Celiac.com Sponsor (A1):


Join eNewsletter


Celiac.com Sponsor (A1-m):



Join eNewsletter

Archived

This topic is now archived and is closed to further replies.

DingoGirl

Tazorac Cream - Anyone Ever Use This?

Recommended Posts

I have a better idea. All us celiacs need to do is point out butts towards to hurricane and let 'er rip! I am sure we have enough collective gas to blow that thing all the way down to Antartica!!!!!

YES, I will be lots of help!! :)<_<:blink::) Always a relief!! Good morning all. evie

Share this post


Link to post
Share on other sites

Karen you nut---

I have a better idea. All us celiacs need to do is point out butts towards to hurricane and let 'er rip! I am sure we have enough collective gas to blow that thing all the way down to Antartica!!!!!

Ohhh dear gawwwwddd :lol::lol:
Is it working??????????? :lol:

Karen you never cease to amaze me!

Carla so sorry your so sick. i just don't have any ideas for you sorry :(

Evie -good to see you on

judy


Judy in Southern CA

Share this post


Link to post
Share on other sites

Carla does candida make you stiff and sore when it rains/ sorry you are not feeling good. A long time ago I had cnadida and took Nystatin for a LONG time, was so long ago not really sure about those problems. do know it was my first REALLY bad health experience. Not sure Dr's i know now would knpw about that problem, do you have to watch sweets? Raing here too and even tho cooler I have to keep house shut or I might be having pnuemonia..lots of mold and that fits/ candida..right? Feel for you, hope better soon!! :)

Rinne I really want to see your quilt project on here, sounds unique. Is it of the crazy quilt pattern? Makes me wish I could work on another necktie cushion top or?? But I have too much problem with r. wrist, just read that low thyroid (I have) can cause wrist and etc problems. Just thankful I can still quilt/ our Dorcas group even if have to wear protector on wrist. Several of you mentioned the quilt program I watched and want to x out the hgtv url, sounds very interesting!! :) Has me curious. A lot of beauty in some of the quilts in books and for real. Our quilt group has quilted a bunch of quilts from another state that have been so beautiful, when one of their club leaves they make her a frienship quilt & those have been a work of art. There are only 2 of us who have made quiilts from scratch but the rest have learned the art of tiny stitches so we are in demand to quilt for others. then we can use the money we earn wherever we see the need.

Our local TTT club will be putting on a quilt show in sept., I have taken some of my quilts for display in past. have given 1 to each of 3 daughters, each of 6 gr children as twin bed quilt when small and large quitl when they got married. Just gave gr. son his a few months ago, will be married 12/31/06...wanted it out of the house so they all had theirs.

Early post got in way past subject, anyway it caught up. watching that storm down Forida way, hoping it

FIZZLES out. Have good day all. evie

Share this post


Link to post
Share on other sites

Evie, I'm not really sure. I just know that candida can get worse when it rains, but rain wouldn't affect gluten intolerance. I thought I had a candida problem, and that led me to discovering my gluten intolerance. But whether or not I really had candida, I don't know.

I'm feeling awful. I'm trying to find if there's someone I can see, but I have so little trust in docs, I don't know who to go to!


gluten-free 12/05

diagnosed with Lyme Disease 12/06

Share this post


Link to post
Share on other sites
Evie, I'm not really sure. I just know that candida can get worse when it rains, but rain wouldn't affect gluten intolerance. I thought I had a candida problem, and that led me to discovering my gluten intolerance. But whether or not I really had candida, I don't know.

I'm feeling awful. I'm trying to find if there's someone I can see, but I have so little trust in docs, I don't know who to go to!

I know what you mean about Dr's, my Univ. dr. was to have me back last month but have not heard yet. Maybe he is waiting till my 6 mo. x up from time I saw him in May. has not done as much testing as i thought he would. It is a long way up there. Still having more problems than think I should. All think that I think..

Heard on noon news that Ernesto had been down graded, that is good news, hope it stays that way..

take care all...evie :)

Share this post


Link to post
Share on other sites
Carla... you might want to ask for a B12 test... they don't usually do that with a normal CBC... just a thought.....

I don't know if he tested B12 or not, but I had read on this board that it can help, I also have read that you can't really overdose, so I started taking sublingual B12 a few days ago to see if it made a difference. So far nothing.

I like hearing thoughts though because I highly doubt that a doctor will be able to figure this out for me. If he does, it will be a first for me ever.


gluten-free 12/05

diagnosed with Lyme Disease 12/06

Share this post


Link to post
Share on other sites
I don't know if he tested B12 or not, but I had read on this board that it can help, I also have read that you can't really overdose, so I started taking sublingual B12 a few days ago to see if it made a difference. So far nothing.

I like hearing thoughts though because I highly doubt that a doctor will be able to figure this out for me. If he does, it will be a first for me ever.

CARLA, please DO get a B-12 test! If you need B-12, you probably would need a lot more than what you've been taking sublingually, at least at first. Cecile was so low on B-12 that she had to have a shot every day for a while, to get her built up. So did my sister. Any doctor can help you with this - he doesn't have to be intelligent!!! :P:P:P

Cissie

Share this post


Link to post
Share on other sites

Carla--I have to agree with being tested for B12. I know it's not on the regular panel--my doctor had to specify on the order sheet for it.

Celiacs can have Pernicous Anemia where they can't absorb the vitamin from food. The sub-lingual or pills wont work for this--only injections help. A few people on the board have this and could be of more help.

I know what you mean, though about a doctor actually figuring out the *cause* of your fatigue. they're more likely to give you something for the symptom!

But the B12, in my opinion, is worth looking into.


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

Share this post


Link to post
Share on other sites

Yes, check into b12 Carla.

I was given b12 by the holostic type doctor I went to based on my hair samples. They are injection. He gave me an injection, then I went about a month later and asked my doctor to test the blood levels. They came back normal (to them), but I don't know what the numbers were. I only had the one injection but I don't have the damage to my intestines.


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

Share this post


Link to post
Share on other sites

Hi girls....good to see everybody....

Carla - two months of not feeling well....so sorry. I would go to the naturopath, a friend has had great success with that, and look into injections also.

Cecile - - thinking and praying for you.....

Eveyrbody else - so nice to see you.....I am hungry and tired, will write later...had my job interview, it doesn't seem like a good fit...I had them describe exactly what there was to do besides answer the phones, and there wasn't much at all, except......EXCEL spreadsheets....hardly any visitors, they said maybe one a day, a very quiet office and right next door to my dad's old law firm.....many skeletons.....

But, in present state, I don't really feel fit to make decisions and brain is so muddled, can't think clearly, but I don't think this is a good one for me. In fact, in present state, I don't think I can work right away. :(

love and hugs to all of you - - thanks so much for all your support and kind words, pm's, everything - it means the world.

xoxo


SUSIE

Diagnosed January 2006

"I like nonsense. It wakes up the brain cells." ~Dr. Seuss

Share this post


Link to post
Share on other sites
Yes, check into b12 Carla.

I was given b12 by the holostic type doctor I went to based on my hair samples. They are injection. He gave me an injection, then I went about a month later and asked my doctor to test the blood levels. They came back normal (to them), but I don't know what the numbers were. I only had the one injection but I don't have the damage to my intestines.

ANDREA, you don't have to have celiac disease or gluten intolerance to have a B-12 deficiency. It's an autoimmune disease, separate from any other autoimmune disease. Maybe you should get re-tested. If you have it, you have to take shots the rest of your life. :(

Cissie

Share this post


Link to post
Share on other sites

Thanks everyone for the suggestion of getting tested for B12. Another autoimmune disease ... great ...

When I first went gluten-free, I felt much better, but have been dragging now for two months where I have too little energy to both go to the grocery and cook dinner, so Adam has to go to the grocery for me since he can't cook. Before that, I wasn't as fatigued. Does this sound normal for a B12 deficiency? Would it progressively get worse? I wonder why it would suddenly be a problem? Now, I don't know that there's been a time in the past year or so that I haven't been fatigued somewhat, but it has gotten worse steadily over the past couple months. I emailed my local celiac group and got an email from someone who lives near me who sent her phone number for a doctor recommendation ... I'll give her a call.


gluten-free 12/05

diagnosed with Lyme Disease 12/06

Share this post


Link to post
Share on other sites
Okay one more explanation... :lol: ... your liver holds enough B12 to last about 3-5 years... so depending on if and when you lost Intrisict Factor... your B12 will eventually become lower and lower... so YES.. it can and WILL get progessively worse...

But remember low B12 is a bit different then Pernicious Anemia even though they both deal with B12.

And remember to always ask your doctor don't depend on what anyone says. :)

Okay.. have been having one track mind lately... :o:lol: ... hello to everyone and please know I care about each and everyone of you...

Hurricane update... everyone is still guessing because Cuba will not let our hurricane planes fly over their air space... :blink: ... so the weather guys are just going by what they see on the radar and stuff... as soon as there is more info... I'll be posting... :D

What can cause you to lose it? I was VERY ill about 5 years ago (not celiac related -- doxycycline for 21 days) ... can illness cause you to lose it?


gluten-free 12/05

diagnosed with Lyme Disease 12/06

Share this post


Link to post
Share on other sites
Dingo wish you were on here tonight... having anxiety... uggg

I know we've talked about where you live ... but my memory is pretty bad! Did you say Tampa area? My dad is in St. Pete and owns a bar in Clearwater (I eat there btw, good steaks). You'll be fine, just a little rain by the time it gets to you!!


gluten-free 12/05

diagnosed with Lyme Disease 12/06

Share this post


Link to post
Share on other sites

There wicked, that's for sure. I was one of the first people back on South Padre Island after that category 5 years ago. Very strange, so deserted. My family is from Florida ... been there since around 1900 ... I lived there, but far enough inland that we personally didn't have any problems. We were the area they evacuated to. I was in Austin, TX when a really bad one hit, it was even a bad storm when it got to Austin. It's like tornadoes, there are the really bad ones that freak you out and make you scared of all of them, when really, most of them turn out to be scary storms, but nothing more. I'm sure you'll be okay!! You had your turn already of having a bad one!


gluten-free 12/05

diagnosed with Lyme Disease 12/06

Share this post


Link to post
Share on other sites

Celia,

I'm here too, if you need me. :):unsure:


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

Share this post


Link to post
Share on other sites

Are the folks in good health?

My dad is 78 and would be perfectly able to get himself out of a situation like that, or do the best to get himself protected.

Your son, wife and daughter would also be able to get themselves protected.

It's natural to be concerned and want to do everything possible, even when that would be too much for you. Make sure they know the ropes if they haven't been in a situation such as this before. I wouldn't be at peace either, especially if I didn't give it to Jesus. You can only do what is humanly possible, and that is the best you can do. I keep telling my daughter to do her best and that's all that is expected of her.


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

Share this post


Link to post
Share on other sites

Here's what I do, I lie down, I lie still and I count my exhalations to ten over and over again, all the while allowing myself to sink beneath my thoughts, seeing my thoughts as just reflections on the surface of the river as if I am rock settled deeply below all the rushing.

I am so glad the storm has abated and hope that it will be just a rainy night. How is the breathing going? :)

Back to reading the thread, I just wanted to say hello Cecile.


A family with Celiac disease, two brothers and two sisters.

Lyme Disease, Diagnosis October 19, 2006

May 2006 - December 2008 Gluten and Dairy Free

December 2008, while seeing improvement on the gluten free diet, I did not recover and so in December of 2008 began the SCD and now have hope for recovery.

Share this post


Link to post
Share on other sites

Do you have any excercises you are supposed to do to stave off an asthma attack? An inhaler or anything?


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

Share this post


Link to post
Share on other sites

I'm not sick of you posting :)

Yep, hurricanes are scary, no doubt about it. But you're prepared! You've done this before! YOU CAN DO IT!!! :)


Alright, don't worry even if things end up a bit too heavy

We'll all float on, alright

Well we'll float on good news is on the way...

Share this post


Link to post
Share on other sites

Dogs are such a comfort. :)


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

Share this post


Link to post
Share on other sites
Do you guys ever feel like this?

Yes, every time I travel. :)

Or think about anything stressful, such as life, the universe, and everything...

Especially since the answer is 42 :P


Alright, don't worry even if things end up a bit too heavy

We'll all float on, alright

Well we'll float on good news is on the way...

Share this post


Link to post
Share on other sites