wanted to post what happened with me. I still have not been tested for celiac and I hope to be in the future. I dont think you can get BFS from celiac but I will ask my Dr. Thanks and good luck..Jenn

Hi Jenn, You might want to check out the link in related disorders to a neurological paper on celiac. It is a very good one. I am not a medical professional but I am someone who's neurological system was greatly effected by celiac disease. You say you have not been tested for celiac. IMHO you should be but then again everyone should. You also might want to try the diet and see if it might help your condition. I had more than one neurologist diagnose me with disorders that I was told I would live with forever. My improvement on the gluten free diet has been astounding. You are avoiding wheat anyway you may want to consider going the next step and avoiding gluten. Wishing you the best.

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Jenn,

Before I discovered my gluten intolerance, I was having wierd muscle twitches. The muscle below my eye has twitched on and off for 2 months. I thought it was a mineral depletion, and was taking all these minerals to help it. Once I went gluten free, the muscle twitches stopped.

Now when I get glutened, I get some wierd muscle twitches all over again.

I would say, if you have a "gut feeling" about gluten, go without and see if they improve. You wouldn't believe how many people have so called "unrelated disorders" that the dr's treat them for specifically but can all be traced back to gluten intolerance.

It might be worth a try....

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And i was searching internet for relation between BFS and gluten free, and i am glad that i find this issue discussed here...

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And i was searching internet for relation between BFS and gluten free, and i am glad that i find this issue discussed here...

Welcome to the site NRHL! You may just be in the right place. Celic can cause nerves symptoms in a couple of ways. One is impacts on the brain and is known as gluten ataxia. Lots of info on that around if you do a search for gluten ataxia. Another possible problem is mal-absorption which can cause your body to be short on vitamins and minerals that it needs for various functions, including nerves.

Your doctor can test your blood for vitamin deficiencies and also for celiac antibodies. Just be aware that the antibody tests are not perfect and sometimes give false negatives. So it is best to try the gluten-free diet for 3 months or so to verify the results even if the antibodies don't show up in a test.

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