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KyKelBri2

Relief Frpm Stomach Pain

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Hello-new to site...my daughter is almost 7 years old and was diagnosed with celiac 6 months ago. It's been difficult but we are finally at a point where Kylie has about 7 staples in her diet. She is extremely picky when it comes to eating and after throwing out a ton of food we finally found some things she will eat. Kylie's symptoms have been chronic stomach aches and head aches. I truly had to fight the doctors to get her tested for ANYTHING since they believed she had these symptoms because she is shy.

My husband and I are doing everything we possibly can to keep her gluten-free. My home is not totally gluten free but I use separate pots/utensils/etc. for Kylie's food. I cook almost everything for her and freeze it. I am finally starting to feel that I can handle this (notice I say "I") until a night like tonight where Kylie is crying over her stomach aches. She still gets them occassionally and most of the time they are dull aches but tonight she was crying. I know everything she has eaten since last Saturday and I can't see where the gluten came from. I am absolutely at my wit's end over this disease!! There is nothing worse than seeing your child in pain and you can't even offer an antacid! My question is: what can I give her to help her with her pain? Anything? I'm so angry right now that I had to hold my sobbing daughter and wait for her to pass out from crying. I want to be able to offer her some sort of medication when she has a bad day. Any suggestions from anyone?

Thank you to anyone who responds!

Kelly

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I don't have any advice for pain relief, I'm sorry. :(

I wanted to find out if you have had her tested for other intolerances or allergies. It could be that she is responding to something other than possible cc. Dairy and soy are two other big ones, but you'd probably want to look at the top allergens. If you don't want the expense of testing then do a food diary/journal and record everything eaten and any possible reactions, keeping in mind that a reaction to a food could be up to three days later. Eliminate all dairy and soy first for at least 2 months, preferably 6 months or more and then reintroduce a couple weeks apart and note any possible changes or reactions.


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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Pain is very motivating. Involve that young lady in being as wary as a fox. Teach her to "interrogate" for all food that she is offered. Be sure she always has a snack (Think Organic bars are great to carry) so that she does not get hungry and eat indiscrimanately. Mom and daughter are partners in improving health.

I know the majority of the load for food prep falls to mom because I am a mom with celiac and 2 daughters with celiac.Gluten contamination may be the problem such as french fries that would be ok except if they are fried in oil that has previously had battered items fried.

Or, your daughter may have accepted/shared a food with a friend who would never intentionally make her sick. Give your daughter some friendly, cheerful "thanks, but I can't accept that food - it may have an ingredient in it that I can't eat." Where as "that food makes me sick" tends to turn people away - and you don't want your little one being ostracized over food.

I have a daughter in high school, and a daughter in college who was diagnosed in high school (finally) after 10 years and is now doing well at college.

Do you live in a city that has Whole food markets or specialty stores?

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Dairy can be a problem for Celiac's at first until they heal. I know it was for my son. Sorry she was sick. I take Pepto-bismol when my stomach hurts. I don't know if she is old enough to take a small amount, probably they would say no. Hot herb chamomile tea may help with a small amount of honey or peppermint tea. Also, a warm heating pad helps. I try and drink more water and eat lighter when gluttened.

Is she using any products, shampoo's etc, with gluten?

Sorry she was sick. As a parent, there is nothing worse then seeing your child in pain.

The first year can be up and down and take awhile to heal.

Monica

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On September 3, 2005 Western Family Acetaminiphin, Asprin, and Asprin-Free pain relievers were all gluten free. I'm not sure if they still are, but they were then. As far as name brand pain relievers go, I haven't actually called any of them, but I'm sure they will answer any questions you have.

Sorry I couldn't be more help!

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