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Non-celiac Wheat Allergies?

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My daughter is 10 months old and has weight issues for 6 months (about since starting cereal). She has tons of other celiac symptoms and it was the first test her ped ran after a CBC and MP. The results came back negative for celiac, but while we waited for the call we put her on gluten free anyway. She immediately started getting better. By day 2 she had more energy, better diapers, and just in general seemed happier, though she's always been a happy baby.

When the doc called with the negative test results I was actually stunned because of the results we were seeing. He encouraged us to stay gluten free for 2 months and plans to refer her to an allergist at her 1-year checkup. Then a week later we took her in for her lingering cold because we were leaving town and I didn't want to find out there that it was becoming an ear infection. She had gained 4 ounces in just a week on gluten free!

I was just wondering what other types of things anyone might have experience with that would react the same as celiac.


Mom to 3 girls

DD1-diagnosed by allergist 10/2006

DD4 & DD9-diagnosed by Mom 01/2007

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A wheat or gluten allergy is different from a gluten senisivity/intolerance.

If you want something in writing, contact enterolab and see what the youngest age they can test is. They say you can be gluten free for a certain length of time but I'm not sure that length of time would be the same with little ones. If you want to check it out click here.

A positive dietary response is all you need if you are satisfied with that. Did you have gene testing done?


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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As I'm sure others will point out, it is quite common for young children to get a false-negative from tests. I don't know which "official" tests are the most reliable, but you've already gotten an answer from the best test known - the gluten-free diet. I don't suppose you'd be too quick to put your child back on gluten no matter what test results you get.

For other allergies and such, I suppose dairy/lactose/casein would be among the top ones I'd be cautious about. Then there's soy, tree nuts, peanuts, corn, eggs, nightshades, etc.

I hope you get all the answers you need, and it seems like you've already made great progress.


A spherical meteorite 10 km in diameter traveling at 20 km/s has the kinetic energy equal to the calories in 550,000,000,000,000,000 Twinkies.

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My daughter is allergic to wheat. She also has Celiac, but she IS allergic to wheat as well as intolerant to it. Gluten intolerance is something that most doctors don't seem to "get" yet. She can be intolerant without having Celiac. I agree, if a gluten-free diet works... who cares what the tests say! =)


Jayhawkmom -

Mom of three....

Jay - 11

Bean - 8

Ian - 3

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Enterolab told me it takes 2-3 years for the antibodies from the gluten to clear away. My son has been gluten free for 1 year and they said he does not have to return it to his diet to be tested. DAwn

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We had a similar story just without the celiac testing. My Dd was 8-9 months old when I noticed something wasn't right. I knew it was related to items with wheat in it but wasnt' sure if it was wheat or something else. I would give her crackers, get a reaction, take her off and clear up. I did this cycle for 4 months with dr. visits inbetween. My final frustration was right after Christmas when my DD started with hives. I KNEW it was not in my mind or something to write off and so I called the dr and demanded a referral. This took us to an allergist. We 1st did a RAST test and got neg. all the way. Then we did a SPT and got neg. It was two days later that I noticed a welt in the area where #7 was tested for the SPT....wheat. She did not have immediate reactions but rather delayed. However in my testing and research I found many similar symptoms in my two other children. They too had problems over the years but were never clearly diagnosed as my youngest was as her symptoms were just so clear something was wrong and to what. Starting to piece together symptoms, diagnoses and family history I do not believe we are Celiac free. Something isn't right and I know it. Thing is my youngest DD is now gluten free and cannot be tested. But we are getting ready to test my middle DD now. #1 I think you have to follow your gut. Mothers know. #2 As some have mentioned you child has probably not been on enough wheat to cause any major damage. I know from our on again and off again cycle and my DD being so young that a biop. would show really nothing. Point is she could just be allergic which is what you wanted to know. Or it could be more. Yes her symptoms are very similar to Celiac.

Why not have you and DH tested too since your child is gluten-free?


~Kimberly~

Mom to:

DELANEY (1yr) Currently in testing. On gluten free trial diet. Possible allergy/intollerance to gluten/wheat. Allergy to dust mites and boarderline to barely and delayed reaction to wheat. Reactions to oats but no allergy. Gluten free since Feb. 2006

MEGAN (8yr) Allergies to grass, pollen, trees and Oral Allergy Syndrome to carrots. Diagnosed with "reflux"

RYAN (13yr) Outgrown food allergies. Battles hayfever and allergies to animals and diagnosed with "reflux"

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