Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Member - Long Standing Cs (long Post)


RKB-MD

Recommended Posts

Canadian Karen Community Regular

Welcome aboard! Hope we can help you with some great advice and accumulated knowledge on this board! Hope you are feeling better now too!

Karen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mythreesuns Contributor
For those who have irritating or downright hostile coworkers/ church members/ etc – just look them straight in the eye and say “steatorrhea” – when you start to define it, and they start to look ill, just laugh and walk away. If anyone DARES to hide wheat/oats/ barley and feeds it to you purposely, I’d bring them a Tupperware container with the results!

ROFLMAO!!!!! I love your attitude!

I have not been officially "diagnosed" as my blood test came out negative and the biopsy was negative (besides, it's just too rare to be likely, according to my dr.) but I have put myself on a gluten-free trial. Arthritis was the LAST STRAW FOR ME!

Welcome to the board. I look forward to feeding off your hard-earned experience!

mythreesuns Contributor
Banana Daquiri --- I'll take that medicine :D

I think it's worth taking as a preventative measure. :D

VydorScope Proficient

RKB_MD,

I have not had time to read everything in this thread, I just wanted to extend a warm welcom to you !

Guest Robbin

From a personal standpoint (no doctor stuff here), I have found that when I have glutened, either intentially or unintentially, especially over a period of time - say a week on vacation with eating out every meal - when I am in the recovery period, I sometimes get reactions to foods I had not reacted to before. For example, about 6 years ago I thought I had developed a lactose intollerance, but I can associate it to a time when I was also consuming gluten. After several months of lactaid, and gluten free, I was then able to consume all dairy with the exception of a glass of milk - that still does me in. Weird as I can add real cream or 1/2&1/2 to coffee without issue.

I am aware that there is (was) a suggestion about a genetic link to lactose intollerance and sprue.

Hi and welcome :) I am wondering if perhaps you have a little problem with casein? The cream and the half and half would have more of the fat and less of the proteins. I can have clarified butter with no problems, but the casein is as bad a problem for me as gluten. I hope you feel better soon.

btw-love the idea of banana daquiri treatment--bananas to bind the D and the alcohol to numb the pain. Maybe a Jimmy Buffet song in there somewhere, lol. Take care.

elye Community Regular

Welcome, Dr. Russ! I haven't been able to read all of this post, but I noticed several suggestions of things to ease glutening symptoms. Dr. Joseph Mercola talks a great deal about probiotics, and how a large dose of them works unbelievably well and quickly to fend off traveller's diarrhea. This may be something to try...I believe he suggested ten caplets initially, and another five an hour later, and that will take care of it. May help with us...

PJKR Newbie

An MD with an open mind!!!! Wow! Hen's teeth!There are 4 MD's in my family and I've been to a lot of medical community events and all ,but have met maybe a handful of open minded MD's. You're special!

I'm new to this forum but have been gluten-free for quite some time. Self DX. (I was right.Gluten hurts!) I'm somewhat "into" home remedies. Bananas help. I don't drink often so no help there. I avoid too much rich food (restaurants usually are) and fast food(no offence anyone) isn't worth the money you spend on icky tasting food.Except IN and OUT.In California I never got sick there unless I overdid the fries.There isn't an IN and OUT in Texas so no fast food.

My best remedy is old fashioned and should be tried in very small amounts first! Catnip tea. I'm not a feline so, no, I don't get high. My cat will tho. I put several leaves of Catmint in water,boil it,add tea and a LOT of sugar because catnip tastes hideous. In summer I pour the whole cup over a PLASTIC cup of ice for a more refreshing,cool beverage in our H*llish Texas heat in the summer.

Don't mind my spelling I'm too lazy for spell check and I'm very dyslexic. Sorry.

Cautions about Catnip/ catnip teas. Catnip is kind of like Chamomeal. It's a naturally occuring "weed" from Europe that has seditive properties. It is not hallucinogenic(no DHT or alkaloid compounds),it IS a seditive for a lot of people so don't drive,use heavy machinery or make big decisions if you feel sleepy from it!Catnip/mint isn't regulated by any government agency. You'll have to try it on your own. I have never heard of a negative reaction but I'm never looked for them or done a comprehensive study or anything. I'm just a stay-at-home-mom.

It's in the mint family. If you don't tolerate real mint,don't bother trying it.

Easy to grow in full sun. In the right areas(moist,cool,loamy acid soil where you can grow Camellias,Azaleas etc... )it will turn into it's own version of Kudzu and choke out everything else! No joke! Choke out the grass and everything. Henbit is also in the mint family and it will take over the lawn. I grow mine in a container.

Let's say you live in a hot climate with alkaline soil and want to grow it. It will take over anywhere you water on any kind of regular basis. It will even grow in a pond.

So....if you'd like to grow Catnip/mint container it. If you have great soil container it over cement.PJ


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



paw Apprentice

Welcome Dr. Russ. I read more than I post because I feel like I have a lot to learn after nearly a year gluten-free.

Thanks for joining us and I look forward to your insights and posts. I hope you feel better soon from your glutening.

queenofhearts Explorer
An MD with an open mind!!!! Wow! Hen's teeth!There are 4 MD's in my family and I've been to a lot of medical community events and all ,but have met maybe a handful of open minded MD's. You're special!

I'm new to this forum but have been gluten-free for quite some time. Self DX. (I was right.Gluten hurts!) I'm somewhat "into" home remedies. Bananas help. I don't drink often so no help there. I avoid too much rich food (restaurants usually are) and fast food(no offence anyone) isn't worth the money you spend on icky tasting food.Except IN and OUT.In California I never got sick there unless I overdid the fries.There isn't an IN and OUT in Texas so no fast food.

My best remedy is old fashioned and should be tried in very small amounts first! Catnip tea. I'm not a feline so, no, I don't get high. My cat will tho. I put several leaves of Catmint in water,boil it,add tea and a LOT of sugar because catnip tastes hideous. In summer I pour the whole cup over a PLASTIC cup of ice for a more refreshing,cool beverage in our H*llish Texas heat in the summer.

Don't mind my spelling I'm too lazy for spell check and I'm very dyslexic. Sorry.

Cautions about Catnip/ catnip teas. Catnip is kind of like Chamomeal. It's a naturally occuring "weed" from Europe that has seditive properties. It is not hallucinogenic(no DHT or alkaloid compounds),it IS a seditive for a lot of people so don't drive,use heavy machinery or make big decisions if you feel sleepy from it!Catnip/mint isn't regulated by any government agency. You'll have to try it on your own. I have never heard of a negative reaction but I'm never looked for them or done a comprehensive study or anything. I'm just a stay-at-home-mom.

It's in the mint family. If you don't tolerate real mint,don't bother trying it.

Easy to grow in full sun. In the right areas(moist,cool,loamy acid soil where you can grow Camellias,Azaleas etc... )it will turn into it's own version of Kudzu and choke out everything else! No joke! Choke out the grass and everything. Henbit is also in the mint family and it will take over the lawn. I grow mine in a container.

Let's say you live in a hot climate with alkaline soil and want to grow it. It will take over anywhere you water on any kind of regular basis. It will even grow in a pond.

So....if you'd like to grow Catnip/mint container it. If you have great soil container it over cement.PJ

Hey PJ, I have catmint in my garden. Think it's related to catnip but not exactly the same. (Cats still love to roll in it.) Do you think it would be safe to try a tea of it?

Leah

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,017
    • Most Online (within 30 mins)
      7,748

    Sjcucinotta
    Newest Member
    Sjcucinotta
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.