0
Sierra

Newbie In Portland Or Area

Rate this topic

Recommended Posts

Hi all! I'm new to the group having just been diagnosed with celiac disease last week. I know that Portland has a branch of GIG, but are there list members from the area also? I obviously missed the August meeting, but I'm hoping to get to Sept to see if it's a good group.

I'm lucky that I was diagnosed - I asked my doc to run the celiac panel to rule it out as a cause for my D but it came back positive. Then I found out my aunt has celiac disease, then my biopsy came back as a severe case with totally flattened villi. Yikes! I've been eating gluten-free for about 3 weeks now. Feeling much better overall. No more D and the horrible swelling in my ankles/feet has subsided.

I have been going through a trial by fire on eating out. I travel for work very extensively, so I eat out a lot and getting that right has been a challenge, but I'm getting better about being politely assertive with the wait staff to get what I need. I've been staying in safer territory - PF Chang's, Outback, steak places, and some Thai and Mexican food. I eat as plain as possible when in doubt. I've also discovered Lara bars! Yum!! I keep a couple of those in my purse all of the time. They carry them at the Costco by me, so that's really handy and cheap - less than a dollar a bar.

Anyway, hello to all and I'll hopefully be joining in from time to time.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hi all! I'm new to the group having just been diagnosed with celiac disease last week. I know that Portland has a branch of GIG, but are there list members from the area also? I obviously missed the August meeting, but I'm hoping to get to Sept to see if it's a good group.

I'm lucky that I was diagnosed - I asked my doc to run the celiac panel to rule it out as a cause for my D but it came back positive. Then I found out my aunt has celiac disease, then my biopsy came back as a severe case with totally flattened villi. Yikes! I've been eating gluten-free for about 3 weeks now. Feeling much better overall. No more D and the horrible swelling in my ankles/feet has subsided.

I have been going through a trial by fire on eating out. I travel for work very extensively, so I eat out a lot and getting that right has been a challenge, but I'm getting better about being politely assertive with the wait staff to get what I need. I've been staying in safer territory - PF Chang's, Outback, steak places, and some Thai and Mexican food. I eat as plain as possible when in doubt. I've also discovered Lara bars! Yum!! I keep a couple of those in my purse all of the time. They carry them at the Costco by me, so that's really handy and cheap - less than a dollar a bar.

Anyway, hello to all and I'll hopefully be joining in from time to time.

Sierra,

Welcome to the board! I'm sorry, no info for West Coast, I'm from the East Coast, but wishing you well. This is a great place with tons of helpful people!

lisa

Share this post


Link to post
Share on other sites
Hi all! I'm new to the group having just been diagnosed with celiac disease last week. I know that Portland has a branch of GIG, but are there list members from the area also? I obviously missed the August meeting, but I'm hoping to get to Sept to see if it's a good group.

I'm lucky that I was diagnosed - I asked my doc to run the celiac panel to rule it out as a cause for my D but it came back positive. Then I found out my aunt has celiac disease, then my biopsy came back as a severe case with totally flattened villi. Yikes! I've been eating gluten-free for about 3 weeks now. Feeling much better overall. No more D and the horrible swelling in my ankles/feet has subsided.

I have been going through a trial by fire on eating out. I travel for work very extensively, so I eat out a lot and getting that right has been a challenge, but I'm getting better about being politely assertive with the wait staff to get what I need. I've been staying in safer territory - PF Chang's, Outback, steak places, and some Thai and Mexican food. I eat as plain as possible when in doubt. I've also discovered Lara bars! Yum!! I keep a couple of those in my purse all of the time. They carry them at the Costco by me, so that's really handy and cheap - less than a dollar a bar.

Anyway, hello to all and I'll hopefully be joining in from time to time.

Hi Sierra,

I'm from Washington State, real close to Portland, Vancouver actually, we have meetings monthly, it's usually the 3rd saturday of the month, we're not having one in August, next one is in Sept. on the 16th at Legacy Hospital in Salmon Creek, very good meetings

Hope to see you there

Allen

Share this post


Link to post
Share on other sites

Sierra,

Welcome! :D

I'm just north of Vancouver WA but haven't been to any meetings.

There is a totally gluten free store in Vancouver that I love.....Lingonberries Market. You can look it up online. Take 205 N to exit 30 (500E) and follow through to light. After going through intersection the store is on your left. Great place and super nice people. I actually got a newsletter from there about the group that meets at Salmon Creek.

Share this post


Link to post
Share on other sites

You are so lucky to be in Portland. I'm visiting Portland right now as we speak. Staying at Kennedy School, which is neat but too loud for such a light sleeper as myself.

Anyway, here are four restaurants (there are more, but this what I printed out b4 coming down)

Hawthorn Fish House and Corbett Fish House. Really good. WE ate at Hawthorn location last night. Rice flour is used to bread the fish. Watch out for the commercially made condiments, though - they had malt vinegar which is not gluten-free, and heinze which I'm not sure of.

Grolla - 2930 NE Killingsworth Street. Expensive. Supposed to be good. Might eat there tonight. Owner has Celiac.

Andina - 1314 Glisan Street. Peruvian food. Llunch and dinner. Might have lunch there today. Medium priced.

Assaggio at 7742 SE 13th - Italian - have gluten free menu

Anyway, I envy you the Portland location - Portland is so hip about food. Also, check out www.glutenfreerestaurants.org - and make sure to suggest to any other restaurants that have gluten-free menues or are gluten friendly that they get on this website.

Good luck to you...and welcome. Oh yeah, I'm from Bellingham, WA, just about 20 minutes south of the Canadian border.

-Sherri

Share this post


Link to post
Share on other sites
Ads by Google:


Thanks to all for the welcome!

A couple of recommendations:

Bully4You - if you're still in Portland, check out http://www.portlandmetroceliacs.org and click on Restaurants. There's a list that includes the 4 from glutenfreerestaurants but also has lots more. I'm hoping to try them all!

Other local people: the New Seasons and Wild Oats health food/groceries in Tigard/Tualatin actually have a gluten-free tour of the store available. I'm setting up tours at my New Seasons now. They have neat little gluten-free tags on a lot of the gluten-free food. Not everything has a gluten-free tag, but lots do.

Also in Tualatin at the I-5 and Boones Ferry exit is a grocery called Low Carb Nation that has an extensive gluten-free selection. They even claim to have gluten-free pizza. www.lowcarbnation.com I've gone in and wandered around - found Chaos (a snack food) and that is yummy! They have taste samples of lots of stuff if you ask. The samples are all individually packaged behind the counter so it's fresh and not CC.

Share this post


Link to post
Share on other sites

Hi Sierra and other Portland area people! I'm new to this area and don't know anyone down here yet. Where and when do you find out where meetings are happening? I've never been to any. Do groups have websites where they list them? Just read about the one in Salmon Creek, I'll have to learn where that is, any in Portland? Any good doctors or clinics in this area that anyone has experienced? Thanks, Kristi

Share this post


Link to post
Share on other sites

I would like to thank you for posting about the Low Carb Nation and the Corbett Fish House. I just got back last night from a road trip. I stopped at the Corbett Fish House twice those Cheese Curds are absolutely amazing. Then just before coming home I went to the Low Carb Nation which surprised me actually. I didn't think that they woud have that many gluten free things there. I picked up some groceries and had a pizza and an ice cream sandwich. The ice cream sandwich was such a treat I had to have one since I was there eventhough it was breakfast time. I love this website because I have learned so much from it. Thanks

Karen

Share this post


Link to post
Share on other sites
Guest ~jules~

Hi sierra, looks like we were diagnosed at just about the same time, and I am from portland, living in salem...Welcome to the group! This group has already helped me so much its unbelievable...

Share this post


Link to post
Share on other sites

Hi, it seems Portland is a bit of a gluten-free mecca. I think we are lucky to be around resources. I just moved down here from the Seattle area and love it here. I am still looking for a doctor in this area so if anyone has had any good experiences PLEASE let me know.

My tips to add, I brought up the gluten-free topic with a person at New Season's market and they gave me a gluten-free tour of their store. I found out about products that I hadn't thought of before that would cross over to other shopping places... and....Widmer Brewery (such an unlikely place) currently has on tap, a gluten-free brew, some type of sorgum thing. It is left over from a contest they entered and no they won't be putting it in bottles and they will only be carrying it until it runs out, so call first to make sure they still have it. I'd stay clear of the food on the menu though. I was sooooo scared, like I was sitting in a bees nest while I was in there, surrounded by gluten, but I felt great after I had it.

Share this post


Link to post
Share on other sites


Ads by Google:


Hello My name is James. I have been doing a lot of reading on intestinal problems and have some opinion and would like to know more updated information about how to help people with the problems. I have a personal chef biz that i am going to be cooking for a couple individuals and have done alot of study but am VERY open to new advice and help, maybe some books that you could suggest. Is there a meeting i can get involved with to hear what others have to say???

My email is chycowboy@yahoo.com please let me know, any help would be invaluable to me.

Thank you

Share this post


Link to post
Share on other sites

:o

Hi all! I'm new to the group having just been diagnosed with celiac disease last week. I know that Portland has a branch of GIG, but are there list members from the area also? I obviously missed the August meeting, but I'm hoping to get to Sept to see if it's a good group.

I'm lucky that I was diagnosed - I asked my doc to run the celiac panel to rule it out as a cause for my D but it came back positive. Then I found out my aunt has celiac disease, then my biopsy came back as a severe case with totally flattened villi. Yikes! I've been eating gluten-free for about 3 weeks now. Feeling much better overall. No more D and the horrible swelling in my ankles/feet has subsided.

I have been going through a trial by fire on eating out. I travel for work very extensively, so I eat out a lot and getting that right has been a challenge, but I'm getting better about being politely assertive with the wait staff to get what I need. I've been staying in safer territory - PF Chang's, Outback, steak places, and some Thai and Mexican food. I eat as plain as possible when in doubt. I've also discovered Lara bars! Yum!! I keep a couple of those in my purse all of the time. They carry them at the Costco by me, so that's really handy and cheap - less than a dollar a bar.

Anyway, hello to all and I'll hopefully be joining in from time to time.

Hello Sierra: OregonGF here... let's talk thanks O

Share this post


Link to post
Share on other sites

Looking to visit Portland soon...I am a 1.5 year Celiac Sprue rookie and still fighting labels (I live in Germany). I can't wait until they standardize what FOOD STARCH really is.

So, back to the subject. I have Celiac, and my son has Chrone's. We would like to stay downtown and enjoy the sights and sounds. Any Gluten Free suggestions?

billy.keen@us.army.mil

Share this post


Link to post
Share on other sites
Guest Happynwgal2
Sierra,

Welcome! :D

I'm just north of Vancouver WA but haven't been to any meetings.

There is a totally gluten free store in Vancouver that I love.....Lingonberries Market. You can look it up online. Take 205 N to exit 30 (500E) and follow through to light. After going through intersection the store is on your left. Great place and super nice people. I actually got a newsletter from there about the group that meets at Salmon Creek.

Good Evening, AndreaB,

I live in Portland, and am very happy about the gluten free shopping here. One store that has not been mentioned, is Whole Foods by the new huge shopping center on the west side of I-5, the same exit as the Low Carb Market, but turn right instead of left when you come off the highway from downtown Portland.

Whole Foods have some cool cake mixes that I like... And now I need to go back to the Low Carb Market, too. Did not know that they had gluten free stuff... :P

Also, I had no idea there were meeting for Celiacs... My work schedule will probably not allow me to go, but if that changes, I will try the one in Vancouver...

Share this post


Link to post
Share on other sites

We live in SE Portland, and my son was diagnosed with celiac disease 6 months ago. We do not attend any meetings, although I am strongly considering joining a ROCK group. There is a blog devoted to gluten free living in the Portland metro area. I will post a link below. The page contains tons of useful information and also event information. We have not ventured out to restaurants yet, but I plan to go to the Hawthorn Fish House soon. The two shopping places that I cannot live without is Bob's Red Mill in Milwaukie and Whole Foods. Bob's Red Mill carries just about every imaginable gluten free flour in bulk. :D They also carry Kinnikinnick products, Tinkyada pasta, and some other gluten free goodies. Whole Foods carries Bell & Evans chicken nuggets and that alone makes it a necessary shopping destination. They have a large selection of frozen gluten free foods and also lots of pasta options. They also have some gluten free bake house products in the bakery section. I went to Low Carb nation once. It was small, but they carried things that are impossible to find in most health food stores, like Glutino products. There are many resources in Portland, we are very lucky to live here. :)

http://graindamaged.blogspot.com/

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
0

  • Who's Online   7 Members, 0 Anonymous, 267 Guests (See full list)

  • Top Posters +

  • Recent Articles

    Jefferson Adams
    Celiac.com 06/23/2018 - If you’re looking for a great gluten-free Mexican-style favorite that is sure to be a big hit at dinner or at your next potluck, try these green chili enchiladas with roasted cauliflower. The recipe calls for chicken, but they are just as delicious when made vegetarian using just the roasted cauliflower. Either way, these enchiladas will disappear fast. Roasted cauliflower gives these green chili chicken enchiladas a deep, smokey flavor that diners are sure to love.
    Ingredients:
    2 cans gluten-free green chili enchilada sauce (I use Hatch brand) 1 small head cauliflower, roasted and chopped 6 ounces chicken meat, browned ½ cup cotija cheese, crumbled ½ cup queso fresco, diced 1 medium onion, diced ⅓ cup green onions, minced ¼ cup radishes, sliced 1 tablespoon cooking oil 1 cup chopped cabbage, for serving ½ cup sliced cherry or grape tomatoes, for serving ¼ cup cilantro, chopped 1 dozen fresh corn tortillas  ⅔ cup oil, for softening tortillas 1 large avocado, cut into small chunks Note: For a tasty vegetarian version, just omit the chicken, double the roasted cauliflower, and prepare according to directions.
    Directions:
    Heat 1 tablespoon oil in a cast iron or ovenproof pan until hot.
    Add chicken and brown lightly on both sides. 
    Remove chicken to paper towels to cool.
     
    Cut cauliflower into small pieces and place in the oiled pan.
    Roast in oven at 350F until browned on both sides.
    Remove from the oven when tender. 
    Allow roasted cauliflower to cool.
    Chop cauliflower, or break into small pieces and set aside.
    Chop cooled chicken and set aside.
    Heat 1 inch of cooking oil in a small frying pan.
    When oil is hot, use a spatula to submerge a tortilla in the oil and leave only long enough to soften, about 10 seconds or so. 
    Remove soft tortilla to a paper towel and repeat with remaining tortillas.
    Pour enough enchilada sauce to coat the bottom of a large casserole pan.
    Dunk a tortilla into the sauce and cover both sides. Add more sauce as needed.
    Fill each tortilla with bits of chicken, cauliflower, onion, and queso fresco, and roll into shape.
    When pan is full of rolled enchiladas, top with remaining sauce.
    Cook at 350F until sauce bubbles.
    Remove and top with fresh cotija cheese and scallions.
    Serve with rice, beans, and cabbage, and garnish with avocado, cilantro, and sliced grape tomatoes.

     

    Roxanne Bracknell
    Celiac.com 06/22/2018 - The rise of food allergies means that many people are avoiding gluten in recent times. In fact, the number of Americans who have stopped eating gluten has tripled in eight years between 2009 and 2017.
    Whatever your rationale for avoiding gluten, whether its celiac disease, a sensitivity to the protein, or any other reason, it can be really hard to find suitable places to eat out. When you’re on holiday in a new and unknown environment, this can be near impossible. As awareness of celiac disease grows around the world, however, more and more cities are opening their doors to gluten-free lifestyles, none more so than the 10 locations on the list below.
    Perhaps unsurprisingly, the U.S is a hotbed of gluten-free options, with four cities making the top 10, as well as the Hawaiian island of Maui. Chicago, in particular, is a real haven of gluten-free fare, with 240 coeliac-safe eateries throughout this huge city. The super hip city of Portland also ranks highly on this list, with the capital of counterculture rich in gluten-free cuisine, with San Francisco and Denver also included. Outside of the states, several prominent European capitals also rank very highly on the list, including Prague, the picturesque and historic capital of the Czech Republic, which boasts the best-reviewed restaurants on this list.
    The Irish capital of Dublin, meanwhile, has the most gluten-free establishments, with a huge 330 to choose from, while Amsterdam and Barcelona also feature prominently thanks to their variety of top-notch gluten-free fodder.
    Finally, a special mention must go to Auckland, the sole representative of Australasia in this list, with the largest city in New Zealand rounding out the top 10 thanks to its 180 coeliacsafe eateries.
    The full top ten gluten-free cities are shown in the graphic below:
     

    Jefferson Adams
    Celiac.com 06/21/2018 - Would you buy a house advertised as ‘gluten-free’? Yes, there really is such a house for sale. 
    It seems a Phoenix realtor Mike D’Elena is hoping that his trendy claim will catch the eye of a buyer hungry to avoid gluten, or, at least one with a sense of humor. D’Elena said he crafted the ads as a way to “be funny and to draw attention.” The idea, D’Elena said, is to “make it memorable.” 
    Though D’Elena’s marketing seeks to capitalizes on the gluten-free trend, he knows Celiac disease is a serious health issue for some people. “[W]e’re not here to offend anybody….this is just something we're just trying to do to draw attention and do what's best for our clients," he said. 
    Still, the signs seem to be working. D'elena had fielded six offers within a few days of listing the west Phoenix home.
    "Buying can sometimes be the most stressful thing you do in your entire life so why not have some fun with it," he said. 
    What do you think? Clever? Funny?
    Read more at Arizonafamily.com.

    Advertising Banner-Ads
    Bakery On Main started in the small bakery of a natural foods market on Main Street in Glastonbury, Connecticut. Founder Michael Smulders listened when his customers with Celiac Disease would mention the lack of good tasting, gluten-free options available to them. Upon learning this, he believed that nobody should have to suffer due to any kind of food allergy or dietary need. From then on, his mission became creating delicious and fearlessly unique gluten-free products that were clean and great tasting, while still being safe for his Celiac customers!
    Premium ingredients, bakeshop delicious recipes, and happy customers were our inspiration from the beginning— and are still the cornerstones of Bakery On Main today. We are a fiercely ethical company that believes in integrity and feels that happiness and wholesome, great tasting food should be harmonious. We strive for that in everything we bake in our dedicated gluten-free facility that is GFCO Certified and SQF Level 3 Certified. We use only natural, NON-GMO Project Verified ingredients and all of our products are certified Kosher Parve, dairy and casein free, and we have recently introduced certified Organic items as well! 
    Our passion is to bake the very best products while bringing happiness to our customers, each other, and all those we meet!
    We are available during normal business hours at: 1-888-533-8118 EST.
    To learn more about us at: visit our site.

    Jefferson Adams
    Celiac.com 06/20/2018 - Currently, the only way to manage celiac disease is to eliminate gluten from the diet. That could be set to change as clinical trials begin in Australia for a new vaccine that aims to switch off the immune response to gluten. 
    The trials are set to begin at Australia’s University of the Sunshine Coast Clinical Trials Centre. The vaccine is designed to allow people with celiac disease to consume gluten with no adverse effects. A successful vaccine could be the beginning of the end for the gluten-free diet as the only currently viable treatment for celiac disease. That could be a massive breakthrough for people with celiac disease.
    USC’s Clinical Trials Centre Director Lucas Litewka said trial participants would receive an injection of the vaccine twice a week for seven weeks. The trials will be conducted alongside gastroenterologist Dr. James Daveson, who called the vaccine “a very exciting potential new therapy that has been undergoing clinical trials for several years now.”
    Dr. Daveson said the investigational vaccine might potentially restore gluten tolerance to people with celiac disease.The trial is open to adults between the ages of 18 and 70 who have clinically diagnosed celiac disease, and have followed a strict gluten-free diet for at least 12 months. Anyone interested in participating can go to www.joinourtrials.com.
    Read more at the website for Australia’s University of the Sunshine Coast Clinical Trials Centre.

    Source:
    FoodProcessing.com.au

  • Forum Statistics

    • Total Topics
      110,276
    • Total Posts
      949,869
  • Member Statistics

    • Total Members
      77,919
    • Most Online
      3,093

    Newest Member
    Kabelo
    Joined
  • Popular Now

  • Topics

  • Posts

    • Dear Cyclinglady,   thank you for your help. Yes, I am trying to find out what my underlying condition is. But the doctors don’t help at all (insurance can’t be an issu since I have ful insurance). But they closed my case with the diagnosis: nonfunctional LES with constant taking of ppis for a lifetime. But ppis are making my problems even bigger so I trying to fing out what is happening. I’ve been convincing them to test me for celiac disease and because the result was negative (only IGA testing) they ruled it out. All I have is low vitamin d, low iron, same problems as before taking ppis, nausea with ppis, still bloating with gases and burping. Ppi works only 12 hours - the biggest dose. After 12 hours burping brings more acid to my esophagus. All that doctors say is that ppis should work and don’t believe me that in my case ppis are working just half of the time. I tried to take half dose in the morning and half in the evening but half dose helps only for 6 hours. So their suggestion is: take more ppis and another medicine for motility. and case closed for them letting me desperate and completely lost. Any help appreciated, Aya  
    • Posterboy, thank you sooooo much. I can’t tell you how greatful I am for your long and detailed answer. I have many additional questions (I asked you few more additional questions in my other post about celiac and reflux) I am just trying to find my underlying condition. I am afraid I’ll have to stay with ppi for two additional months, since I have esophagitis grade b, confirmed with biopsy a week ago. It was first time that I have inflamed esophagus. Last endoscopies showed only nonfunctional LES. I think this inflamarion is because od a panic attack after drinking coffee with a lot of sugar and nausea after that. Some coffees make me sick and some don’t. I would just like to find out what relaxes my LES and what is my underlying condition.  Ppis obviously don’t help, since my problema with bloating and gases and reflux are continuing. Stomach hurts when is empty. And I have huge amount of gases 1 hour after eating and during the night 4-6 hours after last meal. Please if you have any additional idea what could it be, tell me!!! Best, aya
    • Oh, wow, thanks, I was told by my doctor that I had the "full" panel but I guess not. Unfortunately I have the type of insurance that means I have to see her again before I can do anything else and she is out on vacation until July 10 so there is almost no point in trying to make another appointment before the specialist one. I doubt urgent care would do it?
    • Thank you all for your help!!! It’s a bit clearer now.  I had problems with gases and bloating and reflux a year ago and doc prescribed Lansoprazol. He said my lower esophageal sphiincter doesn’ t work properly.  I was taking lansoprazol 30mg for half a year with huge problems with nausea and even more bloating. Than I lowered the dose to 15 for next half a year and felt better and than stopped taking them. I’ve been off for a months when I started noticing numb tongue and reflux again. So I started taking ppi again. And it’s worse again. I know I have to stop using ppi, but I think I have underlying condition that is making my bloating and reflux and I have to solve it first so that reflux, which is my biggest concern, will go away. I have been anemic long years before taking ppi, now I have low vitamin d, and quite high result IGA 16 (celiac is >20). Can be reason for low vitamin d in ppi too or is more likely because of celiac? Doctors don’t want to make any additional test because they say celiac disease can’t be the reason since this test is negative. And so I am still searching what could be my primary problem. They just want to operate my LES and that’s it for them. But I know this won’t solve my problem since the reason has to be somewhere else. The problem is that the highest dose of lansoprazole is helping me for 12 hours and not 24 like it should. It’s just making my nausea worse and doesn’t help like it should I get bloated with reflux gases, burping 1 hour after eating. My last meal of the day is at 8 p.m. And the worst reflux attac is usually around midnight and 1 a.m. Aya
    • The full celiac panel includes: TTG IGA
      TTG IGG
      DGP IGA
      DGP IGG
      EMA
      IGA A positive on any one blood test should lead to a gastroenterologist doing an endoscopy /biopsies to see if you have celiac. It looks like you are missing the DGP tests. Perhaps you can get them done while you are waiting for your gastro appointment. You could possibly have a more definitive result from them.  
  • Blog Entries

  • Upcoming Events