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Can'tEvenEatRice!

Enterolab And False Positives?

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I've been following the recent thread about Enterolab and was wondering if there are a lot of FALSE POSITIVES with the stool testing? Has anyone known someone who received a Negative result? It seems like everyone gets a positive--however, with that said, this is a Celiac message board so naturally most people are positive. I was found positive by a blood test, but just sent in my 19 month old's stool to Enterolab. I had his blood tested first, but Quest lost part of his sample and they could not complete all the tests!!! His antigliadin antibodies were normal, but the they didn't run the transglutamise (spelling?). I didn't want him to have another blood draw so I went ahead with Enterolab. If you can receive false negatives with blood tests and false positives with stool tests, than how do you know what to believe? I guess starting the diet is the best way to go.

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One of my two daughters I had tested had a negative result. The one with symptoms had a positive result.

My question is, how do they know they have false positives with the stool tests? Do they compare them with the blood tests which have false negatives? Maybe it's just that the stool tests are more sensitive.


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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Thanks Carla! That helps a lot! I just want to feel confident about the results. My son has exzema and occasional soft bowels that cause a quick diaper rash. I guess it is my gut that is telling me it is either gluten or milk. We all know Celiac can present itself in many different ways.

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Guest nini

there is no such thing as a false positive. Enterolab is just much more sensitive at detecting gluten intolerance and the blood tests are not sensitive enough, hence the high rate of false negatives, and biopsies can too easily miss damaged areas. Dr. Fine's research is sound and his methods are proven. Just not readily accepted by the rest of the medical community yet. Give it time.

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I had my whole family except my infant son tested. Only my husband came back negative.

My infant son is the one who alerted us that something was wrong. He broke out with eczema just after 2 months of age. Allergy testing for me revealed gluten and soy allergies among others (see sig). I later tested through enterolab and found I am also intolerant to gluten and soy. I am thankful for enterolab and their services. My family didn't have obvious symptoms and my almost 4 year old had mild malabsorption. He has 2 celiac genes.

Let us know how your son's tests turn out.


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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