Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Feels Like Growing Pains?

catfish

By catfish
in Related Issues & Disorders

Recommended Posts

catfish Apprentice
catfish
Posted

I wasn't sure where else to put this, but since I've been gluten-free I've started having skeletal pain, particularly in my legs, ankles and shins. I'm 33 years old but it hurts exactly like growing pains which I haven't had since childhood. I'm wondering if this could be caused by my body metabolizing calcium unlike it has been able to do previously. Are my bones making up for lost time? Has anyone else experienced anything like this or is this probably just an unrelated problem?

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


flagbabyds Collaborator
flagbabyds
Posted

I had pains exactly like that but about 10 times worse and couldmn't walk for 2 omnths

Link to comment
Share on other sites
lyndszai Apprentice
lyndszai
Posted

Im getting pains like that all the time now they started when I went back on gluten for my test ive had them for 11 days now and it really hurts.

Link to comment
Share on other sites
strack2004 Rookie
strack2004
Posted

Catfish, I still don't know if I have celiac or not, but I do have ankle, heel pains especially in my right foot that are driving me up a wall. I also have shoulder aches and aches in my hands. Since I am older (76 yesterday!) I have thought these to be arthritis. However this heel pain always gets worse when I eat more heavily of gluten. I have been tested for celiac with the blood tests at Mayos, they are in the very low negative range. Am debating whether to go with the diet anyway since gluten does seem to affect my heel/ankle pain. Have had that before and had cortisone shots. Don't want to do the shots anymore. Also may explore further testing at entero labs or possibly ask to have a biopsy at Mayos. I remain on the gluten until I get some more information. I have also begun to have shin pain . Don't know if this addresses your problem or not, the ankle, shin pain caught my attention. Cheers, Strack004

Link to comment
Share on other sites
karen149 Rookie
karen149
Posted

Hi,

This is happening to my daughter right now. She's only 3, but I called her endocrinologist yesterday with the same question. My daughter cries that her arms hurt and she is waking up at night with pain. The doctor said it is most likely her system getting back into growing mode and starting to absorb nutrients. :)

Link to comment
Share on other sites
  • 3 weeks later...
erica Rookie
erica
Posted

Hi, I actually have this problem when I am not off gluten. I had it for years before I knew I had celiac disease and it stopped when I went off gluten. I am now back on gluten for a short period to have an endoscopy and within 2 weeks of eating it again, my leg pains came back.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,096
    • Most Online (within 30 mins)
      7,748
    Marazoo
    Newest Member
    Marazoo
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Waiting for urgent referral.

      By trents · Posted

      Oh, okay. The lower case "b" in boots in your first post didn't lead me in the direction of a proper name. I thought maybe it was a specialty apothecary for people with pedal diseases or something.
    • Scott Adams
      50 YO Male Recently Diagnosed with Celiac Disease

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! There are other things that may cause elevated tTg-IgA levels, but in general a reaction to gluten is the culprit:    
    • cristiana
      Waiting for urgent referral.

      By cristiana · Posted

      Hi @trents Just seen this - Boot's is a chain of pharmacies in the UK, originally founded in the 19th Century by a chap with the surname, Boot.  It's a household name here in the UK and if you say you are going to Boot's everyone knows you are off to the pharmacist! Cristiana
    • Denise I
      Celiac Dietician

      By Denise I · Posted

      I am looking to find a Celiac Dietician who is affiliated with the Celiac Disease Foundation who I can set up an appointment with.  Can you possibly give some guidance on this?  Thank you!
    • Posterboy
      14 year old with Celiac & EOE still suffering...

      By Posterboy · Posted

      Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up.  His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
×
×
  • Create New...