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mythreesuns

Ok, Now What!?

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Guest nini

ok, I have two genes for Celiac, does that mean that BOTH of my parents have it?

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ok, I have two genes for Celiac, does that mean that BOTH of my parents have it?

They each gave you one. Doesn't necessarily mean they have an active intolerance or celiac but they have a gene that predisposes them to it.


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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I'm planning on staying on the diet (despite continuing diarrhea, though not as bad as before)...

Staying on the diet? So you're gluten-free right now? This could be the reason for the negative/inconclusive results. You have to be eating gluten for blood tests and biopsys to be positive.


Gluten-Free since September 15, 2005.

Peanut-Free since July 2006.

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Staying on the diet? So you're gluten-free right now? This could be the reason for the negative/inconclusive results. You have to be eating gluten for blood tests and biopsys to be positive.

I didn't go gluten-free until several weeks after my blood test, stool test, and biopsy.


Toni

Casein free since June 2006.

Gluten free since August 2006

Egg and Soy free since October 2006.

Diagnosis of IBS May 2006.

Diagnosis of Fibromyalgia September 2006.

Negative biopsy and blood tests.

EnterLab results:

Gluten intolerance

Egg intolerance

Soy intolerance

HLA-DQ 2,1 (Subtype 2,5) which means I have one celiac gene and one sensitivity gene.

Mother of three special boys. (and not just because of their dx's)

Married 13 years to a guy who wishes we weren't all so "special!"

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