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moonunit

My Dilemma

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Okay, I'm pretty sure I know what you guys are going to say, but I will ask anyway. I have a dilemma.

I have tested positive through Enterolab, and my son has always been a bit fussy by nature (he's 15 months old) so I had him tested as well.

His test came back positive, but look at the numbers:

Fecal Antigliadin IGA 15 (normal <10)

Fecal Antitissue Transglutaminase 10 (normal <10)

Quantitative microscopic fecal fat 54 (normal <300)

So it looks like he's absorbing food okay, and although I know, I know, it's "like a pregnancy test, positive is positive," a 10? That's kind of like... I don't know, is that cutoff number solid as a rock, I wonder now, or a teeny bit arbitrary?

I guess now I'm trying to figure out is which is worse:

- Make his quality of live extremely difficult (one of his first words was "cracker" and he adores cheerios) when he seems to be doing okay absorption-wise and I haven't had him see a doctor yet to confirm or direct his care

OR

- Keep feeding him gluten when I can see that at least one number indicates that it might hurt him in the long run to do so

Right now I think we're in a wait-and-see place, figuring that if he is getting damage, it's minimal or will be later down the road. I would like him to be diagnosed by a doctor but the blood work only happens after age 2, right?

I guess I am mostly just looking for some opinions and some support that this is a tough spot to be in!

Thanks...

Oh, and P.S. -- Now I also wonder if I should have my daughter (age 2) tested. I would have to go through Enterolab because her pediatrician refuses to test her (MY doctors say that the + tests don't count, so since I "don't have anything wrong" my daughter has no family history to warrant testing.) This is getting expensive!


Diagnosed + via Enterolab, + via serology, - by doctors

gluten-free since August 2006 (with a test run from March-June)

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antigliadin numbers can be raised by things other than celiac. in fact, i think alot of people have anti-bodies to things that they don't have any problems with. it doesn't look to me like your son tests positive for celiac. a lot of kids are a bit fussy by nature. i am like you, and would prefer a diagnosis by a doctor. this is just my personal opinion-----but if it were me, i would not put my child on a gluten free diet based on such low numbers and "a bit fussy by nature" being his only symptom. i would probably keep it in mind, and watch for other symptoms, and have blood tests run as my child got older.


Christine

15 year old twins with celiac, diagnosed dec. 2005

11 year old daughter with celiac diagnosed dec 2005

17 year old son with celiac gene

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He is currently not having bad reactions, but it may be causing his discomfort, even if it hasn't caused damage yet. I'd at least try a gluten-free diet to see if it helps. If after a few months it's doing nothing for him, then reconsider.


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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I agree with Carla here. If he wouldn't have a reaction, it would be lower than 10. He is little, and doesn't have extensive damage yet, so his numbers are still low. Why wait with the gluten-free diet until he gets really sick?

Also, there are gluten-free versions of those foods he likes. He is too little to remember the old, gluteny versions for long.

And yes, I would definitely encourage having your daughter tested as well. Since celiac disease is genetic, that's a good thing to do. And since you have tested positive, there IS a family history to warrant testing!


I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

------------------------------------------------------------------------------------------------------------------

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