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How Do You Convince Some One To Test?

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Hi, my name is Becca, and I've had celiac for about a year now. I didn't have any symptoms, but I'm type 1 diabetic so they screened me and caught my antibodies for celiac. The problem I'm having is that even though I have celiac, and no one else in our family does, my parents refuse to test my teenage brothers for it. After all the research we have done, and all the doctors we have seen, my parents still think that it would be too much for my brothers to "handle" if they had to go on a gluten free diet as teenagers. The silly part is is that there is a very good chance the tests could even come back negative! I was just wondering if there were any parents (or teenagers) who are currently going through testing and if any of you had siblings who had celiac and were tested because of them.

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Hi, my name is Becca, and I've had celiac for about a year now. I didn't have any symptoms, but I'm type 1 diabetic so they screened me and caught my antibodies for celiac. The problem I'm having is that even though I have celiac, and no one else in our family does, my parents refuse to test my teenage brothers for it. After all the research we have done, and all the doctors we have seen, my parents still think that it would be too much for my brothers to "handle" if they had to go on a gluten free diet as teenagers. The silly part is is that there is a very good chance the tests could even come back negative! I was just wondering if there were any parents (or teenagers) who are currently going through testing and if any of you had siblings who had celiac and were tested because of them.

It is hard to handle when people are in denial about this. I started a support group a couple of years ago. Lots of the members have siblings and children who will not go get tested because "they cannot live like that". Well, knowing that not following a gluten free diet if you do have celiac is setting you up for all sorts of health problems and possibly cancer and early death, it is important to be a little persistant. Can you talk to your brothers? Maybe they can convince them. If they are having some classical symptoms like diarrhea, stomach pain or an unexplained rash then they really do need to be screened. Though if you read here you will know that some people with celiac disease do not have any symptoms.

Good luck.

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I know that we have many teenagers on this forum that follow the gluten-free diet. As you know it is really not that hard of a diet. It just takes getting used to, to what you can and cannot have. I wish I had been diagnosed when I was young. I was sickly from birth. Told I had this, this and that and put on lots of different drugs from midlife to the Celiac diagnosis. I became the typical Celiac before I finally got diagnosed at age 62. I think that your parents need to know that undiganosed Celiac can (but not always) cause so many other auto-immune diseases. If you look below, my signature lists way too many diseases and most of them came after the Celiac diagnosis. I would think that they would not want your brothers to go through any of this, if diet can prevent it. And like you said, the tests could come up negative. Good Luck.


"Throw yourself a pity-party and you'll be the only guest." - Earlene Fowler

Diag. Celiac Disease by positive blood test 2/03/2004

Allergies - corn, soy, casein, egg whites and wheat

Morphia Scleroderma

Osteoarthritis

Hypothyroid and Hperthyroid

Essential Tremors

Asthma

Migraines

Fibromyalgia - diag. in 1978 when they called it Fibrositis

PAD Peripheral Artery Disease

Angina and Atrial Fibrillation

Gluten Ataxia

Vitiligo

Scoliosis of the spine (caused by malabsorption and it is horribly painful) This would be enough reason for someone to go gluten free.

Ocular Myastenia Gravis

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I was just wondering if there were any parents (or teenagers) who are currently going through testing and if any of you had siblings who had celiac and were tested because of them.

As a celiac parent I insisted on testing for both of my children. They were both positive. After over 3 years we convinced their Dad (asymptomatic) to get tested, positive also. My Mothers family refuses to hear anything about needing to be tested though as does my DH's very obviously celiac brother. All family members of a celiac need to be tested but ya can't hold them down and force it on them. Maybe someday the US will wake up and we will test routinely like other countries do. We would be a much healthier and wealthier country if we did.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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