Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

What Do You Do If They Dont Give You A Strait Answer?


lightningfoot speakin words

Recommended Posts

lightningfoot speakin words Contributor

I called post about their fruity pebbles bronto bites and the person said that they will put the dereritive if its from gluten and I said well can you just tell me because I dont really know. Then she got all snappy and had a cow and was like I CANT HELP YOU!! I AM NOT SPOSSED to because I AM A JERK!!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



penguin Community Regular

General Mills will clearly list wheat, barley, rye, and oats in the ingredients. They won't hide gluten under natural flavors or anything like that. Sorry you had a bad experience.

Link to comment
Share on other sites
tarnalberry Community Regular

The companies that have a policy of clearly listing on labels won't generally tell you about particular items over the phone precisely because of their policy. They've shifted responsibilty to the label - they know their formula's change, so they take accountability at the labeling stage and use their labels to convey consistent information, not customer service representatives who can't know what the label you're looking at says. That means you become responsible for looking for the words "wheat" "barley" "rye" or "oats" on the label.

I kinda like that approach, myself.

Link to comment
Share on other sites
kbtoyssni Contributor

I get annoyed when a company can't give me a straight answer (assuming they're not one of the companies who say that gluten will be on the label) and usually refuse to buy their food. I don't need that kind of hassle and I'd rather give my business to a company who knows what gluten is.

Link to comment
Share on other sites
penguin Community Regular

Just so we're on the same page, Post makes the pebbles cereals and is a Kraft company, which means they'll clearly list wheat, barley, rye, and oats, even if they occur in trace amounts.

Link to comment
Share on other sites
psawyer Proficient

This has been posted elsewhere, but here is the list I have of companies/brands that will always clearly disclose gluten sources. Many of them will tell you to read the label, and has been pointed out by others in this thread, that is a good thing!

My List:

Arrowhead Mills, Aunt Nelly's, Balance, Baskin Robbins, Ben & Jerry, Bertoli, Betty Crocker, Blue Bunny, Breyers, Campbells, Cascadian Farms, Celestial Seasonings, ConAgra, Country Crock, Edy's, General Mills, Good Humor, Green Giant, Haagen Daz, Hellman's, Hershey, Hormel, Hungry Jack, Jiffy, Knorr, Kozy Shack, Kraft, Lawry's, Libby's, Lipton, Martha White, Maxwell House, McCormick, Nabisco, Nestle, Old El Paso, Ortega, Pillsbury, Popsicle, Post, Progresso, Ragu, Russell Stover, Seneca Foods, Skippy, Smucker, Stokely's, Sunny Delight, T Marzetti, Tyson, Unilever, Wishbone, Yoplait, Zatarain's.

There may be others as well. Post is on the list.

Link to comment
Share on other sites
tiredofdoctors Enthusiast

Will have to look in my pantry to give more brands . . . What I have come across, more often than not, is that the companies will take responsibility for their PRODUCT -- that they don't add anything that contains gluten. What they won't take responsibility for is checking from their suppliers if THEY have any gluten-containing ingredients in what they are purchasing from them. This is especially true in women's cosmetics, soaps (fragrance) things of that nature.

An example of that in food is, say, Company A makes soup. They list on the label "natural flavors". They purchase the natural flavors from Company B. Company B, for whatever reason, uses gluten-containing products, maybe to thicken the natural flavors into a paste that can be added to Company A's vats. Company A, that manufactures the soup doesn't put gluten into their product; however, they don't check with Company B, the supplier of the natural flavors to find out if their product contains gluten.

It seems to me that is the biggest "loophole" in the whole labelling system . . . and tends to decrease accountability.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lightningfoot speakin words Contributor

sorry, I kinda lost my temper with the whole situation. I understand but it would make it a whole lot easier if they could tell me.

Link to comment
Share on other sites
  • 3 weeks later...
ms-sillyak-screwed Enthusiast

-

Link to comment
Share on other sites
penguin Community Regular
I feel the same way - big companies really don't care about us.

Were we will make a differenece is writing and complaining to the FDA.

I have major issue with words like "NATURAL", "natural ingredients", "natural flavoring or natural additives".

For example - Prudue ground turkey, has natual ingredients. I called last year and they told me it's ROSEMARY. I don't have a problem with rosemary in general. But every time I eat their ground turkey, I get reactive. Yesterday I called again. The woman was nice but told me it was a trade secret. I pressed her and told her my daddyO was a friend of Frank (he really was) and that I have life threatening food allergies and I really need to know for medical reasons. She then told me its extracts from rosemary OIL. I didn't know rosemary oil EXTRACT was 'natura'l from the plant and was not processed in anyway.

Is rosemary oil extract a 'natural ingredients"?

Is SOY a natural ingredient? SOY is listed and one of the deadly 8 allergens. Why do they allow the manufacures to mislead us? We have to complain to the FDA.

I have been writing to the FDA and complain that the word NATURAL is used to loosely in the new labeling laws, these new lables need to be modified for people with special medical dietary needs. And WE must STOP them from using the word "NATURAL" in everything from body products to what we eat.

Rosemary oil is a natural product, because you just have to press rosemary leaves (in theory) to get it out. Rosemary is a plant that grows out of the ground, and is therefore natural.

As much as you like to demonize soy, it is also natural. Soy is a plant that grows out of the ground, just like wheat or grass or hemlock or an oak tree. Soy also happens to support much of the agriculture in Arkansas (and other places).

Are their labelling policies great? No. It's a good move to complain to the FDA, and also to your local senators/congressmen. :)

Link to comment
Share on other sites
dkjones2 Newbie

I have found people react differnetly to ingredients, I have to avoid Rosemary and I never buy anything that says the words modified food starch unless it says corn otherwise it might be wheat. I also dont buy anything that is made "gummy" fruit snacks, swedish fish,gum drops, etc they may or may not go down a convor belt that had been sprinkled with flour some use sugars but most use flour.

Link to comment
Share on other sites
lovegrov Collaborator

In this case the answer was just as straight as any company can give you. Read the lable and if it doesn't say wheat, rye or barley, it's gluten-free. It couldn't be any simpler. I wish that would be the response of EVERY company.

richard

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - plumbago replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    2. - trents replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    3. - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    4. - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    5. - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,225
    • Most Online (within 30 mins)
      7,748

    jhand
    Newest Member
    jhand
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • plumbago
      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed by endoscopy and biopsy of the duodenum. So, pathology will need to weigh in. It's not diagnosed on gastroscopy. (At least, not as far as I know). Two, did you get blood tests for celiac disease? You will need to be eating gluten in order for those to be accurate. Three, where was the CT angiogram (of what)? I could go on and on, but thought I'd start there.
    • trents
      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
×
×
  • Create New...